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Hi ann, If yout Ft4 is dropping whay did doc not think to increase dose- especially as you are symptomatic- I suggest you go back and ask for a dose increase 'to see if it helps'- after all FT4 was not at the top of the range so there must be some leeway. thyroid treatment From: thomasann10@...Date: Mon, 17 May 2010 07:57:20 -0700Subject: supplements

Hi

Thanks to those who told me about selenium and zinc and the dose. I have started on them and hope they have some effect. I am so cold most of the time and wear layers of clothes. I also get quite lethargic on occasions and have to make myself do things that have to be done. I am on 100mcg of levothyroxine. Last time I went to the docs he said my T4 was right in the middle of normal (can't remember the figures) but it is dropping.Are there any other supplements which may help please?

Thanks

Ann

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  • 10 months later...
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I've tried a lot.  I do take glucosamine / chondroitin.  I see a little

difference but decided when I tried stopping it it was enough to continue. 

Cat's Claw is a mild Tnf inhibitor that helped when my Enbrel wasn't doing the

job.  Since the disease is inflammatory, anti-inflammatories are good

friends.  I take fish oil, flax seed oil and alpha lipoic acid.  And I drink a

lot of green tea.  They have some good blends that makes tea a very pleasurable

med for me. 

Janette in Indiana

From: phuzaxeman777 <phuzaxeman777@...>

Subject: supplements

Date: Saturday, April 9, 2011, 4:19 PM

 

what are your supplements you are taking (if any)? i'm currently taking

just a multivitamin with an extra vitamin d. i'm thinking of adding

glucosamine...

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Guest guest

Hi,

I am going to answer part of my own query, about what is banned. I called in

the local health food shop and spoke to a very nice lady who is a qualified

herbalist. She says nearly all the banned herbs are available through a

consultation with a qualified herbalist, but that they are not available on

demand as she would have to assess the situation and prescribe according to what

she thought.

The stuff on the shelf is still up for sale until the stock runs out but that at

her shop they have stockpiled enough for 2 years. When it runs out it will be

up to the manufacturers to either run the required studies or withdraw the

herb. There is total chaos in that the different manufacturers have a different

opinion on what is to be stopped, and there is most stuff available but not

necessarily from all the brands that would usually supply it. The shop has an

online business and is called 'yourhealthfoodstore' and I use it now and again

and find them very helpful but also extremely expensive.

One of the things that have been stopped, as far as she knows, is bilberry, and

also hawthorne. It is very easy to make your own tinctures of these however

using the fruits and a big bottle of vodka, as I did it last year following a

video on youtube.

I forgot to ask about coenzymeQ10. And I also would like to know how this will

effect the import of my supplements from iherb, if anybody could chip in I would

be grateful to know about it. Also I would like to know if the nutri adrenal

extra will be safe from this ban, as I will need to stockpile some in the

freezer if not.

love janet

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  • 2 weeks later...
Guest guest

Just in case the photo didn't come through I uploaded it to the album section

under my name Marenda.

I have not open the supplements because I would like your feedback on if I

brought the right things, if not I can take them back unopened.

Marenda

>

>

> Hello all, well I was finally able to go to Whole Foods and buy the

supplements. I am attaching a picture of what I brought and would like y'all

input on them. Did I get the right things? I hope the picture comes through.

Thanks

>

> Marenda

>       Men do not reject the Bible because they find faults in it but because

it finds faults in them.

>

>

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Marenda, 50 mg zinc is more often suggested for immune system bososting; it

looks like you have 15 mg? While glucosamine gets mixed results and chondroitin

isn't well absorbed by humans, cetyl-myristoleate forces cartilage and tendon

regeneration. And if you followed the Bible more closely you'd be more adept at

eating the magic mushrooms :)

all good,

Duncan

> >

> >

> > Hello all, well I was finally able to go to Whole Foods and buy the

supplements. I am attaching a picture of what I brought and would like y'all

input on them. Did I get the right things? I hope the picture comes through.

Thanks

> >

> > Marenda

> >       Men do not reject the Bible because they find faults in it but because

it finds faults in them.

> >

> >

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Hmm, so that means I need to take at least three daily of the zinc. Yeah the

glucosamine and chondroitin was recommended in the book " the new arthritis cure "

but I'm not sure about it. I tried it in the past and didn't noticed a

difference.

Didn't understand the last part, sorry it went over my head, LOL.

Thank you for all your help.

Marenda

> > >

> > >

> > > Hello all, well I was finally able to go to Whole Foods and buy the

supplements. I am attaching a picture of what I brought and would like y'all

input on them. Did I get the right things? I hope the picture comes through.

Thanks

> > >

> > > Marenda

> > >       Men do not reject the Bible because they find faults in it but

because it finds faults in them.

> > >

> > >

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Marenda, have a read of the booklet, " At Last Collastin " ; it is about the

discovery of cetyl-myristoleate and how it heals joints and tendons :)

http://members.shaw.ca/duncancrow/at_last_collastin.pdf

all good,

Duncan

>

> Hmm, so that means I need to take at least three daily of the zinc. Yeah the

glucosamine and chondroitin was recommended in the book " the new arthritis cure "

but I'm not sure about it. I tried it in the past and didn't noticed a

difference.

>

> Didn't understand the last part, sorry it went over my head, LOL.

>

> Thank you for all your help.

>

> Marenda

>

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No, but I'll check out the link.

This is my second day with the supplements and day eighth of oil pulling, good

so far.

Marenda

> >

> > Hmm, so that means I need to take at least three daily of the zinc. Yeah the

glucosamine and chondroitin was recommended in the book " the new arthritis cure "

but I'm not sure about it. I tried it in the past and didn't noticed a

difference.

> >

> > Didn't understand the last part, sorry it went over my head, LOL.

> >

> > Thank you for all your help.

> >

> > Marenda

> >

>

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HI Marenda:

I believe that Glucosamine Sulfate would be very therapeutic for

arthritis if you could take enough of it, but it eats up your digestive

tract in short order in quantity. I tried cetyl-myristoleate for my

joints prior to discovering my high quantity MSM protocol and it had no

effect. In fact, I still have a bottle of it on hand from years ago.

Chondroitin Sulfate has the additional problem of being a very large

molecule, which, as Duncan says, isn't well absorbed.

If you have not listened to Dr. Mark Hyman's video

<

you really should. He

repeats a lot of what Duncan has said here and talks a lot about the

importance of organic sulfates in the diet as well as the extreme value

of glutathione... really good stuff here. The only thing that he

recommends that is counter to Duncan's recommendations that I heard was

NAC and I stopped that years ago... but generally Mark is on top of the

game and with all of your health problems, he is worth your listen.

Regards,

Jim

>Hmm, so that means I need to take at least three daily of the zinc.

Yeah the glucosamine and chondroitin was recommended in the book " the

new arthritis cure " but I'm not sure about it. I tried it in the past

and didn't noticed a difference.

Didn't understand the last part, sorry it went over my head, LOL.

Thank you for all your help.

Marenda<

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I tried some cod liver oil must be low in D, it's helping lesson the

nerve pain. . I read Amy Yasko, refers to healing nerves.  Have any

tried GABA?

I react to  D3 for some reason.

She believes

glutamate is the bullet & calcium the gun.  We can get ammonia from

too much meat. Have to balance w more veggies. Calcium can excite the

nerves. Anybody read Blaylock's peice on it?

http://www.whale.to/a/sudden_cardiac_death.html

I know many take calcium, but it causes more pain for me. I was taking the wrong

kind though. She believes to keep your calcium

levels in the low range of normal. It's hard w what emf's do to it. But maybe

being low in cal caused my E Sens?

Kathy

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So if I get this right, Baylock is stating that LOW magnesium, when taking

Calcium supps is bad. That makes sense, as you have to have adeqaute Magnesium

stores in order for the body to be abe to metabolize Calcium...otherwise you get

calcium wasting......

Dandelion root is also rich is calcium.

Omega three's....lots of sources.

But it can hold true, that when the body is low low on a mineral or vitamin, it

can be hard to take.

Sort of like in the essentail oil arena, the one that people think smells yucky,

will be the one they NEED. My daughter said the thryoid supp smelled yucky to

her, and she didn't want to take them. Then one night, she got out of bed, and

took 2 and felt immediately better. She'd remembered the essential oil rule* and

applied it.

From: calicocat477@...

Date: Sat, 11 Jun 2011 15:42:33 -0700

Subject: Supplements

I tried some cod liver oil must be low in D, it's helping lesson the

nerve pain. . I read Amy Yasko, refers to healing nerves. Have any

tried GABA?

I react to D3 for some reason.

She believes

glutamate is the bullet & calcium the gun. We can get ammonia from

too much meat. Have to balance w more veggies. Calcium can excite the

nerves. Anybody read Blaylock's peice on it?

http://www.whale.to/a/sudden_cardiac_death.html

I know many take calcium, but it causes more pain for me. I was taking the wrong

kind though. She believes to keep your calcium

levels in the low range of normal. It's hard w what emf's do to it. But maybe

being low in cal caused my E Sens?

Kathy

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Hi Diane,

Pardon me for jumping in here - but some of what you've said here sounds like it

could be exactly what I'm experiencing. For the past several days, I have been

trying to take a 250mg capsule of niacinamide 2 to 3 times per day. I have read

all of the info on niacinamide which states that it's supposed to be quite

helpful for anxiety - even acting as sort-of a benzodiazepine (sp.) in the

brain. (Supposedly, people have been able to reduce or stop taking their benzos

by taking this nutrient.) It's also supposed to be helpful for reducing the

toxic effects of Candida/yeast - by helping to clear that nasty alcohol

byproduct acetaldehyde. These are the reasons why I thought niacinamide would

be great for me.

But instead of a calming effect, I've gotten this frustrating paradoxical

reaction - I've felt agitated, even more spacey/foggy than normal - off-kilter.

I have noticed that body-agitation - that figety need to move around. Sometimes

when I take it, I feel like the agitation might be coming more from my body than

my brain, if that makes sense: my brain may be pretty calm, but my body will

have this uncomfortable, keyed-up feeling. Other times, both my brain and my

body feel agitated.

In light of what you've shared, I wonder if this is evidence that my BBB is

leaky - as I believe niacinamide directly or indirectly increases GABA levels.

Before I read your post, I had my little " theories " , such as:

-My brain/body has been accustomed to a certain biochemical state, and it is

" rebelling " against niacinamide's pushing it toward another biochemical state.

Maybe it needs time to adjust.

-the niacinamide is somehow increasing acidity levels in my body. I've had a

problem over the years with many supplements making me too " acidic " - and my

body doesn't respond well to that increased acidity. I've had to greatly reduce

or even back off supplements altogether because of this type of reaction. I've

read that niacinamide can increase uric acid levels.

I have found that with Vitamin B6 (if a lab test I took in November is to be

believed, I have severe pyroluria) - I've had somewhat of the same reaction. It

had caused agitation and insomnia - particularly the Twinlabs brand. I seem to

tolerate the Source Naturals' brand of B6 (50mg) well, though - I attributed

this to the calcium phosphate that Source Naturals put in the tablets. Maybe

the calcium phosphate somehow has a calming, and/or alkalinizing effect - or it

helps the B6 to " land more softly " in my system.

Maybe switching to a niacinamide supplement that has calcium (phosphate) in it

might be a partial solution - although I feel like this could only be a

superficial, " band-aid " solution.

It feels like there is a lot more going on with the niacinamide than just

increased acidity, though. It sounds like what you've said about the leaky BBB

could be a very real possibility with me. I've also noticed that supplements

seem to have a very rapid effect on me - I can often start to feel the effect of

supplements within 10 - 20 seconds. Could this be a sign of leaky-gut and/or

leaky BBB?

May I ask what you did nutritionally to heal your leaky BBB? I'm sure you've

shared it before - but it can be difficult to wade through all of the messages.

(Maybe I'll try to do a Google search later.) You can just outline it -

hopefully it won't be too much work!

It would be nice if I could somehow get my intestines biopsied to see if there

is any damage. Since the things one has to do to heal a damaged/leaky gut can be

pretty labor-intensive, it would be nice to have actual, tangible confirmation

that I have gut-damage. I've been " toying " with the idea of transitioning to a

gluten-free and/or casein-free diet, or even going further than that and trying

the Specific Carbohydrate diet. But you're talking about someone who never

cooks - it would be a huge, HUGE lifestyle adjustment for me.

Regards,

~Svetaswan

>

>

> From: KathyB <calicocat477@...>

> Subject: Supplements

>

> Date: Saturday, June 11, 2011, 6:42 PM

>

>

>  

>

>

>

>

> I tried some cod liver oil must be low in D, it's helping lesson the

> nerve pain. . I read Amy Yasko, refers to healing nerves.  Have any

> tried GABA?

> I react to  D3 for some reason.

>

> She believes

> glutamate is the bullet & calcium the gun.  We can get ammonia from

> too much meat. Have to balance w more veggies. Calcium can excite the

> nerves. Anybody read Blaylock's peice on it?

> http://www.whale.to/a/sudden_cardiac_death.html

>

> I know many take calcium, but it causes more pain for me. I was taking the

wrong kind though. She believes to keep your calcium

> levels in the low range of normal. It's hard w what emf's do to it. But maybe

being low in cal caused my E Sens?

