Guest guest Posted December 18, 2008 Report Share Posted December 18, 2008 is  I hate to tell you this but this was exactly how things started out for me about 7 years ago - at the time I didn't know what it was but over time [and without my knowing it] things have ramped themselves up to a point that about 20 months ago I became electro hyper sensitive - who knows if I had known then what I know now I maybe could have done some things to stop my progression down the EHS path. So maybe you should read some of the posts on this site and take a good long look at your environment both at home and at work and maybe make some changes which would help you preserve your health as much as you can.  REgards  Steph From: is <lexie316@...> Subject: New to group Date: Tuesday, 16 December, 2008, 3:52 PM Hi everyone, I'm new to this group, my name is is. I'm not sure if this is the right group for me though! I do not feel ill around electricity or flourescent bulbs or anything like that. At least, I don't think I do... I found this group while searching for electric shock sensitivity. I get shocked in the winter ALL THE TIME. I grew up in NJ and don't remember it happening there, moved to FL at age 13. Lived there until age 35 when I moved to Missouri. Well now every winter everything shocks me, with extreme pain. I even shock my cats, repeatedly! I Wouldn't have thought anything was unusual about it, it's dry air, etc. But when I am hloding my cat, shocks just happen over and over. When I pet the cats, shocks follow my hand down their spine. In the summer, my cats rub their faces on mine, but in the winter, they get a shock, then they think I am hurting them on purpose! I can deal with the painful shock getting out of the car (though I am fearful EVERY TIME) door knobs, etc. But I hate what it is doing to my cats. So, maybe I just have something similar but to a lesser degree? Can someone point me to a group that would fit me better? I am moving back to Florida soon, but maybe there are other things that are associated with this. Back pain, tired all the time, can't get enough sleep, frequent but minor headaches, I thought I was just getting old... (I'm 38) Thanks, is (and cats Zeke, Noel, and Stormy) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 Hi, is and (and Helen, Amy, and All), Sorry I have not been well of late and have been off my computer for the past 2 months or so. So if I owe you an email, or you have written me in that time frame, know that I hope to read my mail and respond soon or asap. Sorry I missed you, Helen, before you returned home. Hopefully we will connect again when you return. I will write soon. in UK, keep up your grit! You have my great admiration and sympathy, dear. Maybe you could pay some thugs to..... j/k is and Steph, re your problem with static electricity and shocks: I was like this for years prior to becoming ES, also. I fried small appliances, computers, and light bulbs on a regular basis by just touching them or turning on light switches. The advise you have gotten from and Marc is good, is. All natural fabrics and the anti-static shoes are a real help. I was a part of this forum for, I think, 2 years prior to becoming fully ES as others are here. (I came originally looking to see if everyone here fried things and whether they could wear watches next to their skin, which I can't.) It was a real help because I had a head start on figuring things out, ES-wise. So my advise is for you to stay and read, also. In the end, it was a pesticide episode that put me over the top and brought on ES, so I would add that you should also be living as greenly and cleanly as possible. Clean up your space and avoid as much toxic pollution of all types as possible. There is a name for what happened to me, and what could be beginning to happen to you: TILT-- " toxin induced loss of tolerance " . You can " google " or search these exact words and it will bring up a list of sites which will give you lots more info than I could recount in an email. Learning about how to recognise and remove extra toxins from your surroundings will help. Beginning to learn about how to clean your lymphatic system MAY help. It seems that lymphatic overload is involved in ES, MCS, TILT, and EI. HOWEVER, you must learn about this step before implementing it, because the process of cleaning the lymphatic system might cause detoxing inside your body that could, on its own, put your body over the toxic threshold. So this is not a thing to do lightly without studying it and knowing what you might be unleashing that is already in your body (unless you are already over the threshold and nowhere to go but up, and even then you have to be sure you are not just mobilizing toxins or moving them to even worse places, like the brain or other organs). One thing which might help you now and, hopefully not cause great detox, is alkaline water or something else that addresses metabolic acidity in your body. You will probably at some time want to detox, but do it very slowly and only after you have done the other helps mentioned. You will also have to know whether your liver detox pathways are working well before you do any detoxing. Try eating just grapefruit for a meal and see if you feel better. Grapefruit stops the detox pathways so that nothing is being detoxed. If you feel better eating grapefruit, this would suggest that one of the pathways is not working properly or the pathways are out of sinc. If you feel worse, it might suggest that both detox pahtways are not working and you are not detoxing at all or that you have too much backlog of toxins going into the liver. Drinking coffee stimulates Phase 1 liver detox, so if you feel better drinking coffee (do not try the coffee and grapefruit at the same time!), then you know that you need to supplement with nutrients which help Phase 1 liver detox. If you feel worse drinking coffee, then suspect that Phase 2 detox is not working efficiently and needs nutrient supplementation. I forget what you can use to stimulate Phase 2 detox. Maybe someone here knows this or you can google that. I would look it up for you but I am not well enough to do it at this time. (You could ask me next month and I might be able to send you more info on that.) Naturally, a good or bad reaction to grapefruit or coffee can mean other things besides what I have mentioned. These are just clues to help you decipher but not hard facts to go by. Good luck, is. I hope you can avoid ES altogether. My best to you all, Diane aka Evie From: is <lexie316att (DOT) net> Subject: New to group groups (DOT) com Date: Tuesday, 16 December, 2008, 3:52 PM Hi everyone, I'm new to this group, my name is is. I'm not sure if this is the right group for me though! I do not feel ill around electricity or flourescent bulbs or anything like that. At least, I don't think I do... I