Question

[Guest guest]

As many of you know we don't allow soliciting on RISG.ORG. However

this is a case where she is working for us. Just thought you might

want to know about it.

Thanks

Rick

---------- Forwarded message ----------

From: e <flight1@...>

Date: Aug 11, 2006 11:14 AM

Subject: Question

rick@...

Hello Rick,

I have been a member since many years, more the silent type or just

helping people individually with more complicated questions pertaining

to their diseases since I am a researcher in degenerative diseases.

The reason for this email.....After suffering for many years with AS

and other conditions and my life has changed for the better, I have

decided to throw myself a challenge. I have registered to do a

marathon for Walt Disney World in January 2007. I have been training

and will continue to train with Jeff galloway over the next 5 months.

This is alot of commitment and expense on my part. I am part of the

Arthritis Joints in Motion team ( virtual since I personally live in

Canada, but raising donations for the American Arthritis Foundation. I

thought by letting know into the group about my intentions of doing a

marathon that it may inspire people that we can make it back to a

quality of life and that people do care about them byt raising funds.

Whether people in the group wish to support me by donating directly

online is up to them. I wanted for you to decide whether you would

allow this and investigate yourself before putting this on the site.

Got to google and type in Joints in motion...under the words

Run.walk.hike , you will see virtual JIM, then scroll down to the

Disney marathon, click on it and then click on sponsor a participat,

then type my name e Bourgeois, click on my name and it is the

web page they give us to have donations sent directly to the

Foundation. If you wish there is also the name Angelic Jno-

which you may phone at 404-965-7531. To make things quicker..here is

the link

https://www.kintera.org/faf/donorReg/donorPledge.asp?ievent=159730 & lis=1 & kntae15\

9730=E093E5D282304D0DBCF38AA350270F3F & supId=139705312

I am paying for my own airfare and training, so more money goes

directly for the cause. I sincerely hope you will see this as positive

for others and help me raise funds for those who suffer.

Thanks for your time,

e Bourgeois,

DrSc, MSc, BSc

Professional member of the New York Academy of Sciences

Professional Member of the International Institute of Clinical

Nutrition London and Mexico

International conference speaker

--

rick.hahn@...

[Guest guest]

Robin

I had the hips done first and then the shoulders. It was harder on

the replaced shoulders when I had the revision of my right THR.

Crutches were okay, but I never would have made it on a walker.

Sue

>

> As I mentioned I have to have both knees replaced, both hips

replaced

> and I am going to have an MRI to see just how bad my shoulders are.

> If they are very bad they might have to be replaced instead of just

> having the rotator cuffs and bone spurs removed. I am also having

> really bad problems with my Achille's tendons in both feet but the

> doctor didn't have time to check those out yet.

>

> My question is which surgery do you think would be best to have

> first, the knee, hip or shoulder? Also has anyone had a hip and

knee

> done, (it would be on opposite sides because those are the worst)?

I

> have had lung problems in the past, but they are doing really good

> right now and I haven't had breathing problems. I know I am high

risk

> because of that, the diabetes, high blood pressure (all really

under

> control and without any problems) and severe sleep apnea. I know I

> could have a block for the knee and hip, but are there blocks for

the

> shoulders? I see my doctor again for my feet problems and to

schedule

> the surgery a week from this Friday.

>

> I don't know if I mentioned this virtual website that shows what is

> involved in the hip and knee replacement. It looks really gross but

> also very interesting.

>

> Robin

>

[Guest guest]

I haven't been faced with such extensive replacements, but it seems logical to do the shoulders first. I do have shoulder problems, and am a little worried that using crutches or a walker for however long I'm going to need it is going to make them worse.

