Guest guest Posted January 11, 2009 Report Share Posted January 11, 2009 wrote: > Yes the upper oesophageal sphincter ...is located in the base of the throat (in the hollow of the base) under the voicebox at the top of the Oesophagus and is part of the portion left in after patients have an ectomy. Drawings and photos of the throat show it as Cricopharyngeal Sphincter of the Oesophagus. It plays a part in controlling where food, drink, saliva and air go. When breathing it is closed so air goes to the lungs and not the esophagus. When swallowing it opens so food and such go into the esophagus. You can have problems with choking and aspiration when it dysfunctions. For a very complete but very technical article about it see: GI Motility online (2006) doi:10.1038/gimo12 Published 16 May 2006 Upper esophageal sphincter Ivan M. Lang, D.V.M., Ph.D. http://www.nature.com/gimo/contents/pt1/full/gimo12.html Images: http://content.answers.com/main/content/img/oxford/Oxford_Body/019852403x.swallo\ wing.1.jpg http://www.mfi.ku.dk/ppaulev/chapter22/images/22-2.jpg notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2009 Report Share Posted January 12, 2009 Hello Ann No I didn't go to the hospital. The GI doc is supposed to phone me this afternoon about arranging a date for replacement J-Tube and Gastroscopy which are both urgent as well as a dilatation (once again it is needed). The leak has slowed down a little and is just about managable. But I am determined to get things sorted out as I am certain that there is a problem. Thank you for the supportive post. I will get things sorted out have no fear on that score. It is getting difficult swallowing again and food is getting stuck in the centre of my chest at the point where the bottom of my stomach is against the diaphram after the ectomy if you know what I mean. Things are so tight that I want to vomit most of the time especialy when I try to swallow soft food or liquids. Things are very tight in the throat at the UES in the throat and is annoying especially at night in bed when I am on the feeds. I use 5 pillows to prop myself at a 45% angle and I keep sliding down so have to have a pillow behind my knees. ________________________________ From: Ann Higgs <lilac_blossom_lady@...> achalasia Sent: Sunday, January 11, 2009 4:45:18 PM Subject: Re: Question Thank you , That was a very useful answer, which you explained well. Did you go to the Hospital? Love from Ann xx From: Hulmes <christine.hulmes> Subject: Re: Question achalasia@grou ps.com Date: Saturday, 10 January, 2009, 1:26 PM Hello Ann Yes the upper oesophageal sphincter IS relevant to Achalasia so 5 different docs have told me when I asked about it. It is located in the base of the throat (in the hollow of the base) under the voicebox at the top of the Oesophagus and is part of the portion left in after patients have an ectomy. Drawings and photos of the throat show it as Cricopharyngeal Sphincter of the Oesophagus. I have Achalasia of this muscle which when closed can cause any excretions i:e saliva to go down the wrong way into the lungs.. I am sure Notan can explain this better. ____________ _________ _________ __ From: Ann Higgs <lilac_blossom_ lady (DOT) . co.uk> Host Achalasia <achalasia@gro u ps.com> Sent: Saturday, January 10, 2009 12:26:17 PM Subject: Question Recently I have heard references to the UPPER oesophageal sphincter. Please can somebody tell me where this is located and if it is involved in our achalasia? Best Wishes to all from Ann. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2009 Report Share Posted January 13, 2009 Did you receive that phone call, ? From: Hulmes <christine.hulmes> Subject: Re: Question achalasia@grou ps.com Date: Saturday, 10 January, 2009, 1:26 PM Hello Ann Yes the upper oesophageal sphincter IS relevant to Achalasia so 5 different docs have told me when I asked about it. It is located in the base of the throat (in the hollow of the base) under the voicebox at the top of the Oesophagus and is part of the portion left in after patients have an ectomy. Drawings and photos of the throat show it as Cricopharyngeal Sphincter of the Oesophagus. I have Achalasia of this muscle which when closed can cause any excretions i:e saliva to go down the wrong way into the lungs.. I am sure Notan can explain this better. Â ____________ _________ _________ __ From: Ann Higgs <lilac_blossom_ lady (DOT) . co.uk> Host Achalasia <achalasia@gro u ps.com> Sent: Saturday, January 10, 2009 12:26:17 PM Subject: Question Recently I have heard references to the UPPER oesophageal sphincter. Please can somebody tell me where this is located and if it is involved in our achalasia? Â Best Wishes to all from Ann. