Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 Questions: I've heard about EMF " refugee " communities? Would you know if these are these real communities living together or just the communal feeling of being a refugee from technology? Answer: Sweden provides areas for such people. emfrefugee/message/21984 " In remote forest of Sweden, couple escapes electromagnetic waves " emfrefugee/message/21898?threaded=1 & p=2 Looking for a safe no-EMF place to live - Jim Beal describes why Wimberly, Texas, USA might be a place to try out. EMF Interface Consulting POB 2112 , Wimberley TX 78676 512-847-0371 <emfrefugee/post?postID=WyLNkjF3eAeSRcSpQEC\ 10CvXXySH5V1fFBZIN6OFd6NmcMZLcwFAXc_uG_qYBO_wa2897xUVGnExednfEK6LXA>emfeffects.b\ eal@... www.emfinterface.com Question: " Do you ever feel like a refugee? or abandoned? " Answer: I feel trapped, totally trapped. There is no where to go. There is no money to get to somewhere else. My family has a hard time understanding. I live in the boondocks of Eastern Oregon (lack of alternative medical services). I tried to find someone with a motor home I could borrow and park somewhere or a cabin deep in the woods where I could spend a lot of time this summer, and see if I get better, but unless some benevolent stranger hears my plea for help, this will never happen. With all my sensitivities I don't spend much time socializing with other people. It even burns me up to talk on a landline phone. And it burns me up to type long emails, but feel inclined to reply. The most important way to get better is to avoid the EMF fields. So yes, if I could escape to another place free of EMF fields, then maybe I would feel like a refugee rather than like I'm in a prison - a very uncomfortable prison. I tried to get help from social welfare agencies, but their offices are full of killer chemical fragrance stench, and I'm not an unwed mother popping out a baby every year or two. The Eastern Oregon boonies might be a suitable place to set up an EMF Refugee camp, and the state of Oregon is progressive enough a group might be able to force through legislation to keep a protected area EMF free. Arizona is where a lot of these injured people flee to. Question: " It seems like in the US, EHS people, especially in the United States, have been essentially abandoned by the biomedical and scientific community, branded psychosomatic, and expected to create their own new forms of treatment. Is there a different type of attitude in the UK? It seems like scientists in the us are more stuck in trying to disprove your illness rather than actually looking for some kind of biomedical or genetic predisposition of your suffering. Does this seem accurate? " There is anecdotal evidence that a person generally first gets fibromyalgia, then Multiple Chemical Sensitivity, then EHS. I searched for, but cannot locate right now, the source of this information. Someone said, the only people they knew of who didn't get fibromyalgia and MCS first, before the EHS, worked around the electrical equipment in the huge US Postal service mail sorting facilities. I'm a Medical Technologist and worked in allopathic labs for 13 years. I saw this from the inside out. For decades big industry has been fighting against the evidence that chemical and electromagnetic fields are doing serious harm to people. Soon after electricity was lighting us up, some people were busy tracking evidence of harm. Same with the chemicals. However, big industry has massive economic investments and cash cows to protect. All the studies they sponsor show no harm, whereas studies by independent parties do show evidence of harm. Government agencies are bribed and cajoled to parrot the no harm mantra, and doctors are massively brainwashed by all this. THE PUBLIC MUST NOT KNOW THEY ARE BEING HARMED. Follow the money. In the early 1900's U.S. big oil had lots of money to invest, so they decided to take over the schools of medicine and turn the mainstream medical into their pharmaceutical wet dream of allopathic medicine. They make a lot of the drugs from the toxic left over coal tar. They systematically went about shutting down mainstream naturopathic, homeopathic, etc medical schools and practitioners that were serving the community quite well. You get this care now only under the much maligned " alternative medicine " label, and only if you don't buy into the massive propaganda against it. Therefore, if you go to a typical doctor in the USA today, if you can get past the " it's all in your head " diagnosis, they have nothing to offer you other than 1) diagnostic tests, which can be quite helpful, and 2) the only treatments they have are pharmaceutical cartel drugs. These drugs cure nothing. They cover up symptoms. They can have severe side effects. In fact, they don't even know how most of these drugs mask your symptoms, and this masking is itself a " side effect " of the drugs. If you want real help with these conditions, you must carefully choose from a small handful of " alternative " practitioners that address the issue at it's root cause. There are a number of facilities around the United States that treat Multiple Chemical Sensitivity, and now Electrical Hypersensitivity, since one seems to follow the other. However, they probably are not covered by your medical insurance (if you have insurance). A huge percentage of us won't find one of these doctors practicing nearby. So on top of paying thousands of dollars out of pocket for the office visits, therapeutic nutritionals, etc you would also have huge travel and lodging expenses. Now if you haven't been able to work - how do you pay for all this? Often times doctors that come up with treatment plans that really work have had the, unfortunate for them, but fortunate for us, experience of being stricken by these conditions themselves. Dr. Rea of The Environmental Health Center-Dallas, Texas was affected by EHS during his medical training. http://www.ehcd.com/ I would like to go there, but I can't afford it. The best hope I've seen is from the work of Dr. Pall http://www.thetenthparadigm.org/ and the nitric oxide cycle. The reasons a number of seemingly different conditions, (Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, Multiple Chemical Sensitivity, Fibromyalgia and Post-Traumatic Stress Disorder and more) are resistant to treatment is that this nitric oxide cycle that is set off by a major stressor or illness, must be interrupted at multiple points or it will find a way around and continue the vicious cycle. I believe EHS is also in this category of illnesses. Dr Pall notes the names of some treatment protocols that have worked, and the similarities to his protocol: http://www.thetenthparadigm.org/therapy.htm " Five Complex Treatment Protocols " Five physicians/scientists have developed complex treatment protocols containing from 14 to 18 different agents or classes of agents predicted to down-regulate NO/ONOO- cycle biochemistry. These each appear to be effective in the treatment of multisystem illnesses based on clinical observations and, in two cases ( Teitelbaum's and Garth Nicolson's), clinical trial studies. Two other protocols are those of Dr. Cheney and Dr. Nash Petrovic. I have been involved with the development of the Pall/Ziem protocol, working with Dr. Grace Ziem on its development. The Pall/Ziem protocol has been used to treat chemically injured, chemically sensitive patients. The others have been used to treat CFS patients with Teitelbaum's being used to treat FM patients as well. Each of these are discussed elsewhere (1,2). The lists provided below were current when my book was being written but may no longer be current. And there are additional agents in two of these protocols which may not obviously act to lower the NO/ONOO- cycle biochemistry. " Here is where you can buy the Dr. Pall Products Value Pack for $114 to $120 https://www.prohealth.com/shop/product.cfm/product__code/PHK23/tab/Description#t\ itle Now you should do this under a doctor's supervision, but if you can't find one near you, or if like me, you can't afford it, what are you going to do? Continue to suffer? Here is how Dr. Pall says to use the products http://www.thetenthparadigm.org/arg.htm There are 5 bottles, you start them one at a time, in case you should have a reaction to one of them, you'll know which it is. (This page lists 7 products.) Alpha lipoic acid can cause problems for those with mercury toxicity so they need to do a mercury detox first. I've just had the local chiropractor muscle test that these supplements should be beneficial for me to try. So I think I will. Hope this helps, On 6/3/2011 4:30:40 PM, Loni (loni326@...) wrote: > Below is part of a recent email sent from University student doing research on EMF sensitivity! > She has some questions about differences in countries related to treatment of this impairment! > Any feedback I can send to her would be appreciated! Loni > > > I'm beginning to start to work on all the interviews i've collected from EMF sufferers and wanted to ask you a question. I've heard about EMF " refugee " communities? Would you know if these are these real communities living together or just the communal feeling of being a refugee from technology? Do you ever feel like a refugee? or abandoned? > > Also, I was wondering what you might think of my conclusions about the state of EMF sufferers in the US compared to other nations. It seems like in the US, EHS people, especially in the United States, have been essentially abandoned by the biomedical and scientific community, branded psychosomatic, and expected to create their own new forms of treatment. Is there a different type of attitude in the UK? It seems like scientists in the us are more stuck in trying to disprove your illness rather than actually looking for some kind of biomedical or genetic predisposition of your suffering. Does this seem accurate? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 Thanks for gathering the interviews, Loni. Yes, the student's description of the sociopolitical climate surrounding the issue seems very accurate. I was ok until Smart Meters & now am using up my last 3 months of web access & basic freedoms b4 there are Smart Meters in this town ( & all thru my state). I've considered moving to NM but have no $, not enuf work experience to get SSD, & can't get SSI b/c I can't go to any doctor's appointments b/c of Smart Meters. So basically, after 4 years of MCS & now a very disabling electrical exposure via SM's, I do feel totally abandoned by the medical community & feel that said community is doing society a great disservice by trying to label EHS & all the chronic neuroinflammatory illnesses as psychosomatic. The impending public health crisis from these new, inescapable emfs (WiMax, Light Radio boxes, Smart Meters, more powerful, longer-range cell towers, & White Space wireless) is going to be HUGE & the costs of it ASTRONOMICAL. Also, for the record, the symptoms hurt so freaking bad & so constantly, & given that I have no $ to try any supplements or shielding materials, I just might try to live illegally in a country w/ safer wireless standards, like Switzerland. Anyone have a better idea? -E. Drew From: Loni <loni326@...> Subject: University doing EMF study; any feedback for her? Date: Friday, June 3, 2011, 7:30 PM    Below is part of a recent email sent from University student doing research on EMF sensitivity! She has some questions about differences in countries related to treatment of this impairment! Any feedback I can send to her would be appreciated! Loni    I'm beginning to start to work on all the interviews i've collected from EMF sufferers and wanted to ask you a question. I've heard about EMF " refugee " communities? Would you know if these are these real communities living together or just the communal feeling of being a refugee from technology? Do you ever feel like a refugee? or abandoned? Also, I was wondering what you might think of my conclusions about the state of EMF sufferers in the US compared to other nations. It seems like in the US, EHS people, especially in the United States, have been essentially abandoned by the biomedical and scientific community, branded psychosomatic, and expected to create their own new forms of treatment. Is there a different type of attitude in the UK? It seems like scientists in the us are more stuck in trying to disprove your illness rather than actually looking for some kind of biomedical or genetic predisposition of your suffering. Does this seem accurate? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 > There is anecdotal evidence that a person generally first gets > fibromyalgia, then Multiple Chemical Sensitivity, then EHS. Maybe for some people, but people are not all alike. I think I got ES first, then MCS, and never got fibromyalgia. Marc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 There are some real communities of people living together. The European communities I've heard about are the refuge in Sweden (see the msnbc article 'woozy from wi-fi', France (Drone), and later with Italy. http://www.timesonline.co.uk/tol/news/world/europe/article6805895.ece From what I hear, it's still controversial in Europe, though there are some doctors who are aware of it (e.g., Freiburger appeal from German physicians). In the USA, I've never heard of a refuge, although due to how spacious it is, there are still many residential areas where the outdoor emf's are low. These are diminishing, of course, as cell towers sprout everywhere. In the USA, the most readily available equivalent for medical help is probably a building biologist-- which is an idea which came from Europe, from Germany (baubiologie). > > From: Loni <loni326@...> > Subject: University doing EMF study; any feedback for her? > > Date: Friday, June 3, 2011, 7:30 PM > > > > > > > >  > > > > > > > > > >  > >  > > Below is part of a recent email sent from University student doing research on EMF sensitivity! > > She has some questions about differences in countries related to treatment of this impairment! > > Any feedback I can send to her would be appreciated! Loni > >  > >  > >  > > I'm beginning to start to work on all the interviews i've collected from EMF sufferers and wanted to ask you a question. I've heard about EMF " refugee " communities? Would you know if these are these real communities living together or just the communal feeling of being a refugee from technology? Do you ever feel like a refugee? or abandoned? > > > > Also, I was wondering what you might think of my conclusions about the state of EMF sufferers in the US compared to other nations. It seems like in the US, EHS people, especially in the United States, have been essentially abandoned by the biomedical and scientific community, branded psychosomatic, and expected to create their own new forms of treatment. Is there a different type of attitude in the UK? It seems like scientists in the us are more stuck in trying to disprove your illness rather than actually looking for some kind of biomedical or genetic predisposition of your suffering. Does this seem accurate? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 And I had MCS first, then fms, and then ES. From: Marc <marc@...> Subject: Re: University doing EMF study; any feedback for her? Date: Saturday, June 4, 2011, 10:44 AM Â > There is anecdotal evidence that a person generally first gets > fibromyalgia, then Multiple Chemical Sensitivity, then EHS. Maybe for some people, but people are not all alike. I think I got ES first, then MCS, and never got fibromyalgia. Marc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 I had FMS first and then ES -- I don't have MCS at all. ________________________________ From: Evie <evie15422@...> Sent: Sat, June 4, 2011 5:14:20 PM Subject: Re: University doing EMF study; any feedback for her? And I had MCS first, then fms, and then ES. From: Marc <marc@...> Subject: Re: University doing EMF study; any feedback for her? Date: Saturday, June 4, 2011, 10:44 AM > There is anecdotal evidence that a person generally first gets > fibromyalgia, then Multiple Chemical Sensitivity, then EHS. Maybe for some people, but people are not all alike. I think I got ES first, then MCS, and never got fibromyalgia. Marc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2011 Report Share Posted June 9, 2011 Thanks Elysia! I'm trying to do as much as I can to bring awareness but working on the computer is very difficult for me but very important in this endeavor! Loni From: Loni <loni326@...> Subject: University doing EMF study; any feedback for her? Date: Friday, June 3, 2011, 7:30 PM    Below is part of a recent email sent from University student doing research on EMF sensitivity! She has some questions about differences in countries related to treatment of this impairment! Any feedback I can send to her would be appreciated! Loni    I'm beginning to start to work on all the interviews i've collected from EMF sufferers and wanted to ask you a question. I've heard about EMF " refugee " communities? Would you know if these are these real communities living together or just the communal feeling of being a refugee from technology? Do you ever feel like a refugee? or abandoned? Also, I was wondering what you might think of my conclusions about the state of EMF sufferers in the US compared to other nations. It seems like in the US, EHS people, especially in the United States, have been essentially abandoned by the biomedical and scientific community, branded psychosomatic, and expected to create their own new forms of treatment. Is there a different type of attitude in the UK? It seems like scientists in the us are more stuck in trying to disprove your illness rather than actually looking for some kind of biomedical or genetic predisposition of your suffering. Does this seem accurate? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2011 Report Share Posted June 14, 2011 >Do you ever feel like a refugee? or abandoned? No, I feel more like I'm living in a morass of invisible pollution and ignorance. > Also, I was wondering what you might think of my conclusions about the state of EMF sufferers in the US compared to other nations. It seems like in the US, EHS people, especially in the United States, have been essentially abandoned by the biomedical and scientific community, branded psychosomatic, and expected to create their own new forms of treatment. Is there a different type of attitude in the UK? It seems like scientists in the us are more stuck in trying to disprove your illness rather than actually looking for some kind of biomedical or genetic predisposition of your suffering. Does this seem accurate? > Yup. Most doctors won't say they don't something, they just relegate it to all being in your head. Well, my head is the worst affected part, lol. ~ Snoshoe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2011 Report Share Posted June 14, 2011 I can't comment on the " refugee " communities, except the one that was widely reported in the media as existing in an undeveloped low-RF area in France. I know that the organization " Next Up " would have more to say about this topic. See slideshow at the beginning of this video: http://videos.next-up.org/BBCWorld/Les_refugies_des_micro_ondes/01_11_2009.html As for support from the medical community in the United States, it's there if you know where to look for it. I have helped tremendously in my battle with ES by naturopaths that are familiar with ES and have had success treating it. I have, however, been lucky; these people are by no stretch of the imagination common; I doubt they exist outside of cities with large progressive/liberal populations (I live in Seattle). And among MDs in the U.S., knowledge about ES is almost nonexistent (this is not the case in some countries; in Germany, for instance, thousands of mainstream physicians long ago signed the " Freiburger Appeal " . See: http://www.starweave.com/freiburger/). So yeah, I'd say that while it has been largely up to my family and