Ann

Re: question

RobinI had the hips done first and then the shoulders. It was harder on the replaced shoulders when I had the revision of my right THR. Crutches were okay, but I never would have made it on a walker.Sue>> As I mentioned I have to have both knees replaced, both hips replaced > and I am going to have an MRI to see just how bad my shoulders are. > If they are very bad they might have to be replaced instead of just > having the rotator cuffs and bone spurs removed. I am also having > really bad problems with my Achille's tendons in both feet but the > doctor didn't have time to check those out yet.> > My question is which surgery do you think would be best to have > first, the knee, hip or shoulder? Also has anyone had a hip and knee > done, (it would be on opposite sides because those are the worst)? I > have had lung problems in the past, but they are doing really good > right now and I haven't had breathing problems. I know I am high risk > because of that, the diabetes, high blood pressure (all really under > control and without any problems) and severe sleep apnea. I know I > could have a block for the knee and hip, but are there blocks for the > shoulders? I see my doctor again for my feet problems and to schedule > the surgery a week from this Friday. > > I don't know if I mentioned this virtual website that shows what is > involved in the hip and knee replacement. It looks really gross but > also very interesting. > > Robin>

[Guest guest]

Hi Ann, I had a Hip and knee replacements done on my right side and had this same dr well he told me I have Arthritis in my right shoulder he told me not to have it replace I wish he said that about my Hip I think if I just had the knee done I would be so much better off well you have a nice day, SusieAnn <ruby2zdy@...> wrote: I haven't been faced with such extensive replacements, but it seems logical to do the shoulders first. I do have shoulder problems, and am a little worried that using crutches or a walker for however long I'm going to need it is going to make them worse. Ann Re: question RobinI had the hips done first and then the shoulders. It was harder on the replaced shoulders when I had the revision of my right THR. Crutches were okay, but I never would have made it on a walker.Sue>> As I mentioned I have to have both knees replaced, both hips replaced > and I am going to have an MRI to see just how bad my shoulders are. > If they are very bad they might have to be replaced

instead of just > having the rotator cuffs and bone spurs removed. I am also having > really bad problems with my Achille's tendons in both feet but the > doctor didn't have time to check those out yet.> > My question is which surgery do you think would be best to have > first, the knee, hip or shoulder? Also has anyone had a hip and knee > done, (it would be on opposite sides because those are the worst)? I > have had lung problems in the past, but they are doing really good > right now and I haven't had breathing problems. I know I am high risk > because of that, the diabetes, high blood pressure (all really under > control and without any problems) and severe sleep apnea. I know I > could have a block for the knee and hip, but are there blocks for the > shoulders? I see my doctor again for my feet problems and to schedule > the surgery a week from

this Friday. > > I don't know if I mentioned this virtual website that shows what is > involved in the hip and knee replacement. It looks really gross but > also very interesting. > > Robin>

[Guest guest]

Rose, This has happened to me several times. It is so embarassing. My episodes usually occured while drinking coffee. I also get that sometimes when something drains from my ears down my throat while I am drinking. I usually wheeze for days after it happens.rmgold3 <golden-key@...> wrote: Just wondering if others have had this problem. I was at dinner with a large group of friends and I swallowed some coffee the wrong way. My throat closed immidiately and I could

not breathe at all for at least a full minute (seemed like several). Not even enough to use albuterol. The embarrassing part was I even vomited in my napkin. After a minute or so I was able to get in a little air and use the rescue medication. My voice was hoarse for some time. Aggravated my asthma for several days.Pretty strong reaction to a couple of drops of liquid? Related to asthma?I have had this happen before. I guess I need to be more careful.Rose

Get your own web address for just $1.99/1st yr. We'll help. Small Business.

[Guest guest]

Sometimes it is good to know it is not just me. And yes, I was very

embarrassed. A lovely way to end an evening:)

Rose

> Just wondering if others have had this problem. I was at

dinner with a

> large group of friends and I swallowed some coffee the wrong way.

My

> throat closed immidiately and I could not breathe at all for at

least

> a full minute (seemed like several). Not even enough to use

albuterol.

> The embarrassing part was I even vomited in my napkin. After a

minute

> or so I was able to get in a little air and use the rescue

medication.

> My voice was hoarse for some time. Aggravated my asthma for

several

> days.

>

> Pretty strong reaction to a couple of drops of liquid? Related to

> asthma?

>

> I have had this happen before. I guess I need to be more careful.

>

> Rose

>

>

>

>

>

>

> ---------------------------------

> Get your own web address for just $1.99/1st yr. We'll help.

Small Business.

>

[Guest guest]

To me this sounds like an experience I had while swimming.

I thought I was going to die for that minute.

The lifeguard told me just to relax, don't try too hard to breathe, and let

it correct itself.

She said it was almost certainly a malfunction of the epiglottis.

