Guest guest Posted January 22, 2000 Report Share Posted January 22, 2000 << A year or so ago, I read a similar story in regards to tourettes. A pediatric allergist in Florida was finding success in treating the symptoms with allergy shots. He is under the impression that if your child has typical allergies or asthma, they could very likely also have neurological reactions. >> A study was done which showed that allergies make TS symptoms worse and that treated allergies relieved tics. OK now here's where things get tricky. There's no way of telling if allergies Cause the tics. We do know that any sort of stress will increase tics and we also know that allergies increase stress. But no one knows if allergies Cause tics. Before my son was diagnosed with TS, while we were waiting a month for the psych apt. Mat's pediatrician put him on allergy and asthma medication to rule out the possibility of his problems being caused by untreated allergies. This was not the case and my son did indeed have TS. Knowing that allergies di indeed cause an increase in tics it is very important to treat allergies. My son has allergies and TS and is diagnosed ADHD. He still isn't dxed OCD, but I know he will be. Patti in CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2000 Report Share Posted January 22, 2000 Liz, Am I glad that you brought this up! I've been wondering how to explain all of this to the group without sounding as if I have lost my mind. We have been taking to a medical Dr.in another city that has these same beliefs. It took 6 months to finally get an appointment with her, she is so busy. The lab work that she does is unbelievable! Her belief is that because of diet, defiencies, toxins, etc. the neuropathways are affected. She thinks that should start feeling better in couple of weeks and should be able to function without all the meds. (which BTH have already started affecting his liver) Of course now I have to figure out a way that I can give him aprox. 18 different vitamin & supplement pills and capsules without him having to actually swallow all of these. I will keep you all posted to let you know how it goes.... In the meantime, 's psychiatrist has added anafranil to his other 4 meds (luvox, remeron, buspar, and klonopin). She decreased the luvox from 400mg. to 200mg. and he will have to have an ekg after the first days of starting anafranil. She also gave us the phone numbers for Dr. Rappaport and Dr. March and recommended that we call and see about a more intense plan of treatment. I just feel that at this point we have nothing to lose by trying this. will certainly be a lot healthier! Thanks for sharing this with us Liz! Take care! mary from La. Ron and Simurdiak wrote: > From: " Ron and Simurdiak " <jax@...> > > I was sitting in the waiting room at a doctor's office and picked up a > February issue of a parenting magazine ( I think it was Parent or > possibly Child). There was a very interesting article in there about > a child who was diagnosed with autism at a young age. Two psychs > verified the diagnosis.The parents started investigating alternative > causes (The father is a research scientist in the medical field) and > they decided to investigate diet.To make a long story short, they > discovered that their son was allergic to cows milk and wheat gluten. > Instead of the typical allergic reactions, this boy has cerebral > reactions. Any time he has these foods, temporary symptoms removed. > Today, the boy is a perfectly normal and healthy child. They have > now, helped more than 500 families in similar situations and have been > successful more than 50% of the time. A year or so ago, I read a > similar story in regards to tourettes. A pediatric allergist in > Florida was finding success in treating the symptoms with allergy > shots. He is under the impression that if your child has typical > allergies or asthma, they could very likely also have neurological > reactions. I know the medical community just scoffs at such notions. > When my son was diagnosed the neurolgist cautioned me that I may come > across some alternative therapies or " cures " but to ignore them. I > wish more research would be done in this area because it makes sense > to me. Whenever I read about the research that OCFoundation or the > Tourettes Assoc. is conducting, there is never anything about diet. My > kids have typical allergies so I find this very interesting. I am > just wondering how many kids with ocd or tics also have allergies. > Please let me know how many of you this would apply to. Eliz in WI > ----------------------------------------------------------------------- > [ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2000 Report Share Posted January 22, 2000 Hi , I have heard of the approach you describe, Kel's doctor has too but is reserving judgement though he is open to learning more about it. I don't know much, but thanks to my stepmother (compulsive web surfer who is going to cure my daughter since I'm taking so long about it :-), I'm aware of a doctor who uses this type of treatment. The idea is that OCD, ADD, Tourette's, cronic fatigue syndrome and autism represent neuroimmune dysfunction syndromes () that, depending on the results of