Guest guest Posted May 1, 2001 Report Share Posted May 1, 2001 Hi, my name is Angie, I am mom to 3 wonderful children. My youngest, Peyton, was just diagnosed with extremely low growth horomone level. She is 10 months old and really hasn't grown any since she was 4 months. She is only 14lbs 7oz and 25 inches long (she was 7lbs and 19 3/4 inches at birth). We have been referred to an endocrinologist, who we will see on May 15th. Peyton's doctor has told me that she thinks it could be one of 2 things, either a tumor near her pituitary gland or pituitary dwarfism. This has come as a very big shock to me. I just went through enough medical/health issues with my middle child(she has 2 congential heart defects) and thought we were done with specialist and doctors for a while. I have been told that Peyton may have to be on growth hormones for the rest of her life. This kind of scares me, I don't know much about them but am wondering if this can be good to be on for such a long period of time. If anyone has any experience with any of this, I would love to hear it. I am trying to find as much info on it as possible. I know that we will know more once we see the endocrinologist, but I would like to be prepared ahead of time. Angie Mom to Skylar(5), Caroline (2 1/2) and Peyton Lee (10 months) Quote Link to comment Share on other sites More sharing options...
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