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Louise, I am sorry to hear that you are having such difficulty. I was originally diagnosed by the 's at Health Now 10 years ago and had success there. Since then I have had other challanges and have had great success with Dr. Marilyn Moss. She has a smaller practice with a more personal approach to her treatment. She is very good at finding those hidden foods that are irritating your system. She also specializes in women's issues from pregnancy to hormones and weight gain, I can't say enough good things about her. She is located in which may be a challange since you live in Oakland but hopefully you can work something out. I have copied her information from my blog.

Best wishes,

Dana

Dr. Marilyn Moss, DC

Dr Marilyn Moss, DC621 E Ave, Suite 12, CA 95008408-693-8533www.drmarilynmoss.comDr Marilyn Moss, DC specializes in hormonal evaluation and balancing, prenatal/postpartum care, infant care, and family wellness. She has designed her chiropractic protocols to support prenatal/postpartum symptoms and discomforts. She practices a gentle, relaxing style of adjustments, as well as soft tissue modalities. She further

specializes in breech, transverse or posterior positioning issues.Infant care focuses primarily on cranial work, lactation issues, colic, and sleep issues.Dr Moss approaches hormonal evaluation from a functional medicine perspective. Addressing current symptoms, patient history and appropriate lab testing, she designs diet and exercise/lifestyle planning, and nutritional supplementation to balance hormonal systems. Her patients experience renewed energy & vitality, improved sleep, decreased stress, stabilized moods, weight balancing, and overall improved quality of life.

Dana Hoppe, Owner

Gluten Free Gourmet, LLC

408-887-6141

www.gluten-free-gourmet.com

http://www.facebook.com/pages/Saratoga-CA/Gluten-Free-Gourmet-LLC/238175996382?ref=mf

http://blog.gluten-free-gourmet.com/

From: Louise Audell <louise_gd@...> Sent: Fri, August 6, 2010 11:10:19 AMSubject: [ ] Re: Bloating / Gas (HealthNow)

Hi Beatrice and Christie:Just for the record...I was *really* happy with the Health Now Medical Facility in Sunnyvale, but if anyone is considering using them, here's what I found:Their hours of business are limited and rather unworkable if you live far away. I live in Oakland and work in San Francisco so getting there was a nightmare.Initially, their phone consultations were cheaper, $50, but recently they started charging the same for phone visits as their in-person visits. I think they now charge $90-$110 for both, but I don't recall off-hand. I guess too many people were opting for the phone service for one reason or another.They'll take PPO plans, but they also charge more for their services under PPO than if you just pay cash (what a rip off!). Example: office visits cost, like, $325 under PPO, but if you pay cash, they're only

$90-$110. *Hello*! I couldn't get my benefits changed to PPO, and after some number crunching, I realized, I'd actually be paying more for PPO than if I just stuck it out with cash.Given the plan they were using for me, I had to get a loan of $1,000 to cover the first 3 months of office visits, initial exam, follow-up treatments, office visits, medications, etc.They really pushed for me to come in person all the damn time! Maybe they wanted the money 'er something. It seemed odd, because, unless you need to check me out physically, or see how I look, physically, why would you need to see me in person for every single visit if all I'm doing is an elimination diet? That didn't make any sense.The treatments did seem to work, but given the cost and time off work to get down there - juggling day care hours and a 2.5 year old - in the end I decided to take a break and try to focus on an elimination diet on my own and try using my

managed health care (less cost and closer to home).* * * * * *I'm now thinking the same things that flour, in general, is a bit of a problem, definitely diary 100%, but now I'm looking into things like seeds/nuts, soy, alcohol, honey, sugar, bananas, grapes, coconut, beans, etc. Many of these I'm starting to see caused my stomach pain, gas, bloating, reactions similar to gluten.And, the Health Now Medical Facility said, by eliminating the foods that contribute to my gas, etc. I'm basically "Starving that Blasto bug out (to die). When you get gas, etc. that means it's feeding off what you're giving it and it's growing." Ewh! Ick. Disgustingly *gross*! OMG!The medications will kill it faster, and my way is just doing the same thing, but slower, I guess, and maybe not as guaranteed?After medication, then pro-biotics, and avoiding the offending foods, this should keep the bug at bay, I was told, hopefully. But, my

