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Re: Digest Number 47

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Apologize for not jumping in sooner (on this topic) - schedule has been

quite busy.

Most / all current children with " Autism " / , have reactive immune

system, and in term various expressions of allergies. ANYTHING that cools

down those allergies can be helpful (since the allergies kick up the immune

system, in tern increasing the brain shutdown " fog, " Usually the first

step should be removal of offending items (foods), then there is a selective

place for antihistamine, cromolyn sodium, etc. for additional control.

As reflected by some of the conflict re " antihistamine " response, any agent

must be individualized to that child. I use antihistamines at night

frequently to help control PND, but I do not look upon them as a primary

agent in dealing with " Autism / " per se.

Hope this helps,

MJG

Re: Digest Number 46

from a nonparent, who used to teach l.d. kids:

some doctors find that cromolyn sodium helps with the mast cells

releasing histamine, which happens in not only the g.i. tract but

all over the respiratory tract too. THIS ISN'T a regular antihistamine,

it has a different mode of action - ask a pharmacist for details.

theoretically, if the mast cells can be calmed down and release less

histamine there are less symptoms. not sure about brain symptoms,

but there can be less diarrhea in g.i. tract, and less sneezing &

inflammation of sinuses, lungs too. ask a pharmacist. they know.

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  • 7 months later...
  • 1 month later...

Sometimes I wish I could be like that! But, I know me, and not knowing

would drive me crazier than I already am!!

>From: MagistarLudi@...

>Reply-Hepatitis Conelist

>Hepatitis Conelist

>Subject: Re: Digest Number 47

>Date: Mon, 14 Feb 2000 16:38:13 -0500 (EST)

>

> Its kinda funny but in 3+ years i have never asked what my genotype is

>or my viral counts, etc. All I know is I should be sicker than I act.

>HAPPY VALENTINES DAY

>

> " ...I dream then ask why not "

>

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Sometimes I wish I could be like that! But, I know me, and not knowing

would drive me crazier than I already am!!

>From: MagistarLudi@...

>Reply-Hepatitis Conelist

>Hepatitis Conelist

>Subject: Re: Digest Number 47

>Date: Mon, 14 Feb 2000 16:38:13 -0500 (EST)

>

> Its kinda funny but in 3+ years i have never asked what my genotype is

>or my viral counts, etc. All I know is I should be sicker than I act.

>HAPPY VALENTINES DAY

>

> " ...I dream then ask why not "

>

______________________________________________________

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Sometimes I wish I could be like that! But, I know me, and not knowing

would drive me crazier than I already am!!

>From: MagistarLudi@...

>Reply-Hepatitis Conelist

>Hepatitis Conelist

>Subject: Re: Digest Number 47

>Date: Mon, 14 Feb 2000 16:38:13 -0500 (EST)

>

> Its kinda funny but in 3+ years i have never asked what my genotype is

>or my viral counts, etc. All I know is I should be sicker than I act.

>HAPPY VALENTINES DAY

>

> " ...I dream then ask why not "

>

______________________________________________________

Get Your Private, Free Email at http://www.hotmail.com

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Sometimes I wish I could be like that! But, I know me, and not knowing

would drive me crazier than I already am!!

>From: MagistarLudi@...

>Reply-Hepatitis Conelist

>Hepatitis Conelist

>Subject: Re: Digest Number 47

>Date: Mon, 14 Feb 2000 16:38:13 -0500 (EST)

>

> Its kinda funny but in 3+ years i have never asked what my genotype is

>or my viral counts, etc. All I know is I should be sicker than I act.

>HAPPY VALENTINES DAY

>

> " ...I dream then ask why not "

>

______________________________________________________

Get Your Private, Free Email at http://www.hotmail.com

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Its kinda funny but in 3+ years i have never asked what my genotype is

or my viral counts, etc. All I know is I should be sicker than I act.

HAPPY VALENTINES DAY

" ...I dream then ask why not "

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  • 2 weeks later...

I called Ben's Sp. Ed. teacher last night and asked her if there were

any Language Masters (card readers) floating around the district. " Oh yes-

I have two if them " . I swear I'm going to tell her that I will be her end

of year cleanup person and see what else she has hidden in her classroom.

Of course, in my district they've had Intellikeys that no one there ever

learned how to use. I gave demos from my home but no one used it. (Sorry-

getting into a little rant there.)

Anyway, she sounded genuinely enthusiastic about trying some cards with

him. Don't know how things went today- she had it out when I brought PB

back from his dentist's appointment. I'll probably ask about borrowing

one. ( By the way, he did great at the dentist's- didn't make himself gag,

didn't flip himself out of the chair, and actually talked to the dentist

afterwards. I brought along two little vibrators for him to hold during

the cleaning- it worked out really well. And no cavities! But he was bad

at school before and after the appt. There's always a price that someone

has to pay...=:o )

Haha- I ran into the SLP's office because the aide had picked up a kiddie

shopping cart for PB to use in there with her own money. The aide and the

SLP were collaborating on PB's food words that he was going to need for

PECS. They had saved up empty food boxes and cartons, and had started a

game with him whereby he said or ID'd the PECS card and he got the food

item to put in the basket. Anyway, the SLP asked me to ID the food words

that were most practical for him initially. Needless to say, I was

chuckling over the timing, since we'd just covered some of this on this

list.