found this group while searching for electric shock sensitivity. I get shocked in the winter ALL THE TIME. I grew up in NJ and don't remember it happening there, moved to FL at age 13. Lived there until age 35 when I moved to Missouri. Well now every winter everything shocks me, with extreme pain. I even shock my cats, repeatedly! I Wouldn't have thought anything was unusual about it, it's dry air, etc. But when I am hloding my cat, shocks just happen over and over. When I pet the cats, shocks follow my hand down their spine. In the summer, my cats rub their faces on mine, but in the winter, they get a shock, then they think I am hurting them on purpose! I can deal with the painful shock getting out of the car (though I am fearful EVERY TIME) door knobs, etc. But I hate what it is doing to my cats. So, maybe I just have something similar but to a lesser degree? Can someone point me to a group that would fit me better? I am moving back to Florida soon, but maybe there are other things that are associated with this. Back pain, tired all the time, can't get enough sleep, frequent but minor headaches, I thought I was just getting old... (I'm 38) Thanks, is (and cats Zeke, Noel, and Stormy) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2009 Report Share Posted April 4, 2009 1. Do exactly what the dr. says 2. Start doing quad tightening exercises now 3. Stay on top of the pain (in hospital and out) after surgery by taking the medicine regularly and before it starts hurting a lot 4. Work hard doing the exercises that the physical therapists show you in the hospital, in home physical therapy and in outpatient pt 5. Take pain medicine before going to physical therapy 6. It might help at first to have a raise commode seat when you go home 7. Plan on using lots of ice for pain 8. Can't say enough about doing the exercises that the pt shows you and really working hard at it 9. You might want a shower seat at first but you might be fine without it Let me know if you have any specific questions Harold _____ From: Joint Replacement [mailto:Joint Replacement ] On Behalf Of Scharff Sent: Saturday, April 04, 2009 5:14 PM Joint Replacement Subject: new to group Hi, I just found this group and am having a tkr on left knee at the end of May and am wondering if anyone has any advise and/or thoughts on what to expect. I'm 61 and have numerous health problems including chronic back pain (for 20 years). Thanks, Jeff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2009 Report Share Posted April 4, 2009 Great list, Harold! To which I would add #10; ice and elevate, ice and elevate, ice and elevate, then ice and elevate some more in those first two weeks post op and maybe after your PT sessions as well! Annie Pal PT in SC > > 1. Do exactly what the dr. says > 2. Start doing quad tightening exercises now > 3. Stay on top of the pain (in hospital and out) after surgery by > taking the medicine regularly and before it starts hurting a lot > 4. Work hard doing the exercises that the physical therapists show you > in the hospital, in home physical therapy and in outpatient pt > 5. Take pain medicine before going to physical therapy > 6. It might help at first to have a raise commode seat when you go home > 7. Plan on using lots of ice for pain > 8. Can't say enough about doing the exercises that the pt shows you and > really working hard at it > 9. You might want a shower seat at first but you might be fine without > it > > Let me know if you have any specific questions > > > > Harold > > > > _____ > > From: Joint Replacement > [mailto:Joint Replacement ] On Behalf Of > Scharff > Sent: Saturday, April 04, 2009 5:14 PM > Joint Replacement > Subject: new to group > > > > Hi, > I just found this group and am having a tkr on left knee at the end of May > and am wondering if anyone has any advise and/or thoughts on what to expect. > I'm 61 and have numerous health problems including chronic back pain (for 20 > years). > Thanks, > Jeff > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2009 Report Share Posted April 5, 2009 Harold, Thanks. They all make a lot of sense and I appreciate the list. Specifically I would ask about steps. My bedroom is on second floor and I have 13 steps up. How much of a problem should that be? Thanks, Jeff ________________________________ From: Harold <haroldusc@...> Joint Replacement Sent: Saturday, April 4, 2009 6:08:49 PM Subject: RE: new to group 1. Do exactly what the dr. says 2. Start doing quad tightening exercises now 3. Stay on top of the pain (in hospital and out) after surgery by taking the medicine regularly and before it starts hurting a lot 4. Work hard doing the exercises that the physical therapists show you in the hospital, in home physical therapy and in outpatient pt 5.. Take pain medicine before going to physical therapy 6. It might help at first to have a raise commode seat when you go home 7. Plan on using lots of ice for pain 8. Can't say enough about doing the exercises that the pt shows you and really working hard at it 9. You might want a shower seat at first but you might be fine without it Let me know if you have any specific questions Harold _____ From: Total_Joint_ Replacement [mailto:Total_Joint_ Replacement@ groups.. com] On Behalf Of Scharff Sent: Saturday, April 04, 2009 5:14 PM Total_Joint_ Replacement Subject: [Total_Joint_ Replacement] new to group Hi, I just found this group and am having a tkr on left knee at the end of May and am wondering if anyone has any advise and/or thoughts on what to expect. I'm 61 and have numerous health problems including chronic back pain (for 20 years). Thanks, Jeff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2009 Report Share Posted April 5, 2009 They will teach you how to use your crutches and go up/down steps before you leave the hospital. It might be easier to plan on sleeping the first several nights downstairs if that is an option.is there a bathroom downstairs? Again, that's one of the things they will show you how to do before leaving the hospital.Steps with crutches are manageable.I'd make sure someone is there with you when you go up/down at first and I wouldn't go up/down a bunch each day at first but you should be ok. Harold _____ From: Joint Replacement [mailto:Joint Replacement ] On Behalf Of Scharff Sent: Sunday, April 05, 2009 10:09 AM Joint Replacement Subject: Re: new to group Harold, Thanks. They all make a lot of sense and I appreciate the list. Specifically I would ask about steps. My bedroom is on second floor and I have 13 steps up. How much of a problem should that be? Thanks, Jeff ________________________________ From: Harold <harolduscverizon (DOT) <mailto:haroldusc%40verizon.net> net> Total_Joint_ <mailto:Joint Replacement%40> Replacement Sent: Saturday, April 4, 2009 6:08:49 PM Subject: RE: new to group 1. Do exactly what the dr. says 2. Start doing