Question

[Guest guest]

Janet,

Thank you for responding, another reply suggested the pain was from extra

pressure on the knees from flatback.

Jess

[Guest guest]

In a message dated 6/29/2003 9:39:13 PM Eastern Daylight Time,

ec_nunez@... writes:

My question is why do some people have wires on their CI and some have BTE?

Do you have a choice? Do children have a choice? I was reading the fanny pack

e-mails and the children seem to have the body ones.

Some people have wires on their cochlear implants because they didn't get

used by the implant because they might be deaf for long time, and do not

recognize speech and don't talk too well... (included lip-read) ... and that's

include

children. When a child born deaf or become deaf at young age and don't have a

language yet, and when they got the implant on, they will learn English as

their primary language (or another language if you want, LOL), and will

recognize speech and can talk well, depends on their knowledge about languages.

Well, I feel like when children born deaf, I wish they will get the implant

soon, and learn English first, not sign language because I done a some little

research, and I discovered about the young ages and old ages. A deaf person who

done knew sign language before they learn voice English, will not able to

recognize speech and may will not speak well, depends on your weak work,

HOWEVER,

if you very, very worked too hard, you might will " overwritten " your language

from sign language to voice English. I am that person and trying to

" overwritten " my brain.

Some people have to get used by the cochlear implant. The 'wires' on the

processor called " Body Worn Processor " or BWP. The BWP is very very powerful

processor that can hear very clear sounds, and learn words in English (or your

other languages, LOL), then when you get older and can understand what is the

sounds from to the processor, you might will get an upgrade to a BTE (Behind the

Ear). It doesn't matter if you don't talk very well or does talk very well when

you upgrade to a BTE ... well, it is very depended on your insurance to pay

for a BTE or upgrade if it is still in three year warranty.

Everyone does have a choice what brand of cochlear implant they want, but not

the BWP and BTE ... it is depends on your audiologist, and pathologist to see

if you is a good person and can upgrade, you can.

Children do not have choices IF they have parents, depends on children's ages.

Fanny packs is for children and adults, too, for sports activities, or don't

have a pocket for the BWP to keep it. Adults can have fanny packs, and no, we

will not make fun of adults who have fanny packs here. LOL. Smile

P.S. I added you to my Messenger so you can IM me anytime if you have

any questions or you can still post it here! Smile and my ID is

deaf2003 on Messenger.

[Guest guest]

,

Yep! I am working on a one program somebody menitiored on , that are

helping me alot, very much.

The program on the computer called " ReadPlease 2003 " . When someone said about

it, I immendaly downloaded it (It is free) and I love it!

In the past, I have Windows XP (I have it still now) and use that " Speech "

progrom, that was with Windows XP Home Edition, and everybody hates that deeper

voice. The voice called " Microsoft Sam " and everybody was very angry with me

because they hated to hearing the very deepr voice.. Well, I hated it too,

until the ReadPlease 2003 is saying around on this group. It have 4 different

voices, and I love it, and helps me learn how to voice and listen to learn to

recongize speech....

I showed everybody and they was thanking God, LOL. I showed also at my

classmates in school on one of my teacher's computer, and my teacher loved it

and

let everybody played with it! LOL. It was funny, and it was much funnier when I

typed and the computer voiced in male voice (Mike): " Who do you think

is? I think he is Onions! " and everybody laughed, because Onions is 's

nickname after our classmates gave him for fun.

It is very wonderful for me to have ReadPlease 2003. You can go to

www.readplease.com about that.

[Guest guest]

> My knees crunch and hurt when I squat down, but I thought it was just my

> age! LOL. Don't know if it's related to your surgery-I've never really

> thought about that. Maybe someone else can give us some info.

>

> Janet

> South Carolina

I recently started having severe knee problems, too. Well, not that

recently, but it happened just as my surgeon was giving me the ok to start

back with my aerobics program. Literally at the same time, my left knee

started having severe pain, and my right knee had pain that was less severe.