>

> Kathy

>

>

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Hi,

My 2 cents......for leaky gut, probiotics.

Read this entire article. It explains why probiotics are vital gut health.

Also, candida problems are often rooted in the thryoid. Why? Low thryoid the

candida levels go UP. Same as chlolesteral levels go UP with low thyroid.

Lizzie

Probiotics | Complete Probiotics Supplements by Dr. Mercola

That's exactly what's happened with this new probiotic formula that I'm ... I

spent hours poring over the latest research and newest studies to be sure I had

...... The information on this website is not intended to replace a one-on-one

....probiotics.mercola.com/probiotics.html - Cached - Similar- Block all

probiotics.mercola.com results

From: svetaswan@...

Date: Tue, 14 Jun 2011 00:39:31 +0000

Subject: Re: Supplements

Hi Diane,

Pardon me for jumping in here - but some of what you've said here sounds like it

could be exactly what I'm experiencing. For the past several days, I have been

trying to take a 250mg capsule of niacinamide 2 to 3 times per day. I have read

all of the info on niacinamide which states that it's supposed to be quite

helpful for anxiety - even acting as sort-of a benzodiazepine (sp.) in the

brain. (Supposedly, people have been able to reduce or stop taking their benzos

by taking this nutrient.) It's also supposed to be helpful for reducing the

toxic effects of Candida/yeast - by helping to clear that nasty alcohol

byproduct acetaldehyde. These are the reasons why I thought niacinamide would be

great for me.

But instead of a calming effect, I've gotten this frustrating paradoxical

reaction - I've felt agitated, even more spacey/foggy than normal - off-kilter.

I have noticed that body-agitation - that figety need to move around. Sometimes

when I take it, I feel like the agitation might be coming more from my body than

my brain, if that makes sense: my brain may be pretty calm, but my body will

have this uncomfortable, keyed-up feeling. Other times, both my brain and my

body feel agitated.

In light of what you've shared, I wonder if this is evidence that my BBB is

leaky - as I believe niacinamide directly or indirectly increases GABA levels.

Before I read your post, I had my little " theories " , such as:

-My brain/body has been accustomed to a certain biochemical state, and it is

" rebelling " against niacinamide's pushing it toward another biochemical state.

Maybe it needs time to adjust.

-the niacinamide is somehow increasing acidity levels in my body. I've had a

problem over the years with many supplements making me too " acidic " - and my

body doesn't respond well to that increased acidity. I've had to greatly reduce

or even back off supplements altogether because of this type of reaction. I've

read that niacinamide can increase uric acid levels.

I have found that with Vitamin B6 (if a lab test I took in November is to be

believed, I have severe pyroluria) - I've had somewhat of the same reaction. It

had caused agitation and insomnia - particularly the Twinlabs brand. I seem to

tolerate the Source Naturals' brand of B6 (50mg) well, though - I attributed

this to the calcium phosphate that Source Naturals put in the tablets. Maybe the

calcium phosphate somehow has a calming, and/or alkalinizing effect - or it

helps the B6 to " land more softly " in my system.

Maybe switching to a niacinamide supplement that has calcium (phosphate) in it

might be a partial solution - although I feel like this could only be a

superficial, " band-aid " solution.

It feels like there is a lot more going on with the niacinamide than just

increased acidity, though. It sounds like what you've said about the leaky BBB

could be a very real possibility with me. I've also noticed that supplements

seem to have a very rapid effect on me - I can often start to feel the effect of

supplements within 10 - 20 seconds. Could this be a sign of leaky-gut and/or

leaky BBB?

May I ask what you did nutritionally to heal your leaky BBB? I'm sure you've

shared it before - but it can be difficult to wade through all of the messages.

(Maybe I'll try to do a Google search later.) You can just outline it -

hopefully it won't be too much work!

It would be nice if I could somehow get my intestines biopsied to see if there

is any damage. Since the things one has to do to heal a damaged/leaky gut can be

pretty labor-intensive, it would be nice to have actual, tangible confirmation

that I have gut-damage. I've been " toying " with the idea of transitioning to a

gluten-free and/or casein-free diet, or even going further than that and trying

the Specific Carbohydrate diet. But you're talking about someone who never cooks

- it would be a huge, HUGE lifestyle adjustment for me.

Regards,

~Svetaswan

>

>

> From: KathyB <calicocat477@...>

> Subject: Supplements

>

> Date: Saturday, June 11, 2011, 6:42 PM

>

>

> Â

>

>

>

>

> I tried some cod liver oil must be low in D, it's helping lesson the

> nerve pain. . I read Amy Yasko, refers to healing nerves. Have any

> tried GABA?

> I react to D3 for some reason.

>

> She believes

> glutamate is the bullet & calcium the gun. We can get ammonia from

> too much meat. Have to balance w more veggies. Calcium can excite the

> nerves. Anybody read Blaylock's peice on it?

> http://www.whale.to/a/sudden_cardiac_death.html

>

> I know many take calcium, but it causes more pain for me. I was taking the

wrong kind though. She believes to keep your calcium

> levels in the low range of normal. It's hard w what emf's do to it. But maybe

being low in cal caused my E Sens?

>

> Kathy

>

>

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Hi Kathy,

I second Diane - Carlson Labs seems to make a great D3 supplement that has

worked for me. I've been using their Vitamin D drops for almost two years, now

- and this is one supplement that I seem to tolerate exceedingly well. And I'm

very sensitive when it comes to supplements - I seem to be much more sensitive

to supplements than the average person. I've shown an intolerance to many - but

I tolerate these drops beautifully - even when I take several drops at a time.

The drops come in tiny bottles - but there are 365 drops per bottle. (One drop

is either 1000 IU or 2000 IU - depending on what bottle you purchase. I think

they make drops in lower doses, as well.) The only other ingredient is

fractionated coconut oil. The drops have no taste - I usually put a few drops

on whatever food I'm eating, and I never taste it. I love the simplicity of

these drops - the fact that you don't have to bother with a much larger tablet

or capsule, with their various filler ingredients.

What's more, my Vitamin D levels have risen substantially within the past year

or two - they were way below the recommended levels in 2009 or 2010...now they

are well within the " healthy " range.

~Svetaswan

>

>

> I tried some cod liver oil must be low in D, it's helping lesson the

> nerve pain. . I read Amy Yasko, refers to healing nerves.  Have any

> tried GABA?

> I react to  D3 for some reason.

>

> She believes

> glutamate is the bullet & calcium the gun.  We can get ammonia from

> too much meat. Have to balance w more veggies. Calcium can excite the

> nerves. Anybody read Blaylock's peice on it?

> http://www.whale.to/a/sudden_cardiac_death.html

>

> I know many take calcium, but it causes more pain for me. I was taking the

wrong kind though. She believes to keep your calcium

> levels in the low range of normal. It's hard w what emf's do to it. But maybe

being low in cal caused my E Sens?

>

> Kathy

>

>

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Guest guest

Hi,

I was reading about pyrluria.

http://www.drkaslow.com/html/pyroluria.html

Both zinc and B6 need to be

directed by the doctor as too much can be toxic, use of the wrong form will be

ineffective, and avoiding competing minerals and supplements may be necessary.

Other nutrients may assist in pyroluria include niacinamide, pantothenic acid,

manganese, vitamins C and E, omega-6

fatty acids and cysteine.

Food sources and nutritional supplements containing

copper and red/yellow food dyes should be avoided.

I have anxiety myself, but haven't tested w that, yet anyway.

You might try a smaller dose of niacinamide. Some of us like me have to start

slower w supps than others.

 It helped me, but caused this reaction of pain in the abdomen.  I hope

someone else can help.

Kathy

From: svetaswan <svetaswan@...>

Subject: Re: Supplements

 

Hi Diane,

Pardon me for jumping in here - but some of what you've said here sounds like it

could be exactly what I'm experiencing. For the past several days, I have been

trying to take a 250mg capsule of niacinamide 2 to 3 times per day. I have read

all of the info on niacinamide which states that it's supposed to be quite

helpful for anxiety - even acting as sort-of a benzodiazepine (sp.) in the

brain. (Supposedly, people have been able to reduce or stop taking their benzos

by taking this nutrient.) It's also supposed to be helpful for reducing the

toxic effects of Candida/yeast - by helping to clear that nasty alcohol

byproduct acetaldehyde. These are the reasons why I thought niacinamide would

be great for me.

But instead of a calming effect, I've gotten this frustrating paradoxical

reaction - I've felt agitated, even more spacey/foggy than normal - off-kilter.

I have noticed that body-agitation - that figety need to move around. Sometimes

when I take it, I feel like the agitation might be coming more from my body than

my brain, if that makes sense: my brain may be pretty calm, but my body will

have this uncomfortable, keyed-up feeling. Other times, both my brain and my

body feel agitated.

In light of what you've shared, I wonder if this is evidence that my BBB is

leaky - as I believe niacinamide directly or indirectly increases GABA levels.

Before I read your post, I had my little " theories " , such as:

-My brain/body has been accustomed to a certain biochemical state, and it is

" rebelling " against niacinamide's pushing it toward another biochemical state.

Maybe it needs time to adjust.

-the niacinamide is somehow increasing acidity levels in my body. I've had a

problem over the years with many supplements making me too " acidic " - and my

body doesn't respond well to that increased acidity. I've had to greatly reduce

or even back off supplements altogether because of this type of reaction. I've

read that niacinamide can increase uric acid levels.

I have found that with Vitamin B6 (if a lab test I took in November is to be

believed, I have severe pyroluria) - I've had somewhat of the same reaction. It

had caused agitation and insomnia - particularly the Twinlabs brand. I seem to

tolerate the Source Naturals' brand of B6 (50mg) well, though - I attributed

this to the calcium phosphate that Source Naturals put in the tablets. Maybe

the calcium phosphate somehow has a calming, and/or alkalinizing effect - or it

helps the B6 to " land more softly " in my system.

Maybe switching to a niacinamide supplement that has calcium (phosphate) in it

might be a partial solution - although I feel like this could only be a

superficial, " band-aid " solution.

It feels like there is a lot more going on with the niacinamide than just

increased acidity, though. It sounds like what you've said about the leaky BBB

could be a very real possibility with me. I've also noticed that supplements

seem to have a very rapid effect on me - I can often start to feel the effect of

supplements within 10 - 20 seconds. Could this be a sign of leaky-gut and/or

leaky BBB?

May I ask what you did nutritionally to heal your leaky BBB? I'm sure you've

shared it before - but it can be difficult to wade through all of the messages.

(Maybe I'll try to do a Google search later.) You can just outline it -

hopefully it won't be too much work!

It would be nice if I could somehow get my intestines biopsied to see if there

is any damage. Since the things one has to do to heal a damaged/leaky gut can be

pretty labor-intensive, it would be nice to have actual, tangible confirmation

that I have gut-damage. I've been " toying " with the idea of transitioning to a

gluten-free and/or casein-free diet, or even going further than that and trying

the Specific Carbohydrate diet. But you're talking about someone who never

cooks - it would be a huge, HUGE lifestyle adjustment for me.

Regards,

~Svetaswan

>

>

> From: KathyB <calicocat477@...>

> Subject: Supplements

>

> Date: Saturday, June 11, 2011, 6:42 PM

>

>

>  

>

>

>

>

> I tried some cod liver oil must be low in D, it's helping lesson the

> nerve pain. . I read Amy Yasko, refers to healing nerves.  Have any

> tried GABA?

> I react to  D3 for some reason.

>

> She believes

> glutamate is the bullet & calcium the gun.  We can get ammonia from

> too much meat. Have to balance w more veggies. Calcium can excite the

> nerves. Anybody read Blaylock's peice on it?

> http://www.whale.to/a/sudden_cardiac_death.html

>

> I know many take calcium, but it causes more pain for me. I was taking the

wrong kind though. She believes to keep your calcium

> levels in the low range of normal. It's hard w what emf's do to it. But maybe

being low in cal caused my E Sens?

>

> Kathy

>

>

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Hi, Sveta,

 

No problem with jumping in!  lol  If Lizzie and I wanted to discuss things

personally, we could do it in a private mail!

 

Niacinamide can lead to an increase in serotonin, and serotonin can lead to an

increase in GABA.  SOOOO, you could be having either a reaction to increased

GABA crossing the bbb, or you could be having something a bit

different--serotonin syndrome.  Look it up, Sveta, you will find much more

online than I could tell you in a very long email.  ;)  Do you have hot

flushes, turning red, spells of profuse sweating, with the anxiety?  This would

be more likely serotonin syndrome.

 

Also, what you describe ACTUALLY sounds just to be a bad detox reaction

(foggy-headed, anxiety....)  Maybe the niacinamide is detoxing alot of candida

and you are just detoxing too quickly?  I would have to know a lot more about

your symptoms to answer your question definitively, but look into all 3--it is

likely detoxing, tho.  To detox less quickly, just cut the amount of

niacinamide you are taking.  Over time, you can very slowly increase it and

likely tolerate it better.

 

Interestingly, tho, calcium is implicated in the bbb tight junction problem

(leaky tjs cause calcium to efflux).  But, calcium has wide ranging functions

in the body, so it is hard to say what it is doing for you, but if it is having

an effect which is good when using the niacinamide, I'd keep taking the supps

with it in. 