health problems do seem to be greater than just gas and bloating. There is a weight issue that won't go away, no matter what I do, and my body seems to hold onto "toxins". It seems their is s "filtering" process...maybe this is related to the weight issue, I don't know.All I do know, is that how little I'm eating (not starving, but okay), and the types of foods I'm eating combined with the exercise I'm doing, etc. I should be a size 10 with clear skin and not tired. Instead I'm a size 16 and look like I binge on every Twinkie in the bulk food isle 3-5 times a day! My dietitian seemed to agree with me, "Your diet is healthy, that's for sure."* * * * * * *I'm just so frustrated, I thought I'd post the questions to this group to see if there are any other answers in the mean time.I'm just so tired of dealing with this. I'm tired of my quality of life being crap because I'm EATING! All my conversations with my boyfriend are

around food, diet, and how I'm feeling that day...and what the latest trial-and-error is this week. It's lame.I was just hoping some else might have some other advice or medical insight I can take to my new GI because it seems it's 100% up to me to manage my own health care - and be my own advocate. I have to do all the leg work and research. I'm finding over the years that most of the doctors are a joke when it comes to food-related health problems.And I do agree about the fungal infection or "infection-related" health theory. But, obviously no one really knows what to do about it, and I doubt they'll let me live off that Blasto medication forever.

Louise Audell

From: Beatrice Garth <beagarth (DOT) com> Sent: Thu, August 5, 2010 12:02:37 AMSubject: Re: [ ] Bloating / Gas - "parasite" question

Hi Louise. I a

m pretty certain there are many here who have had similar experiences whether they are saying so or not. I certainly am going through similar things with candida overgrowth.

Its a good heads up about the Health NOW Medical Center you went to. At least you know what it is you are dealing with--that is so very important. I may do so too if I don't clear the candida overgrowth out sufficiently with self care. I got messed up nearly a year ago from some too heavy antibiotics to treat an ear infection that after all was likely fungal not bacterial!

Similar to you I am on a restricted diet, off grains and even fruit at this point not to mention sugar(s) or honey etc. as well as all milk and milk products. It sucks however there are creative ways to get around it. Am learning how to make pancakes and muffins using ground up sunflower seeds. Am betting one could use pumpkin seeds too -- which are anti parasitical. Just make sure you don't use artificial sweeteners since the "cure" is far far worse than having sugar. Try using stevia as a sweetener instead.

Meanwhile have you considered taking anti inflammatory and detox herbs as well as anti-parasitical herbs to help your body deal with all this? The planned talk at Pam's upcoming celiac support group in Felton on Sat. Aug. 14th could be just the ticket to give you some very good ideas.

Bea

From: Harper <flatcat9aol (DOT) com>Subject: Re: [ ] Bloating / Gas - "parasite" question Date: Tuesday, August 3, 2010, 4:46 PM

Perhaps you mean Small Intestinal Bacteria Overgrowth (SIBO) or candida albicans overgrowth (known as yeast)? A google search for these terms and will give you a lot of information.H.

-----Original Message-----From: Louise Audell <louise_gd (DOT) com>Celiac Bay Area < >Sent: Tue, Aug 3, 2010 4:23 pmSubject: [ ] Bloating / Gas - parasite question

Hi:Just wondering if anyone else with CD has this problem, and if so, what have you done to treat it and ride yourself of it.Since having my daughter (within 3 years) and trying to remain gluten-free, I was told at one point, I had develop an overgrowth of some parasite in my small intestines. I didn't know it at the time, and it seemed like *everything* I was eating was making me boated, gain weight, and created a lot of gas (internal and external), and some stomach pains.It seemed nothing I did could get ride of this problem, and it only got worse.I was finally given something to kill the "parasite overgrowth" through Health Now Medical Center, it seemed to work...I could eat *everything* (including diary) and not get bloated. It was *heaven*. I felt NORMAL!But, I think it's since come back. Gezuz. What IS IT? What triggers it? How

can I get ride of it forever? I know all of my doctors will tell me I cannot be on that medication forever because it kills all bacteria in the gut (good and bad).What to do?If I cut out all foods that "feed" this parasite (or whatever it is), I'm down to super bland, neutral foods like brown rice and potatoes 24/7. *sigh*. I can't live like this.Anyone else with CD have this problem?