I don't remember if she used the word " prolapse " , but if you

Google " epiglottis prolapse " you'll find some interesting things.

Has happened to me only once.

hth.

> From: " rmgold3 " <golden-key@...>

>

> Just wondering if others have had this problem. I was at dinner with a

> large group of friends and I swallowed some coffee the wrong way. My

> throat closed immidiately and I could not breathe at all for at least

> a full minute (seemed like several). Not even enough to use albuterol.

> The embarrassing part was I even vomited in my napkin. After a minute

> or so I was able to get in a little air and use the rescue medication.

> My voice was hoarse for some time. Aggravated my asthma for several

> days.

>

> Pretty strong reaction to a couple of drops of liquid? Related to

> asthma?

>

> I have had this happen before. I guess I need to be more careful.

>

> Rose

[Guest guest]

Rose,

I have had that happen to me, too. I have learned to be careful to not talk

or especially laugh while drinking or eating.

Pam

On 9/2/06 1:48 AM, " rmgold3 " <golden-key@...> wrote:

> Just wondering if others have had this problem. I was at dinner with a

> large group of friends and I swallowed some coffee the wrong way. My

> throat closed immidiately and I could not breathe at all for at least

> a full minute (seemed like several). Not even enough to use albuterol.

> The embarrassing part was I even vomited in my napkin. After a minute

> or so I was able to get in a little air and use the rescue medication.

> My voice was hoarse for some time. Aggravated my asthma for several

> days.

>

> Pretty strong reaction to a couple of drops of liquid? Related to

> asthma?

>

> I have had this happen before. I guess I need to be more careful.

>

> Rose

>

>

>

>

>

>

>

>

[Guest guest]

Hi ,

That was my sense also for myself, though my situation was less

dramatic than yours. My cycle was 23 days, then it dropped to 22

when I started iodine. It took about 6 months to crawl up to 24

days, then it jumped to 28. Now, waiting to see what will happen

this month! I am very happy with the improvement and think it is a

sign of my hormones normalizing. That was the main effect I was

hoping for when starting iodine since there is some pretty

impressive research indicating that iodine can really normalize

especially estrogen.

Best wishes,

Sharon

> Since I began the Iodine, I've had some menstrual dysregulation

that is off the wall. I've had two periods within 7 days of

eachother which never happens, and they have been MUCH heavier and

crampier than usual, and I have been passing more large clots than I

can count. I couldn't help but wonder if the iodine supplementation

has something to do with this, in that maybe it is working through

trying to regulate my hormones and my uterus is responding by all

this excess shedding...

>

> Any ideas?

>

>

[Guest guest]

,Have you had your progesterone level checked?  LinnOn Sep 5, 2006, at 6:29 AM, Gikas wrote:<010001c6d0de$7e8684e0$6401a8c0>Since I began the Iodine, I've had some menstrual dysregulation that is off the wall.  I've had two periods within 7 days of eachother which never happens, and they have been MUCH heavier and crampier than usual, and I have been passing more large clots than I can count.  I couldn't help but wonder if the iodine supplementation has something to do with this, in that maybe it is working through trying to regulate my hormones and my uterus is responding by all this excess shedding... Any ideas?. 

[Guest guest]

I am highly highly deficient in progesterone and my doc just ordered the injections from a compounding pharmacy because I don't seem to absorb it from either the cream OR the suppositories he prescribed about a month ago.

Do you think that could make a difference in all of this once I'm getting it into me?

Re: question

,

Have you had your progesterone level checked?

Linn

On Sep 5, 2006, at 6:29 AM, Gikas wrote:

<010001c6d0de$7e8684e0$6401a8c0>

Since I began the Iodine, I've had some menstrual dysregulation that is off the wall. I've had two periods within 7 days of eachother which never happens, and they have been MUCH heavier and crampier than usual, and I have been passing more large clots than I can count. I couldn't help but wonder if the iodine supplementation has something to do with this, in that maybe it is working through trying to regulate my hormones and my uterus is responding by all this excess shedding...

Any ideas?

..

[Guest guest]

how much iodine are you taking and what form?

Gracia

Since I began the Iodine, I've had some menstrual dysregulation that is off the wall. I've had two periods within 7 days of eachother which never happens, and they have been MUCH heavier and crampier than usual, and I have been passing more large clots than I can count. I couldn't help but wonder if the iodine supplementation has something to do with this, in that maybe it is working through trying to regulate my hormones and my uterus is responding by all this excess shedding...

