Question

[Guest guest]

Larry - it's really hard to answer that question about balance. I don't think

there is any evidence anywhere that states bilateral implants improve balance

but if anyone knows of that, I'm sure they are on this list somewhere.

This really is a question for your doctor and audiologist. You were right in

the first place when you said that.

Alice

[Guest guest]

Larry,

As far as balance is concerned, I would *think* two CIs would help provide

better equilibrium, but I don't know that for certain. (I'm only basing this

assumption on the knowledge that in most cases, two HAs are better than

one.)

In regards to your problem with veering...perhaps you could work on this

with an O & M instructor? Also, I wonder if wearing a hearing aid in your

nonimplanted ear would give you more of a binaural sense of hearing? I know

you said your hearing aid provides limited benefit because of distortion,

but perhaps a *little* sound is all you need in your other ear to provide a

better sense of equilibrium.

Surgery date: 12/22/04 (19 days and counting!)

Activation date: 1/18/05

[Guest guest]

Hi, All,

I have a question, especially of those of you who were implanted and

had the implant move or actually extend outside the skin.

When I was implanted for just 2 months, I had a sharp, clear in color,

filiment type thing stick out of my skin. My audiologist dismissed it, and

no Dr was available the day I brought it to her attention. When I went to my

family dr for something else, I asked her to take care of it. She didn't

agree with me that it might be a stitch from inside working itself out until,

after quite an effort, she got it out. She said it just might be, Jackie, and

she seemed really surprised. Having had @ 10 surgeries, I'd had that sort

of thing happen to me once before, so I wasn't alarmed. My surgeon doesn't

do rechecks after the stitches are removed and all is deemed fine. So - now

- over 2 years later, I feel another sharp thing just under my skin. I'm

thinking it is another stitch!. Then I started thinking - after 2 years??

Now

I'm thinking, hmm, isn't the implanted array sortof like a thick filiment?

Could my implant be dislodged??? All the electrodes seem to be working ok.

Am I getting paranoid?

All opinions and suppositions welcome! LOL Careful, , I look

tough, but I'm really fragile! LOL Thanks, All!

Jackie

[Guest guest]

Jackie,

Make an appointment with the surgeon and get this checked out. I know you are

no going to NYU for mappings so why not make an appointment with one of the

surgeons there. I do know that stitches can take a while to come out but 2

years seems like a very long time. There should be no question in your mind.

I bet they will see you soon if you explain this the way you explained it to us.

Alice

[Guest guest]

Jackie,

You are tough and fragile at the same time. You just switch to

whichever mdoe is appropriate. And right now, its " fragile " mode. Do as

Alice says and harass the surgeon til he concedes. Hmmm, what is used to

tie the internal part to the bone to keep it from moving? Maybe it untied

itself.

(was I careful, was I? was I??)

*---* *---* *---* *---* *---*

There are two theories to arguing with women. Neither one works.

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.comcast.net/~rlclark77/

[Guest guest]

Hi Jackie

I don't know why this didn't go through .I will try again.

I have done some more thinking about your question and I think that quite likly

it is the sutures that have broken and maybe what you are feeling is the

receiver that came out of it's " nest " .What could have happened ,is that bone

growth pushed it to the surface.

My receiver was not sutured in place and that is what happened to me..evenually

it migrated downward.My electrodes were not effected.But the sound was very bad.

I would certainly have it checked by your surgeon.

Dora

Question

Hi jackie

You asked a very interesting question.

My friend ,here in mn,is going through the same thing as you Jackie.{her name is

Jackie too)It was the suture keeping her receiver in place that broke through

her skin.She had surgery done in her DR's office to remove it.Since then the

sound with her processor has not been good..had X-rays and it shows that some of

her electrodes are outside her cochlea.She will probably have reimplantation in

the spring.Her CI is about 14 yrs.Old.

I certainly would not let a reg Dr touch anymore.....I am surprised that your

Audiologist did not send you to your surgeon right away.It is very possible that

your sutures have broken.I would get to your surgeon as fast as you can.

I am sure my friend would like to hear from you..I will Email her and ask her if

it is OK to give you her Email address.

Love Dora

Dora Weber

Nucleus Volunteer Advocate

dora_weber@...