quad tightening exercises now 3. Stay on top of the pain (in hospital and out) after surgery by taking the medicine regularly and before it starts hurting a lot 4. Work hard doing the exercises that the physical therapists show you in the hospital, in home physical therapy and in outpatient pt 5.. Take pain medicine before going to physical therapy 6. It might help at first to have a raise commode seat when you go home 7. Plan on using lots of ice for pain 8. Can't say enough about doing the exercises that the pt shows you and really working hard at it 9. You might want a shower seat at first but you might be fine without it Let me know if you have any specific questions Harold _____ From: Total_Joint_ Replacement [mailto:Total_Joint_ Replacement@ groups.. com] On Behalf Of Scharff Sent: Saturday, April 04, 2009 5:14 PM Total_Joint_ Replacement Subject: [Total_Joint_ Replacement] new to group Hi, I just found this group and am having a tkr on left knee at the end of May and am wondering if anyone has any advise and/or thoughts on what to expect. I'm 61 and have numerous health problems including chronic back pain (for 20 years). Thanks, Jeff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2009 Report Share Posted April 5, 2009 Do you know Harriet Kamps (Cockers) from MD? She has shown Cockers following knee replacement (I'm virtually positive she's had a replacement)...she's learned how to get up/down in her own way. Harold new to group I'm going to have a unilateral replacement on May 12... left knee... I show dogs in both conformation & agility, and am wondering what to expect from the surgery & PT, and if anyone else shows dogs after knee replacement. I have had 5 knee surgeries, arthrscopic, and did really well after each... will I be able to kneel???? " It's not what you gather, but what you scatter that tells what kind of life you have led... " Lynne Harley, Yorktown, VA And the Irish Setter crew: Molly: U-Ch. BrynMoor's Breaking My Heart, CD RE CGC Cassi: Am Can Ch BIS U-Grand Ch Captiva's Cassiopeia, 2007 UKC Top Ten (5th) #4 Irish Setter-Canada- Aug 2008 Kagan: Captiva's Splash Into The Future : Captiva Still Unforgettable... Cassi's baby girl! Never to forget all the wonderful souls at the Bridge, especially Tyler!!! _________________________________________________________________ Windows LiveT: Keep your life in sync. http://windowslive.com/explore?ocid=TXT_TAGLM_WL_allup_1a_explore_042009 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2009 Report Share Posted April 6, 2009 Jeff, Regarding the bedroom/stairs issue. If you have a bathroom upstairs and your TV & internet are also up stairs I would suggest you plan on staying upstairs for the first couple of weeks. That was what I came to after thinking through the possibilities. Everything I needed apart for food was upstairs so why live down stairs. My wife prepared and brought my meals to me. I made arrangements before to have some big fellows home to help me upstairs if I needed it when I came home. Turns out I was able to walk up the stairs backwards with someone standing in front of me, just in cast, as I went up. Took about 2 or 3 minutes but I made it. Don > > Harold, > Thanks. They all make a lot of sense and I appreciate the list. > Specifically I would ask about steps. My bedroom is on second floor and I have 13 steps up. How much of a problem should that be? > Thanks, > Jeff > > > > > ________________________________ > From: Harold <haroldusc@...> > Joint Replacement > Sent: Saturday, April 4, 2009 6:08:49 PM > Subject: RE: new to group > > > 1. Do exactly what the dr. says > 2. Start doing quad tightening exercises now > 3. Stay on top of the pain (in hospital and out) after surgery by > taking the medicine regularly and before it starts hurting a lot > 4. Work hard doing the exercises that the physical therapists show you > in the hospital, in home physical therapy and in outpatient pt > 5.. Take pain medicine before going to physical therapy > 6. It might help at first to have a raise commode seat when you go home > 7. Plan on using lots of ice for pain > 8. Can't say enough about doing the exercises that the pt shows you and > really working hard at it > 9. You might want a shower seat at first but you might be fine without > it > > Let me know if you have any specific questions > > Harold > > _____ > > From: Total_Joint_ Replacement > [mailto:Total_Joint_ Replacement@ groups.. com] On Behalf Of > Scharff > Sent: Saturday, April 04, 2009 5:14 PM > Total_Joint_ Replacement > Subject: [Total_Joint_ Replacement] new to group > > Hi, > I just found this group and am having a tkr on left knee at the end of May > and am wondering if anyone has any advise and/or thoughts on what to expect. > I'm 61 and have numerous health problems including chronic back pain (for 20 > years). > Thanks, > Jeff > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2009 Report Share Posted April 6, 2009 > > Harold, > Thanks. They all make a lot of sense and I appreciate the list. > Specifically I would ask about steps. My bedroom is on second floor and I have 13 steps up. How much of a problem should that be? > Thanks, > Jeff > > Hi, Jeff. As Harold said, they will teach you how to negotiate steps with crutches. Beforehand, you might want to make sure the stair railing is installed solidly (ie. anchored to the studs, rather than to just the sheet rock), and if you can have a stair railing on both sides, so much the better. I agree, it is easier to stay on one floor, but not a huge deal if you can't. You have to learn to deal with the steps anyway, and it is good exercise for your knee. Adding to Harold's excellent list: - If you don't already have solid hand grips in the shower, you can get suction cup type grips from a medical supply place for around $25.00. I'd reattach them periodically, and test them to make sure they are solid before your shower, but they will work to stabilize you well. - A hand rail by the toilet will also help. - Have a chair with solid arms on it, and make sure ahead of time that all of the glue joints on the arms and legs are solid. Don't ask me how I know this. :-) - When they show you how to saran wrap your knee for showers, keep that up until every tiny sign of scab is long gone, even if they tell you it is OK to not use it. Do this even if there is only a tiny, tight scab. Have patience, and don't take a chance on infection. - If they offer to let you take cloth tape, Coban, and other medical supplies home, take them up on it. - If they have you do any bandaging with gauze and Coban and you are on your own for medical supplies, Vetrap can be purchased at a farm supply store for much less than Coban. It is the same product from 3M, only you can get it in many cool colors. SyrVet is a less expensive, lighter duty cohesive wrap yet, and I found it to be more comfortable