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is

 

I hate to tell you this but this was exactly how things started out for me about

7 years ago - at the time I didn't know what it was but over time [and without

my knowing it] things have ramped themselves up to a point that about 20 months

ago I became electro hyper sensitive - who knows if I had known then what I know

now I maybe could have done some things to stop my progression down the EHS

path. So maybe you should read some of the posts on this site and take a good

long look at your environment both at home and at work and maybe make some

changes which would help you preserve your health as much as you can.

 

REgards

 

Steph

From: is <lexie316@...>

Subject: New to group

Date: Tuesday, 16 December, 2008, 3:52 PM

Hi everyone,

I'm new to this group, my name is is. I'm not sure if this is the

right group for me though! I do not feel ill around electricity or

flourescent bulbs or anything like that. At least, I don't think I

do... I found this group while searching for electric shock

sensitivity. I get shocked in the winter ALL THE TIME. I grew up in

NJ and don't remember it happening there, moved to FL at age 13.

Lived there until age 35 when I moved to Missouri. Well now every

winter everything shocks me, with extreme pain. I even shock my cats,

repeatedly! I Wouldn't have thought anything was unusual about it,

it's dry air, etc. But when I am hloding my cat, shocks just happen

over and over. When I pet the cats, shocks follow my hand down their

spine. In the summer, my cats rub their faces on mine, but in the

winter, they get a shock, then they think I am hurting them on

purpose! I can deal with the painful shock getting out of the car

(though I am fearful EVERY TIME) door knobs, etc. But I hate what it

is doing to my cats. So, maybe I just have something similar but to a

lesser degree? Can someone point me to a group that would fit me

better? I am moving back to Florida soon, but maybe there are other

things that are associated with this. Back pain, tired all the time,

can't get enough sleep, frequent but minor headaches, I thought I was

just getting old... (I'm 38)

Thanks, is (and cats Zeke, Noel, and Stormy)

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Hi, is and (and Helen, Amy, and All),

 

Sorry I have not been well of late and have been off my computer for the past 2

months or so.  So if I owe you an email, or you have written me in that time

frame, know that I hope to read my mail and respond soon or asap.  Sorry I

missed you, Helen, before you returned home.  Hopefully we will connect again

when you return.  I will write soon.

 

in UK, keep up your grit!  You have my great admiration and sympathy,

dear.  Maybe you could pay some thugs to.....  ;)  j/k

 

is and Steph, re your problem with static electricity and shocks:  I was

like this for years prior to becoming ES, also.  I fried small appliances,

computers, and light bulbs on a regular basis by just touching them or turning

on light switches.  The advise you have gotten from and Marc is good,

is.  All natural fabrics and the anti-static shoes are a real help.  I was a

part of this forum for, I think, 2 years prior to becoming fully ES as others

are here.  (I came originally looking to see if everyone here fried things and

whether they could wear watches next to their skin, which I can't.)  It was a

real help because I had a head start on figuring things out, ES-wise.  So my

advise is for you to stay and read, also.  In the end, it was a pesticide

episode that put me over the top and brought on ES, so I would add that you

should also be living as greenly and cleanly as possible.  Clean up your space

and avoid as much toxic

pollution of all types as possible.  There is a name for what happened to me,

and what could be beginning to happen to you:  TILT-- " toxin induced loss of

tolerance " .  You can " google " or search these exact words and it will bring up a

list of sites which will give you lots more info than I could recount in an

email. 

 

Learning about how to recognise and remove extra toxins from your surroundings

will help.  Beginning to learn about how to clean your lymphatic system MAY

help.  It seems that lymphatic overload is involved in ES, MCS, TILT, and EI. 

HOWEVER, you must learn about this step before implementing it, because the

process of cleaning the lymphatic system might cause detoxing inside your

body that could, on its own, put your body over the toxic threshold.  So this is

not a thing to do lightly without studying it and knowing what you might be

unleashing that is already in your body (unless you are already over the

threshold and nowhere to go but up, and even then you have to be sure you are

not just mobilizing toxins or moving them to even worse places, like the brain

or other organs). 

 

One thing which might help you now and, hopefully not cause great detox, is

alkaline water or something else that addresses metabolic acidity in your body. 

You will probably at some time want to detox, but do it very slowly and only

after you have done the other helps mentioned.  You will also have to know

whether your liver detox pathways are working well before you do any detoxing. 

Try eating just grapefruit for a meal and see if you feel better. 

Grapefruit stops the detox pathways so that nothing is being detoxed.  If you

feel better eating grapefruit, this would suggest that one of the pathways is

not working properly or the pathways are out of sinc.  If you feel worse, it

might suggest that both detox pahtways are not working and you are not detoxing

at all or that you have too much backlog of toxins going into the liver. 

Drinking coffee stimulates Phase 1 liver detox, so if you feel better drinking

coffee (do not try the coffee and

grapefruit at the same time!), then you know that you need to supplement with

nutrients which help Phase 1 liver detox.  If you feel worse drinking coffee,

then suspect that Phase 2 detox is not working efficiently and needs nutrient

supplementation.  I forget what you can use to stimulate Phase 2 detox.  Maybe

someone here knows this or you can google that.  I would look it up for you but

I am not well enough to do it at this time.  (You could ask me next month and I

might be able to send you more info on that.)  Naturally, a good or bad reaction

to grapefruit or coffee can mean other things besides what I have mentioned. 

These are just clues to help you decipher but not hard facts to go by.  Good

luck, is.  I hope you can avoid ES altogether.

 

My best to you all,

Diane aka Evie

From: is <lexie316att (DOT) net>

Subject: New to group

groups (DOT) com

Date: Tuesday, 16 December, 2008, 3:52 PM

Hi everyone,

I'm new to this group, my name is is. I'm not sure if this is the

right group for me though! I do not feel ill around electricity or

flourescent bulbs or anything like that. At least, I don't think I

do... I found this group while searching for electric shock

sensitivity. I get shocked in the winter ALL THE TIME. I grew up in

NJ and don't remember it happening there, moved to FL at age 13.