Any ideas?

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[Guest guest]

>

> Since I began the Iodine, I've had some menstrual dysregulation that

is off the wall. I've had two periods within 7 days of each other

which never happens, and they have been MUCH heavier and crampier than

usual, and I have been passing more large clots than I can count. I

couldn't help but wonder if the iodine supplementation has something

to do with this, in that maybe it is working through trying to

regulate my hormones and my uterus is responding by all this excess

shedding...

The same thing just happened to me (two periods within 11 days). I

attributed it to the stress of my father being near death.

W.

[Guest guest]

I do think that low progesterone will cause unusual bleeding and clotting, in addition to low thyroid contributing to that also.  It should clear up when you get your progesterone levels normalized.  I had some severe bleeding, flooding and clotting due to low progesterone to the point of adenomyosis.  Supplementing progesterone and Armour cured it in a couple of months, saw some good results in just a couple of weeks time on both.LinnOn Sep 5, 2006, at 8:37 AM, Gikas wrote:I am highly highly deficient in progesterone and my doc just ordered the injections from a compounding pharmacy because I don't seem to absorb it from either the cream OR the suppositories he prescribed about a month ago. Do you think that could make a difference in all of this once I'm getting it into me?  Re: question,Have you had your progesterone level checked?  LinnOn Sep 5, 2006, at 6:29 AM, Gikas wrote:<010001c6d0de$7e8684e0$6401a8c0>Since I began the Iodine, I've had some menstrual dysregulation that is off the wall.  I've had two periods within 7 days of eachother which never happens, and they have been MUCH heavier and crampier than usual, and I have been passing more large clots than I can count.  I couldn't help but wonder if the iodine supplementation has something to do with this, in that maybe it is working through trying to regulate my hormones and my uterus is responding by all this excess shedding... Any ideas?

[Guest guest]

Gracia,

I am taking 12.5 mgs. Iodoral twice a day. I've been taking it for two weeks now. I was going to increase soon to the 50 mgs. I cannot help but feel there is a connection between the iodine and what is going on with me menstrually for the first time ever. Do you know anything about this? Thanks...

Re: question

how much iodine are you taking and what form?

Gracia

Since I began the Iodine, I've had some menstrual dysregulation that is off the wall. I've had two periods within 7 days of eachother which never happens, and they have been MUCH heavier and crampier than usual, and I have been passing more large clots than I can count. I couldn't help but wonder if the iodine supplementation has something to do with this, in that maybe it is working through trying to regulate my hormones and my uterus is responding by all this excess shedding...

Any ideas?

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.405 / Virus Database: 268.11.7/436 - Release Date: 9/1/2006

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[Guest guest]

no I don't know much about this b/c I am over the hill at age 58. but I think you should try 50mgs and see what that does. My body was really asking for more when I took lower doses of Iodoral.

Gracia

Gracia,

I am taking 12.5 mgs. Iodoral twice a day. I've been taking it for two weeks now. I was going to increase soon to the 50 mgs. I cannot help but feel there is a connection between the iodine and what is going on with me menstrually for the first time ever. Do you know anything about this? Thanks...

Re: question

how much iodine are you taking and what form?

Gracia

Since I began the Iodine, I've had some menstrual dysregulation that is off the wall. I've had two periods within 7 days of eachother which never happens, and they have been MUCH heavier and crampier than usual, and I have been passing more large clots than I can count. I couldn't help but wonder if the iodine supplementation has something to do with this, in that maybe it is working through trying to regulate my hormones and my uterus is responding by all this excess shedding...

Any ideas?

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[Guest guest]

well your right eye is a blueish greenish yellow LOL. The same as your

left eye, except your left eye has brown in it. Looks like you have

all the possible eye colors all wrapped up in two eyes. Beautiful!

>

> I know this may sound like a stupid question, but I've had several

> people tell me different things. What color do you think my eyes are?

> I know...stupid question. But I've gotten all ranges of answers. Let

> me know... Thanks. It's under googleyeyes.