and stick better. Bill in MN BTKR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2009 Report Share Posted April 6, 2009 > > > will I be able to kneel???? Kneeling is something you will have to get used to. For some reason, it just seems like it is something my body tells me not to do. I don't think there is any reason a person can't kneel, though. Bill in MN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2009 Report Share Posted April 6, 2009 I agree regarding kneeling as don't think it's one of the restrictions -- although I have no restrictions anyway. Kneeling is very uncomfortable for me because it hurts my knees -- unrelated to bad knees or bionic hips -- just a product of aging. As is generally not wanting to sit on a floor or scramble under a desk to track down computer wires LOL. Helen On Apr 6, 2009, at 11:26 AM, Bill wrote: > > > > > > > will I be able to kneel???? > > Kneeling is something you will have to get used to. For some reason, > it just seems like it is something my body tells me not to do. I > don't think there is any reason a person can't kneel, though. > > Bill in MN > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2009 Report Share Posted April 6, 2009 Some people can kneel more comfortably and flexibly than others....sometimes awkward to get down/up...sometimes not...more comfortable when one learns to knee without putting all body weight directly on knee...best not to do it until skin is totally healed. One just has to see how they do with it and see. A great deal of kneeling can cause more rapid wear/tear on the artificial joint/components. Harold On Mon, Apr 6, 2009 at 2:30 PM, jujulabee@... wrote: I agree regarding kneeling as don't think it's one of the restrictions -- although I have no restrictions anyway. Kneeling is very uncomfortable for me because it hurts my knees -- unrelated to bad knees or bionic hips -- just a product of aging. As is generally not wanting to sit on a floor or scramble under a desk to track down computer wires LOL. Helen On Apr 6, 2009, at 11:26 AM, Bill wrote: > >> >> >> will I be able to kneel???? > > Kneeling is something you will have to get used to. For some reason, > it just seems like it is something my body tells me not to do. I don't > think there is any reason a person can't kneel, though. > Bill in MN > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2009 Report Share Posted April 6, 2009 I can kneel fine after my TKR last October and can kneel on the floor and rest my butt on my feet. I was able to kneel immediately after surgery. It may be the prosthesis you get. I have the Zimmer high flex gender knee which was originally made (I think) for Indians and muslims that must kneel to pray and eat. When I was surgeon shopping my first question was, " will I be able to kneel? " Most surgeons said no (Biomet prostheses), but my current surgeon said " of course, if you can do it now, you'll be able to do it after " . He also said I could ski again. He uses many different prostheses but had me scheduled for a " highly active/155 degree flexion " one. I go in Friday for my second TKR, I'm wondering if he'll use the same prosthesis or not. The reason I was kneeling so soon after surgery is that my back hurt so much I got on my hands and knees on the bed to stretch out my back. I sure hope I can avoid the back pain this next surgery. I'm having all these surgeries because I'm hypermobile, bend easily but don't " stack " my body right. It's great when you're young but now that I'm in my 50s I'm paying a big price. Hollie > Some people can kneel more comfortably and flexibly than > others....sometimes awkward to get own/up...sometimes not...more > comfortable when one learns to knee without putting all body weight > directly on knee...best not to do it until skin is totally healed. One > just has to see how they do with it and see. A great deal of kneeling > can cause more rapid wear/tear on the artificial joint/components. > > Harold > > On Mon, Apr 6, 2009 at 2:30 PM, jujulabee@... wrote: > > I agree regarding kneeling as don't think it's one of the > restrictions -- although I have no restrictions anyway. > > Kneeling is very uncomfortable for me because it hurts my knees -- > unrelated to bad knees or bionic hips -- just a product of aging. As > is generally not wanting to sit on a floor or scramble under a desk to > track down computer wires LOL. > > Helen > > On Apr 6, 2009, at 11:26 AM, Bill wrote: > > > > >> > >> > >> will I be able to kneel???? > > > > Kneeling is something you will have to get used to. For some reason, > > it just seems like it is something my body tells me not to do. I don't > > think there is any reason a person can't kneel, though. > > Bill in MN > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2009 Report Share Posted April 6, 2009 Hi Don, That's always a possibility, thanks. I suppose I can manage upstairs for a few weeks. Jeff ________________________________ From: Don <DonAVP@...> Joint Replacement Sent: Monday, April 6, 2009 11:32:30 AM Subject: Re: new to group Jeff, Regarding the bedroom/stairs issue. If you have a bathroom upstairs and your TV & internet are also up stairs I would suggest you plan on staying upstairs for the first couple of weeks. That was what I came to after thinking through the possibilities. Everything I needed apart for food was upstairs so why live down stairs. My wife prepared and brought my meals to me. I made arrangements before to have some big fellows home to help me upstairs if I needed it when I came home. Turns out I was able to walk up the stairs backwards with someone standing in front of me, just in cast, as I went up. Took about 2 or 3 minutes but I made it. Don > > Harold, > Thanks. They all make a lot of sense and I appreciate the list. > Specifically I would ask about steps. My bedroom is on second floor and I have 13 steps up. How much of a problem should that be? > Thanks, > Jeff > > > > > ____________ _________ _________ __ > From: Harold <haroldusc@. ..> > Total_Joint_ Replacement > Sent: Saturday, April 4, 2009 6:08:49 PM > Subject: RE: [Total_Joint_ Replacement] new to group > > > 1. Do exactly what the dr. says > 2. Start doing quad tightening exercises now > 3. Stay on top of the pain (in hospital and out) after surgery by > taking the medicine regularly and before it starts hurting a lot > 4. Work hard doing the exercises that the physical therapists show you > in the hospital, in home physical therapy and in outpatient pt > 5.. Take pain medicine before going to physical therapy > 6. It might help at first to have a raise commode seat when you go home > 7. Plan on using lots of ice for pain > 8. Can't say enough about doing the exercises that the pt shows you and > really working hard at it > 9. You might want a shower seat at first but you might be fine without > it > > Let me know if you have any specific questions > > Harold > > _____ > > From: Total_Joint_ Replacement > [mailto:Total_ Joint_ Replacement@ groups. . com] On Behalf Of > Scharff > Sent: Saturday, April 04, 2009 5:14 PM > Total_Joint_ Replacement > Subject: [Total_Joint_ Replacement] new to group > > Hi, > I just found this group and am having a tkr on left knee at the end of May > and am wondering if anyone has any advise and/or thoughts on what to expect. > I'm 61 and have numerous health problems including chronic back pain (for 20 > years). > Thanks, > Jeff > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2009 Report Share Posted April 6, 2009 Hi Bill, Thanks for the advise. Do you think the hand grips are necessary if I have a shower seat? Thanks, Jeff ________________________________ From: Bill <wwblues2@...