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 Hi Ann No I didn't get that phone call and I phoned them this morning and was promised a return phonecall by 1.20pm today. I told them that if I don't hear from them I'll phone again and again until I get a date for my procedures. ________________________________ From: Ann Higgs <lilac_blossom_lady@...> achalasia Sent: Tuesday, January 13, 2009 3:30:11 PM Subject: Re: Question Did you receive that phone call, ? From: Hulmes <christine.hulmes> Subject: Re: Question achalasia@grou ps.com Date: Saturday, 10 January, 2009, 1:26 PM Hello Ann Yes the upper oesophageal sphincter IS relevant to Achalasia so 5 different docs have told me when I asked about it. It is located in the base of the throat (in the hollow of the base) under the voicebox at the top of the Oesophagus and is part of the portion left in after patients have an ectomy. Drawings and photos of the throat show it as Cricopharyngeal Sphincter of the Oesophagus. I have Achalasia of this muscle which when closed can cause any excretions i:e saliva to go down the wrong way into the lungs.. I am sure Notan can explain this better. ____________ _________ _________ __ From: Ann Higgs <lilac_blossom_ lady (DOT) . co.uk> Host Achalasia <achalasia@gro u ps.com> Sent: Saturday, January 10, 2009 12:26:17 PM Subject: Question Recently I have heard references to the UPPER oesophageal sphincter. Please can somebody tell me where this is located and if it is involved in our achalasia? Best Wishes to all from Ann. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 You Go Girl !!!!! From: Hulmes <christine.hulmes> Subject: Re: Question achalasia@grou ps.com Date: Saturday, 10 January, 2009, 1:26 PM Hello Ann Yes the upper oesophageal sphincter IS relevant to Achalasia so 5 different docs have told me when I asked about it. It is located in the base of the throat (in the hollow of the base) under the voicebox at the top of the Oesophagus and is part of the portion left in after patients have an ectomy. Drawings and photos of the throat show it as Cricopharyngeal Sphincter of the Oesophagus. I have Achalasia of this muscle which when closed can cause any excretions i:e saliva to go down the wrong way into the lungs.. I am sure Notan can explain this better. Â ____________ _________ _________ __ From: Ann Higgs <lilac_blossom_ lady (DOT) . co.uk> Host Achalasia <achalasia@gro u ps.com> Sent: Saturday, January 10, 2009 12:26:17 PM Subject: Question Recently I have heard references to the UPPER oesophageal sphincter. Please can somebody tell me where this is located and if it is involved in our achalasia? Â Best Wishes to all from Ann. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2009 Report Share Posted January 15, 2009 Partially right. Iodine when supplied in high enough amounts will create Iodolipids which put the "brakes" on the peroxide reaction inside the cells of the thyroid so that they do not burn out of control and damage the cells. This is where thyroid peroxidase antibodies come in - they are in reaction to this burning which creates abnormal cells that antibodies are created against. The From my website: http://www.naturalthyroidchoices.com/iodine_path_thyroid.html Once inside the cell iodide is oxidzed into iodine. This means that one electron has been dropped. This process occurs with the reaction of hydrogen peroxide (H2O2) with thyroperoxidase (TPO). Abnormalities here can cause the body to create Anti-TPO antibodies. This leads to Hashimoto's disease QUESTION >I have hearfd that iodine neutralize hydrogen peroxide , so how i can treat myself from MS with iodine and h2o2 , > any suggestions> Rysiek > > > ------------------------------------> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2009 Report Share Posted January 15, 2009 Thank you for your answer but what i have to do with my treatments . Rysiek QUESTION >I have hearfd that iodine neutralize hydrogen peroxide , so how i can treat myself from MS with iodine and h2o2 , > any suggestions> Rysiek > > > ------------------------------------> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2009 Report Share Posted January 15, 2009 Take Iodine and do whatever else you are doing. Steph QUESTION >I have hearfd that iodine neutralize hydrogen peroxide , so how i can treat myself from MS with iodine and h2o2 , > any suggestions> Rysiek > > > ------------------------------------> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2009 Report Share Posted January 15, 2009 yes i do all the time between the stress from everyday things to my health??? to my kids ,and grandson?? they think i'm crazy? so do i at times question Is anyone having problems with anxiety issues? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Hello! I have had chronic pain now for 26 years. I have had anxiety issues now for 26 years. I truly believe they go hand in hand. I can only speak for myself, but I know with the pain...comes anxiety, depression, and at times real darkness. I must force myself to get up and do something....even though it hurts so badly. There have been days where all I can do is cry. I cry from the pain and the suffering. I cry from the guilt that I feel towards my beautiful family...they are always there for me without one complaint...and I wish I could give them a " normal " life. I cry due to my husband's unconditional love towards me...no matter what...he remains at my side. He is my hero. I cry because I feel so bad that he is worried about money all the time now that I can't work any more. Of course I do not cry all the time...but rather only when it really gets me now. In the beginning, it seemed to be all the time, but now...it is better. So...you see...you are NOT alone. I really think everyone with Chronic pain....has one form of anxiety or another. It is a big step that you have addressed it....now work towards understanding it.... and beat it! Please know that you have the support of all the members. We are really a great bunch of folks who understand each other, respect each other and are truly there for each other. My name is Kathy G. I am the co-owner of this awesome group. Our founder is Mike. He is such a great guy. We have incredible moderators and truly kind, and wonderful members in our group. If you ever need to chat...just write in...and you will get some real great folks writing you back. Take great care! Gentle hugs too you and all, Kathy G. Group Co-Owner **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100000075x1215855013x1201028747/aol?redir=http://\ www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Hi All Well I finally got that phonecall at 5.30pm on Wednesday. They want to admit me onto a hospital ward next Monday 19th January to do the procedures in the afternoon. Seeing as I had leakages after the last tube fit and was discharged the same night, they are deffinately keeping me in at least overnight this time to monitor me in case there is a repeat of my leakages. Hopefully they can deal with the problems this time. I have been feeling off colour these last few days and nights with having to get up in the night not only to deal with dressing changes but with having to vomit up bile as well. As I have said before there is definately something wrong for me not only to leak all this bile from my J-Tube stoma site but to vomit it up and to pass some from the back passage as well. It has been hell these last few weeks especially the last week. Hope they find out the cause of the problem on Monday. My weight is dropping down as well and is now down to 91lbs, too low for me. I will keep in touch. Thanks for everyones support once again it means such a lot to me. ________________________________ From: Ann Higgs <lilac_blossom_lady@...> achalasia Sent: Wednesday, January 14, 2009 4:27:55 PM Subject: Re: Question You Go Girl !!!!! From: Hulmes <christine.hulmes> Subject: Re: Question achalasia@grou ps.com Date: Saturday, 10 January, 2009, 1:26 PM Hello Ann Yes the upper oesophageal sphincter IS relevant to Achalasia so 5 different docs have told me when I asked about it. It is located in the base of the throat (in the hollow of the base) under the voicebox at the top of the Oesophagus and is part of the portion left in after patients have an ectomy. Drawings and photos of the throat show it as Cricopharyngeal Sphincter of the Oesophagus. I have Achalasia of this muscle which when closed can cause any excretions i:e saliva to go down the wrong way into the lungs.. I am sure Notan can explain this better. ____________ _________ _________ __ From: Ann Higgs <lilac_blossom_ lady (DOT) . co.uk> Host Achalasia <achalasia@gro u ps.com> Sent: Saturday, January 10, 2009 12:26:17 PM Subject: Question Recently I have heard references to the UPPER oesophageal sphincter. Please can somebody tell me where this is located and if it is involved in our achalasia? Best Wishes to all from Ann. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Hey ! When I worked in the field, Paxil was and still is an excellent med used to treat both depression and anxiety...you are correct. It has helped so many folks that it is like a miracle to some. I totally agree with you about the insurance company not covering meds....and beleive me it is not just medicare.....insurance companies truly MAKE ME SICK. They could care less about the human being and how their decision to cover a procedure/med/surgery or not to cover affects us. We are all just damned numbers to most of them. I myself tried Paxil about 10 years ago...and to this day it causes me to have horrendous stomach pain, nausea and diarrhea. This type of med can really affect the G.I. horribly for some and then for others...they are great with out side effects. I am so glad that it is