Louise

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Hi Louise,I can understand your frustration Louise! They are all out to make it convenient for t hem and think little of the patient. Of course they have to think of their insurance as well as keeping up payments on the building etc. etc. But I believe it really is hard to feel sorry for them with their expensive homes and trips to Europe etc.while folks like us suffer. The whole health system is less than best in this nation. But nevertheless, I do think the Funcitonal Med. docs are superior to the regular AMA variety. I am surprised however that they don't have them in your area. Berkeley and Oakland seem so very progressive... Maybe soon?Maybe it might be worth checking out Lefenuron for you too--maybe your Functional Medicine doctor might have an opinion about that?. If the Blasto has a chitonous exterior (like many fungi do) it could be very

helpful. I have been using it as well as a good friend of mine and my boyfriend since we all have candida overgrowth and who knows what else. It doesn't kill the fungi/yeast, however it makes the chitonous exterior become soft instead, and keeps it that way long after you stop taking the Lefenuron since it changes them by forcing them to adapt to having a soft (instead of chiton) shell. Once they have done that its a lot easier to kill them off with diet and herbs etc. Its relatively cheap. We get the Lefenuron from a nutritionist in Sweden since we want it to be gf of course! If you want the url let me know... So far we are all making real progress using it plus diet and herbs--and beleive me its not my first time through all this. Like you I am far too much of an old hand at fighting the beasties. I will let you know how it turns out as we progress. We are now on our second round. The whole thing lasts two months with three rounds of

five day doses. This plus cutting out most all carbs (except for summer squash and what is in nuts or seeds) is really helpingSome here think Lefenuron is too "untested" on humans, however its been shown to have no effect on mammals, which I think is relevant, i.e., especially since we don't have an exoskeleton! And from what I have read on the Net so far, it either works or doesn't depending on what you have got, but in no cases has it harmed anyone. In Europe its catching on, but here of course no one bothers...I will also add, there are so many products out there "approved" by the FDA and AMA that never should even be on the market like Aspartame and other artificial sweeteners--many of which actually cause you to crave carbs and get muddled, hyper or worse in the brain not to speak of blindness, diabetes, heart problems etc. The health business politics of making money by not addressing the cause of the client's

actual health issues but rather just covering up the symptoms with a variety of drugs and foo foo food floors me. Instead of doing studies on things that actually do work but cost little (like diet, herbs and this Lefenuron) they choose to study things that are questionable at best that stand to make some pharmaceutical a lot of money and keep the patients coming in on a revolving door (don't use if you have a heart condition, kidney problems etc. etc.--and

yet they use them nevertheless! since they have nothing else, and yes lets shovel on the antibiotics!). Thank god thus for the new functional med. docs! Its a paradigm change that is long overdue. Dr. Hyman by the way has a great article about the very subject on Huffington Post. I am hoping these new wave Functional Medicine docs will start collecting data and do some actual real studies!Meanwhile lucky me, I live right next door to --so thanks for the info on the local Functional Medicine docs!BeaFrom: Harper <flatcat9aol (DOT) com>Subject: Re: [ ] Bloating / Gas - "parasite" question Date: Tuesday, August 3, 2010, 4:46 PM

Perhaps you mean Small Intestinal Bacteria Overgrowth (SIBO) or candida albicans overgrowth (known as yeast)?

A google search for these terms and will give you a lot of information.

H.

-----Original Message-----

From: Louise Audell <louise_gd (DOT) com>

Celiac Bay Area < >

Sent: Tue, Aug 3, 2010 4:23 pm

Subject: [ ] Bloating / Gas - parasite question

Hi:

Just wondering if anyone else with CD has this problem, and if so, what have you done to treat it and ride yourself of it.

Since having my daughter (within 3 years) and trying to remain gluten-free, I was told at one point, I had develop an overgrowth of some parasite in my small intestines. I didn't know it at the time, and it seemed like *everything* I was eating was making me boated, gain weight, and created a lot of gas (internal and external), and some stomach pains.

It seemed nothing I did could get ride of this problem, and it only got worse.

I was finally given something to kill the "parasite overgrowth" through Health Now Medical Center, it seemed to work...I could eat *everything* (including diary) and not get bloated. It was *heaven*. I felt

NORMAL!