 

What I took for healing my bbb was a combo of calcium AEP, pantethine (B5),

manganese, and taurine.  I don't do well with glutamine supps, but it is likely

glutamine would help most people.  I do say over and over here, tho, be very

careful if you use manganese.  It is a toxic metal in excess.  I am very

careful and only take a small amount UP TO twice a week.  If you intend to use

manganese, please write me and I will send more pertinent information. 

 

The noticing the effects of supps so quickly does seem like it could mean you

have some BBB issues.  Do you have this with all supps or just certain ones. 

With certain ones, it could have more to do with detoxing, again.

 

Yes, going gluten-free would mean a huge life-style adjustment for you! 

However, if you need to go there, you need to go there.  You cannot choose

which illness you will treat and not treat.  Illness is illness; any illness

will affect another.  You cannot treat ES without treating gluten issues (if

you have them) or gut bug issues.  Also, the fact that you have gut bug issues

in the first place is an indicator that gut damage has been first caused by

something!  Gluten accomplishes that quite well in some people.  ;)

 

Sorry I am just answering your post.  I am only online weekends and I usually

go offline Sunday afternoons (incase you have not yet read that on one of my

umpteen weekend posts).  lol

 

Bless you,

Diane

From: svetaswan <svetaswan@...>

Subject: Re: Supplements

Date: Monday, June 13, 2011, 8:39 PM

 

Hi Diane,

Pardon me for jumping in here - but some of what you've said here sounds like it

could be exactly what I'm experiencing. For the past several days, I have been

trying to take a 250mg capsule of niacinamide 2 to 3 times per day. I have read

all of the info on niacinamide which states that it's supposed to be quite

helpful for anxiety - even acting as sort-of a benzodiazepine (sp.) in the

brain. (Supposedly, people have been able to reduce or stop taking their benzos

by taking this nutrient.) It's also supposed to be helpful for reducing the

toxic effects of Candida/yeast - by helping to clear that nasty alcohol

byproduct acetaldehyde. These are the reasons why I thought niacinamide would be

great for me.

But instead of a calming effect, I've gotten this frustrating paradoxical

reaction - I've felt agitated, even more spacey/foggy than normal - off-kilter.

I have noticed that body-agitation - that figety need to move around. Sometimes

when I take it, I feel like the agitation might be coming more from my body than

my brain, if that makes sense: my brain may be pretty calm, but my body will

have this uncomfortable, keyed-up feeling. Other times, both my brain and my

body feel agitated.

In light of what you've shared, I wonder if this is evidence that my BBB is

leaky - as I believe niacinamide directly or indirectly increases GABA levels.

Before I read your post, I had my little " theories " , such as:

-My brain/body has been accustomed to a certain biochemical state, and it is

" rebelling " against niacinamide's pushing it toward another biochemical state.

Maybe it needs time to adjust.

-the niacinamide is somehow increasing acidity levels in my body. I've had a

problem over the years with many supplements making me too " acidic " - and my

body doesn't respond well to that increased acidity. I've had to greatly reduce

or even back off supplements altogether because of this type of reaction. I've

read that niacinamide can increase uric acid levels.

I have found that with Vitamin B6 (if a lab test I took in November is to be

believed, I have severe pyroluria) - I've had somewhat of the same reaction. It

had caused agitation and insomnia - particularly the Twinlabs brand. I seem to

tolerate the Source Naturals' brand of B6 (50mg) well, though - I attributed

this to the calcium phosphate that Source Naturals put in the tablets. Maybe the

calcium phosphate somehow has a calming, and/or alkalinizing effect - or it

helps the B6 to " land more softly " in my system.

Maybe switching to a niacinamide supplement that has calcium (phosphate) in it

might be a partial solution - although I feel like this could only be a

superficial, " band-aid " solution.

It feels like there is a lot more going on with the niacinamide than just

increased acidity, though. It sounds like what you've said about the leaky BBB

could be a very real possibility with me. I've also noticed that supplements

seem to have a very rapid effect on me - I can often start to feel the effect of

supplements within 10 - 20 seconds. Could this be a sign of leaky-gut and/or

leaky BBB?

May I ask what you did nutritionally to heal your leaky BBB? I'm sure you've

shared it before - but it can be difficult to wade through all of the messages.

(Maybe I'll try to do a Google search later.) You can just outline it -

hopefully it won't be too much work!

It would be nice if I could somehow get my intestines biopsied to see if there

is any damage. Since the things one has to do to heal a damaged/leaky gut can be

pretty labor-intensive, it would be nice to have actual, tangible confirmation

that I have gut-damage. I've been " toying " with the idea of transitioning to a

gluten-free and/or casein-free diet, or even going further than that and trying

the Specific Carbohydrate diet. But you're talking about someone who never cooks

- it would be a huge, HUGE lifestyle adjustment for me.

Regards,

~Svetaswan

>

>

> From: KathyB <calicocat477@...>

> Subject: Supplements

>

> Date: Saturday, June 11, 2011, 6:42 PM

>

>

>  

>

>

>

>

> I tried some cod liver oil must be low in D, it's helping lesson the

> nerve pain. . I read Amy Yasko, refers to healing nerves.  Have any

> tried GABA?

> I react to  D3 for some reason.

>

> She believes

> glutamate is the bullet & calcium the gun.  We can get ammonia from

> too much meat. Have to balance w more veggies. Calcium can excite the

> nerves. Anybody read Blaylock's peice on it?

> http://www.whale.to/a/sudden_cardiac_death.html

>

> I know many take calcium, but it causes more pain for me. I was taking the

wrong kind though. She believes to keep your calcium

> levels in the low range of normal. It's hard w what emf's do to it. But maybe

being low in cal caused my E Sens?

>

> Kathy

>

>

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Sorry to jump in here. I react to a sup. almost after taking too.

Is that  calcium influx?  Instead of in cells it goes to the brain. Could that

cause you to feel shaky, crabby,   or have energy to clean after a friend talks

to you on a cordless?

http://www.icswebsite.com/emf/emfissues/emfissues9.html

You could try quitting gluten & see how you feel after a week or two. Made an

amazing difference for me.

How would one know if you had efflux or have an issue w calcium acting as

excitatory nutrient?

Kathy

evie15422@...> wrote

Interestingly, tho, calcium is implicated in the bbb tight junction

problem (leaky tjs cause calcium to efflux).  But, calcium has wide

ranging functions in the body, so it is hard to say what it is doing for

you, but if it is having an effect which is good when using the

niacinamide, I'd keep taking the supps with it in. 

 

What I took for healing my bbb was a combo of calcium AEP, pantethine

(B5), manganese, and taurine.  I don't do well with glutamine supps, but

it is likely glutamine would help most people.  I do say over and over

here, tho, be very careful if you use manganese.  It is a toxic metal in

excess.  I am very careful and only take a small amount UP TO twice a

week.  If you intend to use manganese, please write me and I will send

more pertinent information. 

From: svetaswan <svetaswan@...>

Subject: Re: Supplements

Date: Monday, June 13, 2011, 8:39 PM

 

Hi Diane,

Pardon me for jumping in here - but some of what you've said here sounds like it

could be exactly what I'm experiencing. For the past several days, I have been

trying to take a 250mg capsule of niacinamide 2 to 3 times per day. I have read

all of the info on niacinamide which states that it's supposed to be quite

helpful for anxiety - even acting as sort-of a benzodiazepine (sp.) in the

brain. (Supposedly, people have been able to reduce or stop taking their benzos

by taking this nutrient.) It's also supposed to be helpful for reducing the

toxic effects of Candida/yeast - by helping to clear that nasty alcohol

byproduct acetaldehyde. These are the reasons why I thought niacinamide would be

great for me.

But instead of a calming effect, I've gotten this frustrating paradoxical

reaction - I've felt agitated, even more spacey/foggy than normal - off-kilter.

I have noticed that body-agitation - that figety need to move around. Sometimes

when I take it, I feel like the agitation might be coming more from my body than

my brain, if that makes sense: my brain may be pretty calm, but my body will

have this uncomfortable, keyed-up feeling. Other times, both my brain and my

body feel agitated.

In light of what you've shared, I wonder if this is evidence that my BBB is

leaky - as I believe niacinamide directly or indirectly increases GABA levels.

Before I read your post, I had my little " theories " , such as:

-My brain/body has been accustomed to a certain biochemical state, and it is

" rebelling " against niacinamide's pushing it toward another biochemical state.

Maybe it needs time to adjust.

-the niacinamide is somehow increasing acidity levels in my body. I've had a

problem over the years with many supplements making me too " acidic " - and my

body doesn't respond well to that increased acidity. I've had to greatly reduce

or even back off supplements altogether because of this type of reaction. I've

read that niacinamide can increase uric acid levels.

I have found that with Vitamin B6 (if a lab test I took in November is to be

believed, I have severe pyroluria) - I've had somewhat of the same reaction. It

had caused agitation and insomnia - particularly the Twinlabs brand. I seem to

tolerate the Source Naturals' brand of B6 (50mg) well, though - I attributed

this to the calcium phosphate that Source Naturals put in the tablets. Maybe the

calcium phosphate somehow has a calming, and/or alkalinizing effect - or it

helps the B6 to " land more softly " in my system.

Maybe switching to a niacinamide supplement that has calcium (phosphate) in it

might be a partial solution - although I feel like this could only be a

superficial, " band-aid " solution.

It feels like there is a lot more going on with the niacinamide than just

increased acidity, though. It sounds like what you've said about the leaky BBB

could be a very real possibility with me. I've also noticed that supplements

seem to have a very rapid effect on me - I can often start to feel the effect of

supplements within 10 - 20 seconds. Could this be a sign of leaky-gut and/or

leaky BBB?

May I ask what you did nutritionally to heal your leaky BBB? I'm sure you've

shared it before - but it can be difficult to wade through all of the messages.

(Maybe I'll try to do a Google search later.) You can just outline it -

hopefully it won't be too much work!

It would be nice if I could somehow get my intestines biopsied to see if there

is any damage. Since the things one has to do to heal a damaged/leaky gut can be

pretty labor-intensive, it would be nice to have actual, tangible confirmation

that I have gut-damage. I've been " toying " with the idea of transitioning to a

gluten-free and/or casein-free diet, or even going further than that and trying

the Specific Carbohydrate diet. But you're talking about someone who never cooks

- it would be a huge, HUGE lifestyle adjustment for me.

Regards,

~Svetaswan

>

> Hi, Kathy,

>  

> Sorry to hear of your dilemma.  GABA won't help if you have tight junction

permeability or blood-brain barrier leaking.  GABA is what some doctors

actually use to see if you have BBB leaking.  If you do have it, you get very

agitated instead of the calm, mellowed out feeling you are supposed to have with

GABA.  [sometimes, tho, you first get the calm mellow feeling and then after

another dose get the bad agitated, angry feelings.]  This is perhaps a good

way, however, to assess whether a leaky BBB and tight junctions have anything to

do with your ES!  You would have good evidence if you took the GABA after being

badly emf-ed.

>  

> Have you tried D3 from an all natural source?  Carlson's Labs has a D3 made

from Fish oils.  It is pretty pricey, but you only take it every other day and

so it lasts a long time. 

>  

> B12 is something which might help you.  Get a sublingual pill, which bypasses

the gut, and the best quality you can find.  I use methylcobalamin.  There are

different types.  B12 helps the nervous system.

>  

> Possibly a hydrogen supplement would help.

>  

> You mentioned not doing well on calcium, and I didn't either until I took

calcium AEP.  I personally always take it with pantethine.  Emfs can cause

calcium efflux from where it should be in the brain.  Calcium AEP is the type

calcium the brain uses.  Again, this would pertain to you only if you know your

BBB is leaking, and not necessarily pertain, if it is not. 

>  

> If you have a good doctor who you can go to, also, a calcium channel

blocker might be helpful, if you know for sure you are having calcium efflux. 

I take the natural calcium channel blockers manganese and taurine once in a

while (I do not consider these safe for me to take on a daily basis, but then, I

have no need for doing that anyway, since I am now rarely having ES

symptoms).  [if you need to try these, however, do ask me for more info,

because manganese can act as a toxic metal.  I am only here on weekends, tho,

so expect to wait a few days before hearing from me.  (Sorry!)]  The way this

works, from my understanding, if you have calcium efflux is:  the tight

junction is opened by emfs, then this allows calcium migration to occur.  The

tight junction cannot sometimes close properly, so sometimes the efflux doesn't

stop till a calcium

channel blocker is taken.  If you take a calcium channel

blocker, it will block the calcium from

> leaking, often, in the first place.  (At least that is how it is with the

manganese and taurine.)  However, know that many of us have conflicting medical

needs for which calcium channel blockers are not a good therapy.  (If it were

that easy, we could all go running to our docs for calcium channel blockers. 

;)  )  You may share this with your doctor and if she is a very good doc, she

will check it out herself and may have even better ideas. 