> Joint Replacement Sent: Monday, April 6, 2009 2:21:39 PM Subject: Re: new to group > > Harold, > Thanks. They all make a lot of sense and I appreciate the list. > Specifically I would ask about steps. My bedroom is on second floor and I have 13 steps up. How much of a problem should that be? > Thanks, > Jeff > > Hi, Jeff. As Harold said, they will teach you how to negotiate steps with crutches. Beforehand, you might want to make sure the stair railing is installed solidly (ie. anchored to the studs, rather than to just the sheet rock), and if you can have a stair railing on both sides, so much the better. I agree, it is easier to stay on one floor, but not a huge deal if you can't. You have to learn to deal with the steps anyway, and it is good exercise for your knee. Adding to Harold's excellent list: - If you don't already have solid hand grips in the shower, you can get suction cup type grips from a medical supply place for around $25.00. I'd reattach them periodically, and test them to make sure they are solid before your shower, but they will work to stabilize you well. - A hand rail by the toilet will also help. - Have a chair with solid arms on it, and make sure ahead of time that all of the glue joints on the arms and legs are solid. Don't ask me how I know this. :-) - When they show you how to saran wrap your knee for showers, keep that up until every tiny sign of scab is long gone, even if they tell you it is OK to not use it. Do this even if there is only a tiny, tight scab. Have patience, and don't take a chance on infection. - If they offer to let you take cloth tape, Coban, and other medical supplies home, take them up on it. - If they have you do any bandaging with gauze and Coban and you are on your own for medical supplies, Vetrap can be purchased at a farm supply store for much less than Coban. It is the same product from 3M, only you can get it in many cool colors. SyrVet is a less expensive, lighter duty cohesive wrap yet, and I found it to be more comfortable and stick better. Bill in MN BTKR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2009 Report Share Posted April 6, 2009 Hollie, you say you're in your fifties and hypermobile. That's me, for sure. I'm diagnosed as having hypermobile type Ehlers Danlos syndrome. How flexible were your knees prior to surgery? Did they hyperextend? My knees are very unstable and one is developing arthritis but the doctor (chief of knee surgery at the Hospital for Special Surgery in NYC) tells me he worries that my ligaments won't be strong enough to support the new knee after TKR (I just had THR and the limitations are driving me crazy, I'm so used to being flexible). Jane ---- Hollie <rosey9932000@...> wrote: > I can kneel fine after my TKR last October and can kneel on the floor and rest my butt on my feet. I was able to kneel immediately after surgery. > > It may be the prosthesis you get. I have the Zimmer high flex gender knee which was originally made (I think) for Indians and muslims that must kneel to pray and eat. > > When I was surgeon shopping my first question was, " will I be able to kneel? " Most surgeons said no (Biomet prostheses), but my current surgeon said " of course, if you can do it now, you'll be able to do it after " . He also said I could ski again. He uses many different prostheses but had me scheduled for a " highly active/155 degree flexion " one. > > I go in Friday for my second TKR, I'm wondering if he'll use the same prosthesis or not. > > The reason I was kneeling so soon after surgery is that my back hurt so much I got on my hands and knees on the bed to stretch out my back. I sure hope I can avoid the back pain this next surgery. > > I'm having all these surgeries because I'm hypermobile, bend easily but don't " stack " my body right. It's great when you're young but now that I'm in my 50s I'm paying a big price. > > Hollie > > > > > Some people can kneel more comfortably and flexibly than > > others....sometimes awkward to get own/up...sometimes not...more > > comfortable when one learns to knee without putting all body weight > > directly on knee...best not to do it until skin is totally healed. One > > just has to see how they do with it and see. A great deal of kneeling > > can cause more rapid wear/tear on the artificial joint/components. > > > > Harold > > > > On Mon, Apr 6, 2009 at 2:30 PM, jujulabee@... wrote: > > > > I agree regarding kneeling as don't think it's one of the > > restrictions -- although I have no restrictions anyway. > > > > Kneeling is very uncomfortable for me because it hurts my knees -- > > unrelated to bad knees or bionic hips -- just a product of aging. As > > is generally not wanting to sit on a floor or scramble under a desk to > > track down computer wires LOL. > > > > Helen > > > > On Apr 6, 2009, at 11:26 AM, Bill wrote: > > > > > > > >> > > >> > > >> will I be able to kneel???? > > > > > > Kneeling is something you will have to get used to. For some reason, > > > it just seems like it is something my body tells me not to do. I don't > > > think there is any reason a person can't kneel, though. > > > Bill in MN > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2009 Report Share Posted April 6, 2009 My knees have always hyperextended back. My surgeon told me " I don't want you standing like that after surgery " , which mystified me because I thought the metal knee would prevent me from ever hyperextending again. I have had a rheumatologist getting biopsies at my surgeries (had both hips resurfaced too) and trying to figure out if I had an inflammatory arthritis that was destroying my cartilage. Now he has pretty much settled on me being hypermobile which is known to " make the hips go " and cause meniscis tears which led to my TKRs. I'm not sure what the symptoms of Ehlers Danlos are, is that when joints frequently dislocate? Prior to surgery I was real flexible, still am. My PT is always on me to learn to " stack my body " right and immediately picked out my hypermobility by the way I was laying on her table with my legs going