I went to a knee specialist (I was also under the care of a podiatrist at

the time), who diagnosed me with chondromalasia patella, along with

arthritis in both knees. It's when you lose the cushioning cartilage in the

knee, so every time you bend your knee, it's bone-on-bone, and it's

excruciating. It was pretty hard to accept having this debilitating

condition, after all I'd been through with my back. Just when I was

starting to feel better, boom! And in some ways, the knee condition is more

debilitating than the back. I'd long since learned coping mechanisms for my

back, but you really miss your knees once they're gone. Anyway, the doctor

told me that I have an unusually pronounced " X-factor " with my legs (there

is a clinical term for this, but it's basically what they call

" knock-kneed " ). This is more common in women b/c of our wider hips, and I

have it even worse than most. In fact, I think this might have contributed

to my developing scoliosis, b/c I've seen pictures of me and my

" knock-knees " at a very young age. I also have problems with my feet, also

attributed to my posture and all the rest. Right now I have no insurance at

all, so I can't have this treated. I have exercises to do, but they're not

working. I'd like to see a knee specialist at Hospital for Special Surgery,

but that won't happen until I get some coverage. I think I might need

surgery. It's really limited my mobility. That's just my experience. My

PT and my podiatrist both also told me all of this is related. You know the

song, " The knee bone's connected to the--thigh bone, the thigh bone's

connected to the--hip bone..... " and on and on. Don't we all know it!

D.

[Guest guest]

Elsa,

I know just how you feel about what happened last night. It was this

same kind of thing that made me decide to get a CI. If you can get it

done sooner, I'd go for it. The sooner you can start using a CI, the

sooner you can start learning to hear again.

There is a choice in whether you get the CIs with wires (a body worn

processor, or BWP), or the BTE processor. Some audiologists prefer to

start with a BWP because it is easier to change settings on it (volume,

sensitivity, and program), so it's easier to try different things. Most

people get a second processor, and that is usually a BTE. I have the

Clarion, and am using a BWP (5 weeks post-hook up), and will get a BTE

when the new Auria processor arrives. Now that the Auria is being

rolled out, I think it would be a better choice to get two Aurias

instead of one of each. I thought I might like not having anything on

my ear and thus like the BWP, but I don't. The wire is a pain--always

in the way, and using the restroom is always an adventure LOL! The

controls on the Auria are supposed to be easy to use, so that shouldn't

be a consideration anymore. With the Nucleus, I think a lot, if not

most, people get two BTEs. Someone more familiar with that brand could

tell you more. I'm not sure if the Med-El has a BWP or not.

I think children also have a choice (actually, their parents do), but

especially for very young children, the BWP might be safer in terms of

being able to be worn on the child's back so they can't get their hands

on it to " explore " (I have had several pieces of electronic equipment

destroyed by my curious twins when they were smaller--I still don't

trust them at age 9 LOL!).

Hope this helps.

Fisk

Atlanta, GA

CII 4/25/03, hook-up 5/27/03

[Guest guest]

,

You've done a great job with your research effort. I was at the

Research Forum at the SHHH convention this morning, and one of the

speakers was saying exactly what you are saying about learning sign

language and being implanted early. It was quite interesting.

Although it might be more difficult for you, and take longer, I'm sure

you'll be able to " overwrite " your language to spoken English thru your

determination and hard work.

Fisk

Atlanta, GA

CII 4/25/03, hook-up 5/27/03

Re: Question

Well, I feel like when children born deaf, I wish they will get the

implant

soon, and learn English first, not sign language because I done a some

little

research, and I discovered about the young ages and old ages. A deaf

person who

done knew sign language before they learn voice English, will not able

to

recognize speech and may will not speak well, depends on your weak work,

HOWEVER,

if you very, very worked too hard, you might will " overwritten " your

language

from sign language to voice English. I am that person and trying to

" overwritten " my brain.

[Guest guest]

Thanks for the link to ReadPlease. I've saved the link to check it out

when I have a chance.

Re: Question

,

Yep! I am working on a one program somebody menitiored on ,

that are

helping me alot, very much.

The program on the computer called " ReadPlease 2003 " . When someone said

about

it, I immendaly downloaded it (It is free) and I love it!

[Guest guest]

Hi, Diane,

My left knee also hurts more than my right knee. My hips also bother me. I'm

an RN and work 12-hour shifts. After one of those, I really know that I've

been on my feet!!

Hope that you can soon get some relief!

Janet

----Original Message Follows----

From: " Diane M. Stillwood " <dmstill@...>

Reply-Scoliosis Treatment

<Scoliosis Treatment >

Subject: Re: Question

Date: Sun, 29 Jun 2003 20:32:05 -0400

> My knees crunch and hurt when I squat down, but I thought it was just my

> age! LOL. Don't know if it's related to your surgery-I've never really

> thought about that. Maybe someone else can give us some info.

>

> Janet

> South Carolina

I recently started having severe knee problems, too. Well, not that

recently, but it happened just as my surgeon was giving me the ok to start

back with my aerobics program. Literally at the same time, my left knee

started having severe pain, and my right knee had pain that was less severe.