>  

> As to shielding.....  There are a number of good options for windows:

aluminum or steel screens for windows (I forget the size mesh, but it has to be

small and you have to cover the windows including the window frames); there are

anti-emf window films; there are anti-emf fabrics which can be made into curtain

panels (I velcro mine to a painted lath board on the wall at the ceiling--glue

the lath board up; my drapes are also ceiling height); I also use huge

plants--fan palms, other palms, large ficus, scheffalera(?sp?); and I have used

a large screen made from 3 doors hinged together and covered on one side with

heavy aluminum foil, which is movable and portable.  Outside trees are even

better shields, especially thick evergreens, but placement can be a challenge

and it takes at least 3 years before they are large enough.  [However, as

a home owner, I would like getting as many trees in  place

to help with neighboring smart

meters, as possible!]

>  

> On shielding with screen, fabric, foil....  It seems that if you double

fabric or screen on itself, it will then negate shielding and allow emfs thru,

so for edging and seams, you must make a 3 layer seam.  Odd thicknesses block

emfs, even thicknesses let emfs pass thru.  Very hard to grasp, I know from

experience.  lol 

>  

> Also, if there are aberrant, digital, or wireless frequencies inside your

house, they will bounce off of some of these fixes and cause you problems from

within.  You can try heavy aluminum foil taped to the wall to see how it works

temporarily until you get something better in place.  Remember there might be

also metal in the wall or nails in studding that could cause problems. 

>  

> Hope some of this is helpful; it sounds like you truly need something fast,

> Bless you,

> Diane

>

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hi yet again, Kathy!  ;)

 

No, the reacting to supplements quickly has nothing to do with calcium influx, I

think.  I am not sure reacting quickly to supplements is all that predictive of

bbb damage either, but it might be.  If you react really badly and quickly to

medicines, that would be more predictive of bbb damage due to tight junction

leaking.

 

Calcium efflux, not influx might cause you to feel shaky, crabby, and lack

energy to clean, (as well as other symptoms and issues) due to tight junction

leaking.

 

As far as whether you are having calcium efflux or calcium reacting as an

excitatory nutrient....  I am not sure whether you would be able to tell this

or not.  It depends upon your symptoms.  For me, I follow symptoms.  I notice

when my bp falls, especially, my body craves calcium.  It is like calcium is

draining out of me.  In a way it is literally draining out, at least from

particular cells!  When my bp falls, I can take calcium and make it rise again

to normal.  I think if calcium were only acting as an excitatory agent, it

would not work to add more to raise bp.  I have seen calcium supplementation

work on many symptoms during and after an ES episode. 

 

Diane

From: svetaswan <svetaswan@...>

Subject: Re: Supplements

Date: Monday, June 13, 2011, 8:39 PM

 

Hi Diane,

Pardon me for jumping in here - but some of what you've said here sounds like it

could be exactly what I'm experiencing. For the past several days, I have been

trying to take a 250mg capsule of niacinamide 2 to 3 times per day. I have read

all of the info on niacinamide which states that it's supposed to be quite

helpful for anxiety - even acting as sort-of a benzodiazepine (sp.) in the

brain. (Supposedly, people have been able to reduce or stop taking their benzos

by taking this nutrient.) It's also supposed to be helpful for reducing the

toxic effects of Candida/yeast - by helping to clear that nasty alcohol

byproduct acetaldehyde. These are the reasons why I thought niacinamide would be

great for me.

But instead of a calming effect, I've gotten this frustrating paradoxical

reaction - I've felt agitated, even more spacey/foggy than normal - off-kilter.

I have noticed that body-agitation - that figety need to move around. Sometimes

when I take it, I feel like the agitation might be coming more from my body than

my brain, if that makes sense: my brain may be pretty calm, but my body will

have this uncomfortable, keyed-up feeling. Other times, both my brain and my

body feel agitated.

In light of what you've shared, I wonder if this is evidence that my BBB is

leaky - as I believe niacinamide directly or indirectly increases GABA levels.

Before I read your post, I had my little " theories " , such as:

-My brain/body has been accustomed to a certain biochemical state, and it is

" rebelling " against niacinamide's pushing it toward another biochemical state.

Maybe it needs time to adjust.

-the niacinamide is somehow increasing acidity levels in my body. I've had a

problem over the years with many supplements making me too " acidic " - and my

body doesn't respond well to that increased acidity. I've had to greatly reduce

or even back off supplements altogether because of this type of reaction. I've

read that niacinamide can increase uric acid levels.

I have found that with Vitamin B6 (if a lab test I took in November is to be

believed, I have severe pyroluria) - I've had somewhat of the same reaction. It

had caused agitation and insomnia - particularly the Twinlabs brand. I seem to

tolerate the Source Naturals' brand of B6 (50mg) well, though - I attributed

this to the calcium phosphate that Source Naturals put in the tablets. Maybe the

calcium phosphate somehow has a calming, and/or alkalinizing effect - or it

helps the B6 to " land more softly " in my system.

Maybe switching to a niacinamide supplement that has calcium (phosphate) in it

might be a partial solution - although I feel like this could only be a

superficial, " band-aid " solution.

It feels like there is a lot more going on with the niacinamide than just

increased acidity, though. It sounds like what you've said about the leaky BBB

could be a very real possibility with me. I've also noticed that supplements

seem to have a very rapid effect on me - I can often start to feel the effect of

supplements within 10 - 20 seconds. Could this be a sign of leaky-gut and/or

leaky BBB?

May I ask what you did nutritionally to heal your leaky BBB? I'm sure you've

shared it before - but it can be difficult to wade through all of the messages.

(Maybe I'll try to do a Google search later.) You can just outline it -

hopefully it won't be too much work!

It would be nice if I could somehow get my intestines biopsied to see if there

is any damage. Since the things one has to do to heal a damaged/leaky gut can be

pretty labor-intensive, it would be nice to have actual, tangible confirmation

that I have gut-damage. I've been " toying " with the idea of transitioning to a

gluten-free and/or casein-free diet, or even going further than that and trying

the Specific Carbohydrate diet. But you're talking about someone who never cooks

- it would be a huge, HUGE lifestyle adjustment for me.

Regards,

~Svetaswan

>

> Hi, Kathy,

>  

> Sorry to hear of your dilemma.  GABA won't help if you have tight junction

permeability or blood-brain barrier leaking.  GABA is what some doctors

actually use to see if you have BBB leaking.  If you do have it, you get very

agitated instead of the calm, mellowed out feeling you are supposed to have with

GABA.  [sometimes, tho, you first get the calm mellow feeling and then after

another dose get the bad agitated, angry feelings.]  This is perhaps a good

way, however, to assess whether a leaky BBB and tight junctions have anything to

do with your ES!  You would have good evidence if you took the GABA after

being badly emf-ed.

>  

> Have you tried D3 from an all natural source?  Carlson's Labs has a D3 made

from Fish oils.  It is pretty pricey, but you only take it every other day

and so it lasts a long time. 

>  

> B12 is something which might help you.  Get a sublingual pill, which

bypasses the gut, and the best quality you can find.  I use

methylcobalamin.  There are different types.  B12 helps the nervous

system.

>  

> Possibly a hydrogen supplement would help.

>  

> You mentioned not doing well on calcium, and I didn't either until I took

calcium AEP.  I personally always take it with pantethine.  Emfs can cause

calcium efflux from where it should be in the brain.  Calcium AEP is

the type calcium the brain uses.  Again, this would pertain to you only if

you know your BBB is leaking, and not necessarily pertain, if it is not. 

>  

> If you have a good doctor who you can go to, also, a calcium channel

blocker might be helpful, if you know for sure you are having calcium

efflux.  I take the natural calcium channel blockers manganese and taurine

once in a while (I do not consider these safe for me to take on a daily basis,

but then, I have no need for doing that anyway, since I am now rarely

having ES symptoms).  [if you need to try these, however, do ask me for

more info, because manganese can act as a toxic metal.  I am only here

on weekends, tho, so expect to wait a few days before hearing from me. 

(Sorry!)]  The way this works, from my understanding, if you have calcium

efflux is:  the tight junction is opened by emfs, then this allows

calcium migration to occur.  The tight junction cannot sometimes close

properly, so sometimes the efflux doesn't stop till a calcium

channel blocker is taken.  If you take a calcium channel

blocker, it will block the calcium from

> leaking, often, in the first place.  (At least that is how it is with the

manganese and taurine.)  However, know that many of us have conflicting

medical needs for which calcium channel blockers are not a good therapy.  (If

it were that easy, we could all go running to our docs for calcium channel

blockers.  ;)  )  You may share this with your doctor and if she is a

very good doc, she will check it out herself and may have even better ideas. 

>  

> As to shielding.....  There are a number of good options for windows:

aluminum or steel screens for windows (I forget the size mesh, but it has to be

small and you have to cover the windows including the window frames); there are

anti-emf window films; there are anti-emf fabrics which can be made into curtain

panels (I velcro mine to a painted lath board on the wall at the ceiling--glue

the lath board up; my drapes are also ceiling height); I also use huge

plants--fan palms, other palms, large ficus, scheffalera(?sp?); and I have used

a large screen made from 3 doors hinged together and covered on one side with

heavy aluminum foil, which is movable and portable.  Outside trees are even

better shields, especially thick evergreens, but placement can be a challenge

and it takes at least 3 years before they are large enough.  [However, as

a home owner, I would like getting as many trees in  place

to help with neighboring smart

meters, as possible!]

>  

> On shielding with screen, fabric, foil....  It seems that if you double

fabric or screen on itself, it will then negate shielding and allow emfs thru,

so for edging and seams, you must make a 3 layer seam.  Odd thicknesses block

emfs, even thicknesses let emfs pass thru.  Very hard to grasp, I know from

experience.  lol 

>  

> Also, if there are aberrant, digital, or wireless frequencies inside your

house, they will bounce off of some of these fixes and cause you problems from

within.  You can try heavy aluminum foil taped to the wall to see how it

works temporarily until you get something better in place.  Remember there

might be also metal in the wall or nails in studding that could cause

problems. 

>  

> Hope some of this is helpful; it sounds like you truly need something fast,

> Bless you,

> Diane

>

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Guest guest

Diane,

Now, that I know  emf's drain it. The key is finding a happy mediuam in dosing.

Mine is in the low range of normal on bloodwork. I don't want it to go below the

accepted range.

I don't know the whole story w me.  I only react immediately to some supps. 

My son

however, reacts to caclium as an excitory nutrient - takes what's in his multi.

Maybe he wouldn't when his body's supported by enough magnesium.

Kathy

From: Evie <evie15422@...>Subject: Re: Re: Supplements

Date: Sunday, June 19, 2011, 12:30 AM

 

hi yet again, Kathy!  ;)

 

No, the reacting to supplements quickly has nothing to do with calcium influx, I

think.  I am not sure reacting quickly to supplements is all that predictive of

bbb damage either, but it might be.  If you react really badly and quickly to

medicines, that would be more predictive of bbb damage due to tight junction

leaking.

 

Calcium efflux, not influx might cause you to feel shaky, crabby, and lack

energy to clean, (as well as other symptoms and issues) due to tight junction

leaking.

 

As far as whether you are having calcium efflux or calcium reacting as an

excitatory nutrient....  I am not sure whether you would be able to tell this

or not.  It depends upon your symptoms.  For me, I follow symptoms.  I notice

when my bp falls, especially, my body craves calcium.  It is like calcium is

draining out of me.  In a way it is literally draining out, at least from

particular cells!  When my bp falls, I can take calcium and make it rise again

to normal.  I think if calcium were only acting as an excitatory agent, it

would not work to add more to raise bp.  I have seen calcium supplementation

work on many symptoms during and after an ES episode. 

 

Diane

From: svetaswan <svetaswan@...>

Subject: Re: Supplements

Date: Monday, June 13, 2011, 8:39 PM

 

Hi Diane,

Pardon me for jumping in here - but some of what you've said here sounds like it

could be exactly what I'm experiencing. For the past several days, I have been

trying to take a 250mg capsule of niacinamide 2 to 3 times per day. I have read

all of the info on niacinamide which states that it's supposed to be quite

helpful for anxiety - even acting as sort-of a benzodiazepine (sp.) in the

brain. (Supposedly, people have been able to reduce or stop taking their benzos

by taking this nutrient.) It's also supposed to be helpful for reducing the

toxic effects of Candida/yeast - by helping to clear that nasty alcohol

byproduct acetaldehyde. These are the reasons why I thought niacinamide would be

great for me.

But instead of a calming effect, I've gotten this frustrating paradoxical

reaction - I've felt agitated, even more spacey/foggy than normal - off-kilter.

I have noticed that body-agitation - that figety need to move around. Sometimes

when I take it, I feel like the agitation might be coming more from my body than

my brain, if that makes sense: my brain may be pretty calm, but my body will

have this uncomfortable, keyed-up feeling. Other times, both my brain and my

body feel agitated.

In light of what you've shared, I wonder if this is evidence that my BBB is

leaky - as I believe niacinamide directly or indirectly increases GABA levels.

Before I read your post, I had my little " theories " , such as:

-My brain/body has been accustomed to a certain biochemical state, and it is

" rebelling " against niacinamide's pushing it toward another biochemical state.

Maybe it needs time to adjust.