one direction yet still able to have shoulders and head the opposite. I haven't heard a doc tell me my ligaments might not be strong enough for a TKR, as far as I know they are strong. I'm not familar enough with Ehlers Danlos to know if that is a factor. Where I did my body damage was in the dancing (ballet, jazz) I did from elementary school through college, then I was really into yoga. Now my PT won't let me do yoga anymore and she's a certified yoga teacher, I now do Pilates with her where she is trying to train me out of my bad habits. She says hypermobile people gravitate to yoga and dance. Sorry about your restrictions from the hip replacement. I'm glad I had my hips resurfaced since there aren't any restrictions and they feel the same. I wish they had resurfacing for knees. I tried dancing tonight though and they did pretty good, not quite as fluid but maybe will get better, I'm 6 months out on first knee. This hypermobile stuff is fairly new to me... Hollie > Hollie, you say you're in your fifties and hypermobile. That's me, for sure. I'm diagnosed as having hypermobile type Ehlers Danlos syndrome. How flexible were your knees prior to surgery? Did they hyperextend? > > My knees are very unstable and one is developing arthritis but the doctor (chief of knee surgery at the Hospital for Special Surgery in NYC) tells me he worries that my ligaments won't be strong enough to support the new knee after TKR (I just had THR and the limitations are driving me crazy, I'm so used to being flexible). > > Jane > > > > ---- Hollie <rosey9932000@...> wrote: > > I can kneel fine after my TKR last October and can kneel on the floor and rest my butt on my feet. I was able to kneel immediately after surgery. > > > > It may be the prosthesis you get. I have the Zimmer high flex gender knee which was originally made (I think) for Indians and muslims that must kneel to pray and eat. > > > > When I was surgeon shopping my first question was, " will I be able to kneel? " Most surgeons said no (Biomet prostheses), but my current surgeon said " of course, if you can do it now, you'll be able to do it after " . He also said I could ski again. He uses many different prostheses but had me scheduled for a " highly active/155 degree flexion " one. > > > > I go in Friday for my second TKR, I'm wondering if he'll use the same prosthesis or not. > > > > The reason I was kneeling so soon after surgery is that my back hurt so much I got on my hands and knees on the bed to stretch out my back. I sure hope I can avoid the back pain this next surgery. > > > > I'm having all these surgeries because I'm hypermobile, bend easily but don't " stack " my body right. It's great when you're young but now that I'm in my 50s I'm paying a big price. > > > > Hollie > > > > > > > > > Some people can kneel more comfortably and flexibly than > > > others....sometimes awkward to get own/up...sometimes not...more > > > comfortable when one learns to knee without putting all body weight > > > directly on knee...best not to do it until skin is totally healed. One > > > just has to see how they do with it and see. A great deal of kneeling > > > can cause more rapid wear/tear on the artificial joint/components. > > > > > > Harold > > > > > > On Mon, Apr 6, 2009 at 2:30 PM, jujulabee@ wrote: > > > > > > I agree regarding kneeling as don't think it's one of the > > > restrictions -- although I have no restrictions anyway. > > > > > > Kneeling is very uncomfortable for me because it hurts my knees -- > > > unrelated to bad knees or bionic hips -- just a product of aging. As > > > is generally not wanting to sit on a floor or scramble under a desk to > > > track down computer wires LOL. > > > > > > Helen > > > > > > On Apr 6, 2009, at 11:26 AM, Bill wrote: > > > > > > > > > > >> > > > >> > > > >> will I be able to kneel???? > > > > > > > > Kneeling is something you will have to get used to. For some reason, > > > > it just seems like it is something my body tells me not to do. I don't > > > > think there is any reason a person can't kneel, though. > > > > Bill in MN > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2009 Report Share Posted April 7, 2009 > > Hi Bill, > Thanks for the advise. Do you think the hand grips are necessary if I have a shower seat? > Thanks, > Jeff Does the seat have arms so you can push yourself up? If not, maybe the hand grip will be even more helpful. Bill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2009 Report Share Posted April 7, 2009 No. Harold _____ From: Joint Replacement [mailto:Joint Replacement ] On Behalf Of Bill Sent: Tuesday, April 07, 2009 6:28 AM Joint Replacement Subject: Re: new to group > > Hi Bill, > Thanks for the advise. Do you think the hand grips are necessary if I have a shower seat? > Thanks, > Jeff Does the seat have arms so you can push yourself up? If not, maybe the hand grip will be even more helpful. Bill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2009 Report Share Posted April 7, 2009 Jeff, I'd just give it a try and see how you feel when they show you steps at the hospital and when you get home.to me personally, it's not necessary to stay down or up 2 weeks.you will see improvement every day.you most likely will be able to be fine from the first day home but just give it some thought and see how you do. Each person is different. I would just make sure that someone is with you the first few times you maneuver the steps so that you don't fall alone. Harold _____ From: Joint Replacement [mailto:Joint Replacement ] On Behalf Of Don Sent: Monday, April 06, 2009 11:33 AM Joint Replacement Subject: Re: new to group Jeff, Regarding the bedroom/stairs issue. If you have a bathroom upstairs and your TV & internet are also up stairs I would suggest you plan on staying upstairs for the first couple of weeks. That was what I came to after thinking through the possibilities. Everything I needed apart for food was upstairs so why live down stairs. My wife prepared and brought my meals to me. I made arrangements before to have some big fellows home to help me upstairs if I needed it when I came home. Turns out I was able to walk up the stairs backwards with someone standing in front of me, just in cast, as I went up. Took about 2 or 3 minutes but I made it. Don > > Harold, > Thanks. They all make a lot of sense and I appreciate the list. > Specifically I would ask about steps. My bedroom is on second floor and I have 13 steps up. How much of a problem should that be? > Thanks, > Jeff > > > > > ________________________________ > From: Harold <haroldusc@...