Lived there until age 35 when I moved to Missouri. Well now every

winter everything shocks me, with extreme pain. I even shock my cats,

repeatedly! I Wouldn't have thought anything was unusual about it,

it's dry air, etc. But when I am hloding my cat, shocks just happen

over and over. When I pet the cats, shocks follow my hand down their

spine. In the summer, my cats rub their faces on mine, but in the

winter, they get a shock, then they think I am hurting them on

purpose! I can deal with the painful shock getting out of the car

(though I am fearful EVERY TIME) door knobs, etc. But I hate what it

is doing to my cats. So, maybe I just have something similar but to a

lesser degree? Can someone point me to a group that would fit me

better? I am moving back to Florida soon, but maybe there are other

things that are associated with this. Back pain, tired all the time,

can't get enough sleep, frequent but minor headaches, I thought I was

just getting old... (I'm 38)

Thanks, is (and cats Zeke, Noel, and Stormy)

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  • 3 months later...
Guest guest

1. Do exactly what the dr. says

2. Start doing quad tightening exercises now

3. Stay on top of the pain (in hospital and out) after surgery by

taking the medicine regularly and before it starts hurting a lot

4. Work hard doing the exercises that the physical therapists show you

in the hospital, in home physical therapy and in outpatient pt

5. Take pain medicine before going to physical therapy

6. It might help at first to have a raise commode seat when you go home

7. Plan on using lots of ice for pain

8. Can't say enough about doing the exercises that the pt shows you and

really working hard at it

9. You might want a shower seat at first but you might be fine without

it

Let me know if you have any specific questions

Harold

_____

From: Joint Replacement

[mailto:Joint Replacement ] On Behalf Of

Scharff

Sent: Saturday, April 04, 2009 5:14 PM

Joint Replacement

Subject: new to group

Hi,

I just found this group and am having a tkr on left knee at the end of May

and am wondering if anyone has any advise and/or thoughts on what to expect.

I'm 61 and have numerous health problems including chronic back pain (for 20

years).

Thanks,

Jeff

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Guest guest

Great list, Harold! To which I would add #10; ice and elevate, ice and

elevate, ice and elevate, then ice and elevate some more in those first two

weeks post op and maybe after your PT sessions as well!

Annie Pal

PT in SC

>

> 1. Do exactly what the dr. says

> 2. Start doing quad tightening exercises now

> 3. Stay on top of the pain (in hospital and out) after surgery by

> taking the medicine regularly and before it starts hurting a lot

> 4. Work hard doing the exercises that the physical therapists show you

> in the hospital, in home physical therapy and in outpatient pt

> 5. Take pain medicine before going to physical therapy

> 6. It might help at first to have a raise commode seat when you go home

> 7. Plan on using lots of ice for pain

> 8. Can't say enough about doing the exercises that the pt shows you and

> really working hard at it

> 9. You might want a shower seat at first but you might be fine without

> it

>

> Let me know if you have any specific questions

>

>

>

> Harold

>

>

>

> _____

>

> From: Joint Replacement

> [mailto:Joint Replacement ] On Behalf Of

> Scharff

> Sent: Saturday, April 04, 2009 5:14 PM

> Joint Replacement

> Subject: new to group

>

>

>

> Hi,

> I just found this group and am having a tkr on left knee at the end of May

> and am wondering if anyone has any advise and/or thoughts on what to expect.

> I'm 61 and have numerous health problems including chronic back pain (for 20

> years).

> Thanks,

> Jeff

>

>

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Guest guest

Harold,

Thanks. They all make a lot of sense and I appreciate the list.

Specifically I would ask about steps. My bedroom is on second floor and I have

13 steps up. How much of a problem should that be?

Thanks,

Jeff

________________________________

From: Harold <haroldusc@...>

Joint Replacement

Sent: Saturday, April 4, 2009 6:08:49 PM

Subject: RE: new to group

1. Do exactly what the dr. says

2. Start doing quad tightening exercises now

3. Stay on top of the pain (in hospital and out) after surgery by

taking the medicine regularly and before it starts hurting a lot

4. Work hard doing the exercises that the physical therapists show you

in the hospital, in home physical therapy and in outpatient pt

5.. Take pain medicine before going to physical therapy

6. It might help at first to have a raise commode seat when you go home

7. Plan on using lots of ice for pain

8. Can't say enough about doing the exercises that the pt shows you and

really working hard at it

9. You might want a shower seat at first but you might be fine without

it

Let me know if you have any specific questions

Harold

_____

From: Total_Joint_ Replacement

[mailto:Total_Joint_ Replacement@ groups.. com] On Behalf Of

Scharff

Sent: Saturday, April 04, 2009 5:14 PM

Total_Joint_ Replacement

Subject: [Total_Joint_ Replacement] new to group

Hi,

I just found this group and am having a tkr on left knee at the end of May

and am wondering if anyone has any advise and/or thoughts on what to expect.

I'm 61 and have numerous health problems including chronic back pain (for 20

years).

Thanks,

Jeff

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Guest guest

They will teach you how to use your crutches and go up/down steps before you

leave the hospital. It might be easier to plan on sleeping the first

several nights downstairs if that is an option.is there a bathroom

downstairs? Again, that's one of the things they will show you how to do

before leaving the hospital.Steps with crutches are manageable.I'd make sure

someone is there with you when you go up/down at first and I wouldn't go

up/down a bunch each day at first but you should be ok.

Harold

_____

From: Joint Replacement

[mailto:Joint Replacement ] On Behalf Of

Scharff

Sent: Sunday, April 05, 2009 10:09 AM

Joint Replacement

Subject: Re: new to group

Harold,

Thanks. They all make a lot of sense and I appreciate the list.

Specifically I would ask about steps. My bedroom is on second floor and I

have 13 steps up. How much of a problem should that be?

Thanks,

Jeff

________________________________

From: Harold <harolduscverizon (DOT) <mailto:haroldusc%40verizon.net>

net>

Total_Joint_ <mailto:Joint Replacement%40>

Replacement

Sent: Saturday, April 4, 2009 6:08:49 PM

Subject: RE: new to group

1. Do exactly what the dr. says

2. Start doing quad tightening exercises now

3. Stay on top of the pain (in hospital and out) after surgery by

taking the medicine regularly and before it starts hurting a lot

4. Work hard doing the exercises that the physical therapists show you

in the hospital, in home physical therapy and in outpatient pt

5.. Take pain medicine before going to physical therapy

6. It might help at first to have a raise commode seat when you go home

7. Plan on using lots of ice for pain

8. Can't say enough about doing the exercises that the pt shows you and

really working hard at it

9. You might want a shower seat at first but you might be fine without

it

Let me know if you have any specific questions

Harold

_____

From: Total_Joint_ Replacement

[mailto:Total_Joint_ Replacement@ groups.. com] On Behalf Of

Scharff

Sent: Saturday, April 04, 2009 5:14 PM

Total_Joint_ Replacement

Subject: [Total_Joint_ Replacement] new to group

Hi,

I just found this group and am having a tkr on left knee at the end of May

and am wondering if anyone has any advise and/or thoughts on what to expect.