-the niacinamide is somehow increasing acidity levels in my body. I've had a

problem over the years with many supplements making me too " acidic " - and my

body doesn't respond well to that increased acidity. I've had to greatly reduce

or even back off supplements altogether because of this type of reaction. I've

read that niacinamide can increase uric acid levels.

I have found that with Vitamin B6 (if a lab test I took in November is to be

believed, I have severe pyroluria) - I've had somewhat of the same reaction. It

had caused agitation and insomnia - particularly the Twinlabs brand. I seem to

tolerate the Source Naturals' brand of B6 (50mg) well, though - I attributed

this to the calcium phosphate that Source Naturals put in the tablets. Maybe the

calcium phosphate somehow has a calming, and/or alkalinizing effect - or it

helps the B6 to " land more softly " in my system.

Maybe switching to a niacinamide supplement that has calcium (phosphate) in it

might be a partial solution - although I feel like this could only be a

superficial, " band-aid " solution.

It feels like there is a lot more going on with the niacinamide than just

increased acidity, though. It sounds like what you've said about the leaky BBB

could be a very real possibility with me. I've also noticed that supplements

seem to have a very rapid effect on me - I can often start to feel the effect of

supplements within 10 - 20 seconds. Could this be a sign of leaky-gut and/or

leaky BBB?

May I ask what you did nutritionally to heal your leaky BBB? I'm sure you've

shared it before - but it can be difficult to wade through all of the messages.

(Maybe I'll try to do a Google search later.) You can just outline it -

hopefully it won't be too much work!

It would be nice if I could somehow get my intestines biopsied to see if there

is any damage. Since the things one has to do to heal a damaged/leaky gut can be

pretty labor-intensive, it would be nice to have actual, tangible confirmation

that I have gut-damage. I've been " toying " with the idea of transitioning to a

gluten-free and/or casein-free diet, or even going further than that and trying

the Specific Carbohydrate diet. But you're talking about someone who never cooks

- it would be a huge, HUGE lifestyle adjustment for me.

Regards,

~Svetaswan

>

> Hi, Kathy,

>  

> Sorry to hear of your dilemma.  GABA won't help if you have tight junction

permeability or blood-brain barrier leaking.  GABA is what some doctors

actually use to see if you have BBB leaking.  If you do have it, you get very

agitated instead of the calm, mellowed out feeling you are supposed to have with

GABA.  [sometimes, tho, you first get the calm mellow feeling and then after

another dose get the bad agitated, angry feelings.]  This is perhaps a good

way, however, to assess whether a leaky BBB and tight junctions have anything to

do with your ES!  You would have good evidence if you took the GABA after

being badly emf-ed.

>  

> Have you tried D3 from an all natural source?  Carlson's Labs has a D3 made

from Fish oils.  It is pretty pricey, but you only take it every other day

and so it lasts a long time. 

>  

> B12 is something which might help you.  Get a sublingual pill, which

bypasses the gut, and the best quality you can find.  I use

methylcobalamin.  There are different types.  B12 helps the nervous

system.

>  

> Possibly a hydrogen supplement would help.

>  

> You mentioned not doing well on calcium, and I didn't either until I took

calcium AEP.  I personally always take it with pantethine.  Emfs can cause

calcium efflux from where it should be in the brain.  Calcium AEP is

the type calcium the brain uses.  Again, this would pertain to you only if

you know your BBB is leaking, and not necessarily pertain, if it is not. 

>  

> If you have a good doctor who you can go to, also, a calcium channel

blocker might be helpful, if you know for sure you are having calcium

efflux.  I take the natural calcium channel blockers manganese and taurine

once in a while (I do not consider these safe for me to take on a daily basis,

but then, I have no need for doing that anyway, since I am now rarely

having ES symptoms).  [if you need to try these, however, do ask me for

more info, because manganese can act as a toxic metal.  I am only here

on weekends, tho, so expect to wait a few days before hearing from me. 

(Sorry!)]  The way this works, from my understanding, if you have calcium

efflux is:  the tight junction is opened by emfs, then this allows

calcium migration to occur.  The tight junction cannot sometimes close

properly, so sometimes the efflux doesn't stop till a calcium

channel blocker is taken.  If you take a calcium channel

blocker, it will block the calcium from

> leaking, often, in the first place.  (At least that is how it is with the

manganese and taurine.)  However, know that many of us have conflicting

medical needs for which calcium channel blockers are not a good therapy.  (If

it were that easy, we could all go running to our docs for calcium channel

blockers.  ;)  )  You may share this with your doctor and if she is a

very good doc, she will check it out herself and may have even better ideas. 

>  

> As to shielding.....  There are a number of good options for windows:

aluminum or steel screens for windows (I forget the size mesh, but it has to be

small and you have to cover the windows including the window frames); there are

anti-emf window films; there are anti-emf fabrics which can be made into curtain

panels (I velcro mine to a painted lath board on the wall at the ceiling--glue

the lath board up; my drapes are also ceiling height); I also use huge

plants--fan palms, other palms, large ficus, scheffalera(?sp?); and I have used

a large screen made from 3 doors hinged together and covered on one side with

heavy aluminum foil, which is movable and portable.  Outside trees are even

better shields, especially thick evergreens, but placement can be a challenge

and it takes at least 3 years before they are large enough.  [However, as

a home owner, I would like getting as many trees in  place

to help with neighboring smart

meters, as possible!]

>  

> On shielding with screen, fabric, foil....  It seems that if you double

fabric or screen on itself, it will then negate shielding and allow emfs thru,

so for edging and seams, you must make a 3 layer seam.  Odd thicknesses block

emfs, even thicknesses let emfs pass thru.  Very hard to grasp, I know from

experience.  lol 

>  

> Also, if there are aberrant, digital, or wireless frequencies inside your

house, they will bounce off of some of these fixes and cause you problems from

within.  You can try heavy aluminum foil taped to the wall to see how it

works temporarily until you get something better in place.  Remember there

might be also metal in the wall or nails in studding that could cause

problems. 

>  

> Hope some of this is helpful; it sounds like you truly need something fast,

> Bless you,

> Diane

>

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hi diane-I dont know if you remember me or not? I work with that woman Dee who

suffers severely from ES...she was looking to see if she can possibly talk with

you on the phone? I think you had mentioned a while ago that you could possibly

do that? If you would still be willing to do that it would be much appreciated!

I can either give you her phone number or you could give me yours and a best

time to call? Please let me know what you think...thank you so much!

 

Jackie

From: svetaswan <svetaswan@...>

Subject: Re: Supplements

Date: Monday, June 13, 2011, 8:39 PM

 

Hi Diane,

Pardon me for jumping in here - but some of what you've said here sounds like it

could be exactly what I'm experiencing. For the past several days, I have been

trying to take a 250mg capsule of niacinamide 2 to 3 times per day. I have read

all of the info on niacinamide which states that it's supposed to be quite

helpful for anxiety - even acting as sort-of a benzodiazepine (sp.) in the

brain. (Supposedly, people have been able to reduce or stop taking their benzos

by taking this nutrient.) It's also supposed to be helpful for reducing the

toxic effects of Candida/yeast - by helping to clear that nasty alcohol

byproduct acetaldehyde. These are the reasons why I thought niacinamide would be

great for me.

But instead of a calming effect, I've gotten this frustrating paradoxical

reaction - I've felt agitated, even more spacey/foggy than normal - off-kilter.

I have noticed that body-agitation - that figety need to move around. Sometimes

when I take it, I feel like the agitation might be coming more from my body than

my brain, if that makes sense: my brain may be pretty calm, but my body will

have this uncomfortable, keyed-up feeling. Other times, both my brain and my

body feel agitated.

In light of what you've shared, I wonder if this is evidence that my BBB is

leaky - as I believe niacinamide directly or indirectly increases GABA levels.

Before I read your post, I had my little " theories " , such as:

-My brain/body has been accustomed to a certain biochemical state, and it is

" rebelling " against niacinamide's pushing it toward another biochemical state.

Maybe it needs time to adjust.

-the niacinamide is somehow increasing acidity levels in my body. I've had a

problem over the years with many supplements making me too " acidic " - and my

body doesn't respond well to that increased acidity. I've had to greatly reduce

or even back off supplements altogether because of this type of reaction. I've

read that niacinamide can increase uric acid levels.

I have found that with Vitamin B6 (if a lab test I took in November is to be

believed, I have severe pyroluria) - I've had somewhat of the same reaction. It

had caused agitation and insomnia - particularly the Twinlabs brand. I seem to

tolerate the Source Naturals' brand of B6 (50mg) well, though - I attributed

this to the calcium phosphate that Source Naturals put in the tablets. Maybe the

calcium phosphate somehow has a calming, and/or alkalinizing effect - or it

helps the B6 to " land more softly " in my system.

Maybe switching to a niacinamide supplement that has calcium (phosphate) in it

might be a partial solution - although I feel like this could only be a

superficial, " band-aid " solution.

It feels like there is a lot more going on with the niacinamide than just

increased acidity, though. It sounds like what you've said about the leaky BBB

could be a very real possibility with me. I've also noticed that supplements

seem to have a very rapid effect on me - I can often start to feel the effect of

supplements within 10 - 20 seconds. Could this be a sign of leaky-gut and/or

leaky BBB?

May I ask what you did nutritionally to heal your leaky BBB? I'm sure you've

shared it before - but it can be difficult to wade through all of the messages.

(Maybe I'll try to do a Google search later.) You can just outline it -

hopefully it won't be too much work!

It would be nice if I could somehow get my intestines biopsied to see if there

is any damage. Since the things one has to do to heal a damaged/leaky gut can be

pretty labor-intensive, it would be nice to have actual, tangible confirmation

that I have gut-damage. I've been " toying " with the idea of transitioning to a

gluten-free and/or casein-free diet, or even going further than that and trying

the Specific Carbohydrate diet. But you're talking about someone who never cooks

- it would be a huge, HUGE lifestyle adjustment for me.

Regards,

~Svetaswan

>

> Hi, Kathy,

>  

> Sorry to hear of your dilemma.  GABA won't help if you have tight junction

permeability or blood-brain barrier leaking.  GABA is what some doctors

actually use to see if you have BBB leaking.  If you do have it, you get very

agitated instead of the calm, mellowed out feeling you are supposed to have with

GABA.  [sometimes, tho, you first get the calm mellow feeling and then after

another dose get the bad agitated, angry feelings.]  This is perhaps a good

way, however, to assess whether a leaky BBB and tight junctions have anything to

do with your ES!  You would have good evidence if you took the GABA after

being badly emf-ed.

>  

> Have you tried D3 from an all natural source?  Carlson's Labs has a D3 made

from Fish oils.  It is pretty pricey, but you only take it every other day

and so it lasts a long time. 

>  

> B12 is something which might help you.  Get a sublingual pill, which

bypasses the gut, and the best quality you can find.  I use

methylcobalamin.  There are different types.  B12 helps the nervous

system.

>  

> Possibly a hydrogen supplement would help.

>  

> You mentioned not doing well on calcium, and I didn't either until I took

calcium AEP.  I personally always take it with pantethine.  Emfs can cause

calcium efflux from where it should be in the brain.  Calcium AEP is

the type calcium the brain uses.  Again, this would pertain to you only if

you know your BBB is leaking, and not necessarily pertain, if it is not. 

>  

> If you have a good doctor who you can go to, also, a calcium channel

blocker might be helpful, if you know for sure you are having calcium

efflux.  I take the natural calcium channel blockers manganese and taurine

once in a while (I do not consider these safe for me to take on a daily basis,

but then, I have no need for doing that anyway, since I am now rarely

having ES symptoms).  [if you need to try these, however, do ask me for

more info, because manganese can act as a toxic metal.  I am only here

on weekends, tho, so expect to wait a few days before hearing from me. 

(Sorry!)]  The way this works, from my understanding, if you have calcium

efflux is:  the tight junction is opened by emfs, then this allows

calcium migration to occur.  The tight junction cannot sometimes close

properly, so sometimes the efflux doesn't stop till a calcium

channel blocker is taken.  If you take a calcium channel

blocker, it will block the calcium from

> leaking, often, in the first place.  (At least that is how it is with the

manganese and taurine.)  However, know that many of us have conflicting

medical needs for which calcium channel blockers are not a good therapy.  (If

it were that easy, we could all go running to our docs for calcium channel

blockers.  ;)  )  You may share this with your doctor and if she is a

very good doc, she will check it out herself and may have even better ideas. 

>  

> As to shielding.....  There are a number of good options for windows:

aluminum or steel screens for windows (I forget the size mesh, but it has to be

small and you have to cover the windows including the window frames); there are

anti-emf window films; there are anti-emf fabrics which can be made into curtain

panels (I velcro mine to a painted lath board on the wall at the ceiling--glue

the lath board up; my drapes are also ceiling height); I also use huge

plants--fan palms, other palms, large ficus, scheffalera(?sp?); and I have used

a large screen made from 3 doors hinged together and covered on one side with

heavy aluminum foil, which is movable and portable.  Outside trees are even

better shields, especially thick evergreens, but placement can be a challenge

and it takes at least 3 years before they are large enough.  [However, as

a home owner, I would like getting as many trees in  place

to help with neighboring smart

meters, as possible!]