I went to a knee specialist (I was also under the care of a podiatrist at

the time), who diagnosed me with chondromalasia patella, along with

arthritis in both knees. It's when you lose the cushioning cartilage in the

knee, so every time you bend your knee, it's bone-on-bone, and it's

excruciating. It was pretty hard to accept having this debilitating

condition, after all I'd been through with my back. Just when I was

starting to feel better, boom! And in some ways, the knee condition is more

debilitating than the back. I'd long since learned coping mechanisms for my

back, but you really miss your knees once they're gone. Anyway, the doctor

told me that I have an unusually pronounced " X-factor " with my legs (there

is a clinical term for this, but it's basically what they call

" knock-kneed " ). This is more common in women b/c of our wider hips, and I

have it even worse than most. In fact, I think this might have contributed

to my developing scoliosis, b/c I've seen pictures of me and my

" knock-knees " at a very young age. I also have problems with my feet, also

attributed to my posture and all the rest. Right now I have no insurance at

all, so I can't have this treated. I have exercises to do, but they're not

working. I'd like to see a knee specialist at Hospital for Special Surgery,

but that won't happen until I get some coverage. I think I might need

surgery. It's really limited my mobility. That's just my experience. My

PT and my podiatrist both also told me all of this is related. You know the

song, " The knee bone's connected to the--thigh bone, the thigh bone's

connected to the--hip bone..... " and on and on. Don't we all know it!

D.

_________________________________________________________________

Add photos to your messages with MSN 8. Get 2 months FREE*.

http://join.msn.com/?page=features/featuredemail

[Guest guest]

In a message dated 7/4/03 3:28:10 PM, jandkdewitt@... writes:

> I was wondering if I should be taking the batteries out of my 3G at

> night when I put it in the dry aid.

>

> YESSS!!!! it's important to remove the batteries before putting it into

the dry store case

susan

[Guest guest]

In a message dated 7/4/03 3:34:35 PM, rlclark77@... writes:

> Kat,

>     You can leave the batteries in.

>

> really??? i was told the batteries could break down and mess up the

processor big time if this isn't true i'll shoot myself ever night i

take

out those little pain in the butt batteries i would love to not have to

do this

susan

[Guest guest]

Kat,

You can leave the batteries in.

*---* *---* *---* *---* *---*

If you tell the truth, you don't have to remember anything.

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@... NEW Addy!

http://home.comcast.net/~rlclark77/ NEW URL!

[Guest guest]

Well if we are talking the usual dry aid kits, leave 'em in the

3G. If talking about the Dry n Store unit, I dunno, but the advice

here as usual is...... ***Read The Manual***. LOL

*---* *---* *---* *---* *---*

Back off!! You're standing in my aura.

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@... NEW Addy!

http://home.comcast.net/~rlclark77/ NEW URL!

[Guest guest]

Kat,

I leave the batteries in at night while using the dry aid, just remove the

covers. Audi said it would cut down on the wear and tear of the 3Gs.

Sharon Myers

Kat & <jandkdewitt@...> wrote:

I was wondering if I should be taking the batteries out of my 3G at

night when I put it in the dry aid.

Also thanks for everyone's cracking responses. I think that my long

hair is causing that since I get it more in the afternoon when it's

completely dry. I may have to shave a small bit of hair since it's so

think to get a better connection on the magnet site. I'm using 2

magnets with no buffer things

Kat

[Guest guest]

Information I have already seen on several zinc-air battery

manufacturers' sites indicates that the battery compartment should be

opened at night to allowe any moisture to escape from inside the

battery. So I would say to open the battery compartment when you

place your CI in the doohickey. The batteries need drying-out, too,

if they're zinc-air.

Pete

> I was wondering if I should be taking the batteries out of my 3G at

> night when I put it in the dry aid.

>

> Also thanks for everyone's cracking responses. I think that my long

> hair is causing that since I get it more in the afternoon when it's

> completely dry. I may have to shave a small bit of hair since it's

so

> think to get a better connection on the magnet site. I'm using 2

> magnets with no buffer things

>

> Kat

[Guest guest]

You do not need to remove your batteries when putting your CI in the Dry Aid or

the Dry And Store. Drying out the batteries actually keeps them fresher longer,

but not by much. For longer term storage, the batteries must be removed because

eventually all batteries leak.

N24C

2000

[Guest guest]

This Question was:

From: Carmelita Marienski <carmelita_marienski@...>

Subject: Question

Medication arrive from manufacturers in packaging called

a) red bags

b)stock bottles

c)totes

d)generic packaging

my answer is d but I am not sure that is why I post this.

Thanks

********************************************************

My answer would be B.......because the key word in this question in my

opinion is manufacturer. The manufacturer makes the meds then packages them in

stock

bottles in whatever size production was for that run. The meds are then sent

to the warehouses for distribution . The warehouse then distributes and

delivers inem in either generic packaging (ie,paperbags) or in toteboxes with

other

meds ordered.