immune panels and a brain scan, may be treated with diet, anti-fungal and/or anti-viral medications and low doses of SSRIs. The focus is on balancing the immune system's responses (which he believes causes the symptoms of OCD, etc.), rather than treating symptoms alone. I may call pediatric immunologists (would this be the right type of doctor?) locally to see if any support this treatment approach for OCD and wait to see what Kel's psychiatrist comes up with. The dietary part of this approach does seem to fall into the category of " can't hurt, may help, " but I don't know about the rest. Kel's doctor on the other hand is pushing me to help him nail down his tentative diagnosis of PANDAS (autoimmune OCD) since I haven't been taking Kel for blood tests during her episodes of worsening symptoms. It's true, I haven't, but until recently I thought these worsening episodes would occur during illness, instead apparently they typically occur a few weeks later. As I look back through my notes, she did have two episodes last year of worsening symptoms that happened about a month after an illness. Kel does have low-level allergies that we haven't tested for and identified, instead we were told to assume they were to one or more of the top four typical triggers (dust mites, dairy products, animal dander, and pollen) and given instructions on how to minimize these. She's had a life-long aversion to dairy products and as an infant I switched her to soy formula (supplimental feedings, she was primarily breast-fed) because the milk-based formula gave her incredible diarrhea and colic symptoms. She's prone to weird rashes and contact dermatitis. And since OCD onset she periodically runs small fevers over a few days, nothing has so far been found to account for this. The idea that immune system dysfunction may be causing or supporting her OCD is intriguing. Kathy R. in Indiana From: " Ron and Simurdiak " <jax@...> (snip) To make a long story short, they discovered that their son was allergic to cows milk and wheat gluten. Instead of the typical allergic reactions, this boy has cerebral reactions. Any time he has these foods, temporary symptoms removed. Today, the boy is a perfectly normal and healthy child. They have now, helped more than 500 families in similar situations and have been successful more than 50% of the time. A year or so ago, I read a similar story in regards to tourettes. A pediatric allergist in Florida was finding success in treating the symptoms with allergy shots. He is under the impression that if your child has typical allergies or asthma, they could very likely also have neurological reactions. I know the medical community just scoffs at such notions. When my son was diagnosed the neurolgist cautioned me that I may come across some alternative therapies or " cures " but to ignore them. I wish more research would be done in this area because it makes sense to me. Whenever I read about the research that OCFoundation or the Tourettes Assoc. is conducting, there is never anything about diet. My kids have typical allergies so I find this very interesting. I am just wondering how many kids with ocd or tics also have allergies. Please let me know how many of you this would apply to. Eliz in WI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2000 Report Share Posted January 22, 2000 Kathy & , I forgot to mention that does have allergies and asthma. He is alergic to the things that he loves most... dairy products (cheese), peanuts, eggs.. The Dr. also stated that he does not eat enough red meat and fish. He absolutely refuses to eat any seafood. Besides all the vitamins and minerals that he is taking, she has him on nystatin (to lower the yeast in the body) and something else (I forget the name) that replaces the good bacteria in the body. mary from La. Kathy wrote: > From: " Kathy " <klr@...> > > Hi , I have heard of the approach you describe, Kel's doctor > has too but is reserving judgement though he is open to learning more > about it. I don't know much, but thanks to my stepmother (compulsive > web surfer who is going to cure my daughter since I'm taking so long > about it :-), I'm aware of a doctor who uses this type of treatment. > The idea is that OCD, ADD, Tourette's, cronic fatigue syndrome and > autism represent neuroimmune dysfunction syndromes () that, > depending on the results of immune panels and a brain scan, may be > treated with diet, anti-fungal and/or anti-viral medications and low > doses of SSRIs. The focus is on balancing the immune system's > responses (which he believes causes the symptoms of OCD, etc.), rather > than treating symptoms alone. I may call pediatric immunologists > (would this be the right type of doctor?) locally to see if any > support this treatment approach for OCD and wait to see what Kel's > psychiatrist comes up with. The dietary part of this approach does > seem to fall into the category of " can't hurt, may help, " but I don't > know about the rest. Kel's doctor on the other hand is pushing me to > help him nail down his tentative diagnosis of PANDAS (autoimmune OCD) > since I haven't been taking Kel for blood tests during her episodes of > worsening symptoms. It's true, I haven't, but