helping you! Gentle hugs to you and all. Kathy G. Co-Owner **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100000075x1215855013x1201028747/aol?redir=http://\ www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 That sounds a bit more positive . Thank goodness you are getting some attention. Good Luck for Monday. I hope that everything goes well for you. Best Wishes from Ann XX From: Hulmes <christine.hulmes> Subject: Re: Question achalasia@grou ps.com Date: Saturday, 10 January, 2009, 1:26 PM Hello Ann Yes the upper oesophageal sphincter IS relevant to Achalasia so 5 different docs have told me when I asked about it. It is located in the base of the throat (in the hollow of the base) under the voicebox at the top of the Oesophagus and is part of the portion left in after patients have an ectomy. Drawings and photos of the throat show it as Cricopharyngeal Sphincter of the Oesophagus. I have Achalasia of this muscle which when closed can cause any excretions i:e saliva to go down the wrong way into the lungs.. I am sure Notan can explain this better. Â ____________ _________ _________ __ From: Ann Higgs <lilac_blossom_ lady (DOT) . co.uk> Host Achalasia <achalasia@gro u ps.com> Sent: Saturday, January 10, 2009 12:26:17 PM Subject: Question Recently I have heard references to the UPPER oesophageal sphincter. Please can somebody tell me where this is located and if it is involved in our achalasia? Â Best Wishes to all from Ann. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Dear , I am so happy that finally coming Monday they start working on you.' Girl, don't have them mess around, OK? They have done that enough. Speak up when you feel something is not OK, or if you feel the treatment is not OK. It worries me that you are now vomiting bile up etc. They had you walk around with this with so many months, way too long. I would no longer want to be under the care of that hospital, honest. I so much hope they will give you the treatment you so much need and deserve. Once they've done that, I would honestly think of filing complaints against them. The vet over here takes better care of the animals than your hospitals of the humans... , I am keeping my fingers so very very very crossed for you. Girl, you deserve a good outcome now and you WILL get it now!!! Good luck, Isabella ________________________________ From: Hulmes <christine.hulmes@...> achalasia Sent: Friday, January 16, 2009 2:05:12 PM Subject: Re: Question Hi All Well I finally got that phonecall at 5.30pm on Wednesday. They want to admit me onto a hospital ward next Monday 19th January to do the procedures in the afternoon. Seeing as I had leakages after the last tube fit and was discharged the same night, they are deffinately keeping me in at least overnight this time to monitor me in case there is a repeat of my leakages. Hopefully they can deal with the problems this time. I have been feeling off colour these last few days and nights with having to get up in the night not only to deal with dressing changes but with having to vomit up bile as well. As I have said before there is definately something wrong for me not only to leak all this bile from my J-Tube stoma site but to vomit it up and to pass some from the back passage as well. It has been hell these last few weeks especially the last week. Hope they find out the cause of the problem on Monday. My weight is dropping down as well and is now down to 91lbs, too low for me. I will keep in touch. Thanks for everyones support once again it means such a lot to me. ____________ _________ _________ __ From: Ann Higgs <lilac_blossom_ lady (DOT) co.uk> achalasia@grou ps.com Sent: Wednesday, January 14, 2009 4:27:55 PM Subject: Re: Question You Go Girl !!!!! From: Hulmes <christine.hulmes> Subject: Re: Question achalasia@grou ps.com Date: Saturday, 10 January, 2009, 1:26 PM Hello Ann Yes the upper oesophageal sphincter IS relevant to Achalasia so 5 different docs have told me when I asked about it. It is located in the base of the throat (in the hollow of the base) under the voicebox at the top of the Oesophagus and is part of the portion left in after patients have an ectomy. Drawings and photos of the throat show it as Cricopharyngeal Sphincter of the Oesophagus. I have Achalasia of this muscle which when closed can cause any excretions i:e saliva to go down the wrong way into the lungs.. I am sure Notan can explain this better. ____________ _________ _________ __ From: Ann Higgs <lilac_blossom_ lady (DOT) . co.uk> Host Achalasia <achalasia@gro u ps.com> Sent: Saturday, January 10, 2009 12:26:17 PM Subject: Question Recently I have heard references to the UPPER oesophageal sphincter. Please can somebody tell me where this is located and if it is involved in our achalasia? Best Wishes to all from Ann. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 I've had back pain since I was around 20 and am now 53. My back just keeps getting progressively worse, plus I've added other problems to the list. I think my anxiety started around 40 and has gotten progressively worse also. I now have to take medication for it. My PM doc sent me to a psychiatrist because I was showing signs of depression. He determined was not clinically depressed, I was just caught in that vicious cycle of stress, pain, anxiety, .....so depression. So I do take medication for it. And I think it's lousy that Medicare does not cover anxiety medication. My PM is trying me on a new (new to me) med, Paxol, because it treats both depression and anxiety. That way if it works I can stop the diazepam & mirtazapine.....since Paxol is covered. I have to say, I'm feeling better anxiety wise than I have in a long time. Will be nice to be able to stop 2 meds (one not covered by Medicare) and just take the one. Take Care, B. in TEXAS ________________________________ From: " KGAVI@... " <KGAVI@...> Stimulator Sent: Friday, January 16, 2009 8:34:13 AM Subject: Re: question Hello! I have had chronic pain now for 26 years. I have had anxiety issues now for 26 years. I truly believe they go hand in hand. I can only speak for myself, but I know with the pain...comes anxiety, depression, and at times real darkness. I must force myself to get up and do something... .even though it hurts so badly. There have been days where all I can do is cry. I cry from the pain and the suffering. I cry from the guilt that I feel towards my beautiful family...they are always there for me without one complaint... and I wish I could give them a " normal " life. I cry due to my husband's unconditional love towards me...no matter what...he remains at my side. He is my hero. I cry because I feel so bad that he is worried about money all the time now that I can't work any more. Of course I do not cry all the time...but rather only when it really gets me now. In the beginning, it seemed to be all the time, but now...it is better. So...you see...you are NOT alone. I really think everyone with Chronic pain....has one form of anxiety or another. It is a big step that you have addressed it....now work towards understanding it.... and beat it! Please know that you have the support of all the members. We are really a great bunch of folks who understand each other, respect each other and are truly there for each other. My name is Kathy G. I am the co-owner of this awesome group. Our founder is Mike. He is such a great guy. We have incredible moderators and truly kind, and wonderful members in our group. If you ever need to chat...just write in...and you will get some real great folks writing you back. Take great care! Gentle hugs too you and all, Kathy G. Group Co-Owner ************ **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola. com/promoclk/ 100000075x121585 5013x1201028747/ aol?redir= http://www. freecreditreport .com/pm/default. aspx?sc=668072% 26hmpgID= 62%26bcd= De cemailfooterNO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 So far I'm very pleased. I hope I haven't spoke too soon!!!! lol Take Care, B. in TEXAS ________________________________ From: " KGAVI@... " <KGAVI@...> Stimulator Sent: Friday, January 16, 2009 2:37:10 PM Subject: Re: question Hey ! When I worked in the field, Paxil was and still is an excellent med used to treat both depression and anxiety...you are correct. It has helped so many folks that it is like a miracle to some. I totally agree with you about the insurance company not covering meds....and beleive me it is not just medicare.... .insurance companies truly MAKE ME SICK. They could care less about the human being and how their decision to cover a procedure/med/ surgery or not to cover affects us. We are all just damned numbers to most of them. I myself tried Paxil about 10 years ago...and to this day it causes me to have horrendous stomach pain, nausea and diarrhea. This type of med can really affect the G.I. horribly for some and then for others...they are great with out side effects. I am so glad that it is helping you! Gentle hugs to you and all. Kathy G. Co-Owner ************ **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola. com/promoclk/ 100000075x121585 5013x1201028747/ aol?redir= http://www. freecreditreport .com/pm/default. aspx?sc=668072% 26hmpgID= 62%26bcd= De cemailfooterNO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 ! Thank God you are getting some good attention! Hang in there and let them know how this stuff has been affecting you. Dang! How would any one of them like it?! I'll be thinking of you next week, and I'll be sending out good, strong, healthy vibrations! Deborah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 ! Another thing: you said you now weigh 91 