Bilateral

N22-96

N24C-01

Cochlear Otosclerosis

[Guest guest]

When I can't eat my "E" goes crazy with spasms

-- Question

Does anyone know if fasting can aggravate achalasia. Thanks foryour help.

[Guest guest]

Thanks . Another thing.. what is this about drinking alot?

My doctor never insisted on this and now I see that some of you guys

drink alot. I tend to go for 1 liter of water per day - just for my

own health. Glad to be enlightened please..

> When I can't eat my " E " goes crazy with spasms

>

> -- Question

>

>

> Does anyone know if fasting can aggravate achalasia. Thanks for

> your help.

>

>

>

>

>

>

>

[Guest guest]

When I have a spasm I drink alot of cold water sometimes it comes up But even that helps my spasm Only clear thick phlegm comes up Not nice but that's it I also drink cold water when I am having hot tea or coffee It helps hot liquids go down However soups go down fairly easy I drink and drink I might have as much as 4 glasses with my dinner Leaves little room for food

from cold snowy NJ

-- Question> > > Does anyone know if fasting can aggravate achalasia. Thanks for> your help.> > > > > > >

[Guest guest]

Hi,

Welcome to the group! Some people find that if they drink a lot of water

when they eat it helps to flush the food down. Sometimes they even drink

water with soup, tea and coffee. Some find that the water must be hot,

others cold and others again room temperature. Some of us can't drink water

like that as it just come up fast, so it really depends on you whether you

find that it helps you or not. Some also find that drinking water at a

certain temperature relieves or stops a spasm. Sure drinking lots of water

6-8 glasses is supposed to be good for your health - if you can do it!

Good wishes,

Joan

Question

> >

> >

> > Does anyone know if fasting can aggravate achalasia. Thanks for

> > your help.

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

I keep my 3G in the Dry and Store without batteries. I keep the Sprint in a

Tupperware like container without batteries but with a descant. BTW – You

can use the dry-brik in a container of this nature if necessary and you

don’t have the old circular descant.

Alice

_____

From: Dora Weber [mailto:dora_weber@...]

Sent: Thursday, January 20, 2005 8:20 AM

Ci Hear

Subject: Question

There has been alot of talk about storing our processors overnite.My

question is how are others storing their extra processors ,such as Sprints

and Spectra,when they are not being used?

Dora Weber

Nucleus Volunteer Advocate

dora_weber@...

Bilateral

N22-96

N24C-01

Cochlear Otosclerosis

[Guest guest]

If you talking about the " Dry & Store " unit that you plug in and that uses

dry-brik, I heard that if you put your batteries in the Dry and Store, It

improves the life of the batteries.

Pearson

============================================================

From: " Alice " <justagram14@...>

Date: 2005/01/20 Thu AM 04:44:12 GMT-11:00

< >

Subject: RE: Question

I keep my 3G in the Dry and Store without batteries. I keep the Sprint in a

Tupperware like container without batteries but with a descant. BTW – You

can use the dry-brik in a container of this nature if necessary and you

don’t have the old circular descant.

Alice

_____

From: Dora Weber [mailto:dora_weber@...]

Sent: Thursday, January 20, 2005 8:20 AM

Ci Hear

Subject: Question

There has been alot of talk about storing our processors overnite.My

question is how are others storing their extra processors ,such as Sprints

and Spectra,when they are not being used?

Dora Weber

Nucleus Volunteer Advocate

dora_weber@...

Bilateral

N22-96

N24C-01

Cochlear Otosclerosis

[Guest guest]

Hi ,

I’m talking about the spare processors that I’m not using. I do not keep

the batteries in them but I do continue to store them in the drying units.

The extra 3G is in the Dry and Store and the BWP (Sprint) is in the

container with a drying descant.

Alice

* <If you talking about the " Dry & Store " unit that you plug in and

that uses dry-brik, I heard that if you put your batteries in the Dry and

Store, It improves the life of the batteries. Pearson>

--

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[Guest guest]

Hi Alice. Sorry about the misunderstanding. LOL

Good idea what you do.

Pearson

sville, WA

RE: RE: Question

Hi ,

I’m talking about the spare processors that I’m not using. I do not keep

the batteries in them but I do continue to store them in the drying units.