But, I think it's since come back. Gezuz. What IS IT? What triggers it? How can I get ride of it forever?

I know all of my doctors will tell me I cannot be on that medication forever because it kills all bacteria in the gut (good and bad).

What to do?

If I cut out all foods that "feed" this parasite (or whatever it is), I'm down to super bland, neutral foods like brown rice and potatoes 24/7. *sigh*. I can't live like this.

Anyone else with CD have this problem?

Louise

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Louise,

 

I don't usually post on here as I did find out that I don't have celiac but instead just a gluten intolerance.  I did however have a lot of luck with my gastrointestinal problems with a nutritionist in Mt. View.

 

However, I now see an excellent chiropractor and kineseologist on Piedmont Ave in Oakland named Dr. Eva Whitmore at Balance Chiropractics.  She might be able to help you and she is now in the business just to make money.  I generally see her monthly but she would start off with more frequent visits and as quickly as she can get you to monthly she will.  She charges $85 per session + supplements and does take some insurance plans.  But she is great about finding cheaper supplements and letting you defer payment if need be.

 

She has a wonderful bedside manner and was able to determine for me and my son what was going on with our food allergies, advise on diet, recommend probiotics, etc.  She works with patients on weight loss, parasites, etc.  I have heard her and my other practitioner mention that food allergies and gut disturbances can get in the way of weight loss.

 

Dr. Whitmore was a godsent to me after my son was born and helps me keep my food issues and insomnia in check.  She has some evening appts on Mondays and Wednesday and is always available by email at no charge.  She has done research for me on occasion and is very open to admitting when she is not aware of something and finding the information for me.

 

You can give her a call at (510) 450-0701

Good luck and hope you get some relief!

St.

On Fri, Aug 6, 2010 at 11:10 AM, Louise Audell <louise_gd@...> wrote:

 

Hi Beatrice and Christie:Just for the record...I was *really* happy with the Health Now Medical Facility in Sunnyvale, but if anyone is considering using them, here's what I found:

Their hours of business are limited and rather unworkable if you live far away. I live in Oakland and work in San Francisco so getting there was a nightmare.Initially, their phone consultations were cheaper, $50, but recently they started charging the same for phone visits as their in-person visits. I think they now charge $90-$110 for both, but I don't recall off-hand. I guess too many people were opting for the phone service for one reason or another.

They'll take PPO plans, but they also charge more for their services under PPO than if you just pay cash (what a rip off!). Example: office visits cost, like, $325 under PPO, but if you pay cash, they're only $90-$110. *Hello*! I couldn't get my benefits changed to PPO, and after some number crunching, I realized, I'd actually be paying more for PPO than if I just stuck it out with cash.

Given the plan they were using for me, I had to get a loan of $1,000 to cover the first 3 months of office visits, initial exam, follow-up treatments, office visits, medications, etc.They really pushed for me to come in person all the damn time! Maybe they wanted the money 'er something. It seemed odd, because, unless you need to check me out physically, or see how I look, physically, why would you need to see me in person for every single visit if all I'm doing is an elimination diet? That didn't make any sense.

The treatments did seem to work, but given the cost and time off work to get down there - juggling day care hours and a 2.5 year old - in the end I decided to take a break and try to focus on an elimination diet on my own and try using my managed health care (less cost and closer to home).

* * * * * *I'm now thinking the same things that flour, in general, is a bit of a problem, definitely diary 100%, but now I'm looking into things like seeds/nuts, soy, alcohol, honey, sugar, bananas, grapes, coconut, beans, etc. Many of these I'm starting to see caused my stomach pain, gas, bloating, reactions similar to gluten.

And, the Health Now Medical Facility said, by eliminating the foods that contribute to my gas, etc. I'm basically " Starving that Blasto bug out (to die). When you get gas, etc. that means it's feeding off what you're giving it and it's growing. " Ewh! Ick. Disgustingly *gross*! OMG!

The medications will kill it faster, and my way is just doing the same thing, but slower, I guess, and maybe not as guaranteed?After medication, then pro-biotics, and avoiding the offending foods, this should keep the bug at bay, I was told, hopefully. But, my health problems do seem to be greater than just gas and bloating. There is a weight issue that won't go away, no matter what I do, and my body seems to hold onto " toxins " . It seems their is s " filtering " process...maybe this is related to the weight issue, I don't know.