pounds! Jeeze, Lou-eeze! These guys better take good care of you! all best, Deborah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 -I am on noretripline for deppression and xanax snd valuim mikr group owner-- In Stimulator , KGAVI@... wrote: > > Hey ! > > When I worked in the field, Paxil was and still is an excellent med used to > treat both depression and anxiety...you are correct. It has helped so many > folks that it is like a miracle to some. > > I totally agree with you about the insurance company not covering > meds....and beleive me it is not just medicare.....insurance companies truly MAKE ME > SICK. They could care less about the human being and how their decision to > cover a procedure/med/surgery or not to cover affects us. We are all just > damned numbers to most of them. > > I myself tried Paxil about 10 years ago...and to this day it causes me to > have horrendous stomach pain, nausea and diarrhea. This type of med can really > affect the G.I. horribly for some and then for others...they are great with > out side effects. > > I am so glad that it is helping you! > > Gentle hugs to you and all. > > Kathy G. > Co-Owner > **************A Good Credit Score is 700 or Above. See yours in just 2 easy > steps! > (http://pr.atwola.com/promoclk/100000075x1215855013x1201028747/aol? redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072% 26hmpgID=62%26bcd=De > cemailfooterNO62) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 Hi Isabella Found out yesterday and it was confirmed by post this morning that one of the procedures they want to do is an ERCP of both the bile duct and pancreatic ducts. This is together with a J-Tube replacement and Gastroscopy. At least I know what is ahead of me now. My GI doc is 1 of 2 on the staff at the hospital who perform the ERCP's so in a way I am glad of a familiar face. We'll see. I will keep in touch and let everyone know how things go on Monday. ________________________________ From: Isabella Arnold <arnoldisabella@...> achalasia Sent: Friday, January 16, 2009 6:25:48 PM Subject: Re: Question Dear , I am so happy that finally coming Monday they start working on you.' Girl, don't have them mess around, OK? They have done that enough. Speak up when you feel something is not OK, or if you feel the treatment is not OK. It worries me that you are now vomiting bile up etc. They had you walk around with this with so many months, way too long. I would no longer want to be under the care of that hospital, honest. I so much hope they will give you the treatment you so much need and deserve. Once they've done that, I would honestly think of filing complaints against them. The vet over here takes better care of the animals than your hospitals of the humans... , I am keeping my fingers so very very very crossed for you. Girl, you deserve a good outcome now and you WILL get it now!!! Good luck, Isabella ____________ _________ _________ __ From: Hulmes <christine.hulmes> achalasia@grou ps.com Sent: Friday, January 16, 2009 2:05:12 PM Subject: Re: Question Hi All Well I finally got that phonecall at 5.30pm on Wednesday. They want to admit me onto a hospital ward next Monday 19th January to do the procedures in the afternoon. Seeing as I had leakages after the last tube fit and was discharged the same night, they are deffinately keeping me in at least overnight this time to monitor me in case there is a repeat of my leakages. Hopefully they can deal with the problems this time. I have been feeling off colour these last few days and nights with having to get up in the night not only to deal with dressing changes but with having to vomit up bile as well. As I have said before there is definately something wrong for me not only to leak all this bile from my J-Tube stoma site but to vomit it up and to pass some from the back passage as well. It has been hell these last few weeks especially the last week. Hope they find out the cause of the problem on Monday. My weight is dropping down as well and is now down to 91lbs, too low for me. I will keep in touch. Thanks for everyones support once again it means such a lot to me. ____________ _________ _________ __ From: Ann Higgs <lilac_blossom_ lady (DOT) co.uk> achalasia@grou ps.com Sent: Wednesday, January 14, 2009 4:27:55 PM Subject: Re: Question You Go Girl !!!!! From: Hulmes <christine.hulmes> Subject: Re: Question achalasia@grou ps.com Date: Saturday, 10 January, 2009, 1:26 PM Hello Ann Yes the upper oesophageal sphincter IS relevant to Achalasia so 5 different docs have told me when I asked about it. It is located in the base of the throat (in the hollow of the base) under the voicebox at the top of the Oesophagus and is part of the portion left in after patients have an ectomy. Drawings and photos of the throat show it as Cricopharyngeal Sphincter of the Oesophagus. I have Achalasia of this muscle which when closed can cause any excretions i:e saliva to go down the wrong way into the lungs... I am sure Notan can explain this better. ____________ _________ _________ __ From: Ann Higgs <lilac_blossom_ lady (DOT) . co.uk> Host Achalasia <achalasia@gro u ps.com> Sent: Saturday, January 10, 2009 12:26:17 PM Subject: Question Recently I have heard references to the UPPER oesophageal sphincter. Please can somebody tell me where this is located and if it is involved in our achalasia? Best Wishes to all from Ann. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 Many thanks Deborah. The Groups support means a lot to me and enables me to have a good moan with those who understand. ________________________________ From: Deborah Lattimore <deborah_Lattimore@...> achalasia Sent: Saturday, January 17, 2009 6:50:33 AM Subject: Re: Question ! Thank God you are getting some good attention! Hang in there and let them know how this stuff has been affecting you. Dang! How would any one of them like it?! I'll be thinking of you next week, and I'll be sending out good, strong, healthy vibrations! Deborah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 You are so right they go Hand in Hand. Thats what my psycitrist tood me. Its hard to admit I se one but I really need the help, she has help me alot. Sometimes you have to put your pride to the side and don't listen or thik of what they say about you seeing a shrink. And its hard for a man that was brought up not to show you are week or need that kind of help. > > Hello! > > I have had chronic pain now for 26 years. I have had anxiety issues now for > 26 years. I truly believe they go hand in hand. > > I can only speak for myself, but I know with the pain...comes anxiety, > depression, and at times real darkness. I must force myself to get up and do > something....even though it hurts so badly. > > There have been days where all I can do is cry. I cry from the pain and the > suffering. I cry from the guilt that I feel towards my beautiful > family...they are always there for me without one complaint...and I wish I could give > them a " normal " life. I cry due to my husband's unconditional love towards > me...no matter what...he remains at my side. He is my hero. I cry because I > feel so bad that he is worried about money all the time now that I can't work > any more. > > Of course I do not cry all the time...but rather only when it really gets me > now. In the beginning, it seemed to be all the time, but now...it is better. > > So...you see...you are NOT alone. I really think everyone with Chronic > pain....has one form of anxiety or another. > > It is a big step that you have addressed it....now work towards > understanding it.... and beat it! > > Please know that you have the support of all the members. We are really a > great bunch of folks who understand each other, respect each other and are > truly there for each other. > > My name is Kathy G. I am the co-owner of this awesome group. Our founder > is Mike. He is such a great guy. We have incredible moderators and truly > kind, and wonderful members in our group. If you ever need to chat...just write > in...and you will get some real great folks writing you back. > > Take great care! > Gentle hugs too you and all, > > Kathy G. > Group Co-Owner > > **************A Good Credit Score is 700 or Above. See yours in just 2 easy > steps! > (http://pr.atwola.com/promoclk/100000075x1215855013x1201028747/aol?redir\ =http://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%2\ 6bcd=De > cemailfooterNO62) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 Dear , Similar to what Ann did, I looked up ERCP as well and indeed it seems to be a very wise move! I am keeping my fingers very crossed for you and will be thinking of you coming Monday! Love, Isabella ________________________________ From: Hulmes <christine.hulmes@...> achalasia Sent: Saturday, January 17, 2009 3:08:22 PM Subject: Re: Question Hi Isabella Found out yesterday and it was confirmed by post this morning that one of the procedures they want to do is an ERCP of both the bile duct and pancreatic ducts. This is together with a J-Tube replacement and Gastroscopy. At least I know what is ahead of me now. My GI doc is 1 of 2 on the staff at the hospital who perform the ERCP's so in a way I am glad of a familiar face. We'll see. I will keep in touch and let everyone know how things go on Monday. ____________ _________ _________ __ From: Isabella Arnold <arnoldisabella> achalasia@grou ps.com Sent: Friday, January 16, 2009 6:25:48 PM Subject: Re: Question Dear , I am so happy that finally coming Monday they start working on you.' Girl, don't have them mess around, OK? They have done that enough. Speak up when you feel something is not OK, or if you feel the treatment is