In my opinion, if a pharmacy has a " drop ship " from the manufacturer, then

they would arrive in a box, or super strength plastic bag with stuffing around

the container.

[Guest guest]

Hi Leah,

You are right not wearing your hearing aids because it doesn't help you

understand IF:

1. You talked to your Audiolgist / Hearing aids dispenser and tell them that

your hearing aids are not working for you.

2. If you did asked and they didn't do anything about it, find another

audiolgist / hearing aid despenser to help you out.

>

> From: LeahR1980@...

> Date: 2003/08/06 Wed AM 04:59:51 GMT-11:00

> Cochlearimplantusers , SWC_CI@...,

> CIhear

> Subject: Question

>

>

Dave Pearson

[Guest guest]

YES YES YES

I know exactly what you are talking about. It happens almost EVERY

time I eat. It is rather annoying and embarresing when I eat out.

My husband is used to it, but in public I get strange faces. Oh

well..Sorry I have no solution. Dont be afraid your endoscope will

be fine and isnt your doc putting the tube in while you are asleep

for the mamotry? That is the worst part. You will do fine. Let us

know the results.

Paige

> Hey guys,

>

> I was wondering if anybody got this...when I eat and the food gets

> really stuck, sometimes an excess of saliva fills my mouth. It

> almost feels like my cheeks feel funny too. It is so hard to

> explain. Does anyone else get this? It seems like it happens the

> most when I eat something that contains dough or is bready and

stuff.

>

>

>

> P.S. My manometry/endoscopy is on Thursday...I am so

nervous/scared!

[Guest guest]

If you feel it go through the chances are you are not retaining much if any

food in your esophagus, it's when some of the food does not go through that,

Yes there will be a lot of pressure building up and that is when I used to

have to go empty it out. It sounds like you have not reached that stage yet,

which is good.

F.

QUESTION

> How do you know if food is sitting in your esophagus? It seems to me

> that I am able to swallow pretty well after drinking water (sometimes

> lots and then I actually feel that food go down (ie pressure go away)

> but how do you know if food is sitting in your esophagus? will you

> feel pressure or anything?

> if one can continue to eat, 3 meals a day, accompanied with lots of

> water, rarely regurgitating, does that mean that the food has gone to

> the stomach?

> I appreciate all comments and will be checking periodically to see

> the responses.

> I also want to thank everyone for their responses on my other

> concerns and you have def. helped me ease my worry and concern. This

> is a great group- thanks again!

>

>

>

>

>

>

[Guest guest]

Hi Amber,

I think this is one of those areas that we are all different!

Before I had surgery, I could always feel my lower esophageal sphincter (LES) open up when the food flushed down into my stomach (I forced it down with water) and I knew when my esophagus was clear.

Post surgery, it's been a little different for me because the (LES) is open all the time and I don't get that feeling anymore of the food flushing through, but I can still feel the food in my "e", especially if I forget to drink water while I'm eating. In my case, I will start to feel a fullness in my esophagus and I will feel the need to either wash it down with water, or gurge it back up (I choose washing it down with water).

The best way to find out if you have food left in the "e" is to lay down. If I lay down and I still have food in my "e", it will come back up and I will start to cough and aspirate on it. This doesn't usually happen to me anymore since I've had surgery, I now sleep flat on my back with no night time coughing, aspiration, or regurgitation. It's wonderful. I still need to drink plenty of water though, to make sure the food all washes down, or else I will have problems.

Take Care,

Sandi in No Ca

-----Original Message-----From: ambersway01 [mailto:ambersway01@...] Sent: Wednesday, September 10, 2003 8:35 AMachalasia Subject: QUESTIONHow do you know if food is sitting in your esophagus? It seems to me that I am able to swallow pretty well after drinking water (sometimes lots and then I actually feel that food go down (ie pressure go away) but how do you know if food is sitting in your esophagus? will you feel pressure or anything?if one can continue to eat, 3 meals a day, accompanied with lots of water, rarely regurgitating, does that mean that the food has gone to the stomach?I appreciate all comments and will be checking periodically to see the responses. I also want to thank everyone for their responses on my other concerns and you have def. helped me ease my worry and concern. This is a great group- thanks again!