>

[Guest guest]

Hi

I had CWD on my left year in January. Had a couple follow up

appointments between January and April then was given 6 months until

my next check-up appt which is at the end of October. Certainly

seems weird having to go every couple of weeks, would query it with

your Dr as can't see why it's still necessary unless your condition

is very serious and you're having problems keeping your tubes dry.

Thankfully my tubes dried up beautifully after the CWD and still

looking good ) Was on drops for about a month (if I recall

correctly) and not used them since.

Hope this helps.

Kim

>

> Hello,

>

> I had CWD surgery on my left ear in July and I have a couple of

questions I was hoping someone could answer for me. I am still

seeing the Dr. every 2 weeks to get my ear suctioned. Is it normal

to see the Dr every 2 weeks? (my insurance co pay is draining on the

wallet). I am also still on saline drops to irrigate my ear and I

was wondering how long everyone else had to use their drops?

>

> Thanks for your time : )

>

>

>

[Guest guest]

I guess everyone is different - I just had surgery on my right ear

(previously I had had two surgeries performed on my left ear) and I

never had to see the doctor afterwards to have my ear suctioned with

the left ear. After surgery on my right ear a couple of weeks ago, I

didn't have any discharge after 2 or 3 days. I never even had the

(what appears to be from various postings) common discharge that I am

hearing about. Nor had I ever had an ear problems - no ear

infections, nothing. Just all of a sudden I wind up with a c-toma!

Go figure. As far as drops, I didn't need them after my 5 week follow

up appointment (for the left ear).

>

> Hello,

>

> I had CWD surgery on my left ear in July and I have a couple of

questions I was hoping someone could answer for me. I am still seeing

the Dr. every 2 weeks to get my ear suctioned. Is it normal to see the

Dr every 2 weeks? (my insurance co pay is draining on the wallet). I

am also still on saline drops to irrigate my ear and I was wondering

how long everyone else had to use their drops?

>

> Thanks for your time : )

>

>

>

[Guest guest]

Hi Kim,

Thanks for the info. My surgery went well and I'm not having a problem (as far as I can tell) that would require so many appointments. My hearing is pretty decent (though it hasn't been tested post surgery) and I'm not having any discharge and he hasn't said anything about my tubes... Maybe my Dr. wants to see me so much because he likes my charming personality (haha).

I'm glad you are doing so well with your tubes : )

Have a great afternoon!

---------------------------------------

Original E-mail

From: squirrel_xtra

Sent: Sep 12, 2006 03:43 PM

cholesteatoma

Subject: Re: Question

Hi I had CWD on my left year in January. Had a couple follow up appointments between January and April then was given 6 months until my next check-up appt which is at the end of October. Certainly seems weird having to go every couple of weeks, would query it with your Dr as can't see why it's still necessary unless your condition is very serious and you're having problems keeping your tubes dry. Thankfully my tubes dried up beautifully after the CWD and still looking good ) Was on drops for about a month (if I recall correctly) and not used them since.Hope this helps.Kim>> Hello,> > I had CWD surgery on my left ear in July and I have a couple of questions I was hoping someone could answer for me. I am still seeing the Dr. every 2 weeks to get my ear suctioned. Is it normal to see the Dr every 2 weeks? (my insurance co pay is draining on the wallet). I am also still on saline drops to irrigate my ear and I was wondering how long everyone else had to use their drops?> > Thanks for your time : )> > >

[Guest guest]

I am not a nurse ,,,,from what I understand diversion programs you need to sign a contract for abstinence..you have been naughty if that's the case ,ETG works very well . With that said it takes about 2 weeks to get your results..you may have to pay the piper and be honest. Remember that relapse is part of recovery. In the future when you get tested write down your activities and foods you ate ect so you have a log. in the event that you get a positive and you didn't drink. YOU CANNOT BEAT THIS TEST IF YOU DRINK!!!!! I do believe that the window is 80 hours ,,,good luck

[Guest guest]

Hi ,

I had CWD surgery the first of June. I did go see the Dr. about every 2

weeks for awhile so it does sound normal to me. The last time I went he

said to come back in a month so I felt like I had graduated. I washed

my ear out with a vinegar and water solution for a month or so. He had

me stop that about 2 weeks ago. Wel'll see what he says when I go back

in. Sounds like you are on track. Good luck!