> > Total_Joint_ <mailto:Joint Replacement%40> Replacement > Sent: Saturday, April 4, 2009 6:08:49 PM > Subject: RE: new to group > > > 1. Do exactly what the dr. says > 2. Start doing quad tightening exercises now > 3. Stay on top of the pain (in hospital and out) after surgery by > taking the medicine regularly and before it starts hurting a lot > 4. Work hard doing the exercises that the physical therapists show you > in the hospital, in home physical therapy and in outpatient pt > 5.. Take pain medicine before going to physical therapy > 6. It might help at first to have a raise commode seat when you go home > 7. Plan on using lots of ice for pain > 8. Can't say enough about doing the exercises that the pt shows you and > really working hard at it > 9. You might want a shower seat at first but you might be fine without > it > > Let me know if you have any specific questions > > Harold > > _____ > > From: Total_Joint_ Replacement > [mailto:Total_Joint_ Replacement@ groups.. com] On Behalf Of > Scharff > Sent: Saturday, April 04, 2009 5:14 PM > Total_Joint_ Replacement > Subject: [Total_Joint_ Replacement] new to group > > Hi, > I just found this group and am having a tkr on left knee at the end of May > and am wondering if anyone has any advise and/or thoughts on what to expect. > I'm 61 and have numerous health problems including chronic back pain (for 20 > years). > Thanks, > Jeff > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2009 Report Share Posted April 7, 2009 Harold, Thant's kind of my plan, to just see how it goes. If necessary I can stay in my bedroom or sleep downstairs for at least a few days. I'll have a friend here visiting who will be able to help me get around, while my wife is working. I know from previous surgeries that each recovery is different so I'll just see how I progress. Thanks for all your help, Jeff ________________________________ From: Harold <haroldusc@...> Joint Replacement Sent: Tuesday, April 7, 2009 7:17:47 AM Subject: RE: Re: new to group Jeff, I'd just give it a try and see how you feel when they show you steps at the hospital and when you get home.to me personally, it's not necessary to stay down or up 2 weeks.you will see improvement every day.you most likely will be able to be fine from the first day home but just give it some thought and see how you do. Each person is different. I would just make sure that someone is with you the first few times you maneuver the steps so that you don't fall alone. Harold _____ From: Total_Joint_ Replacement [mailto:Total_Joint_ Replacement] On Behalf Of Don Sent: Monday, April 06, 2009 11:33 AM Total_Joint_ Replacement Subject: [Total_Joint_ Replacement] Re: new to group Jeff, Regarding the bedroom/stairs issue. If you have a bathroom upstairs and your TV & internet are also up stairs I would suggest you plan on staying upstairs for the first couple of weeks. That was what I came to after thinking through the possibilities. Everything I needed apart for food was upstairs so why live down stairs. My wife prepared and brought my meals to me. I made arrangements before to have some big fellows home to help me upstairs if I needed it when I came home. Turns out I was able to walk up the stairs backwards with someone standing in front of me, just in cast, as I went up. Took about 2 or 3 minutes but I made it. Don > > Harold, > Thanks. They all make a lot of sense and I appreciate the list. > Specifically I would ask about steps. My bedroom is on second floor and I have 13 steps up. How much of a problem should that be? > Thanks, > Jeff > > > > > ____________ _________ _________ __ > From: Harold <haroldusc@. ..> > Total_Joint_ <mailto:Total_ Joint_Replacemen t%40groups. com> Replacement > Sent: Saturday, April 4, 2009 6:08:49 PM > Subject: RE: [Total_Joint_ Replacement] new to group > > > 1. Do exactly what the dr. says > 2. Start doing quad tightening exercises now > 3. Stay on top of the pain (in hospital and out) after surgery by > taking the medicine regularly and before it starts hurting a lot > 4. Work hard doing the exercises that the physical therapists show you > in the hospital, in home physical therapy and in outpatient pt > 5.. Take pain medicine before going to physical therapy > 6. It might help at first to have a raise commode seat when you go home > 7. Plan on using lots of ice for pain > 8. Can't say enough about doing the exercises that the pt shows you and > really working hard at it > 9. You might want a shower seat at first but you might be fine without > it > > Let me know if you have any specific questions > > Harold > > _____ > > From: Total_Joint_ Replacement > [mailto:Total_ Joint_ Replacement@ groups. . com] On Behalf Of > Scharff > Sent: Saturday, April 04, 2009 5:14 PM > Total_Joint_ Replacement > Subject: [Total_Joint_ Replacement] new to group > > Hi, > I just found this group and am having a tkr on left knee at the end of May > and am wondering if anyone has any advise and/or thoughts on what to expect. > I'm 61 and have numerous health problems including chronic back pain (for 20 > years). > Thanks, > Jeff > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2009 Report Share Posted April 7, 2009 Hi Hollie, I think what my surgeon meant was that the ligaments tend to be so lax that he fears they won't hold the new joint properly in place over time; that is, be tightly elastic enough. My knees are my worst joint in terms of hyperextension. Hypermobile EDS, which is a congenital collagen condition, is characterized by joint laxity (supported by tendons and ligaments sort of like stretched out pieces of elastic), easy bruising, and some skin hyperelasticity (I can't notice this, but I do bruise easily). The most reliable diagnotic criteria for it is your " Beighton Score " which is on a scale from 1-9 and measures attributes of hypermobility such as whether you can stand up straight with your palms flat on the floor, whether your thumb can be pulled down to touch your wrist, whether your elbows and knees hyperextend and how much, etc. I think I scored a 7 because, for whatever reason, my elbows don't hyperextend. You can google " Beighton Score Criteria " if you're curious! Jane ---- Hollie <rosey9932000@...