>  

> On shielding with screen, fabric, foil....  It seems that if you double

fabric or screen on itself, it will then negate shielding and allow emfs thru,

so for edging and seams, you must make a 3 layer seam.  Odd thicknesses block

emfs, even thicknesses let emfs pass thru.  Very hard to grasp, I know from

experience.  lol 

>  

> Also, if there are aberrant, digital, or wireless frequencies inside your

house, they will bounce off of some of these fixes and cause you problems from

within.  You can try heavy aluminum foil taped to the wall to see how it

works temporarily until you get something better in place.  Remember there

might be also metal in the wall or nails in studding that could cause

problems. 

>  

> Hope some of this is helpful; it sounds like you truly need something fast,

> Bless you,

> Diane

>

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Hi, Kathy,

 

You could try calcium AEP and pantethine (together) and see what happens? 

When I took it, I had to repack the pills in tiny amounts to tolerate it (both

calcium and pantethine.)  I was told to do this by a nutritionist I contacted

by phone.  I was very intolerant to calcium back then too.  He told me to

start out very small--like 1/20th or less of a capsule/ eachcal and

pantethine.  I started out taking this amount every other day or maybe even

just twice a week.  He told me when I saw no reaction from this dose, to take

it more often--building up to this amount everyday.  When I no longer saw a

reaction to this dose, I added a bit more to the repacked capsules (you buy

empty capsules to do this).  Then I did the same thing--took that every other

day or twice a week (keeping the old dose for days in between) and worked up to

taking it everyday as I tolerated that dose better.  You follow this routine

until you are taking one entire pill of

each pantethine and calcium AEP daily.  Then I started over again till I

could tolerate 2 pills of each for each meal.  This took many months to get to

an entire dose. 

 

The calcium AEP and pantethine detox things--especially bad gut bugs and their

wastes.  So this is why you want to go slow.  You will get detox symptoms and

they can make you feel very ill if you are detoxing too much, too quickly.  The

reason I take Calcium AEP is it is the type of calcium your brain uses.  If

there is calcium efflux from the brain, you need to put back a calcium that the

brain can utilize well. 

 

Once you get the calcium back into the cells, you ideally want to stay out of

emfs to keep the calcium in there.  If you are in emfs and you experience

calcium efflux, once you are on 2 caps each calcium and pantethine, you can

carry these with you anywhere you go and take 2 caps each when you are

experiencing symptoms of calcium efflux.  Take them with a large glass of

water.  Now this probably only works if you are indeed experiencing calcium

efflux, around emfs.  If you are in emfs for a long period and the efflux does

not stop, you will need to supplement 2 more pills/ each cal and pantethine

every 30 minutes or so until you are out of the emfs. 

 

On top of this, if/ when you would actually get to this point, you ideally

should try to find a substance which works to keep the calcium in the cells (a

type of calcium channel blocker).  This is where manganese and taurine have

worked for me.  But they must be taken in very low doses and not abused.  You

should ideally not be taking these more than 2 or 3 times a week (one dose that

often).  And I would rather hope you not take these at all, and find a better

solution.  ;)

 

Reacting immediately to some supps could be a sign that they are detox supps in

the process of detoxing things.  Due to being gluten-free I must take

molybdenum supplementation, but molyb is a very strong detoxer.  It will detox

sulphur compounds and mercury.  If I have missed molyb supplementation for very

long when I retake it, I can get bad reactions from it almost immediately. 

This is because there is a back-log of compounds, which only molyb can detox,

waiting to be detoxed. 

 

Also, sometimes one supp can't be taken on its own--it needs support in one way

or another from another supp.  So, write down when you have reactions to

supps.  Then you will need to do homework to find out whether you are taking

supporting nutrients in large enough doses when this happens.

 

Interesting about your son.  How is it that you tracked his reaction down to

calcium?  Does he react to calcium in foods the same way?  My son used to go

bonkers on milk--hyperactivity.  Is this the same thing?  We had him on rice

and almond milks/ no cheeses, etc for 3 years and then he started drinking

regular milk at school and did okay, so we slowly added regular milk back to his

diet.  He has had no problems since (and he's 35).  I am a tad suspicious

that he had celiac damage to his gut back then which caused the dairy

intolerance, tho. 

 

Well, I don't know if this will help you find your happy medium in dosing or

not.  But this was how I finally found my happy medium. ;)

 

Good luck,

Diane

From: svetaswan <svetaswan@...>

Subject: Re: Supplements

Date: Monday, June 13, 2011, 8:39 PM

 

Hi Diane,

Pardon me for jumping in here - but some of what you've said here sounds like it

could be exactly what I'm experiencing. For the past several days, I have been

trying to take a 250mg capsule of niacinamide 2 to 3 times per day. I have read

all of the info on niacinamide which states that it's supposed to be quite

helpful for anxiety - even acting as sort-of a benzodiazepine (sp.) in the

brain. (Supposedly, people have been able to reduce or stop taking their benzos

by taking this nutrient.) It's also supposed to be helpful for reducing the

toxic effects of Candida/yeast - by helping to clear that nasty alcohol

byproduct acetaldehyde. These are the reasons why I thought niacinamide would be

great for me.

But instead of a calming effect, I've gotten this frustrating paradoxical

reaction - I've felt agitated, even more spacey/foggy than normal - off-kilter.

I have noticed that body-agitation - that figety need to move around. Sometimes

when I take it, I feel like the agitation might be coming more from my body than

my brain, if that makes sense: my brain may be pretty calm, but my body will

have this uncomfortable, keyed-up feeling. Other times, both my brain and my

body feel agitated.

In light of what you've shared, I wonder if this is evidence that my BBB is

leaky - as I believe niacinamide directly or indirectly increases GABA levels.

Before I read your post, I had my little " theories " , such as:

-My brain/body has been accustomed to a certain biochemical state, and it is

" rebelling " against niacinamide's pushing it toward another biochemical state.

Maybe it needs time to adjust.

-the niacinamide is somehow increasing acidity levels in my body. I've had a

problem over the years with many supplements making me too " acidic " - and my

body doesn't respond well to that increased acidity. I've had to greatly reduce

or even back off supplements altogether because of this type of reaction. I've

read that niacinamide can increase uric acid levels.

I have found that with Vitamin B6 (if a lab test I took in November is to be

believed, I have severe pyroluria) - I've had somewhat of the same reaction. It

had caused agitation and insomnia - particularly the Twinlabs brand. I seem to

tolerate the Source Naturals' brand of B6 (50mg) well, though - I attributed

this to the calcium phosphate that Source Naturals put in the tablets. Maybe the

calcium phosphate somehow has a calming, and/or alkalinizing effect - or it

helps the B6 to " land more softly " in my system.

Maybe switching to a niacinamide supplement that has calcium (phosphate) in it

might be a partial solution - although I feel like this could only be a

superficial, " band-aid " solution.

It feels like there is a lot more going on with the niacinamide than just

increased acidity, though. It sounds like what you've said about the leaky BBB

could be a very real possibility with me. I've also noticed that supplements

seem to have a very rapid effect on me - I can often start to feel the effect of

supplements within 10 - 20 seconds. Could this be a sign of leaky-gut and/or

leaky BBB?

May I ask what you did nutritionally to heal your leaky BBB? I'm sure you've

shared it before - but it can be difficult to wade through all of the messages.

(Maybe I'll try to do a Google search later.) You can just outline it -

hopefully it won't be too much work!

It would be nice if I could somehow get my intestines biopsied to see if there

is any damage. Since the things one has to do to heal a damaged/leaky gut can be

pretty labor-intensive, it would be nice to have actual, tangible confirmation

that I have gut-damage. I've been " toying " with the idea of transitioning to a

gluten-free and/or casein-free diet, or even going further than that and trying

the Specific Carbohydrate diet. But you're talking about someone who never cooks

- it would be a huge, HUGE lifestyle adjustment for me.

Regards,

~Svetaswan

>

> Hi, Kathy,

>  

> Sorry to hear of your dilemma.  GABA won't help if you have tight junction

permeability or blood-brain barrier leaking.  GABA is what some doctors

actually use to see if you have BBB leaking.  If you do have it, you get very

agitated instead of the calm, mellowed out feeling you are supposed to have with

GABA.  [sometimes, tho, you first get the calm mellow feeling and then after

another dose get the bad agitated, angry feelings.]  This is perhaps a good

way, however, to assess whether a leaky BBB and tight junctions have anything to

do with your ES!  You would have good evidence if you took the GABA after

being badly emf-ed.

>  

> Have you tried D3 from an all natural source?  Carlson's Labs has a D3 made

from Fish oils.  It is pretty pricey, but you only take it every other day

and so it lasts a long time. 

>  

> B12 is something which might help you.  Get a sublingual pill, which

bypasses the gut, and the best quality you can find.  I use

methylcobalamin.  There are different types.  B12 helps the nervous

system.

>  

> Possibly a hydrogen supplement would help.

>  

> You mentioned not doing well on calcium, and I didn't either until I took

calcium AEP.  I personally always take it with pantethine.  Emfs can cause

calcium efflux from where it should be in the brain.  Calcium AEP is

the type calcium the brain uses.  Again, this would pertain to you only if

you know your BBB is leaking, and not necessarily pertain, if it is not. 

>  

> If you have a good doctor who you can go to, also, a calcium channel

blocker might be helpful, if you know for sure you are having calcium

efflux.  I take the natural calcium channel blockers manganese and taurine

once in a while (I do not consider these safe for me to take on a daily basis,

but then, I have no need for doing that anyway, since I am now rarely

having ES symptoms).  [if you need to try these, however, do ask me for

more info, because manganese can act as a toxic metal.  I am only here

on weekends, tho, so expect to wait a few days before hearing from me. 

(Sorry!)]  The way this works, from my understanding, if you have calcium

efflux is:  the tight junction is opened by emfs, then this allows

calcium migration to occur.  The tight junction cannot sometimes close

properly, so sometimes the efflux doesn't stop till a calcium

channel blocker is taken.  If you take a calcium channel

blocker, it will block the calcium from

> leaking, often, in the first place.  (At least that is how it is with the

manganese and taurine.)  However, know that many of us have conflicting

medical needs for which calcium channel blockers are not a good therapy.  (If

it were that easy, we could all go running to our docs for calcium channel

blockers.  ;)  )  You may share this with your doctor and if she is a

very good doc, she will check it out herself and may have even better ideas. 

>  

> As to shielding.....  There are a number of good options for windows:

aluminum or steel screens for windows (I forget the size mesh, but it has to be

small and you have to cover the windows including the window frames); there are

anti-emf window films; there are anti-emf fabrics which can be made into curtain

panels (I velcro mine to a painted lath board on the wall at the ceiling--glue

the lath board up; my drapes are also ceiling height); I also use huge

plants--fan palms, other palms, large ficus, scheffalera(?sp?); and I have used

a large screen made from 3 doors hinged together and covered on one side with

heavy aluminum foil, which is movable and portable.  Outside trees are even

better shields, especially thick evergreens, but placement can be a challenge

and it takes at least 3 years before they are large enough.  [However, as

a home owner, I would like getting as many trees in  place

to help with neighboring smart

meters, as possible!]

>  

> On shielding with screen, fabric, foil....  It seems that if you double

fabric or screen on itself, it will then negate shielding and allow emfs thru,

so for edging and seams, you must make a 3 layer seam.  Odd thicknesses block

emfs, even thicknesses let emfs pass thru.  Very hard to grasp, I know from

experience.  lol 

>  

> Also, if there are aberrant, digital, or wireless frequencies inside your

house, they will bounce off of some of these fixes and cause you problems from

within.  You can try heavy aluminum foil taped to the wall to see how it

works temporarily until you get something better in place.  Remember there

might be also metal in the wall or nails in studding that could cause

problems. 

>  

> Hope some of this is helpful; it sounds like you truly need something fast,

> Bless you,

> Diane

>

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Hi, Diane. I was reading your very informative e-mail to Kathy & was wondering:

Is there anything else you take that has a very specific function (such as

Molybdinum getting mercury out of certain types of cells) that you feel is

necessary to help w/ EHS, heavy metal detox, & /or celiac? 

Love & blessings,Elysia

From: svetaswan <svetaswan@...>

Subject: Re: Supplements

Date: Monday, June 13, 2011, 8:39 PM

 

Hi Diane,

Pardon me for jumping in here - but some of what you've said here sounds like it

could be exactly what I'm experiencing. For the past several days, I have been

trying to take a 250mg capsule of niacinamide 2 to 3 times per day. I have read

all of the info on niacinamide which states that it's supposed to be quite

helpful for anxiety - even acting as sort-of a benzodiazepine (sp.) in the

brain. (Supposedly, people have been able to reduce or stop taking their benzos

by taking this nutrient.) It's also supposed to be helpful for reducing the

toxic effects of Candida/yeast - by helping to clear that nasty alcohol

byproduct acetaldehyde. These are the reasons why I thought niacinamide would be

great for me.

But instead of a calming effect, I've gotten this frustrating paradoxical

reaction - I've felt agitated, even more spacey/foggy than normal - off-kilter.

I have noticed that body-agitation - that figety need to move around. Sometimes

when I take it, I feel like the agitation might be coming more from my body than

my brain, if that makes sense: my brain may be pretty calm, but my body will

have this uncomfortable, keyed-up feeling. Other times, both my brain and my

body feel agitated.