Dee

>

> Hello,

>

> I had CWD surgery on my left ear in July and I have a couple of

questions I was hoping someone could answer for me. I am still seeing

the Dr. every 2 weeks to get my ear suctioned. Is it normal to see the

Dr every 2 weeks? (my insurance co pay is draining on the wallet). I am

also still on saline drops to irrigate my ear and I was wondering how

long everyone else had to use their drops?

>

> Thanks for your time : )

>

>

>

[Guest guest]

Hi Doreen,

To add on to 's advice, I would consider giving yourself up to about 2 months post dilatation before calling upon the doctor. A couple of reasons for that. Sometimes there may be swelling involved that takes time to shrink. Sometimes the body just has to adjust to its new "environment." You have to see how you feel. There is always the possibility that the balloon may not have been placed in the optimum position, or was not inflated to the correct size to get the best results. I would try to keep some kind of a daily log so that when you speak to the doctor you can be most specific about your problem and also see if it is following some kind of pattern. You might need another dilatation.

In a message dated 9/28/2006 12:59:44 P.M. Eastern Daylight Time, reeni_joy@... writes:

I am Doreen, 27 yr old, from Ann Arbor, MI. As some of you may remember I had a balloon dilation in August. I was hoping for long term results but unfortunately that is not the case. My question is how long do I wait before going back to the doctor? How bad do I let the symptoms get? I can still pretty much eat what I want as long as I have water or another beverage, but I starting to have trouble getting it down. I can still drink pop (before my first dilation the only thing i could drink was water at room temp). When I talk to the doctor after the procedure he said that my follow-up was up to me...he didn't give me any definitive time frame so I'm feeling a bit lost. As a side note, I know there are a few people here from Michigan and I'm wondering if any one was seen at Huron Gastroenterology in Ypsi?Thanks for your advice!Doreen

Messages in this topic (35) Reply (via web post) | St

[Guest guest]

Doreen,

My docs left my follow up, up to me too. I think they know

that we know when things get bad enough to do something about it. As for

how long you wait, that’s up to you entirely. Only you know how

much you can stand. But I wouldn’t let it get to the point of not

being able to get anything down! Take care and keep us up to date.

C Warren

Co-Founder

www.achalasia.us

From:

achalasia [mailto:achalasia ] On Behalf Of reeni_joy

Sent: Thursday, September 28, 2006 12:49 PM

achalasia

Subject: Question

I am Doreen, 27 yr old, from Ann Arbor, MI. As

some of you may

remember I had a balloon dilation in August. I was hoping for long

term results but unfortunately that is not the case. My question is

how long do I wait before going back to the doctor? How bad do I let

the symptoms get? I can still pretty much eat what I want as long as I

have water or another beverage, but I starting to have trouble getting

it down. I can still drink pop (before my first dilation the only

thing i could drink was water at room temp).

When I talk to the doctor after the procedure he said that my follow-up

was up to me...he didn't give me any definitive time frame so I'm

feeling a bit lost.

As a side note, I know there are a few people here from Michigan and

I'm wondering if any one was seen at Huron Gastroenterology in Ypsi?

Thanks for your advice!

Doreen

[Guest guest]

Doreen, I would go back and see if if you are having trouble eating and drinking. You want to not try and damage or stretch out your E as much as posible. The surgery is not that bad. If you have any questions feel free to ask. in Gerogiareeni_joy <reeni_joy@...> wrote: I am Doreen, 27 yr old, from Ann Arbor, MI. As some of you may remember I had a balloon dilation in August. I was hoping for long term results but unfortunately that is not the

case. My question is how long do I wait before going back to the doctor? How bad do I let the symptoms get? I can still pretty much eat what I want as long as I have water or another beverage, but I starting to have trouble getting it down. I can still drink pop (before my first dilation the only thing i could drink was water at room temp). When I talk to the doctor after the procedure he said that my follow-up was up to me...he didn't give me any definitive time frame so I'm feeling a bit lost. As a side note, I know there are a few people here from Michigan and I'm wondering if any one was seen at Huron Gastroenterology in Ypsi?Thanks for your advice!Doreen<FONT face="comic sans ms" color=#ff0000 size=5> in Georgia </FONT><IMG src=" ">

Get your own web address for just $1.99/1st yr. We'll help. Small Business.