I'm 61 and have numerous health problems including chronic back pain (for 20

years).

Thanks,

Jeff

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Guest guest

Do you know Harriet Kamps (Cockers) from MD? She has shown Cockers

following knee replacement (I'm virtually positive she's had a

replacement)...she's learned how to get up/down in her own way.

Harold

new to group

I'm going to have a unilateral replacement on May 12... left knee... I show

dogs in both conformation & agility, and am wondering what to expect from

the surgery & PT, and if anyone else shows dogs after knee replacement. I

have had 5 knee surgeries, arthrscopic, and did really well after each...

will I be able to kneel????

" It's not what you gather, but what you scatter that tells what kind of

life you have led... "

Lynne Harley, Yorktown, VA

And the Irish Setter crew:

Molly: U-Ch. BrynMoor's Breaking My Heart, CD RE CGC

Cassi: Am Can Ch BIS U-Grand Ch Captiva's Cassiopeia, 2007 UKC Top Ten

(5th) #4 Irish Setter-Canada- Aug 2008

Kagan: Captiva's Splash Into The Future

: Captiva Still Unforgettable... Cassi's baby girl!

Never to forget all the wonderful souls at the Bridge, especially Tyler!!!

_________________________________________________________________

Windows LiveT: Keep your life in sync.

http://windowslive.com/explore?ocid=TXT_TAGLM_WL_allup_1a_explore_042009

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Guest guest

Jeff,

Regarding the bedroom/stairs issue. If you have a bathroom upstairs and your TV

& internet are also up stairs I would suggest you plan on staying upstairs for

the first couple of weeks.

That was what I came to after thinking through the possibilities. Everything I

needed apart for food was upstairs so why live down stairs. My wife prepared

and brought my meals to me.

I made arrangements before to have some big fellows home to help me upstairs if

I needed it when I came home. Turns out I was able to walk up the stairs

backwards with someone standing in front of me, just in cast, as I went up.

Took about 2 or 3 minutes but I made it.

Don

>

> Harold,

> Thanks. They all make a lot of sense and I appreciate the list.

> Specifically I would ask about steps. My bedroom is on second floor and I have

13 steps up. How much of a problem should that be?

> Thanks,

> Jeff

>

>

>

>

> ________________________________

> From: Harold <haroldusc@...>

> Joint Replacement

> Sent: Saturday, April 4, 2009 6:08:49 PM

> Subject: RE: new to group

>

>

> 1. Do exactly what the dr. says

> 2. Start doing quad tightening exercises now

> 3. Stay on top of the pain (in hospital and out) after surgery by

> taking the medicine regularly and before it starts hurting a lot

> 4. Work hard doing the exercises that the physical therapists show you

> in the hospital, in home physical therapy and in outpatient pt

> 5.. Take pain medicine before going to physical therapy

> 6. It might help at first to have a raise commode seat when you go home

> 7. Plan on using lots of ice for pain

> 8. Can't say enough about doing the exercises that the pt shows you and

> really working hard at it

> 9. You might want a shower seat at first but you might be fine without

> it

>

> Let me know if you have any specific questions

>

> Harold

>

> _____

>

> From: Total_Joint_ Replacement

> [mailto:Total_Joint_ Replacement@ groups.. com] On Behalf Of

> Scharff

> Sent: Saturday, April 04, 2009 5:14 PM

> Total_Joint_ Replacement

> Subject: [Total_Joint_ Replacement] new to group

>

> Hi,

> I just found this group and am having a tkr on left knee at the end of May

> and am wondering if anyone has any advise and/or thoughts on what to expect.

> I'm 61 and have numerous health problems including chronic back pain (for 20

> years).

> Thanks,

> Jeff

>

>

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Guest guest

>

> Harold,

> Thanks. They all make a lot of sense and I appreciate the list.

> Specifically I would ask about steps. My bedroom is on second floor and I have

13 steps up. How much of a problem should that be?

> Thanks,

> Jeff

>

>

Hi, Jeff.

As Harold said, they will teach you how to negotiate steps with crutches.

Beforehand, you might want to make sure the stair railing is installed solidly

(ie. anchored to the studs, rather than to just the sheet rock), and if you can

have a stair railing on both sides, so much the better. I agree, it is easier

to stay on one floor, but not a huge deal if you can't. You have to learn to

deal with the steps anyway, and it is good exercise for your knee.

Adding to Harold's excellent list:

- If you don't already have solid hand grips in the shower, you can get suction

cup type grips from a medical supply place for around $25.00. I'd reattach them

periodically, and test them to make sure they are solid before your shower, but

they will work to stabilize you well.

- A hand rail by the toilet will also help.

- Have a chair with solid arms on it, and make sure ahead of time that all of

the glue joints on the arms and legs are solid. Don't ask me how I know this.

:-)

- When they show you how to saran wrap your knee for showers, keep that up until

every tiny sign of scab is long gone, even if they tell you it is OK to not use

it. Do this even if there is only a tiny, tight scab. Have patience, and don't

take a chance on infection.

- If they offer to let you take cloth tape, Coban, and other medical supplies

home, take them up on it.

- If they have you do any bandaging with gauze and Coban and you are on your own

for medical supplies, Vetrap can be purchased at a farm supply store for much

less than Coban. It is the same product from 3M, only you can get it in many

cool colors. SyrVet is a less expensive, lighter duty cohesive wrap yet, and I

found it to be more comfortable and stick better.

Bill in MN

BTKR

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Guest guest

>

>

> will I be able to kneel????

Kneeling is something you will have to get used to. For some reason, it just

seems like it is something my body tells me not to do. I don't think there is

any reason a person can't kneel, though.