The extra 3G is in the Dry and Store and the BWP (Sprint) is in the

container with a drying descant.

Alice

* <If you talking about the " Dry & Store " unit that you plug in and

that uses dry-brik, I heard that if you put your batteries in the Dry and

Store, It improves the life of the batteries. Pearson>

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Version: 7.0.300 / Virus Database: 265.7.1 - Release Date: 1/19/2005

[Guest guest]

I am curious how you ALL feel about this med. Can you write a brief statement

telling me and others your overall feelings about Lexapro? Thanks, Terry

[Guest guest]

Hi terry .. sure ..over all the med seems to help me very little. I still

have panic attacks BUT less. My main complaint is that it makes me feel

spaced out ( I almost got run over by a lady in a wheelchair today for

goodness sakes..guess she was moving faster than me) My other major

complaint is that I am now highly depressed ..and lethargic which I was

not before the lex. My dr tried to give me a different med. oh yeah , it

was elavil... it made me feel so wierd that I freaked into panic mode..

so for now I am still sticking with the lex. ( up to 5 mg) . what do you

think?

On Mon, 24 Jan 2005 19:02:16 -0500 " terry " <terry120953@...>

writes:

>

> I am curious how you ALL feel about this med. Can you write a brief

> statement telling me and others your overall feelings about Lexapro?

> Thanks, Terry

>

>

[Guest guest]

Hi terry .. sure ..over all the med seems to help me very little. I still

have panic attacks BUT less. My main complaint is that it makes me feel

spaced out ( I almost got run over by a lady in a wheelchair today for

goodness sakes..guess she was moving faster than me) My other major

complaint is that I am now highly depressed ..and lethargic which I was

not before the lex. My dr tried to give me a different med. oh yeah , it

was elavil... it made me feel so wierd that I freaked into panic mode..

so for now I am still sticking with the lex. ( up to 5 mg) . what do you

think?

I have yet to start it. Im going to start in come spring. I suffer with

emetophobia (fear of vomiting) and agoraphobia. I have a hard time with side

effects with meds, nausea and vomiting side effects scare the hell outta me. I

take Alprazolam, took me 3 years before I took the 1st pill. I kept getting them

refilled. They have he;ped a lot but I want more out of life. So I am hoping the

Lexapro does it for me. Terry

[Guest guest]

terry - just so you know - the year prior to winding up with the panic I

had SEVERE stomach problems with naseau every single day. I literally

could not eat at all. I am better now but diagnosed IBS. I actually seem

to have little trouble with nausea if any as long as I eat a piece of

toast before the meds. It took me at least 4 months to take the 1st dose

of lex . whenever I looked at the bottle I got a panic attack. When I

finally took it I cried and cried...and to be honest I am still afraid

every morning when I take the stuff. I am very sensitive to meds too.

that is why I got the liquid version and I started with only 1 mil

alison

On Mon, 24 Jan 2005 20:19:38 -0500 " terry " <terry120953@...>

writes:

>

> Hi terry .. sure ..over all the med seems to help me very little. I

> still

> have panic attacks BUT less. My main complaint is that it makes me

> feel

> spaced out ( I almost got run over by a lady in a wheelchair today

> for

> goodness sakes..guess she was moving faster than me) My other major

> complaint is that I am now highly depressed ..and lethargic which I

> was

> not before the lex. My dr tried to give me a different med. oh yeah

> , it

> was elavil... it made me feel so wierd that I freaked into panic

> mode..

> so for now I am still sticking with the lex. ( up to 5 mg) . what

> do you

> think?

>

>

> I have yet to start it. Im going to start in come spring. I suffer

> with emetophobia (fear of vomiting) and agoraphobia. I have a hard

> time with side effects with meds, nausea and vomiting side effects

> scare the hell outta me. I take Alprazolam, took me 3 years before I

> took the 1st pill. I kept getting them refilled. They have he;ped a

> lot but I want more out of life. So I am hoping the Lexapro does it

> for me. Terry

>

>

[Guest guest]

,

In a case like this, I would ask to be transferred to the caseworker’s

supervisor. I’m giving you that information for future use. Did you get

her name? I am afraid that she just doesn’t realize that they are required

to do this for you. Is it possible to call her back and ask her to let you

speak to her supervisor to explain the need for a tactile interpreter? The

supervisor should know that this is not your responsibility. Otherwise –

I’d go to the

_____

From: Kozlik [mailto:lisak70@...]