All I do know, is that how little I'm eating (not starving, but okay), and the types of foods I'm eating combined with the exercise I'm doing, etc. I should be a size 10 with clear skin and not tired. Instead I'm a size 16 and look like I binge on every Twinkie in the bulk food isle 3-5 times a day! My dietitian seemed to agree with me, " Your diet is healthy, that's for sure. "

* * * * * * *I'm just so frustrated, I thought I'd post the questions to this group to see if there are any other answers in the mean time.I'm just so tired of dealing with this. I'm tired of my quality of life being crap because I'm EATING! All my conversations with my boyfriend are around food, diet, and how I'm feeling that day...and what the latest trial-and-error is this week. It's lame.

I was just hoping some else might have some other advice or medical insight I can take to my new GI because it seems it's 100% up to me to manage my own health care - and be my own advocate. I have to do all the leg work and research. I'm finding over the years that most of the doctors are a joke when it comes to food-related health problems.

And I do agree about the fungal infection or " infection-related " health theory. But, obviously no one really knows what to do about it, and I doubt they'll let me live off that Blasto medication forever.

 Louise Audell

From: Beatrice Garth <beagarth@...>

Sent: Thu, August 5, 2010 12:02:37 AMSubject: Re: [ ] Bloating / Gas - " parasite " question

 

Hi Louise. I a

m pretty certain there are many here who have had similar experiences whether they are saying so or not. I certainly am going through similar things with candida overgrowth. 

Its a good heads up about the Health NOW  Medical Center you went to. At least you know what it is you are dealing with--that is so very important. I may do so too if I don't clear the candida overgrowth out sufficiently with self care. I got messed up nearly a year ago from some too heavy antibiotics to treat an ear infection that after all was likely fungal not bacterial!

Similar to you I am on a  restricted diet, off grains and even fruit at this point not to mention sugar(s) or honey etc. as well as all milk and milk products. It sucks however there are creative ways to get around it. Am learning how to make pancakes and muffins using  ground up sunflower seeds. Am betting one could use pumpkin seeds too -- which are anti parasitical. Just make sure you don't use artificial sweeteners since the " cure " is far far worse than having sugar. Try using stevia as a sweetener instead. 

Meanwhile have you considered taking anti inflammatory and detox herbs as well as anti-parasitical herbs to help your body deal with all this? The planned talk at Pam's upcoming celiac support group in Felton on Sat. Aug. 14th  could be just the ticket to give you some very good ideas.

Bea

From: Harper <flatcat9aol (DOT) com>Subject: Re: [ ] Bloating / Gas - " parasite " question

Date: Tuesday, August 3, 2010, 4:46 PM

 

Perhaps you mean Small Intestinal Bacteria Overgrowth (SIBO) or candida albicans overgrowth (known as yeast)? A  google search for these terms and will give you a lot of information.

H.

-----Original Message-----From: Louise Audell <louise_gd (DOT) com>Celiac Bay Area < >Sent: Tue, Aug 3, 2010 4:23 pm

Subject: [ ] Bloating / Gas - parasite question

 

Hi:Just wondering if anyone else with CD has this problem, and if so, what have you done to treat it and ride yourself of it.

Since having my daughter (within 3 years) and trying to remain gluten-free, I was told at one point, I had develop an overgrowth of some parasite in my small intestines. I didn't know it at the time, and it seemed like *everything* I was eating was making me boated, gain weight, and created a lot of gas (internal and external), and some stomach pains.

It seemed nothing I did could get ride of this problem, and it only got worse.I was finally given something to kill the " parasite overgrowth " through Health Now Medical Center, it seemed to work...I could eat *everything* (including diary) and not get bloated. It was *heaven*. I felt NORMAL!

But, I think it's since come back. Gezuz. What IS IT? What triggers it? How can I get ride of it forever? I know all of my doctors will tell me I cannot be on that medication forever because it kills all bacteria in the gut (good and bad).

What to do?If I cut out all foods that " feed " this parasite (or whatever it is), I'm down to super bland, neutral foods like brown rice and potatoes 24/7. *sigh*. I can't live like this.

Anyone else with CD have this problem?

 Louise

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