Bill in MN

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Guest guest

I agree regarding kneeling as don't think it's one of the

restrictions -- although I have no restrictions anyway.

Kneeling is very uncomfortable for me because it hurts my knees --

unrelated to bad knees or bionic hips -- just a product of aging. As

is generally not wanting to sit on a floor or scramble under a desk to

track down computer wires LOL.

Helen

On Apr 6, 2009, at 11:26 AM, Bill wrote:

>

> >

> >

> > will I be able to kneel????

>

> Kneeling is something you will have to get used to. For some reason,

> it just seems like it is something my body tells me not to do. I

> don't think there is any reason a person can't kneel, though.

>

> Bill in MN

>

>

>

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Guest guest

Some people can kneel more comfortably and flexibly than

others....sometimes awkward to get down/up...sometimes not...more

comfortable when one learns to knee without putting all body weight

directly on knee...best not to do it until skin is totally healed. One

just has to see how they do with it and see. A great deal of kneeling

can cause more rapid wear/tear on the artificial joint/components.

Harold

On Mon, Apr 6, 2009 at 2:30 PM, jujulabee@... wrote:

I agree regarding kneeling as don't think it's one of the

restrictions -- although I have no restrictions anyway.

Kneeling is very uncomfortable for me because it hurts my knees --

unrelated to bad knees or bionic hips -- just a product of aging. As

is generally not wanting to sit on a floor or scramble under a desk to

track down computer wires LOL.

Helen

On Apr 6, 2009, at 11:26 AM, Bill wrote:

>

>>

>>

>> will I be able to kneel????

>

> Kneeling is something you will have to get used to. For some reason,

> it just seems like it is something my body tells me not to do. I don't

> think there is any reason a person can't kneel, though.

> Bill in MN

>

>

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Guest guest

I can kneel fine after my TKR last October and can kneel on the floor and rest

my butt on my feet. I was able to kneel immediately after surgery.

It may be the prosthesis you get. I have the Zimmer high flex gender knee which

was originally made (I think) for Indians and muslims that must kneel to pray

and eat.

When I was surgeon shopping my first question was, " will I be able to kneel? "

Most surgeons said no (Biomet prostheses), but my current surgeon said " of

course, if you can do it now, you'll be able to do it after " . He also said I

could ski again. He uses many different prostheses but had me scheduled for a

" highly active/155 degree flexion " one.

I go in Friday for my second TKR, I'm wondering if he'll use the same prosthesis

or not.

The reason I was kneeling so soon after surgery is that my back hurt so much I

got on my hands and knees on the bed to stretch out my back. I sure hope I can

avoid the back pain this next surgery.

I'm having all these surgeries because I'm hypermobile, bend easily but don't

" stack " my body right. It's great when you're young but now that I'm in my 50s

I'm paying a big price.

Hollie

> Some people can kneel more comfortably and flexibly than

> others....sometimes awkward to get own/up...sometimes not...more

> comfortable when one learns to knee without putting all body weight

> directly on knee...best not to do it until skin is totally healed. One

> just has to see how they do with it and see. A great deal of kneeling

> can cause more rapid wear/tear on the artificial joint/components.

>

> Harold

>

> On Mon, Apr 6, 2009 at 2:30 PM, jujulabee@... wrote:

>

> I agree regarding kneeling as don't think it's one of the

> restrictions -- although I have no restrictions anyway.

>

> Kneeling is very uncomfortable for me because it hurts my knees --

> unrelated to bad knees or bionic hips -- just a product of aging. As

> is generally not wanting to sit on a floor or scramble under a desk to

> track down computer wires LOL.

>

> Helen

>

> On Apr 6, 2009, at 11:26 AM, Bill wrote:

>

> >

> >>

> >>

> >> will I be able to kneel????

> >

> > Kneeling is something you will have to get used to. For some reason,

> > it just seems like it is something my body tells me not to do. I don't

> > think there is any reason a person can't kneel, though.

> > Bill in MN

> >

> >

>

>

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Guest guest

Hi Don,

That's always a possibility, thanks. I suppose I can manage upstairs for a few

weeks.

Jeff

________________________________

From: Don <DonAVP@...>

Joint Replacement

Sent: Monday, April 6, 2009 11:32:30 AM

Subject: Re: new to group

Jeff,

Regarding the bedroom/stairs issue. If you have a bathroom upstairs and your TV

& internet are also up stairs I would suggest you plan on staying upstairs for

the first couple of weeks.

That was what I came to after thinking through the possibilities. Everything I

needed apart for food was upstairs so why live down stairs. My wife prepared and

brought my meals to me.

I made arrangements before to have some big fellows home to help me upstairs if

I needed it when I came home. Turns out I was able to walk up the stairs

backwards with someone standing in front of me, just in cast, as I went up. Took

about 2 or 3 minutes but I made it.

Don

>

> Harold,

> Thanks. They all make a lot of sense and I appreciate the list.

> Specifically I would ask about steps. My bedroom is on second floor and I have

13 steps up. How much of a problem should that be?

> Thanks,

> Jeff

>

>

>

>

> ____________ _________ _________ __

> From: Harold <haroldusc@. ..>

> Total_Joint_ Replacement

> Sent: Saturday, April 4, 2009 6:08:49 PM

> Subject: RE: [Total_Joint_ Replacement] new to group

>

>

> 1. Do exactly what the dr. says

> 2. Start doing quad tightening exercises now

> 3. Stay on top of the pain (in hospital and out) after surgery by

> taking the medicine regularly and before it starts hurting a lot

> 4. Work hard doing the exercises that the physical therapists show you

> in the hospital, in home physical therapy and in outpatient pt

> 5.. Take pain medicine before going to physical therapy

> 6. It might help at first to have a raise commode seat when you go home

> 7. Plan on using lots of ice for pain

> 8. Can't say enough about doing the exercises that the pt shows you and

> really working hard at it

> 9. You might want a shower seat at first but you might be fine without

> it

>

> Let me know if you have any specific questions

>

> Harold

>

> _____

>

> From: Total_Joint_ Replacement

> [mailto:Total_ Joint_ Replacement@ groups. . com] On Behalf Of

> Scharff

> Sent: Saturday, April 04, 2009 5:14 PM

> Total_Joint_ Replacement

> Subject: [Total_Joint_ Replacement] new to group

>

> Hi,

> I just found this group and am having a tkr on left knee at the end of May

> and am wondering if anyone has any advise and/or thoughts on what to expect.