until recently I > thought these worsening episodes would occur during illness, instead > apparently they typically occur a few weeks later. As I look back > through my notes, she did have two episodes last year of worsening > symptoms that happened about a month after an illness. Kel does have > low-level allergies that we haven't tested for and identified, instead > we were told to assume they were to one or more of the top four > typical triggers (dust mites, dairy products, animal dander, and > pollen) and given instructions on how to minimize these. She's had a > life-long aversion to dairy products and as an infant I switched her > to soy formula (supplimental feedings, she was primarily breast-fed) > because the milk-based formula gave her incredible diarrhea and colic > symptoms. She's prone to weird rashes and contact dermatitis. And > since OCD onset she periodically runs small fevers over a few days, > nothing has so far been found to account for this. The idea that > immune system dysfunction may be causing or supporting her OCD is > intriguing. Kathy R. in Indiana > > From: " Ron and Simurdiak " <jax@...> > (snip) To make a long story short, they discovered that > their son was allergic to cows milk and wheat gluten. > Instead of the typical allergic reactions, this boy has > cerebral reactions. Any time he has these foods, temporary > symptoms removed. Today, the boy is a perfectly normal and > healthy child. They have now, helped more than 500 families > in similar situations and have been successful more than 50% > of the time. A year or so ago, I read a similar story in > regards to tourettes. A pediatric allergist in Florida was > finding success in treating the symptoms with allergy > shots. He is under the impression that if your child has > typical allergies or asthma, they could very likely also > have neurological reactions. I know the medical community > just scoffs at such notions. When my son was diagnosed the > neurolgist cautioned me that I may come across some > alternative therapies or " cures " but to ignore them. I wish > more research would be done in this area because it makes > sense to me. Whenever I read about the research that > OCFoundation or the Tourettes Assoc. is conducting, there is > never anything about diet. My kids have typical allergies so > I find this very interesting. I am just wondering how many > kids with ocd or tics also have allergies. Please let me > know how many of you this would apply to. Eliz in WI > > ----------------------------------------------------------------------- > [ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2000 Report Share Posted January 22, 2000 My son has allergies to cats and dust mitess--not to foods. Judy > Ron and Simurdiak wrote: > > From: " Ron and Simurdiak " <jax@...> > > I was sitting in the waiting room at a doctor's office and picked up a > February issue of a parenting magazine ( I think it was Parent or > possibly Child). There was a very interesting article in there about > a child who was diagnosed with autism at a young age. Two psychs > verified the diagnosis. > The parents started investigating alternative causes (The father is a > research scientist in the medical field) and they decided to > investigate diet. > > To make a long story short, they discovered that their son was > allergic to cows milk and wheat gluten. Instead of the typical > allergic reactions, this boy has cerebral reactions. Any time he has > these foods, temporary symptoms removed. Today, the boy is a > perfectly normal and healthy child. They have now, helped more than > 500 families in similar situations and have been successful more than > 50% of the time. > > A year or so ago, I read a similar story in regards to tourettes. A > pediatric allergist in Florida was finding success in treating the > symptoms with allergy shots. He is under the impression that if your > child has typical allergies or asthma, they could very likely also > have neurological reactions. > > I know the medical community just scoffs at such notions. When my > son was diagnosed the neurolgist cautioned me that I may come across > some alternative therapies or " cures " but to ignore them. I wish more > research would be done in this area because it makes sense to me. > Whenever I read about the research that OCFoundation or the Tourettes > Assoc. is conducting, there is never anything about diet. > > My kids have typical allergies so I find this very interesting. I am > just wondering how many kids with ocd or tics also have allergies. > Please let me know how many of you this would apply to. Eliz in WI > ---------------------------------------------------------------------- > [ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2000 Report Share Posted January 22, 2000 Please do keep us posted about how this comes out. I am always skeptical about these claims about diet and toxins and such, but they may help some people. I'm glad you are not giving up on traditional medicine at the same time, tho. We took Dan to see Dr. Rapoport, but she has sinced down-sized her practice so you may have better luck with Dr. March. Judy wrote: > > Liz, > > Am I glad that you brought this up! I've been wondering how to > explain all of this to the group > without sounding as if I have lost my mind. We have been taking > to a medical Dr.in another > city that has these same beliefs. It took 6 months to finally get an > appointment with her, she is so > busy. The lab work that she does is unbelievable! > > Her belief is that because of diet, defiencies, toxins, etc. the > neuropathways are affected. She thinks > that should start feeling better in couple of weeks and should be > able to function without all the > meds. (which BTH have already started affecting his liver) Of course > now I have to figure out a way > that I can give him aprox. 