Guest guest Posted December 2, 2002 Report Share Posted December 2, 2002 , I just wanted to say welcome! I wouldn't put too much weight on the percentage of correction. We went with the DOC band and were never given an exact percentage of correction, even upon graduation, I think its all very subjective. I could say we feel rec'd 100% correction, or 90%, I guess it depends on how thorough you scrutinize every angle. I would focus on at least 50%- its a good number for correction, and anything higher would be icing on the cake! A lot of correction depends upon severity, age at time of band, and experience of the ortho. A variation in one of these factors could have a very different outcome for each child. I would say any amount of correction is better than nothing- so you have nothing to lose and everything to gain and the percentages will still work out in your favor. Good luck and please post some pics of your cutie when you can! ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2002 Report Share Posted December 2, 2002 > Does anyone here have Coventry insurance? We found out that Coventry > won't cover his treatment. We are wanting to fight them on this. > Has anyone fought their insurance company?? If so, what was the > outcome and how did you go about fighting them??? > > So many questions... Hi & welcome to our group! What type of helmet is your child wearing? You've started him at a good age, so hopefully you'll get good & fast correction! Check out this link to our files section, there's a whole file for a successful Conventry Ins. appeal!! I sure hope it helps Plagiocephaly/files/Help% 20Folder/INSURANCE%20HELP/ If the link doesn't work, it's in our group's " files " section " help folder " " insurance " then " Conventry " Welcome Again! Debbie Abby's mom DOCGrad MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2002 Report Share Posted December 2, 2002 Hi , Welcome to the group!! What type of helmet is in? 75-80% is a good amount! > Hi everyone - My name is . Our son , who just turned 5 > months, was diagnosed with positional plagiocephaly about a month > ago. He also has torticollis. He just received his helmet last > Wednesday. It was pretty hard to put that helmet on him, but I know > its for his own good. By becoming a member of this group, I'm hoping > to learn about everyone else's experience with plagio. I hope this > treatment works - our doctor thought he'd get around 75-80% > correction once the helmet comes off. > > Does anyone here have Coventry insurance? We found out that Coventry > won't cover his treatment. We are wanting to fight them on this. > Has anyone fought their insurance company?? If so, what was the > outcome and how did you go about fighting them??? > > So many questions... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2002 Report Share Posted December 2, 2002 > > > Does anyone here have Coventry insurance? We found out that > Coventry > > won't cover his treatment. We are wanting to fight them on this. > > Has anyone fought their insurance company?? If so, what was the > > outcome and how did you go about fighting them??? > > > > So many questions... > > > Hi & welcome to our group! > What type of helmet is your child wearing? You've started him at a > good age, so hopefully you'll get good & fast correction! > Check out this link to our files section, there's a whole file for a > successful Conventry Ins. appeal!! I sure hope it helps > Plagiocephaly/files/Help% > 20Folder/INSURANCE%20HELP/ > If the link doesn't work, it's in our group's " files " section " help > folder " " insurance " then " Conventry " > Welcome Again! > Debbie Abby's mom DOCGrad > MI Thanks for directing me to these documents. They should be useful in our appeal to Coventry. Our son is wearing the STARband, made by Orthomerica. My husband and I are thankful that we were alerted to his situation at such a young age. We're hopeful that he won't have to wear the helmet too long. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2002 Report Share Posted December 2, 2002 was fitted with the STARband helmet, made by Orthmerica. His plastic surgeon said 75-80% correction, but the people at Hanger (who does the helmets) said that was a little optimistic. What can we really expect??? > > Hi everyone - My name is . Our son , who just turned > 5 > > months, was diagnosed with positional plagiocephaly about a month > > ago. He also has torticollis. He just received his helmet last > > Wednesday. It was pretty hard to put that helmet on him, but I > know > > its for his own good. By becoming a member of this group, I'm > hoping > > to learn about everyone else's experience with plagio. I hope this > > treatment works - our doctor thought he'd get around 75-80% > > correction once the helmet comes off. > > > > Does anyone here have Coventry insurance? We found out that > Coventry > > won't cover his treatment. We are wanting to fight them on this. > > Has anyone fought their insurance company?? If so, what was the > > outcome and how did you go about fighting them??? > > > > So many questions... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2002 Report Share Posted December 2, 2002 Welcome and congrats for getting your son in a band early! Sheila & Kady (7mo) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2002 Report Share Posted December 2, 2002 Hi , It's really hard to estimate just how much correction a child will get. You really won't know until he's graduated, you might not even know 100% for sure then. It will probably be an estimate! > > > Hi everyone - My name is . Our son , who just > turned > > 5 > > > months, was diagnosed with positional plagiocephaly about a month > > > ago. He also has torticollis. He just received his helmet last > > > Wednesday. It was pretty hard to put that helmet on him, but I > > know > > > its for his own good. By becoming a member of this group, I'm > > hoping > > > to learn about everyone else's experience with plagio. I hope > this > > > treatment works - our doctor thought he'd get around 75-80% > > > correction once the helmet comes off. > > > > > > Does anyone here have Coventry insurance? We found out that > > Coventry > > > won't cover his treatment. We are wanting to fight them on > this. > > > Has anyone fought their insurance company?? If so, what was the > > > outcome and how did you go about fighting them??? > > > > > > So many questions... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2004 Report Share Posted May 5, 2004 Hi Everyone. I just joined today, also after reading the Washington Post article. I have heard about CR and it has always fascinated me. After reading the article, I decided to do some more reading and research. I have lupus and rheumatoid arthritis. I have had open heart surgery and many other surgeries, all related to my lupus and RA. I have been on prednisone for many years, and as a result have gained a lot of weight. In February I went to an endochronologist who specializes in weight loss. Since then I have been drinking 5 shakes a day, each having 110 calories. I feel terrific; lots of energy, cholesterol way, way down, blood pressure way down, and I have lost 35 lbs. I am very excited. There is a maintenance program that you have to go to for 18 months after the weight is lost. I plan of going to all of the maintenance classes. I definitely DO NOT want to gain this weight back, and I think that the only way to do it (at least for me) is calorie restriction. I feel really healthy and am very proud of my new body. I still have about 20 lbs. go, but that is ok, I will do it. I am looking forward to being a member of this group and learning as much as possible. in Los Angeles Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 The weekly and twice-weekly injectibles (Enbrel, Humira) leave the body fairly quickly, unlike the meds given by infusion (Remicade, etc.). Sierra --- In , " leatannerone " <leatanner@...> wrote: > > Hi- I have had RA for 9 years and have been on the antibiotic protocol > along with prednisone (as needed), mtx, and nsaids. I've been doing > pretty good but the joint destruction keeps getting worse. I'm > considering embrel or humira. I'm a little afraid of these but then I > was afraid of mtx too. I'd like to hear how some of you are doing on > these drugs, how long you've been on them, side effects, etc. > > One thing I don't understand is; if you get an infection you have to > stop the drug BUT what about the fact that the drug is already in your > system?? And, what about being around children who seem to always have > a cold, flu, etc. > > I'm anxious to hear from you. > > Lea > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 I've been on Enbrel for almost four years now, and it works very well for me. I have very little pain and inflammation. I can't take mtx with it because it lowers my white blood cell count too much, but the Enbrel works without it for me. I take arthritis-strength Tylenol and Tramadol occasionally. I don't have any adverse side effects and don't get sick with infections very often. But then I'm not around children a lot. When you do have an infection, you just stop the drug and don't worry about what is still in your system, because it doesn't stay in your system very long. Hope this helps, Sue On Sunday, February 4, 2007, at 08:42 AM, leatannerone wrote: > Hi- I have had RA for 9 years and have been on the antibiotic protocol > along with prednisone (as needed), mtx, and nsaids. I've been doing > pretty good but the joint destruction keeps getting worse. I'm > considering embrel or humira. I'm a little afraid of these but then I > was afraid of mtx too. I'd like to hear how some of you are doing on > these drugs, how long you've been on them, side effects, etc. > > One thing I don't understand is; if you get an infection you have to > stop the drug BUT what about the fact that the drug is already in your > system?? And, what about being around children who seem to always have > a cold, flu, etc. Quote Link to comment Share on other sites More sharing options...
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