Sent: Monday, February 07, 2005 1:45 PM

Subject: Question: OT?

I was notified by letter that my disability case will be reviewed. I

contacted my caseworker to confirm the appointment and to notify her that I

needed a tactile interpreter. She then asked if I could read and if she

could write out questions to me. I said no (explaining that I was totally

blind) and told her whom to call to arrange for an interpreter. Her response

was that she'd prefer I have someone with me to serve as a representative.

When I told her that wasn't necessary and that an interpreter should be

provided to me by law, she tried to quickly end the call. When I asked her

to confirm the meeting location, she said she " didn't know. " It sounds to me

like this person is avoiding the responsibility of providing an interpreter

and would rather have a hearing-sighted person serve as my representative --

something that isn't necessary (I can advocate for myself). How should I

proceed from here? Should I contact my caseworker once again? If she still

refuses to provide an interpreter, should I contact a lawyer? I have the

entire conversation saved in NexTalk, so if legal action is necessary, I do

have that information. Lee, do you have any thoughts?

Implanted: 12/22/04 Activated: 1/18/05

Deafblind/Postlingual

BTE hearing aid user 20 years

Severe-profound hearing loss 10 years

[Guest guest]

Whoops - Something disappeared from my answer.. I'm sorry.

Continuing:

Otherwise - I'd go ahead and make the appointment and go without an

interpreter. Let her see that you cannot respond to her questions without

assistance and she will either see the need to provide you with an

interpreter or even better than that - go ahead and approve your continuance

of disability.

Alice

Question: OT?

I was notified by letter that my disability case will be reviewed. I

contacted my caseworker to confirm the appointment and to notify her that I

needed a tactile interpreter. She then asked if I could read and if she

could write out questions to me. I said no (explaining that I was totally

blind) and told her whom to call to arrange for an interpreter. Her response

was that she'd prefer I have someone with me to serve as a representative.

--

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Checked by AVG Anti-Virus.

Version: 7.0.300 / Virus Database: 265.8.5 - Release Date: 2/3/2005

[Guest guest]

Hi Alice,

Yes, I have my caseworker's name and number. I'll give her a call right now

to find out the name and number of her supervisor. Hopefully he/she will be

able to rectify this situation.

Implanted: 12/22/04 Activated: 1/18/05

Deafblind/Postlingual

BTE hearing aid user 20 years

Severe-profound hearing loss 10 years

[Guest guest]

Alice,

It's too late to call her office today, so I'll try again tomorrow. If I

continue to have problems reaching her or her supervisor, I will take your

advice and go without an interpreter. I'm sure *that* will get the point

across. <smile>

Implanted: 12/22/04 Activated: 1/18/05

Deafblind/Postlingual

BTE hearing aid user 20 years

Severe-profound hearing loss 10 years

[Guest guest]

I had my MGB in 1999 and would still not " down " a glass of anything. I

do take more than tablespoon sips-- maybe 3-4 T., but no " downing "

>

>

> Hi guys. I have a quick question. I was wondering how far out of

> surgery was everyone able to just down a glass of juice or gatorade,

> without taking sips every minute? I am dying to just down a glass of

> anything right now, lol.

[Guest guest]

Ok here goes, remember we are not health

professionals.

I think the tingling could be some nerves being

pressed on from all the pressure (fluid) building up

in your ear. I know my last Cholesteatoma was huge

and pressed on some things. I could sometimes feel a

numbing feeling in my face in front of the affected

ear.

I think you shouldn't wait. Go to the Doc. tell him

when your insurance is due and see if he'll work with

you. You can only pay them what you can afford. I

know I have made payments a few times.

--- beatta28 <beatta28@...> wrote:

>

>

> OK - this is kind of complicated but I need advice.