> I'm 61 and have numerous health problems including chronic back pain (for 20

> years).

> Thanks,

> Jeff

>

>

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Guest guest

Hi Bill,

Thanks for the advise. Do you think the hand grips are necessary if I have a

shower seat?

Thanks,

Jeff

________________________________

From: Bill <wwblues2@...>

Joint Replacement

Sent: Monday, April 6, 2009 2:21:39 PM

Subject: Re: new to group

>

> Harold,

> Thanks. They all make a lot of sense and I appreciate the list.

> Specifically I would ask about steps. My bedroom is on second floor and I have

13 steps up. How much of a problem should that be?

> Thanks,

> Jeff

>

>

Hi, Jeff.

As Harold said, they will teach you how to negotiate steps with crutches.

Beforehand, you might want to make sure the stair railing is installed solidly

(ie. anchored to the studs, rather than to just the sheet rock), and if you can

have a stair railing on both sides, so much the better. I agree, it is easier to

stay on one floor, but not a huge deal if you can't. You have to learn to deal

with the steps anyway, and it is good exercise for your knee.

Adding to Harold's excellent list:

- If you don't already have solid hand grips in the shower, you can get suction

cup type grips from a medical supply place for around $25.00. I'd reattach them

periodically, and test them to make sure they are solid before your shower, but

they will work to stabilize you well.

- A hand rail by the toilet will also help.

- Have a chair with solid arms on it, and make sure ahead of time that all of

the glue joints on the arms and legs are solid. Don't ask me how I know this.

:-)

- When they show you how to saran wrap your knee for showers, keep that up until

every tiny sign of scab is long gone, even if they tell you it is OK to not use

it. Do this even if there is only a tiny, tight scab. Have patience, and don't

take a chance on infection.

- If they offer to let you take cloth tape, Coban, and other medical supplies

home, take them up on it.

- If they have you do any bandaging with gauze and Coban and you are on your own

for medical supplies, Vetrap can be purchased at a farm supply store for much

less than Coban. It is the same product from 3M, only you can get it in many

cool colors. SyrVet is a less expensive, lighter duty cohesive wrap yet, and I

found it to be more comfortable and stick better.

Bill in MN

BTKR

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Guest guest

Hollie, you say you're in your fifties and hypermobile. That's me, for sure.

I'm diagnosed as having hypermobile type Ehlers Danlos syndrome. How flexible

were your knees prior to surgery? Did they hyperextend?

My knees are very unstable and one is developing arthritis but the doctor (chief

of knee surgery at the Hospital for Special Surgery in NYC) tells me he worries

that my ligaments won't be strong enough to support the new knee after TKR (I

just had THR and the limitations are driving me crazy, I'm so used to being

flexible).

Jane

---- Hollie <rosey9932000@...> wrote:

> I can kneel fine after my TKR last October and can kneel on the floor and rest

my butt on my feet. I was able to kneel immediately after surgery.

>

> It may be the prosthesis you get. I have the Zimmer high flex gender knee

which was originally made (I think) for Indians and muslims that must kneel to

pray and eat.

>

> When I was surgeon shopping my first question was, " will I be able to kneel? "

Most surgeons said no (Biomet prostheses), but my current surgeon said " of

course, if you can do it now, you'll be able to do it after " . He also said I

could ski again. He uses many different prostheses but had me scheduled for a

" highly active/155 degree flexion " one.

>

> I go in Friday for my second TKR, I'm wondering if he'll use the same

prosthesis or not.

>

> The reason I was kneeling so soon after surgery is that my back hurt so much I

got on my hands and knees on the bed to stretch out my back. I sure hope I can

avoid the back pain this next surgery.

>

> I'm having all these surgeries because I'm hypermobile, bend easily but don't

" stack " my body right. It's great when you're young but now that I'm in my 50s

I'm paying a big price.

>

> Hollie

>

>

>

> > Some people can kneel more comfortably and flexibly than

> > others....sometimes awkward to get own/up...sometimes not...more

> > comfortable when one learns to knee without putting all body weight

> > directly on knee...best not to do it until skin is totally healed. One

> > just has to see how they do with it and see. A great deal of kneeling

> > can cause more rapid wear/tear on the artificial joint/components.

> >

> > Harold

> >

> > On Mon, Apr 6, 2009 at 2:30 PM, jujulabee@... wrote:

> >

> > I agree regarding kneeling as don't think it's one of the

> > restrictions -- although I have no restrictions anyway.

> >

> > Kneeling is very uncomfortable for me because it hurts my knees --

> > unrelated to bad knees or bionic hips -- just a product of aging. As

> > is generally not wanting to sit on a floor or scramble under a desk to

> > track down computer wires LOL.

> >

> > Helen

> >

> > On Apr 6, 2009, at 11:26 AM, Bill wrote:

> >

> > >

> > >>

> > >>

> > >> will I be able to kneel????

> > >

> > > Kneeling is something you will have to get used to. For some reason,

> > > it just seems like it is something my body tells me not to do. I don't

> > > think there is any reason a person can't kneel, though.

> > > Bill in MN

> > >

> > >

> >

> >

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Guest guest

My knees have always hyperextended back. My surgeon told me " I don't want you

standing like that after surgery " , which mystified me because I thought the

metal knee would prevent me from ever hyperextending again.

I have had a rheumatologist getting biopsies at my surgeries (had both hips

resurfaced too) and trying to figure out if I had an inflammatory arthritis that

was destroying my cartilage. Now he has pretty much settled on me being

hypermobile which is known to " make the hips go " and cause meniscis tears which

led to my TKRs. I'm not sure what the symptoms of Ehlers Danlos are, is that

when joints frequently dislocate?

Prior to surgery I was real flexible, still am. My PT is always on me to learn

to " stack my body " right and immediately picked out my hypermobility by the way

I was laying on her table with my legs going one direction yet still able to

have shoulders and head the opposite.

I haven't heard a doc tell me my ligaments might not be strong enough for a TKR,

as far as I know they are strong. I'm not familar enough with Ehlers Danlos to

know if that is a factor.