In light of what you've shared, I wonder if this is evidence that my BBB is

leaky - as I believe niacinamide directly or indirectly increases GABA levels.

Before I read your post, I had my little " theories " , such as:

-My brain/body has been accustomed to a certain biochemical state, and it is

" rebelling " against niacinamide's pushing it toward another biochemical state.

Maybe it needs time to adjust.

-the niacinamide is somehow increasing acidity levels in my body. I've had a

problem over the years with many supplements making me too " acidic " - and my

body doesn't respond well to that increased acidity. I've had to greatly reduce

or even back off supplements altogether because of this type of reaction. I've

read that niacinamide can increase uric acid levels.

I have found that with Vitamin B6 (if a lab test I took in November is to be

believed, I have severe pyroluria) - I've had somewhat of the same reaction. It

had caused agitation and insomnia - particularly the Twinlabs brand. I seem to

tolerate the Source Naturals' brand of B6 (50mg) well, though - I attributed

this to the calcium phosphate that Source Naturals put in the tablets. Maybe the

calcium phosphate somehow has a calming, and/or alkalinizing effect - or it

helps the B6 to " land more softly " in my system.

Maybe switching to a niacinamide supplement that has calcium (phosphate) in it

might be a partial solution - although I feel like this could only be a

superficial, " band-aid " solution.

It feels like there is a lot more going on with the niacinamide than just

increased acidity, though. It sounds like what you've said about the leaky BBB

could be a very real possibility with me. I've also noticed that supplements

seem to have a very rapid effect on me - I can often start to feel the effect of

supplements within 10 - 20 seconds. Could this be a sign of leaky-gut and/or

leaky BBB?

May I ask what you did nutritionally to heal your leaky BBB? I'm sure you've

shared it before - but it can be difficult to wade through all of the messages.

(Maybe I'll try to do a Google search later.) You can just outline it -

hopefully it won't be too much work!

It would be nice if I could somehow get my intestines biopsied to see if there

is any damage. Since the things one has to do to heal a damaged/leaky gut can be

pretty labor-intensive, it would be nice to have actual, tangible confirmation

that I have gut-damage. I've been " toying " with the idea of transitioning to a

gluten-free and/or casein-free diet, or even going further than that and trying

the Specific Carbohydrate diet. But you're talking about someone who never cooks

- it would be a huge, HUGE lifestyle adjustment for me.

Regards,

~Svetaswan

>

> Hi, Kathy,

>  

> Sorry to hear of your dilemma.  GABA won't help if you have tight junction

permeability or blood-brain barrier leaking.  GABA is what some doctors

actually use to see if you have BBB leaking.  If you do have it, you get very

agitated instead of the calm, mellowed out feeling you are supposed to have with

GABA.  [sometimes, tho, you first get the calm mellow feeling and then after

another dose get the bad agitated, angry feelings.]  This is perhaps a good

way, however, to assess whether a leaky BBB and tight junctions have anything to

do with your ES!  You would have good evidence if you took the GABA after

being badly emf-ed.

>  

> Have you tried D3 from an all natural source?  Carlson's Labs has a D3 made

from Fish oils.  It is pretty pricey, but you only take it every other day

and so it lasts a long time. 

>  

> B12 is something which might help you.  Get a sublingual pill, which

bypasses the gut, and the best quality you can find.  I use

methylcobalamin.  There are different types.  B12 helps the nervous

system.

>  

> Possibly a hydrogen supplement would help.

>  

> You mentioned not doing well on calcium, and I didn't either until I took

calcium AEP.  I personally always take it with pantethine.  Emfs can cause

calcium efflux from where it should be in the brain.  Calcium AEP is

the type calcium the brain uses.  Again, this would pertain to you only if

you know your BBB is leaking, and not necessarily pertain, if it is not. 

>  

> If you have a good doctor who you can go to, also, a calcium channel

blocker might be helpful, if you know for sure you are having calcium

efflux.  I take the natural calcium channel blockers manganese and taurine

once in a while (I do not consider these safe for me to take on a daily basis,

but then, I have no need for doing that anyway, since I am now rarely

having ES symptoms).  [if you need to try these, however, do ask me for

more info, because manganese can act as a toxic metal.  I am only here

on weekends, tho, so expect to wait a few days before hearing from me. 

(Sorry!)]  The way this works, from my understanding, if you have calcium

efflux is:  the tight junction is opened by emfs, then this allows

calcium migration to occur.  The tight junction cannot sometimes close

properly, so sometimes the efflux doesn't stop till a calcium

channel blocker is taken.  If you take a calcium channel

blocker, it will block the calcium from

> leaking, often, in the first place.  (At least that is how it is with the

manganese and taurine.)  However, know that many of us have conflicting

medical needs for which calcium channel blockers are not a good therapy.  (If

it were that easy, we could all go running to our docs for calcium channel

blockers.  ;)  )  You may share this with your doctor and if she is a

very good doc, she will check it out herself and may have even better ideas. 

>  

> As to shielding.....  There are a number of good options for windows:

aluminum or steel screens for windows (I forget the size mesh, but it has to be

small and you have to cover the windows including the window frames); there are

anti-emf window films; there are anti-emf fabrics which can be made into curtain

panels (I velcro mine to a painted lath board on the wall at the ceiling--glue

the lath board up; my drapes are also ceiling height); I also use huge

plants--fan palms, other palms, large ficus, scheffalera(?sp?); and I have used

a large screen made from 3 doors hinged together and covered on one side with

heavy aluminum foil, which is movable and portable.  Outside trees are even

better shields, especially thick evergreens, but placement can be a challenge

and it takes at least 3 years before they are large enough.  [However, as

a home owner, I would like getting as many trees in  place

to help with neighboring smart

meters, as possible!]

>  

> On shielding with screen, fabric, foil....  It seems that if you double

fabric or screen on itself, it will then negate shielding and allow emfs thru,

so for edging and seams, you must make a 3 layer seam.  Odd thicknesses block

emfs, even thicknesses let emfs pass thru.  Very hard to grasp, I know from

experience.  lol 

>  

> Also, if there are aberrant, digital, or wireless frequencies inside your

house, they will bounce off of some of these fixes and cause you problems from

within.  You can try heavy aluminum foil taped to the wall to see how it

works temporarily until you get something better in place.  Remember there

might be also metal in the wall or nails in studding that could cause

problems. 

>  

> Hope some of this is helpful; it sounds like you truly need something fast,

> Bless you,

> Diane

>

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Hi Elysia,

 

You never did write back whether you received my private emails to you.  I

asked because I had some other info to send you on lyme disease, but there is no

sense sending it if you are not receiving it!  ;) 

 

As to supplements I have taken..... Whew, that is a long subject!  lol  I have

taken many supps for very many things.  The molybdenum I started taking not for

pulling out mercury, but for detoxing sulphur compounds.  I also take that

because, since I am celiac, I don't get as much molybdenum in my foods.  [The

" recipe " for detoxing sulphur compounds is: molybdenum, B12, and P5P or B6. 

But like the calcium/ pantethine, you would want to work up to a normal dose

very slowly.  You must go slowly with *any* of the detoxing supps.  If you are

" allergic " to sulphites this might also help you tolerate those.  It did for

me.] 

 

Probably the supps which have helped most for me for ES (and other problems,

too), are:

 

natural D3--from Carlson Labs  (Helps with frequencies in general, energy,

thyroid...)

 

B12, sublingual methyl cobalamin  (helps me with the vibration type feelings

which go with ES, and actually works for me for ES only when taken before bed.)

 

Hydrogen capsules  [Marc took Mega-H which might be even better; I stuck with

Hydrogen Boost because I could verify it was gluten-free.]  Hydrogen alkalizes

and energizes me.  pH is very important in ES and every illness.  Our

metabolic pH and body cell voltage are linked.  Correct pH is very important

in the treatment of lyme disease, too.  There are perhaps as effective, or more

effective pH balancers, but I found this and alkalizing drops for water to be

very helpful when I took them.  I am now working on another way to alkalize,

but since I am just starting it, it is too early for me to review how it is

working.

Almost any supplement which helps the liver or helps in detox phases in the

liver, such as molybdenum, the B vits as a whole, vits A, C, and E, various

fatty acids, amino acids....  [the list is long] has helped me with ES and

other ways.

 

Liver, kidney, lung and lymphatic system support supps as a whole are

important.  Liver and kidney overload are problems with the amount of

detoxing we have to do.  This is one reason detoxing from the feet and skin,

as a whole, often works better for us (however, same story here as with all

supps--you have to go slow.  Too much detoxing too quickly will make you sicker

and will often give you a major set-back. 

 

Our problems are partly due to our bodies' holding onto toxic metals and toxins

in general.  Why this is is complicated and maybe not even the same from one

person to another.  I store alot of toxins in my adipose fat.  My body

loaths giving up any adipose fat.  The only way I can lose toxins there is to

eat a high fat diet while detoxing.  But also, we store toxins in our organs

(more so the thinner you are!)  So you should be supporting each organ which

might be storing toxins while detoxing, too.  Problem is, how do we know these

things?  I always assume toxins want space in my brain, tho.  Next to adipose

fat, the brain is pretty much the next best fatty place.  So brain support is

crucial for me.

 

For brain support, I like 100% pure virgin coconut oil, butter, cal AEP and

pantethine, aminos...

 

I am testing out some new liver support supps and will let you know in the

future how that works.  The liver has always been a fairly big problem area

for me.  I nearly died of liver failure multiple times; the first time when I

was only in my late 20s. 

 

For kidneys, Renatropin is great, but I cannot take it due to it being not 100%

gluten-free.  Various herbs etc work well for the kidneys....  Cranberries, of

course, and garlic oil caps, cloves, if memory serves, cinnamon....  there is

a long list of them and I forget them off-hand.    

 

Baking soda, sea salts, and epsom salts are things l have used to help detox

from the skin.  (Lizzie says epsom salts are contaminated, but I have not had

time to look further into that.  I'm just saying what I have done, not that it

is necessarily the best thing one can do.)  Mini tramp exercises, alot of

walking in nature (deep forests, state parks, along the river...), Pilates

exercises, yoga, and beginners Qi-Gong...  I have done all of these; all of

these are necessary to help get the lymphatics working well, and especially good

for skin detoxing.

 

Glutamine is good for healing tight junctions, but I don't personally tolerate

that well.

 

So you can see from this very spotty list I have written just off the top of my

head, that supplements have played a huge part in my wellness plan.  lol  The

best thing is to write yourself a type of flowchart.  Rank your needs in order

of importance.  Figure the liver, kidneys, skin, pH, and brain towards the top

of your list no matter what the other problems are.  Then, from there, do some

research and write yourself lists of helpful supps/ other helps next to each

problem area.  There will be a number of supps which will work for various

things.  Take these first.  A very good multiple vit/min is essential  (I

take Super 2 Daily from Carlson Labs). 

 

If you have specific needs other then these I have addressed, write me again and

mention them, and I will see what I can do to help you find the most helpful

supps.  I may or not be able to help, but I have some resources you might

not.  I have a new therapy, for instance, I am personally trying out for

immune system strengthening from a French doctor, sent to me by a European

friend recently.  We are looking into whether that doctor would allow me to

post it online.  My immune system is pretty much strengthened, but I am trying

the therapy anyway to see what happens.  [i can test pH to see when it dips

from emfs and to what degree the treatment brings me back to normal, etc.]  

 

This doctor treats lyme disease and this is the treatment he uses for that. 

It doesn't kill lyme, but gets your immune system to the place it can kill the

lyme.  A friend of my friend first took this treatment and it made her ES so

much better that she mentioned it online to a forum of ES friends, of which

many went to be tested for lyme as well.  She told my friend that all her ES

friends who were tested for lyme were positive for it!  The treatment seems to

have worked well for them, also, so this is potentially a great lead.   

 

My best to you,

Diane

 

 

From: svetaswan <svetaswan@...>

Subject: Re: Supplements

Date: Monday, June 13, 2011, 8:39 PM

 

Hi Diane,

Pardon me for jumping in here - but some of what you've said here sounds like it

could be exactly what I'm experiencing. For the past several days, I have been

trying to take a 250mg capsule of niacinamide 2 to 3 times per day. I have read

all of the info on niacinamide which states that it's supposed to be quite

helpful for anxiety - even acting as sort-of a benzodiazepine (sp.) in the

brain. (Supposedly, people have been able to reduce or stop taking their benzos

by taking this nutrient.) It's also supposed to be helpful for reducing the

toxic effects of Candida/yeast - by helping to clear that nasty alcohol

byproduct acetaldehyde. These are the reasons why I thought niacinamide would be

great for me.

But instead of a calming effect, I've gotten this frustrating paradoxical

reaction - I've felt agitated, even more spacey/foggy than normal - off-kilter.

I have noticed that body-agitation - that figety need to move around. Sometimes

when I take it, I feel like the agitation might be coming more from my body than

my brain, if that makes sense: my brain may be pretty calm, but my body will

have this uncomfortable, keyed-up feeling. Other times, both my brain and my

body feel agitated.

In light of what you've shared, I wonder if this is evidence that my BBB is

leaky - as I believe niacinamide directly or indirectly increases GABA levels.