> wrote: > My knees have always hyperextended back. My surgeon told me " I don't want you standing like that after surgery " , which mystified me because I thought the metal knee would prevent me from ever hyperextending again. > > I have had a rheumatologist getting biopsies at my surgeries (had both hips resurfaced too) and trying to figure out if I had an inflammatory arthritis that was destroying my cartilage. Now he has pretty much settled on me being hypermobile which is known to " make the hips go " and cause meniscis tears which led to my TKRs. I'm not sure what the symptoms of Ehlers Danlos are, is that when joints frequently dislocate? > > Prior to surgery I was real flexible, still am. My PT is always on me to learn to " stack my body " right and immediately picked out my hypermobility by the way I was laying on her table with my legs going one direction yet still able to have shoulders and head the opposite. > > I haven't heard a doc tell me my ligaments might not be strong enough for a TKR, as far as I know they are strong. I'm not familar enough with Ehlers Danlos to know if that is a factor. > > Where I did my body damage was in the dancing (ballet, jazz) I did from elementary school through college, then I was really into yoga. Now my PT won't let me do yoga anymore and she's a certified yoga teacher, I now do Pilates with her where she is trying to train me out of my bad habits. She says hypermobile people gravitate to yoga and dance. > > Sorry about your restrictions from the hip replacement. I'm glad I had my hips resurfaced since there aren't any restrictions and they feel the same. > > I wish they had resurfacing for knees. I tried dancing tonight though and they did pretty good, not quite as fluid but maybe will get better, I'm 6 months out on first knee. > > This hypermobile stuff is fairly new to me... > > Hollie > > > > > Hollie, you say you're in your fifties and hypermobile. That's me, for sure. I'm diagnosed as having hypermobile type Ehlers Danlos syndrome. How flexible were your knees prior to surgery? Did they hyperextend? > > > > My knees are very unstable and one is developing arthritis but the doctor (chief of knee surgery at the Hospital for Special Surgery in NYC) tells me he worries that my ligaments won't be strong enough to support the new knee after TKR (I just had THR and the limitations are driving me crazy, I'm so used to being flexible). > > > > Jane > > > > > > > > ---- Hollie <rosey9932000@...> wrote: > > > I can kneel fine after my TKR last October and can kneel on the floor and rest my butt on my feet. I was able to kneel immediately after surgery. > > > > > > It may be the prosthesis you get. I have the Zimmer high flex gender knee which was originally made (I think) for Indians and muslims that must kneel to pray and eat. > > > > > > When I was surgeon shopping my first question was, " will I be able to kneel? " Most surgeons said no (Biomet prostheses), but my current surgeon said " of course, if you can do it now, you'll be able to do it after " . He also said I could ski again. He uses many different prostheses but had me scheduled for a " highly active/155 degree flexion " one. > > > > > > I go in Friday for my second TKR, I'm wondering if he'll use the same prosthesis or not. > > > > > > The reason I was kneeling so soon after surgery is that my back hurt so much I got on my hands and knees on the bed to stretch out my back. I sure hope I can avoid the back pain this next surgery. > > > > > > I'm having all these surgeries because I'm hypermobile, bend easily but don't " stack " my body right. It's great when you're young but now that I'm in my 50s I'm paying a big price. > > > > > > Hollie > > > > > > > > > > > > > Some people can kneel more comfortably and flexibly than > > > > others....sometimes awkward to get own/up...sometimes not...more > > > > comfortable when one learns to knee without putting all body weight > > > > directly on knee...best not to do it until skin is totally healed. One > > > > just has to see how they do with it and see. A great deal of kneeling > > > > can cause more rapid wear/tear on the artificial joint/components. > > > > > > > > Harold > > > > > > > > On Mon, Apr 6, 2009 at 2:30 PM, jujulabee@ wrote: > > > > > > > > I agree regarding kneeling as don't think it's one of the > > > > restrictions -- although I have no restrictions anyway. > > > > > > > > Kneeling is very uncomfortable for me because it hurts my knees -- > > > > unrelated to bad knees or bionic hips -- just a product of aging. As > > > > is generally not wanting to sit on a floor or scramble under a desk to > > > > track down computer wires LOL. > > > > > > > > Helen > > > > > > > > On Apr 6, 2009, at 11:26 AM, Bill wrote: > > > > > > > > > > > > > >> > > > > >> > > > > >> will I be able to kneel???? > > > > > > > > > > Kneeling is something you will have to get used to. For some reason, > > > > > it just seems like it is something my body tells me not to do. I don't > > > > > think there is any reason a person can't kneel, though. > > > > > Bill in MN > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2009 Report Share Posted April 8, 2009 I¹m EDS hypermobile and can hyperextend my knees. You can learn not to stand like that with the help of posture/gait training. I just had my right hip done and feel great. I have a great deal of hypermobility as I can hyperextend my elbows too. Actually, I had surgery on my elbow for a fracture there, but I have a great deal of hypermobility. I¹m only 30, but make sure all your muscles are strong, as the muscles will help keep the joints stable with the increased mobility. Good to see other EDS people on here too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2009 Report Share Posted April 8, 2009 And glad to see another hypermobile on the board too. I'm not diagnosed EDS but I may have it. Yes, I have been doing Pilates with my PT for a couple years now to learn to " stack " my body right, she won't let me do yoga anymore since " hypermobile people are drawn to yoga " . And I have to always try to stand with what feels like knees kind of bent rather than hyperextend. She was trying to build up my muscles to overcome my bad knees and I did get very strong but still the knees were too bad, so now I'm going in for my second TKR. I've already had both hips resurfaced and they are great. Knees are tougher since they cut bone and the bone ache pain is awful. It was so great to have this hypermobility when I was younger (sigh), but now, in my 50s, it has come home to roost. Good thing you are diagnosed and working on it in your 30s, maybe you won't have my problems. I do think the hypermobility allows me to get to a fabulous range of motion earlier than if I didn't have it. Hollie > I¹m EDS hypermobile and can hyperextend my knees. You can learn not to > stand like that with the help of posture/gait training. I just had my right > hip done and feel great. I have a great deal of hypermobility as I can > hyperextend my elbows too. Actually, I had surgery on my elbow for a > fracture there, but I have a great deal of hypermobility. I¹m only 30, but > make sure all your muscles are strong, as the muscles will help keep the > joints stable with the increased mobility. > > Good to see other EDS people on here too. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2009 Report Share Posted April 11, 2009 Hi Di, I am 65 and going for full knee replacement.I also scared to death.I want to ask my surgeon if he will give me a spinal block instead of the other.Its that,that I'm afraid of. Stay in touch. Dot,Florida 'Until one has loved an animal, part of their soul remains unawakened' Quote Link to comment Share on other sites More sharing options...
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