Where I did my body damage was in the dancing (ballet, jazz) I did from

elementary school through college, then I was really into yoga. Now my PT won't

let me do yoga anymore and she's a certified yoga teacher, I now do Pilates with

her where she is trying to train me out of my bad habits. She says hypermobile

people gravitate to yoga and dance.

Sorry about your restrictions from the hip replacement. I'm glad I had my hips

resurfaced since there aren't any restrictions and they feel the same.

I wish they had resurfacing for knees. I tried dancing tonight though and they

did pretty good, not quite as fluid but maybe will get better, I'm 6 months out

on first knee.

This hypermobile stuff is fairly new to me...

Hollie

> Hollie, you say you're in your fifties and hypermobile. That's me, for sure.

I'm diagnosed as having hypermobile type Ehlers Danlos syndrome. How flexible

were your knees prior to surgery? Did they hyperextend?

>

> My knees are very unstable and one is developing arthritis but the doctor

(chief of knee surgery at the Hospital for Special Surgery in NYC) tells me he

worries that my ligaments won't be strong enough to support the new knee after

TKR (I just had THR and the limitations are driving me crazy, I'm so used to

being flexible).

>

> Jane

>

>

>

> ---- Hollie <rosey9932000@...> wrote:

> > I can kneel fine after my TKR last October and can kneel on the floor and

rest my butt on my feet. I was able to kneel immediately after surgery.

> >

> > It may be the prosthesis you get. I have the Zimmer high flex gender knee

which was originally made (I think) for Indians and muslims that must kneel to

pray and eat.

> >

> > When I was surgeon shopping my first question was, " will I be able to

kneel? " Most surgeons said no (Biomet prostheses), but my current surgeon said

" of course, if you can do it now, you'll be able to do it after " . He also said

I could ski again. He uses many different prostheses but had me scheduled for a

" highly active/155 degree flexion " one.

> >

> > I go in Friday for my second TKR, I'm wondering if he'll use the same

prosthesis or not.

> >

> > The reason I was kneeling so soon after surgery is that my back hurt so much

I got on my hands and knees on the bed to stretch out my back. I sure hope I

can avoid the back pain this next surgery.

> >

> > I'm having all these surgeries because I'm hypermobile, bend easily but

don't " stack " my body right. It's great when you're young but now that I'm in

my 50s I'm paying a big price.

> >

> > Hollie

> >

> >

> >

> > > Some people can kneel more comfortably and flexibly than

> > > others....sometimes awkward to get own/up...sometimes not...more

> > > comfortable when one learns to knee without putting all body weight

> > > directly on knee...best not to do it until skin is totally healed. One

> > > just has to see how they do with it and see. A great deal of kneeling

> > > can cause more rapid wear/tear on the artificial joint/components.

> > >

> > > Harold

> > >

> > > On Mon, Apr 6, 2009 at 2:30 PM, jujulabee@ wrote:

> > >

> > > I agree regarding kneeling as don't think it's one of the

> > > restrictions -- although I have no restrictions anyway.

> > >

> > > Kneeling is very uncomfortable for me because it hurts my knees --

> > > unrelated to bad knees or bionic hips -- just a product of aging. As

> > > is generally not wanting to sit on a floor or scramble under a desk to

> > > track down computer wires LOL.

> > >

> > > Helen

> > >

> > > On Apr 6, 2009, at 11:26 AM, Bill wrote:

> > >

> > > >

> > > >>

> > > >>

> > > >> will I be able to kneel????

> > > >

> > > > Kneeling is something you will have to get used to. For some reason,

> > > > it just seems like it is something my body tells me not to do. I don't

> > > > think there is any reason a person can't kneel, though.

> > > > Bill in MN

> > > >

> > > >

> > >

> > >

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Guest guest

>

> Hi Bill,

> Thanks for the advise. Do you think the hand grips are necessary if I have a

shower seat?

> Thanks,

> Jeff

Does the seat have arms so you can push yourself up? If not, maybe the hand

grip will be even more helpful.

Bill

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Guest guest

No.

Harold

_____

From: Joint Replacement

[mailto:Joint Replacement ] On Behalf Of Bill

Sent: Tuesday, April 07, 2009 6:28 AM

Joint Replacement

Subject: Re: new to group

>

> Hi Bill,

> Thanks for the advise. Do you think the hand grips are necessary if I have

a shower seat?

> Thanks,

> Jeff

Does the seat have arms so you can push yourself up? If not, maybe the hand

grip will be even more helpful.

Bill

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Guest guest

Jeff, I'd just give it a try and see how you feel when they show you steps

at the hospital and when you get home.to me personally, it's not necessary

to stay down or up 2 weeks.you will see improvement every day.you most

likely will be able to be fine from the first day home but just give it some

thought and see how you do. Each person is different. I would just make

sure that someone is with you the first few times you maneuver the steps so

that you don't fall alone.

Harold

_____

From: Joint Replacement

[mailto:Joint Replacement ] On Behalf Of Don

Sent: Monday, April 06, 2009 11:33 AM

Joint Replacement

Subject: Re: new to group

Jeff,

Regarding the bedroom/stairs issue. If you have a bathroom upstairs and your

TV & internet are also up stairs I would suggest you plan on staying

upstairs for the first couple of weeks.

That was what I came to after thinking through the possibilities. Everything

I needed apart for food was upstairs so why live down stairs. My wife

prepared and brought my meals to me.

I made arrangements before to have some big fellows home to help me upstairs

if I needed it when I came home. Turns out I was able to walk up the stairs

backwards with someone standing in front of me, just in cast, as I went up.

Took about 2 or 3 minutes but I made it.

Don

>

> Harold,

> Thanks. They all make a lot of sense and I appreciate the list.

> Specifically I would ask about steps. My bedroom is on second floor and I

have 13 steps up. How much of a problem should that be?