[Guest guest]

Hi Amber,

Back in June, I had a gastroscopy. I was very careful about fasting for more than the 12 hours recommended. I drank a few glasses of water and felt my esophagus had to be empty. I was wrong because my Doctor said I had a lot of decaying food. Like Sandi, I can feel the fullness in my esophagus. I know not to have a bite of anything or a drink or I'll lose it all. I "wait it out" until I feel the pressure go away. I know then that it is safe to have a drink of water or milk. It's very frustrating because I can't talk while I'm walking around trying to force the food down. I'm sure many of you know what I'm describing.

.

-- RE: QUESTION

Hi Amber,

I think this is one of those areas that we are all different!

Before I had surgery, I could always feel my lower esophageal sphincter (LES) open up when the food flushed down into my stomach (I forced it down with water) and I knew when my esophagus was clear.

Post surgery, it's been a little different for me because the (LES) is open all the time and I don't get that feeling anymore of the food flushing through, but I can still feel the food in my "e", especially if I forget to drink water while I'm eating. In my case, I will start to feel a fullness in my esophagus and I will feel the need to either wash it down with water, or gurge it back up (I choose washing it down with water).

The best way to find out if you have food left in the "e" is to lay down. If I lay down and I still have food in my "e", it will come back up and I will start to cough and aspirate on it. This doesn't usually happen to me anymore since I've had surgery, I now sleep flat on my back with no night time coughing, aspiration, or regurgitation. It's wonderful. I still need to drink plenty of water though, to make sure the food all washes down, or else I will have problems.

Take Care,

Sandi in No Ca

-----Original Message-----From: ambersway01 [mailto:ambersway01@...] Sent: Wednesday, September 10, 2003 8:35 AMachalasia Subject: QUESTIONHow do you know if food is sitting in your esophagus? It seems to me that I am able to swallow pretty well after drinking water (sometimes lots and then I actually feel that food go down (ie pressure go away) but how do you know if food is sitting in your esophagus? will you feel pressure or anything?if one can continue to eat, 3 meals a day, accompanied with lots of water, rarely regurgitating, does that mean that the food has gone to the stomach?I appreciate all comments and will be checking periodically to see the responses. I also want to thank everyone for their responses on my other concerns and you have def. helped me ease my worry and concern. This is a great group- thanks again!

[Guest guest]

,

I know just what you mean! Don't you hate it when someone is talking to you when you're trying to swallow? My family knows that when I'm shaking my head to say "NO" and my arms are waiving "TIME OUT", they had better leave me alone so I can concentrate. It can take alot of concentration to swallow and get it just right! This doesn't happen too much anymore now since I've had surgery, but I still remember!

I just wish I could manage to swallow without burping and gurggling so much now! It's so embarrassing!

Have a nice day!

Sandi

[Guest guest]

Then of course your husband or someone asks if you

are ok and you can only just wave your hands at them. It is frustrating. But at

least now with my husband he figures out what I am doing.

QUESTION

How do you

know if food is sitting in your esophagus? It seems to me

that I am able to swallow pretty well after drinking water (sometimes

lots and then I actually feel that food go down (ie pressure go away)

but how do you know if food is sitting in your esophagus? will you

feel pressure or anything?

if one can continue to eat, 3 meals a day, accompanied with lots of

water, rarely regurgitating, does that mean that the food has gone to

the stomach?

I appreciate all comments and will be checking periodically to see

the responses.

I also want to thank everyone for their responses on my other

concerns and you have def. helped me ease my worry and concern.

This

is a great group- thanks again!

Your use of

is subject to the

Terms of Service.

Your use of

is subject to the

Terms of Service.

____________________________________________________

IncrediMail

- Email has finally evolved - Click Here

[Guest guest]

"Second look" is done for people who have a Canal Wall Up procedure. It is to ensure the c-toma isn't growing again. It isn't necessarey for people who have Canal Wall Down, because they usually have an other opening for the surgeon to examine the ear, and do cleanings.

Lynn

-- Question

I'm reading a lot of post of people mentioning a "second look"

procedure. Does everyone have this or does it depend on where the c-

toma was before they removed it, how extensive it was, etc.? I go

back back for my 2nd follow up on Monday so hopefully if they feel

this is necessary they will tell me then but I'm curious now that

I've been reading it so much, especially these past few days.

Thanks.

[Guest guest]

Hi ,

I think the majority of people with c-toma do have a 2nd look surgery although that wasnt the case with my son. Nothing was mentioned about doing this, but he is 5 months post-op, and we just found out that the ear drum has collapsed again. We are going back in for another Tympanoplasty. During the first one, a small c-toma was found and removed and the hearing bones were all in-tact. I think maybe this was why a second surgery wasnt planned. I hope this is the case again, and they just need to repair the ear drum. We'll know soon enough I guess.. Good luck to you and your recovery..

Sincerely,

Renonda

(mom of )