Before I read your post, I had my little " theories " , such as:

-My brain/body has been accustomed to a certain biochemical state, and it is

" rebelling " against niacinamide's pushing it toward another biochemical state.

Maybe it needs time to adjust.

-the niacinamide is somehow increasing acidity levels in my body. I've had a

problem over the years with many supplements making me too " acidic " - and my

body doesn't respond well to that increased acidity. I've had to greatly reduce

or even back off supplements altogether because of this type of reaction. I've

read that niacinamide can increase uric acid levels.

I have found that with Vitamin B6 (if a lab test I took in November is to be

believed, I have severe pyroluria) - I've had somewhat of the same reaction. It

had caused agitation and insomnia - particularly the Twinlabs brand. I seem to

tolerate the Source Naturals' brand of B6 (50mg) well, though - I attributed

this to the calcium phosphate that Source Naturals put in the tablets. Maybe the

calcium phosphate somehow has a calming, and/or alkalinizing effect - or it

helps the B6 to " land more softly " in my system.

Maybe switching to a niacinamide supplement that has calcium (phosphate) in it

might be a partial solution - although I feel like this could only be a

superficial, " band-aid " solution.

It feels like there is a lot more going on with the niacinamide than just

increased acidity, though. It sounds like what you've said about the leaky BBB

could be a very real possibility with me. I've also noticed that supplements

seem to have a very rapid effect on me - I can often start to feel the effect of

supplements within 10 - 20 seconds. Could this be a sign of leaky-gut and/or

leaky BBB?

May I ask what you did nutritionally to heal your leaky BBB? I'm sure you've

shared it before - but it can be difficult to wade through all of the messages.

(Maybe I'll try to do a Google search later.) You can just outline it -

hopefully it won't be too much work!

It would be nice if I could somehow get my intestines biopsied to see if there

is any damage. Since the things one has to do to heal a damaged/leaky gut can be

pretty labor-intensive, it would be nice to have actual, tangible confirmation

that I have gut-damage. I've been " toying " with the idea of transitioning to a

gluten-free and/or casein-free diet, or even going further than that and trying

the Specific Carbohydrate diet. But you're talking about someone who never cooks

- it would be a huge, HUGE lifestyle adjustment for me.

Regards,

~Svetaswan

>

> Hi, Kathy,

>  

> Sorry to hear of your dilemma.  GABA won't help if you have tight junction

permeability or blood-brain barrier leaking.  GABA is what some doctors

actually use to see if you have BBB leaking.  If you do have it, you get very

agitated instead of the calm, mellowed out feeling you are supposed to have with

GABA.  [sometimes, tho, you first get the calm mellow feeling and then after

another dose get the bad agitated, angry feelings.]  This is perhaps a good

way, however, to assess whether a leaky BBB and tight junctions have anything to

do with your ES!  You would have good evidence if you took the GABA after

being badly emf-ed.

>  

> Have you tried D3 from an all natural source?  Carlson's Labs has a D3 made

from Fish oils.  It is pretty pricey, but you only take it every other day

and so it lasts a long time. 

>  

> B12 is something which might help you.  Get a sublingual pill, which

bypasses the gut, and the best quality you can find.  I use

methylcobalamin.  There are different types.  B12 helps the nervous

system.

>  

> Possibly a hydrogen supplement would help.

>  

> You mentioned not doing well on calcium, and I didn't either until I took

calcium AEP.  I personally always take it with pantethine.  Emfs can cause

calcium efflux from where it should be in the brain.  Calcium AEP is

the type calcium the brain uses.  Again, this would pertain to you only if

you know your BBB is leaking, and not necessarily pertain, if it is not. 

>  

> If you have a good doctor who you can go to, also, a calcium channel

blocker might be helpful, if you know for sure you are having calcium

efflux.  I take the natural calcium channel blockers manganese and taurine

once in a while (I do not consider these safe for me to take on a daily basis,

but then, I have no need for doing that anyway, since I am now rarely

having ES symptoms).  [if you need to try these, however, do ask me for

more info, because manganese can act as a toxic metal.  I am only here

on weekends, tho, so expect to wait a few days before hearing from me. 

(Sorry!)]  The way this works, from my understanding, if you have calcium

efflux is:  the tight junction is opened by emfs, then this allows

calcium migration to occur.  The tight junction cannot sometimes close

properly, so sometimes the efflux doesn't stop till a calcium

channel blocker is taken.  If you take a calcium channel

blocker, it will block the calcium from

> leaking, often, in the first place.  (At least that is how it is with the

manganese and taurine.)  However, know that many of us have conflicting

medical needs for which calcium channel blockers are not a good therapy.  (If

it were that easy, we could all go running to our docs for calcium channel

blockers.  ;)  )  You may share this with your doctor and if she is a

very good doc, she will check it out herself and may have even better ideas. 

>  

> As to shielding.....  There are a number of good options for windows:

aluminum or steel screens for windows (I forget the size mesh, but it has to be

small and you have to cover the windows including the window frames); there are

anti-emf window films; there are anti-emf fabrics which can be made into curtain

panels (I velcro mine to a painted lath board on the wall at the ceiling--glue

the lath board up; my drapes are also ceiling height); I also use huge

plants--fan palms, other palms, large ficus, scheffalera(?sp?); and I have used

a large screen made from 3 doors hinged together and covered on one side with

heavy aluminum foil, which is movable and portable.  Outside trees are even

better shields, especially thick evergreens, but placement can be a challenge

and it takes at least 3 years before they are large enough.  [However, as

a home owner, I would like getting as many trees in  place

to help with neighboring smart

meters, as possible!]

>  

> On shielding with screen, fabric, foil....  It seems that if you double

fabric or screen on itself, it will then negate shielding and allow emfs thru,

so for edging and seams, you must make a 3 layer seam.  Odd thicknesses block

emfs, even thicknesses let emfs pass thru.  Very hard to grasp, I know from

experience.  lol 

>  

> Also, if there are aberrant, digital, or wireless frequencies inside your

house, they will bounce off of some of these fixes and cause you problems from

within.  You can try heavy aluminum foil taped to the wall to see how it

works temporarily until you get something better in place.  Remember there

might be also metal in the wall or nails in studding that could cause

problems. 

>  

> Hope some of this is helpful; it sounds like you truly need something fast,

> Bless you,

> Diane

>

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Hi Lizzie - thanks for the suggestions (and sorry for the delay - and that goes

for anyone else whom I might respond to!). Seems like I've heard that Candida

could be connected to low thyroid. I believe I've also read where it can be

connected to both high cortisol levels *and* low cortisol levels (hypoadrenia).

In the past, I've taken certain steps to test my levels of these hormones. To

make a long story short, the results of the conventional thyroid tests have

always pretty much came back within the " normal " range. Of course,

hypothyroidism is more complex than what a blood test might show - and I could

still be (well) below what is a good functional level for me personally. But

treatment for hypo can be challenging - especially when I would have to take an

" alternative " route to treatment (since I would be one of those hypo cases not

recognized by conventional medicine). I'm just very leery of messing with

hormones without supervision of a real-life doctor - and I simply cannot afford

that. Same goes for any " stealth " adrenal issues I may have.

So I'm trying to work the problems (if there are any - it's possible that my

thyroid & cortisol levels are truly o.k.) from different angles. One thing I've

been trying to do is take certain precursor nutrients - what little I can

tolerate, anyway. For example - selenium supposedly is involved in the

conversion from T4 to T3 - so I've been trying to work selenium in my supplement

rotation. (I also take selenium to deal with suspected mercury toxicity.)

Another thing I've been trying to do - and this is more recent - is trying to

deal with my possible Candida. Because I've run across a few sources which

strongly suggest that the Candida-thyroid connection can be a chicken-egg issue.

Candida problems - i.e. all of the poisonous byproducts it produces - can

supposedly block the action of thyroid hormone in the body, and/or can have a

more direct effect on the functioning of the thyroid. So, you can treat the

thyroid to improve your Candida - but allegedly, you can also treat the Candida

to improve your thyroid situation. Maybe whichever approach is best depends on

the person and their particular circumstances.

I'm in the very early stages of this, though - I'm a *long* way from any mastery

of a good anti-Candida protocol. What I struggle with the most is putting

things into action. Needless to say, switching my diet from one I've been

accustomed to is rather daunting!

I haven't done too much with probiotics, yet - I eat organic yogurt and kefir

here and there - but nothing really major. Right now, I've been concentrating

more on taking Candex (which is supposedly a good supplement to dissolve the

cell walls of Candida without affecting the " good stuff " ), and changing my diet.

I plan to work some probiotics in sooner or later.

Thanks for the links to Mercola. I will have to go on there to see what all he

has on probiotics. The Mercola site is pretty great - chock full of some good

stuff. But he can come on rather strong - to the point of being overwhemling.

I was signed up to his newsletter for several years (well, I still am - on my

" spam " account!) - but I'm one to get easily overwhelmed - and his daily

newsletters just became too much.

Oh, and you mentioned that thyroid can increase cholesterol levels - well, over

the past several years (same general period of time I've tested my thyroid on

occasion) - my cholesterol levels have been pretty decent, even on the low side

sometimes. Maybe this is a sign that my thyroid levels aren't too much of a

problem? (Though I've certainly felt like I am hypothyroid!)

~Svetaswan

> >

> >

> > From: KathyB <calicocat477@>

> > Subject: Supplements

> >

> > Date: Saturday, June 11, 2011, 6:42 PM

> >

> >

> > Â

> >

> >

> >

> >

> > I tried some cod liver oil must be low in D, it's helping lesson the

> > nerve pain. . I read Amy Yasko, refers to healing nerves. Have any

> > tried GABA?

> > I react to D3 for some reason.

> >

> > She believes

> > glutamate is the bullet & calcium the gun. We can get ammonia from

> > too much meat. Have to balance w more veggies. Calcium can excite the

> > nerves. Anybody read Blaylock's peice on it?

> > http://www.whale.to/a/sudden_cardiac_death.html

> >

> > I know many take calcium, but it causes more pain for me. I was taking the

wrong kind though. She believes to keep your calcium

> > levels in the low range of normal. It's hard w what emf's do to it. But

maybe being low in cal caused my E Sens?

> >

> > Kathy

> >

> >

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Thanks Kathy - my dream scenario is to be able to afford to go to Dr. Klinghardt

(sp.?) or somewhere, but going to an actual alternative doctor is pretty much

financially out-of-the-question.

I'll have to read more about why red and yellow food dyes should be avoided.

I've heard that before - I just haven't focused that much on it. (And

assimilating all of this info is hard!) As for copper - well, I've been taking

a copper supplement maybe a couple of times per week. A late-2009 hair mineral

analysis test showed that I was pretty low in this mineral....and the minerals

I've been taking to deal with my iron deficiency anemia, supposed pyroluria, and

suspected thyroid/mercury problems can deplete copper levels even more. And

there have been actual physical signs that my copper may be low - like

suddenly-sprouted gray hairs, among other things.

It's hard balancing it all. Even though I may need these minerals - I also may

be existing somewhere near that fragile line of deficiency and toxicity. Diane

talks about this fragile area with manganese - yeah, we may need it to deal with

blood-brain-barrier/tight-junction problems - but you have to know where to draw

the line, because manganese can become toxic.

Maybe I'll try niacinamide again - sooner or later - and start *very* low and

build up gradually. I was wise enough to buy the 250mg capsules along with the

500mg capsules I bought - but it looks like I needed to be even wiser and buy

the 100mg tablets. I guess I thought I didn't need to go that low, because I

had been taking a B-complex capsule a few times per day that contained 100mg of

niacinamide per capsule - and I seemed to handle it well. (I ran out of this

B-complex a couple of weeks before I started the 250mg niacinamide disaster.)

But maybe that's because it had other B-vitamins to " offset " the effects of the

niacinamide, I don't know.

But when I restarted the B-complex again today - I noticed a bit of that same

" agitated " feeling that wasn't really present before with this supplement.

Weird.

Oh - and I'll try to get in touch with you regarding the orgonite, if you're

still interested. :)

~Svetaswan

>

> >

>

> >

>

> > From: KathyB <calicocat477@>

>

> > Subject: Supplements

>

> >

>

> > Date: Saturday, June 11, 2011, 6:42 PM

>

> >

>

> >

>

> >  

>

> >

>

> >

>

> >

>

> >

>

> > I tried some cod liver oil must be low in D, it's helping lesson the

>

> > nerve pain. . I read Amy Yasko, refers to healing nerves.  Have any

>

> > tried GABA?

>

> > I react to  D3 for some reason.

>

> >

>

> > She believes

>

> > glutamate is the bullet & calcium the gun.  We can get ammonia from

>

> > too much meat. Have to balance w more veggies. Calcium can excite the

>

> > nerves. Anybody read Blaylock's peice on it?

>

> > http://www.whale.to/a/sudden_cardiac_death.html

>

> >

>

> > I know many take calcium, but it causes more pain for me. I was taking the

wrong kind though. She believes to keep your calcium

>

> > levels in the low range of normal. It's hard w what emf's do to it. But

maybe being low in cal caused my E Sens?

>

> >

>

> > Kathy

>

> >

>

> >

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