> Thanks,

> Jeff

>

>

>

>

> ________________________________

> From: Harold <haroldusc@...>

> Total_Joint_ <mailto:Joint Replacement%40>

Replacement

> Sent: Saturday, April 4, 2009 6:08:49 PM

> Subject: RE: new to group

>

>

> 1. Do exactly what the dr. says

> 2. Start doing quad tightening exercises now

> 3. Stay on top of the pain (in hospital and out) after surgery by

> taking the medicine regularly and before it starts hurting a lot

> 4. Work hard doing the exercises that the physical therapists show you

> in the hospital, in home physical therapy and in outpatient pt

> 5.. Take pain medicine before going to physical therapy

> 6. It might help at first to have a raise commode seat when you go home

> 7. Plan on using lots of ice for pain

> 8. Can't say enough about doing the exercises that the pt shows you and

> really working hard at it

> 9. You might want a shower seat at first but you might be fine without

> it

>

> Let me know if you have any specific questions

>

> Harold

>

> _____

>

> From: Total_Joint_ Replacement

> [mailto:Total_Joint_ Replacement@ groups.. com] On Behalf Of

> Scharff

> Sent: Saturday, April 04, 2009 5:14 PM

> Total_Joint_ Replacement

> Subject: [Total_Joint_ Replacement] new to group

>

> Hi,

> I just found this group and am having a tkr on left knee at the end of May

> and am wondering if anyone has any advise and/or thoughts on what to

expect.

> I'm 61 and have numerous health problems including chronic back pain (for

20

> years).

> Thanks,

> Jeff

>

>

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Guest guest

Harold,

Thant's kind of my plan, to just see how it goes. If necessary I can stay in my

bedroom or sleep downstairs for at least a few days. I'll have a friend here

visiting who will be able to help me get around, while my wife is working.

I know from previous surgeries that each recovery is different so I'll just see

how I progress.

Thanks for all your help,

Jeff

________________________________

From: Harold <haroldusc@...>

Joint Replacement

Sent: Tuesday, April 7, 2009 7:17:47 AM

Subject: RE: Re: new to group

Jeff, I'd just give it a try and see how you feel when they show you steps

at the hospital and when you get home.to me personally, it's not necessary

to stay down or up 2 weeks.you will see improvement every day.you most

likely will be able to be fine from the first day home but just give it some

thought and see how you do. Each person is different. I would just make

sure that someone is with you the first few times you maneuver the steps so

that you don't fall alone.

Harold

_____

From: Total_Joint_ Replacement

[mailto:Total_Joint_ Replacement] On Behalf Of Don

Sent: Monday, April 06, 2009 11:33 AM

Total_Joint_ Replacement

Subject: [Total_Joint_ Replacement] Re: new to group

Jeff,

Regarding the bedroom/stairs issue. If you have a bathroom upstairs and your

TV & internet are also up stairs I would suggest you plan on staying

upstairs for the first couple of weeks.

That was what I came to after thinking through the possibilities. Everything

I needed apart for food was upstairs so why live down stairs. My wife

prepared and brought my meals to me.

I made arrangements before to have some big fellows home to help me upstairs

if I needed it when I came home. Turns out I was able to walk up the stairs

backwards with someone standing in front of me, just in cast, as I went up.

Took about 2 or 3 minutes but I made it.

Don

>

> Harold,

> Thanks. They all make a lot of sense and I appreciate the list.

> Specifically I would ask about steps. My bedroom is on second floor and I

have 13 steps up. How much of a problem should that be?

> Thanks,

> Jeff

>

>

>

>

> ____________ _________ _________ __

> From: Harold <haroldusc@. ..>

> Total_Joint_ <mailto:Total_ Joint_Replacemen t%40groups. com>

Replacement

> Sent: Saturday, April 4, 2009 6:08:49 PM

> Subject: RE: [Total_Joint_ Replacement] new to group

>

>

> 1. Do exactly what the dr. says

> 2. Start doing quad tightening exercises now

> 3. Stay on top of the pain (in hospital and out) after surgery by

> taking the medicine regularly and before it starts hurting a lot

> 4. Work hard doing the exercises that the physical therapists show you

> in the hospital, in home physical therapy and in outpatient pt

> 5.. Take pain medicine before going to physical therapy

> 6. It might help at first to have a raise commode seat when you go home

> 7. Plan on using lots of ice for pain

> 8. Can't say enough about doing the exercises that the pt shows you and

> really working hard at it

> 9. You might want a shower seat at first but you might be fine without

> it

>

> Let me know if you have any specific questions

>

> Harold

>

> _____

>

> From: Total_Joint_ Replacement

> [mailto:Total_ Joint_ Replacement@ groups. . com] On Behalf Of

> Scharff

> Sent: Saturday, April 04, 2009 5:14 PM

> Total_Joint_ Replacement

> Subject: [Total_Joint_ Replacement] new to group

>

> Hi,

> I just found this group and am having a tkr on left knee at the end of May

> and am wondering if anyone has any advise and/or thoughts on what to

expect.

> I'm 61 and have numerous health problems including chronic back pain (for

20

> years).

> Thanks,

> Jeff

>

>

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Guest guest

Hi Hollie,

I think what my surgeon meant was that the ligaments tend to be so lax that he

fears they won't hold the new joint properly in place over time; that is, be

tightly elastic enough. My knees are my worst joint in terms of hyperextension.

Hypermobile EDS, which is a congenital collagen condition, is characterized by

joint laxity (supported by tendons and ligaments sort of like stretched out

pieces of elastic), easy bruising, and some skin hyperelasticity (I can't notice

this, but I do bruise easily). The most reliable diagnotic criteria for it is

your " Beighton Score " which is on a scale from 1-9 and measures attributes of

hypermobility such as whether you can stand up straight with your palms flat on

the floor, whether your thumb can be pulled down to touch your wrist, whether

your elbows and knees hyperextend and how much, etc. I think I scored a 7

because, for whatever reason, my elbows don't hyperextend. You can google

" Beighton Score Criteria " if you're curious!

Jane

---- Hollie <rosey9932000@...> wrote:

> My knees have always hyperextended back. My surgeon told me " I don't want you

standing like that after surgery " , which mystified me because I thought the

metal knee would prevent me from ever hyperextending again.

>

> I have had a rheumatologist getting biopsies at my surgeries (had both hips

resurfaced too) and trying to figure out if I had an inflammatory arthritis that

was destroying my cartilage. Now he has pretty much settled on me being

hypermobile which is known to " make the hips go " and cause meniscis tears which

led to my TKRs. I'm not sure what the symptoms of Ehlers Danlos are, is that

when joints frequently dislocate?

>

> Prior to surgery I was real flexible, still am. My PT is always on me to

learn to " stack my body " right and immediately picked out my hypermobility by

the way I was laying on her table with my legs going one direction yet still

able to have shoulders and head the opposite.