not OK. It worries me that you are now vomiting bile up etc. They had you walk around with this with so many months, way too long. I would no longer want to be under the care of that hospital, honest. I so much hope they will give you the treatment you so much need and deserve. Once they've done that, I would honestly think of filing complaints against them. The vet over here takes better care of the animals than your hospitals of the humans... , I am keeping my fingers so very very very crossed for you. Girl, you deserve a good outcome now and you WILL get it now!!! Good luck, Isabella ____________ _________ _________ __ From: Hulmes <christine.hulmes> achalasia@grou ps.com Sent: Friday, January 16, 2009 2:05:12 PM Subject: Re: Question Hi All Well I finally got that phonecall at 5.30pm on Wednesday. They want to admit me onto a hospital ward next Monday 19th January to do the procedures in the afternoon. Seeing as I had leakages after the last tube fit and was discharged the same night, they are deffinately keeping me in at least overnight this time to monitor me in case there is a repeat of my leakages. Hopefully they can deal with the problems this time. I have been feeling off colour these last few days and nights with having to get up in the night not only to deal with dressing changes but with having to vomit up bile as well. As I have said before there is definately something wrong for me not only to leak all this bile from my J-Tube stoma site but to vomit it up and to pass some from the back passage as well. It has been hell these last few weeks especially the last week. Hope they find out the cause of the problem on Monday. My weight is dropping down as well and is now down to 91lbs, too low for me. I will keep in touch. Thanks for everyones support once again it means such a lot to me. ____________ _________ _________ __ From: Ann Higgs <lilac_blossom_ lady (DOT) co.uk> achalasia@grou ps.com Sent: Wednesday, January 14, 2009 4:27:55 PM Subject: Re: Question You Go Girl !!!!! From: Hulmes <christine.hulmes> Subject: Re: Question achalasia@grou ps.com Date: Saturday, 10 January, 2009, 1:26 PM Hello Ann Yes the upper oesophageal sphincter IS relevant to Achalasia so 5 different docs have told me when I asked about it. It is located in the base of the throat (in the hollow of the base) under the voicebox at the top of the Oesophagus and is part of the portion left in after patients have an ectomy. Drawings and photos of the throat show it as Cricopharyngeal Sphincter of the Oesophagus. I have Achalasia of this muscle which when closed can cause any excretions i:e saliva to go down the wrong way into the lungs... I am sure Notan can explain this better. ____________ _________ _________ __ From: Ann Higgs <lilac_blossom_ lady (DOT) . co.uk> Host Achalasia <achalasia@gro u ps.com> Sent: Saturday, January 10, 2009 12:26:17 PM Subject: Question Recently I have heard references to the UPPER oesophageal sphincter. Please can somebody tell me where this is located and if it is involved in our achalasia? Best Wishes to all from Ann. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 I've been dealing with the back pain since 97 and the car accident had taken place. As for the anxiety, that's something I've always questioned. To hear that persons with back pain have it I find really interesting. To be honest with you, I always thought that the epilepsy was something which the anxiety was coming from. It seemed to protrude more over a period of time after I had breakthroughs or at least it did to me anyway. At any rate, the anxiety is something which I manage through and have learned there are certain things that I can and cannot do. Sue Elvins, Web Designer apageor2.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2009 Report Share Posted January 21, 2009 Hey ! How are you today? Hope good! I do not know about the scuba, but I am sure that someone in the group will know...if not, I will look into it for you....I will get back to you regarding the scuba in 24 hours. Regarding placing your arms over your head AFTER the recuperation period....yes...you can. I do so daily when I stretch my back. Prior to my leg getting so bad, the first stim that I had placed in about 15 years ago, I not only stretched my arms above my head, but I swimmed every day having no problem at all. I sincerely hope your stim will help you and please know I am here, along with all the other members of this really great group for you. Take care!!! Gentle hugs to you and all, Kathy G. Co-Owner **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100000075x1215855013x1201028747/aol?redir=http://\ www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62) Quote Link to comment Share on other sites More sharing options...
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