When I think about the ideal educational setting for PB, money and

resources be damned, I imagine a dual program. I'd love to see him get

intense one-on -one instruction from whomever would have the skills to

teach him- for reading, math, and language. And then included for

everything else, with adaptive materials provided by the Sp. Ed. teacher.

I'd like to imagine age grouped kids, of, say, ages 6-8, 7-9, 8-10, etc.,

for all - general and special ed-, whereby kids could progress at their own

pace to cover certain materials. (More like High school where kids can

choose their classes.) Then within these groups of kids there are SP. Ed,

reading specialists, tutors, etc., team teaching with the general ed

teacher. There'd be an SLP who would be itinerant to work within the

classroom, as well as an SLP to do more specialized one-on-one. There'd be

a behavior specialist who'd work with ALL the teachers to help figure out

problems before a kid gets into trouble. Then there'd be the one-on-one

specialists to do some of the intense stuff- maybe one an expert on autism,

another a reading teacher, etc. The team co-ordinator teacher would get

kids involved in team projects, encouraging collaboration. These

proficiency tests that have our schools by the throat would not exist in

their present form. There would also be " life skills " for ALL kids-

budgeting, hygiene, some of the old " home ec " curriculum- beginning in

grade school.

Anyway, time to leave my little dream and get Ben to bed. Nonni is

back home, but she is struggling with some anxiety and is begging me for

more medicine. I keep talking up all of the relaxation tricks, as her body

doesn't handle meds well and I suspect she is getting over the strong stuff

she was on for the bronchitis and pneumonia, as well as the emotional

turmoil of being away from home. At least the hospital bed arrived and has

made her bedtime so much safer. Hallelujah! No worries about falling from

the bed last night. I just wish she'd be able to get some good sleep. Me

too!

Later, friends...

MB

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  • 1 month later...
Guest guest

Hey Vivian,

I'm here in Austin, TX, and those Flipz pretzels are scrumptious!!! It does

sound like there are lot of Texas people on the list! Pretty neat!

Regards,

K in Austin, TX

> And : WHERE in Texas? There's a few of us here in Texas. Let's get

together! And, to the Teddy Graham lover--you oughta try pretzels covered with

white chocolate or almond bark (whatever it is)!! Wow--talk about addicting!!!

Yum. Where is everyone? Yours and His, Vivian, who is trying to eat more, but

finds it very difficult!!

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  • 10 months later...

Ane

Thanks for the information now at least we know that a study or paper has

been done on it. I know most Porphyria is genetic but supposedly the PCT my

husband has was not gotten that way but caused from the Hep C. I will be

looking more into that part of it now also. We see the dermatologist on

March 13th and hoping he may have some answers for us then also but plan to

find out as much as I can on the subject again before then. This

dermatologist told him that once he got the liver healed ( and he is in

remission with it) that he could help him with the PCT so maybe he will be

our answer. Thanks again for your reply - I just love this group we are

always there for each other and helps so much. Hope this finds you well.

Winne

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HCV/Porphria

I asked a friend who has been involved with HCV

for years and she says that the way to get

relief from porphia is to give blood in a

scheduled wayusually one liter at a time but

this is not standard. By letting the blood it

reduces the level of the porphians in the blood.

She and a doc here in the NW did a paper on this

combination of HCV and Porphia and HCV (they

noted some substantial amount of occurrence)

back in the very early 90's. Porphia is a

genetic disease.

Hope this helps. You might just search onthe

web for more information, although she is very

educated on this subject.

Hope this helps.

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  • 1 year later...
Guest guest

Hi All,

I would love to meet you guys in Centralia and I will try to bring a banded

friend who isn't on the Internet. If anyone needs a ride down there from

south of I-405 I can pick them up.

P.

Digest Number 47

>

>

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  • 4 weeks later...
Guest guest

I want to thank you all for your comments on

pregnancy and RS. I saw both my OB and my

rheumatologist yesterday. My OB said she

has patients with Reiters and has not

witnessed any major concerns. She

suggested I take it up with my rheum., which I

did and she said that most arthritis patients of

hers that have been pregnant, improved

during the pregnancy. She also mentioned

that although I am HLA-B27 positive, and have

the sore feet and back doesn't necessarily

mean I have RS, (it was another rheum. that

diagnosed me with it. I stopped going to her

because she told me I was refusing treatment

because I wouldn't try MTX.) Anyway my new

dr. said that if it's not RS or related, then MTX

wouldn't help anyway. There is obviously

something wrong and now I am back to

square one in trying to find out what that might

be. I will be trying a weeks worth of steriods to

see if that helps. This is frustrating! I know

you all know that already.

I do appreciate those reaching out to offer their

stories. I am so sorry that some of you are in

so much pain, or dealing with the pain of a

loved one. I hear God knows what he's doing

and that we aren't dealt things we can't deal

with.