I to figure out how to deal with ES, I have gotten some important help from the alternative medical community. Also, the psychologist I saw about the issue when I was first trying to figure out what was going on didn't just tell me I was crazy and needed years of talk therapy and/or drugs; he didn't have any experience with the condition and couldn't help me, but he was at least decent and humble enough to say so, which meant that I didn't waste time and money trying to treat a physiological response to an environmental stimulus as if it were a psychological problem. I do think that ES has a lot of ramifications for psychological and neurological processes, however, which contributes to the deluded belief that it's a psychosomatic phenomenon. If I had not been able to escape-to a degree-the microwaves and to treat the problem successfully, I'm sure I ultimately would have been diagnosed, quite fairly, as having psychological and/or neurological problems. Microwave-based communications technologies undermine people's wellbeing and healthy mental and physical functioning; this is simply the nature of the monster we have created, and thus the fact that many ES people are not in a very good psychological state is utterly unsurprising. > > > > Below is part of a recent email sent from University student doing research on EMF sensitivity! > She has some questions about differences in countries related to treatment of this impairment! > Any feedback I can send to her would be appreciated! Loni > > > > I'm beginning to start to work on all the interviews i've collected from EMF sufferers and wanted to ask you a question. I've heard about EMF " refugee " communities? Would you know if these are these real communities living together or just the communal feeling of being a refugee from technology? Do you ever feel like a refugee? or abandoned? > > Also, I was wondering what you might think of my conclusions about the state of EMF sufferers in the US compared to other nations. It seems like in the US, EHS people, especially in the United States, have been essentially abandoned by the biomedical and scientific community, branded psychosomatic, and expected to create their own new forms of treatment. Is there a different type of attitude in the UK? It seems like scientists in the us are more stuck in trying to disprove your illness rather than actually looking for some kind of biomedical or genetic predisposition of your suffering. Does this seem accurate? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2011 Report Share Posted June 15, 2011 People to talk to: Dr. Ramaley at Seattle Natural Health: http://seattlenaturalhealth.com/ Steps recommended by Ramaley that have helped: 1) Earthing. See www.earthing.com The mats work better than the bands. If you can, install your own grounding rod instead of using your house's wiring. 2) A supplement called BodyGuard Supreme. See http://www.drz.org/asp/store/DetailPage.asp?ProductID=783 3) Multipolar magnets. The only place I know to find them is through Seattle Natural Health. Dr. Jelstrup at the Bellevue Wellness Center: http://www.bellevuewellnesscenter.com/?page_id=181 His main contribution was helping me go through the process of chelation (heavy metal removal). I used a product called Kelatox (http://www.kelatox.com/Home). You should have testing done to determine if this is relevant to you. I'm doing so much better than I used to be, and one of the main things I credit is hot (bikram) yoga, where you sweat a ton. Proponents claim the practice to be very detoxifying. If you can, find a studio and start going every day. Best, Josh > > > > > >  > > >  > > > Below is part of a recent email sent from University student doing research on EMF sensitivity! > > > She has some questions about differences in countries related to treatment of this impairment! > > > Any feedback I can send to her would be appreciated! Loni > > >  > > >  > > >  > > > I'm beginning to start to work on all the interviews i've collected from EMF sufferers and wanted to ask you a question. I've heard about EMF " refugee " communities? Would you know if these are these real communities living together or just the communal feeling of being a refugee from technology? Do you ever feel like a refugee? or abandoned? > > > > > > Also, I was wondering what you might think of my conclusions about the state of EMF sufferers in the US compared to other nations. It seems like in the US, EHS people, especially in the United States, have been essentially abandoned by the biomedical and scientific community, branded psychosomatic, and expected to create their own new forms of treatment. Is there a different type of attitude in the UK? It seems like scientists in the us are more stuck in trying to disprove your illness rather than actually looking for some kind of biomedical or genetic predisposition of your suffering. Does this seem accurate? > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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