>

> I haven't heard a doc tell me my ligaments might not be strong enough for a

TKR, as far as I know they are strong. I'm not familar enough with Ehlers

Danlos to know if that is a factor.

>

> Where I did my body damage was in the dancing (ballet, jazz) I did from

elementary school through college, then I was really into yoga. Now my PT won't

let me do yoga anymore and she's a certified yoga teacher, I now do Pilates with

her where she is trying to train me out of my bad habits. She says hypermobile

people gravitate to yoga and dance.

>

> Sorry about your restrictions from the hip replacement. I'm glad I had my

hips resurfaced since there aren't any restrictions and they feel the same.

>

> I wish they had resurfacing for knees. I tried dancing tonight though and

they did pretty good, not quite as fluid but maybe will get better, I'm 6 months

out on first knee.

>

> This hypermobile stuff is fairly new to me...

>

> Hollie

>

>

>

> > Hollie, you say you're in your fifties and hypermobile. That's me, for

sure. I'm diagnosed as having hypermobile type Ehlers Danlos syndrome. How

flexible were your knees prior to surgery? Did they hyperextend?

> >

> > My knees are very unstable and one is developing arthritis but the doctor

(chief of knee surgery at the Hospital for Special Surgery in NYC) tells me he

worries that my ligaments won't be strong enough to support the new knee after

TKR (I just had THR and the limitations are driving me crazy, I'm so used to

being flexible).

> >

> > Jane

> >

> >

> >

> > ---- Hollie <rosey9932000@...> wrote:

> > > I can kneel fine after my TKR last October and can kneel on the floor and

rest my butt on my feet. I was able to kneel immediately after surgery.

> > >

> > > It may be the prosthesis you get. I have the Zimmer high flex gender knee

which was originally made (I think) for Indians and muslims that must kneel to

pray and eat.

> > >

> > > When I was surgeon shopping my first question was, " will I be able to

kneel? " Most surgeons said no (Biomet prostheses), but my current surgeon said

" of course, if you can do it now, you'll be able to do it after " . He also said

I could ski again. He uses many different prostheses but had me scheduled for a

" highly active/155 degree flexion " one.

> > >

> > > I go in Friday for my second TKR, I'm wondering if he'll use the same

prosthesis or not.

> > >

> > > The reason I was kneeling so soon after surgery is that my back hurt so

much I got on my hands and knees on the bed to stretch out my back. I sure hope

I can avoid the back pain this next surgery.

> > >

> > > I'm having all these surgeries because I'm hypermobile, bend easily but

don't " stack " my body right. It's great when you're young but now that I'm in

my 50s I'm paying a big price.

> > >

> > > Hollie

> > >

> > >

> > >

> > > > Some people can kneel more comfortably and flexibly than

> > > > others....sometimes awkward to get own/up...sometimes not...more

> > > > comfortable when one learns to knee without putting all body weight

> > > > directly on knee...best not to do it until skin is totally healed. One

> > > > just has to see how they do with it and see. A great deal of kneeling

> > > > can cause more rapid wear/tear on the artificial joint/components.

> > > >

> > > > Harold

> > > >

> > > > On Mon, Apr 6, 2009 at 2:30 PM, jujulabee@ wrote:

> > > >

> > > > I agree regarding kneeling as don't think it's one of the

> > > > restrictions -- although I have no restrictions anyway.

> > > >

> > > > Kneeling is very uncomfortable for me because it hurts my knees --

> > > > unrelated to bad knees or bionic hips -- just a product of aging. As

> > > > is generally not wanting to sit on a floor or scramble under a desk to

> > > > track down computer wires LOL.

> > > >

> > > > Helen

> > > >

> > > > On Apr 6, 2009, at 11:26 AM, Bill wrote:

> > > >

> > > > >

> > > > >>

> > > > >>

> > > > >> will I be able to kneel????

> > > > >

> > > > > Kneeling is something you will have to get used to. For some reason,

> > > > > it just seems like it is something my body tells me not to do. I don't

> > > > > think there is any reason a person can't kneel, though.

> > > > > Bill in MN

> > > > >

> > > > >

> > > >

> > > >

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Guest guest

I¹m EDS hypermobile and can hyperextend my knees. You can learn not to

stand like that with the help of posture/gait training. I just had my right

hip done and feel great. I have a great deal of hypermobility as I can

hyperextend my elbows too. Actually, I had surgery on my elbow for a

fracture there, but I have a great deal of hypermobility. I¹m only 30, but

make sure all your muscles are strong, as the muscles will help keep the

joints stable with the increased mobility.

Good to see other EDS people on here too.

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Guest guest

And glad to see another hypermobile on the board too. I'm not diagnosed EDS but

I may have it.

Yes, I have been doing Pilates with my PT for a couple years now to learn to

" stack " my body right, she won't let me do yoga anymore since " hypermobile

people are drawn to yoga " . And I have to always try to stand with what feels

like knees kind of bent rather than hyperextend.

She was trying to build up my muscles to overcome my bad knees and I did get

very strong but still the knees were too bad, so now I'm going in for my second

TKR.

I've already had both hips resurfaced and they are great. Knees are tougher

since they cut bone and the bone ache pain is awful.

It was so great to have this hypermobility when I was younger (sigh), but now,

in my 50s, it has come home to roost. Good thing you are diagnosed and working

on it in your 30s, maybe you won't have my problems.

I do think the hypermobility allows me to get to a fabulous range of motion

earlier than if I didn't have it.

Hollie

> I¹m EDS hypermobile and can hyperextend my knees. You can learn not to

> stand like that with the help of posture/gait training. I just had my right

> hip done and feel great. I have a great deal of hypermobility as I can

> hyperextend my elbows too. Actually, I had surgery on my elbow for a

> fracture there, but I have a great deal of hypermobility. I¹m only 30, but

> make sure all your muscles are strong, as the muscles will help keep the

> joints stable with the increased mobility.

>

> Good to see other EDS people on here too.

>

>

>

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Hi Di,

I am 65 and going for full knee replacement.I also scared to death.I want to ask

my surgeon if he will give me a spinal block instead of the other.Its that,that

I'm afraid of. Stay in touch.

Dot,Florida

'Until one has loved an animal, part of their soul remains unawakened'

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