EMF Sensitivity - Porphyria?

[Guest guest]

Hi all

I by chance came across an article the other day saying that estrogen is be

avoided in porphyria, as it makes it worse. My severe EMF problems started last

year not long after I started on estrogen therapy, so I wondered what porphyria

was (as it's about the only thing I haven't tested for on the lab's main test

page).

So apparently there are different types of porphyrias and they're mostly

genetic. Some of them make your skin extremely sensitive to sunlight because of

porphyrincs in the skin, these can also damage your liver, others lead to muscle

weakness, etc, and on googling, I found those people are also really sensitive

to fluorescent lights.(And I'm guessing EMF generally, even if they don't all

know it).

Then I found a book by a professor Rochlitz, who asserts that porphyria

is the root cause of CFS, MCS, ES etc, and is very much undiagnozed. According

to him, it can also be triggered by infections, heavy metals, etc. He says the

routine tests for it are unreliable, you need DNA testing to see if you have one

of the mutations causing the different types.

This is his book:

http://www.wellatlast.com/whatsnew.html

(I haven't bought it yet, but I'm planning on doing so).

This ia a summary of it:

http://www.thefreelibrary.com/Porphyria+Link+to+Environmental+Illness.-a02432904\

47

This is an Nexus article re, which I haven't bought either:

http://www.nexusmagazine.com/index.php?page=shop.product_details & flypage=flypage\

..tpl & product_id=1992 & category_id=214 & option=com_virtuemart & Itemid=44

Anyway, there's a site

http://www.cpnhelp.org/

where the subscribers are treating chlamydia pneumonia (not the same as the SCD

chlamadia T) as the cause of most cases of CFS, MS, etc. They do this with

pulsed antibiotics. But apparently Cpn also causes secondary porphyria, which

is worsened by killing it with antibiotics. They treat this with glucose, high

carb diets, activatged charcoal, increased b vits (especially b12) and Questran:

http://www.cpnhelp.org/secondaryporphyria

(These antibiotics would obviously also be addressing other infections such as

Lyme, Rickettsia, mycoplasma, etc), and I guess the porphyria treatment also

addressing other causes.

This is a discussion on their forum about EMF sensitivity, some have gotten over

their's by this antibiotic and porphyria traetment:

http://www.cpnhelp.org/computers_emfs_cold_feet

Another , new treatment for porphyria is Tegamet (Cimetidine ):

http://www.theannals.com/cgi/content/abstract/31/3/365

http://www.ncbi.nlm.nih.gov/pubmed/8915698?dopt=Abstract

Here's a Facebook chat about people using it for porphyria and some reporting

losing much sensitivity to the sun and to fluorescent lights:

http://www.facebook.com/topic.php?uid=2445760941 & topic=11831