> I posted here a while ago

> about symptoms I was having that I thought might be

> related to a

> cholesteatoma. Basically, I've had a perforated

> eardrum for a while now but it

> hasn't given me many problems. In late November I

> had an infection that

> wouldn't clear up very easily. I saw a few regualar

> docs and finally my ENT

> who thought it was gone by that point but gave me

> drops just in case. He then

> cleaned my ear and said it looked like a chronic ear

> but that he didn't think I

> had a cholesteatoma. Nevertheless, he ordered a CAT

> scan just in case. I

> was uninsured at the time so I was waiting to have

> that until I got insurance.

> That was about a month and a half ago. So, about 10

> days ago following a

> cold, my ear started to bother me again. There was

> no pain but it felt full

> again. I assumed it was viral and have been taking

> decongestants to open it

> up. It felt better for a week and about two days

> ago something strange started.

> The area above and sometimes behind my ear on my

> scalp is tingling. I know

> it sounds weird but that's the only way I can

> explain it and it's starting to worry

> me.

> I will have my insurance card in about 10 days. Has

> anyone had experience

> with such tingling or any idea of what might be

> causing it? The ear still feels

> full but isn't really draining and I don't have any

> pain or foul smelling

> discharge. It's the tingling that's worrying me.

> Any thoughts on what it is and

> how i should proceed since I won't have insurance

> for another 10 days? I'd

> appreciate any advice because I'm really scared!

> Thanks - E

>

>

>

>

>

>

>

__________________________________

Celebrate 's 10th Birthday!

Netrospective: 100 Moments of the Web

http://birthday./netrospective/

[Guest guest]

Thanks for responding! I have to say that the one thing I thought it might be

is

exactly what you've suggested - pressure on a nerve. That said, my ear itself

doesn't feel that full which makes the whole thing weird.

I'm going to see if I can find some kind of walk in clinic or something tomorrow

to take care of this current infection and will have the CT scan as soon as I

get

my insurance card which will be within 10 days to 2 weeks.

I'm really nerrvous about the whole thing though because I'm fairly certain

something is going on and I'm scared to death of the possibility that I might

need surgery! Eeek.

I tend to worry too much about things and now this tingling has me thinking

that i have an enormous Cholesteatoma even though the Dr. said he doens't

think I have one at all. That said, he said he couldn't see one but I read here

that that doesn't mean anything. All I know is that I'm nervous and really sick

and tired of all my ear problems! I really admire all you who have gone

through far worse than I have and reamain positive. It's hard!

>

> >

> >

> > OK - this is kind of complicated but I need advice.

> > I posted here a while ago

> > about symptoms I was having that I thought might be

> > related to a

> > cholesteatoma. Basically, I've had a perforated

> > eardrum for a while now but it

> > hasn't given me many problems. In late November I

> > had an infection that

> > wouldn't clear up very easily. I saw a few regualar

> > docs and finally my ENT

> > who thought it was gone by that point but gave me

> > drops just in case. He then

> > cleaned my ear and said it looked like a chronic ear

> > but that he didn't think I

> > had a cholesteatoma. Nevertheless, he ordered a CAT

> > scan just in case. I

> > was uninsured at the time so I was waiting to have

> > that until I got insurance.

> > That was about a month and a half ago. So, about 10

> > days ago following a

> > cold, my ear started to bother me again. There was

> > no pain but it felt full

> > again. I assumed it was viral and have been taking

> > decongestants to open it

> > up. It felt better for a week and about two days

> > ago something strange started.

> > The area above and sometimes behind my ear on my

> > scalp is tingling. I know

> > it sounds weird but that's the only way I can

> > explain it and it's starting to worry

> > me.

> > I will have my insurance card in about 10 days. Has

> > anyone had experience

> > with such tingling or any idea of what might be

> > causing it? The ear still feels

> > full but isn't really draining and I don't have any

> > pain or foul smelling

> > discharge. It's the tingling that's worrying me.

> > Any thoughts on what it is and

> > how i should proceed since I won't have insurance

> > for another 10 days? I'd

> > appreciate any advice because I'm really scared!

> > Thanks - E

> >

> >

> >

> >

> >

> >

> >

>

>

>

>

>

> __________________________________

> Celebrate 's 10th Birthday!

> Netrospective: 100 Moments of the Web

> http://birthday./netrospective/