Thank you again! =) I will continue to read

and write.

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  • 2 years later...
Guest guest

In a message dated 5/14/2004 4:07:51 PM Eastern Daylight Time, health writes:

From: Don Quai <mysticalherbalist@...>Subject: Re: Digest Number 46Guess I am just going to have to find me one and give it a whirl. Thanks MJ.Peace, love and light,Don Quai

..

..

Starbucks Coffee shops have them. also KMart and most stores.... look in the coffee makers department.

mjhhttp://foxhillfarm.us/FireBasil/

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In a message dated 5/14/2004 4:07:51 PM Eastern Daylight Time, health writes:

CONNIE: Well, i can't have that! I'm not going to giveit what it needs to live! I thought protein killed it?Boy am i confused now. Really confused because i knowit helped the last time and i know Doug Kaufman toldme that it would kill the fungus and it did. Thisdoesn't make sense to me. Not that i don't believe youbecause i do, but it goes against all the logic i havecome to know over the last 5 years.

..

..>>> Connie

Yoghurt (plain) with live acidophilus willl help heal this issue. I also suggest you read the book Patient, Heal Thyself by Jordan ND and consider Primal Defense.

www.tropicaltraditions.com

look under BOOKS

mjhhttp://foxhillfarm.us/FireBasil/

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In a message dated 5/14/2004 4:07:51 PM Eastern Daylight Time, health writes:

CONNIE: My son is 20 and has illegal drug inducedissues. I can't change nothing. It's to late. He isrebellous and doesn't think he has any thing wrongwith him. Even though he is on 5 mg's of Zyprexa. It'sfrustrating and hard to deal with and he has justabout killed me. I have been fighting for 3 years toget him off the trash they call medicine. Not only ami fighting the drug, i'm fighting a teen ager thatdoesn't want help. Well, i'm tired of fighting forhim. Now i have to fight for MY life and i need allthe help i can get. As i sit here and type this post ifeel shaky in side. In my butt area and lower back. Inmy stomach. I know this isn't right.

..

..

>>> Connie

The reality is that at 20 years of age, your son is his own person legally. Cut the apron strings for both of your well being. Let him make his own way and heal yourself.

Yes, this is tough medicine.

I get slipper elm and many other herbs from Ameriherb in Ames IA. They do not have a website. 800-267-6141

mjhhttp://foxhillfarm.us/FireBasil/

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In a message dated 5/14/2004 4:07:51 PM Eastern Daylight Time, health writes:

Date: Fri, 14 May 2004 12:25:50 -0700 (PDT) From: Suzanne <suziesgoats@...>Subject: Re: swollen fingerMalic Acid?????Janet Seidlitz <dragonhealing@...> wrote:Get some malic acid to take Suzi. It is a form of magnesium that helps joint pain and tenderness. You should probably get some astragalus too. Keep taking TT in case it is an infection.Janet

..

..

>>> Also known as apple skins and Magnesium malate. See your healthfood store. This is also helpful with Fibromyalgia Syndrome as it increases cellular energy.

mjhhttp://foxhillfarm.us/FireBasil/

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  • 11 months later...
Guest guest

Dear ,

I'd think an increase in IM would be a good idea given these numbers - plus

testing for mutation ( Sawyers lab at UCLA does this; I don't know

who else does) perhaps. I'm really sorry to hear of the increase - though

with all the new drugs coming along, it's a far less ominous finding than it

would have been even a year ago.

Love to you,

R

> Date: Fri, 22 Apr 2005 13:15:53 -0700

> From: " Lieberman " <kisocean@...>

> Subject: Freaking out

>

>

> Hi Group,

>

> I just got my latest PCR from MDACC and I have increased from .04 to .3, and

> quite honestly I am freaking out about this. I started increasing in

> December 2003 and stabilized in the last year only to jump up again. Two

> years ago I was at .0022. I am taking 400 mg Gleevec and I am wondering

> whether an increased dose would help. Any ideas?

>

>

> Dx 3-25-01

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Guest guest

To boost 's book ranking on NY Times list (which is the ultimate

test of how a book is doing) that most reporters

look at....

The best thing to do is order it from your local look store. The orders

coming in is how the NY Times

measures. So, call book stores in your local area (more than one if you

can do it) and order two or

three books from each. Those orders trigger sales records from all over

the country and thus boost

the ranking. Amazon ranking is good but NY Times is the premier place.

Bono

Message: 7 Date: Sun, 01 May 2005 02:37:31 -0000

From: "Dr. " <david@...>

Subject: Re: Where to purchase EOH--Try Amazon to boost EOH's Ranking

I think one of the best places to boost 's numbers is on amazon.com, which is widely used as a reference tool in the book industry.

It's common knowledge that if you can get a significant number of people (100-200) to buy a given title within a 24-hour period, then that book's Amazon ranking can spike to the top, giving the book a prominent position on a lot of pages.

A top Amazon ranking would also fuel the marketing engine at 's publisher.

Caveat: If you wish to buy from Amazon to boost a book's ranking, be sure to buy it new from Amazon and not from one of the "Marketplace" affiliate vendors.

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