18 different vitamin & supplement pills and > capsules without him having to > actually swallow all of these. I will keep you all posted to let you > know how it goes.... > > In the meantime, 's psychiatrist has added anafranil to his other > 4 meds (luvox, remeron, buspar, > and klonopin). She decreased the luvox from 400mg. to 200mg. and he > will have to have an ekg after > the first days of starting anafranil. She also gave us the phone > numbers for Dr. Rappaport and Dr. March > and recommended that we call and see about a more intense plan of > treatment. > > I just feel that at this point we have nothing to lose by trying > this. will certainly be a lot healthier! > > Thanks for sharing this with us Liz! > Take care! > mary from La. > > > Ron and Simurdiak wrote: > > > From: " Ron and Simurdiak " <jax@...> > > > > I was sitting in the waiting room at a doctor's office and picked up > > a February issue of a parenting magazine ( I think it was Parent or > > possibly Child). There was a very interesting article in there > > about a child who was diagnosed with autism at a young age. Two > > psychs verified the diagnosis.The parents started investigating > > alternative causes (The father is a research scientist in the > > medical field) and they decided to investigate diet.To make a long > > story short, they discovered that their son was allergic to cows > > milk and wheat gluten. Instead of the typical allergic reactions, > > this boy has cerebral reactions. Any time he has these foods, > > temporary symptoms removed. Today, the boy is a perfectly normal > > and healthy child. They have now, helped more than 500 families in > > similar situations and have been successful more than 50% of the > > time. A year or so ago, I read a similar story in regards to > > tourettes. A pediatric allergist in Florida was finding success in > > treating the symptoms with allergy shots. He is under the > > impression that if your child has typical allergies or asthma, they > > could very likely also have neurological reactions. I know the > > medical community just scoffs at such notions. When my son was > > diagnosed the neurolgist cautioned me that I may come across some > > alternative therapies or " cures " but to ignore them. I wish more > > research would be done in this area because it makes sense to me. > > Whenever I read about the research that OCFoundation or the > > Tourettes Assoc. is conducting, there is never anything about diet. > > My kids have typical allergies so I find this very interesting. I > > am just wondering how many kids with ocd or tics also have > > allergies. Please let me know how many of you this would apply to. > > Eliz in WI > > --------------------------------------------------------------------- > > [ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2000 Report Share Posted January 22, 2000 My son's pediatrician is an allergist. He says that allergies can cause depression in kids, so I try to minimize the exposure to cats and dust mites. Not very successfully, I might add. Judy PMbeers9@... wrote: > > From: PMbeers9@... > > << A year or so ago, I read a similar story in regards to tourettes. > A > pediatric allergist in Florida was finding success in treating the > symptoms > with allergy shots. He is under the impression that if your child has > > typical allergies or asthma, they could very likely also have > neurological > reactions. >> > > A study was done which showed that allergies make TS symptoms worse > and that > treated allergies relieved tics. > > OK now here's where things get tricky. There's no way of telling if > allergies Cause the tics. We do know that any sort of stress will > increase > tics and we also know that allergies increase stress. But no one > knows if > allergies Cause tics. > > Before my son was diagnosed with TS, while we were waiting a month for > the > psych apt. Mat's pediatrician put him on allergy and asthma > medication to > rule out the possibility of his problems being caused by untreated > allergies. > This was not the case and my son did indeed have TS. > > Knowing that allergies di indeed cause an increase in tics it is very > important to treat allergies. My son has allergies and TS and is > diagnosed > ADHD. He still isn't dxed OCD, but I know he will be. > Patti in CA > ---------------------------------------------------------------------- > [ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2000 Report Share Posted January 24, 2000 Hi , Thanks for the web sites. Have stored and ready for insertion when the time comes Terry in WI Re: alergies Kathy & , I forgot to mention that does have allergies and asthma. He is alergic to the things that he loves most... dairy products (cheese), peanuts, eggs.. The Dr. also stated that he does not eat enough red meat and fish. He absolutely refuses to eat any seafood. Besides all the vitamins and minerals that he is taking, she has him on nystatin (to lower the yeast in the body) and something else (I forget the name) that replaces the good bacteria in the body. mary from La. Kathy wrote: From: " Kathy " <klr@...> Hi , I have heard of the approach you describe, Kel's doctor has too but is reserving judgement though he is open to learning more about it. I don't know much, but thanks to my stepmother (compulsive web surfer who is going to cure my daughter since I'm taking so long about it :-), I'm aware of a doctor who uses this type of treatment. The idea is that OCD, ADD, Tourette's, cronic fatigue syndrome and autism represent neuroimmune dysfunction syndromes () that, depending on the results of immune panels and a brain scan, may be treated with diet, anti-fungal and/or anti-viral medications and low doses of SSRIs. The focus is on balancing the immune system's responses (which he believes causes the symptoms of OCD, etc.), rather than treating symptoms alone. I may call pediatric immunologists (would this be the right type of doctor?) locally to see if any support this treatment approach for OCD and wait to see what Kel's psychiatrist comes up with. The dietary part of this approach does seem to fall into the category of " can't hurt, may help, " but I don't know about the rest. Kel's doctor on the other hand is pushing me to help him nail down his tentative diagnosis of PANDAS (autoimmune OCD) since I haven't been taking Kel for blood tests during her episodes of worsening symptoms. It's true, I haven't, but until recently I thought these worsening episodes would occur during illness, instead apparently they typically occur a few weeks later. As I look back through my notes, she did have two episodes last year of worsening symptoms that happened about a month after an illness. Kel does have low-level allergies that we haven't tested for and identified, instead we were told to assume they were to one or more of the top four typical triggers (dust mites, dairy products, animal dander, and pollen) and given instructions on how to minimize these. She's had a life-long aversion to dairy products and as an infant I switched her to soy formula (supplimental feedings, she was primarily breast-fed) because the milk-based formula gave her incredible diarrhea and colic symptoms. She's prone to weird rashes and contact dermatitis. And since OCD onset she periodically runs small fevers over a few days, nothing has so far been found to account for this. The idea that immune system dysfunction may be causing or supporting her OCD is intriguing. Kathy R. in Indiana From: " Ron and Simurdiak " <jax@...> (snip) To make a long story short, they discovered that their son was allergic to cows milk and wheat gluten. Instead of the typical allergic reactions, this boy has cerebral reactions. Any time he has these foods, temporary symptoms removed. Today, the boy is a perfectly normal and healthy child. They have now, helped more than 500 families in similar situations and have been successful more than 50% of the time. A year or so ago, I read a similar story in regards to tourettes. A pediatric allergist in Florida was finding success in treating the symptoms with allergy shots. He is under the impression that if your child has typical allergies or asthma, they could very likely also have neurological reactions. I know the medical community just scoffs at such notions. When my son was diagnosed the neurolgist cautioned me that I may come across some alternative therapies or " cures " but to ignore them. I wish more research would be done in this area because it makes sense to me. Whenever I read about the research that OCFoundation or the Tourettes Assoc. is conducting, there is never anything about diet. My kids have typical allergies so I find this very interesting. I am just wondering how many kids with ocd or tics also have allergies. Please let me know how many of you this would apply to. Eliz in WI ------------------------------------------------------------------------ Please click above to support our sponsor ------------------------------------------------------------------------ You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. The archives for the OCD and Parenting List may be accessed by going to . Enter your email address and password. Click on the highlighted list name and then click on index. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 With all i know now of coconut i am pretty sure i am right, but we had a salesman here last night that said his kids are highly allergic to nuts and his daughter to milk. I offered him a coconut water with acai berry in it and he passed because of th allergy afraid it qould be onhis breath 2 hours later. ??? but isn't coconut a seed? like peanuts are legumes? Shalom Quote Link to comment Share on other sites More sharing options...
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