Guest guest Posted April 26, 2000 Report Share Posted April 26, 2000 It is very true, the die-off symptoms plunge you lower than you thought you could ever go! I actually did think that I was dying at that point! But without giving up on the treatment, I kept going and got better after a while. So do keep the good work! There will be more things you will learn while reading other books and web-sites, and every little new thing helps expand your knowledge and the odds of getting better increase. Look into cleansing your body of toxins, adding substances that will actually kill the bacteria (like grapefruit seed extract, caprylic acid or walnut oil), and even some natural hormone therapy. The mood swings and tiredness could be coming from an hormonal imbalance caused or triggered by the body trying to fight the candida. My doctor gave me a wonderful cream for this and it has made the world of a difference. So, have a good trip and we'll hear from you later. Sandy - re: re: new here Hello Sandy, Thanks for your supporting words. I know that I'm not alloud to falter the diet and medication. The hardest thing abou it is that before I get healthy again, it should get worse first. Because when killing the candidiasis, the candidiasis tries to live anyway and gets stronger and makes you feel worse. It will be killed eventually, but it goes really slow. I'm now in the stage where the sympthones get worse and I totally feel like a trainwreck or something like that. But I know that it'll go away that's what keeps me going. Somewhere I'm happy that I'm not in this but on the other hand I hate not being the only one in the world having it, because i know what a bad illnis it is, and how you feel when having it, this I wouldn't even wish my worse enemy. Samira ______________________________________________ FREE Personalized Email at Mail.com Sign up at http://www.mail.com/?sr=signup ------------------------------------------------------------------------ Get 3 months FREE and a chance to WIN a trip to London, England when you receive, manage and pay your bills online with Paytrust.com! Stamps, checks and bills in your mailbox are history. Enroll Today! 1/3556/6/_/469673/_/956770734/ ------------------------------------------------------------------------ Send blank message to candidiasis-unsubscribeonelist if you want to UNSUBSCRIBE ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2002 Report Share Posted April 6, 2002 In a message dated 4/6/02 9:13:57 AM Central Standard Time, dweston6587@... writes: << If I understand it clearly, it seems children who are a bit older get better results with an active device? Any clarifications out there? >> Personally I would agree with this. I can't help but wonder if (who started when she was 9 months old) would have gotten more correction if she had used an active rather then passive device. Still, she did get some good correction and, at the time, the helmet was the only device available in our state and the ortho who made it was outstanding. The sweating was a bummer, but it really did get better after a couple of weeks. You'll be suprised the new and creative ways you find to snuggle with your baby and you will really value the one hour a day you get to have the helmet off. Best wishes to you and Rhiannon! Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 I ran across an interesting site, The Invisible Disabilities Advocate, “Helping People Understand Chronic Illness and Pain”. http://www.invisibledisabilities.com/index.html "But You Don't LOOK Sick!"Do your loved ones have a difficult time understanding your illness, because to them you "LOOK fine?" IDA's publications help friends and family see the courage and determination it takes to live with a disabling illness, amidst the challenges, frustrations and losses! Several articles are posted and some publications are for sale. This site may be helpful to you provide information to your friends and loved ones. I'm on Remicade and Methotrexate (among other things) and I didn't do well until after my fourth Remicade infusion. The first three were at 3 mg/kg, the next two at 5 mg/kg, and the latest was at 6 mg/kg. I'm now almost off of Prednisone after being on up to 40 mg for 15 months. I hope the latest Remicade infusion will last me 8 weeks (til April 17). The previous two only lasted 6 weeks. It takes time for the medications to act and for the rheumatologist to adjust dosage for you. Please be patient. Good luck and God bless. ----- Original Message ----- From: Rheumatoid Arthritis Sent: Sunday, March 16, 2003 1:57 AM Subject: New Here Hi, I'm 42 and have recently been tested positive RF and SLE. I'm married, 25 years this Weds.. Most of my teen years and early adulthood has been one illness after another. Pain has kept me from being a productive partner in my marriage,(with the exception of our sons). I have no one whom I can talk to and I am just a mess. I started Remicade, and plaquinel this past month. I'm trying to find out more about all of this but what I read just makes me even MORE depressed. Plus some of it I don't understand. Most of my friends and family gave up on me a long time ago and said it was all in my head and that all I wanted was attention. So I feel VERY alone.If anyone here has any input on how I can learn to deal with any and all of this, please.losing it in Florida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2003 Report Share Posted March 29, 2003 If the Rheumatoid Factor is positive there is a good chance (perhaps 90%) that you do have RA, but if it is negative there is only about a 25% chance that you have RA. It's one indication but not enough to make a diagnosis. My numbers may be slightly off but they are approximately correct. I don't mind the questions - but remember that your doctor is the best source of accurate information. ----- Original Message ----- From: margie929 Rheumatoid Arthritis Sent: Friday, March 21, 2003 11:23 PM Subject: New Here Hi all my name is Margie. I live in beautiful northern calif. I was just very recently diagnosed with RA. I have a question please that I hope someone can answer. If I test positive in blood work for RA factor does that mean I definately have RA or could I have something else? I hope that is not a dumb question, but I had to ask and I am sure I will have more questions. I hope you all dont mind.Thanks, Margie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2003 Report Share Posted March 29, 2003 HI MARGIE IT DEFINATELY MEANS U DO HAVE RA...(UNFORTUNATELY) GOOD LUCK JOYCE XXXXXX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2003 Report Share Posted March 31, 2003 Hi Margie, A positive RF is a strong indicator of RA, but is not sufficient to diagnose in the absence of other symptoms. This info came from the SavOn Drugs web site: " Greater than normal values may mean A rheumatoid factor (RF) level greater than 23 and a titer greater than 1 to 80 supports a diagnosis of rheumatoid arthritis, but it may also occur in other conditions. An RF level greater than 23 and a titer greater than 1 to 20 may indicate conditions such as systemic lupus erythematosus (SLE), scleroderma, Sjögren's syndrome, tuberculosis, mononucleosis, infection of a heart valve (endocarditis), sarcoidosis, and some infections caused by a virus or parasite (such as malaria). " If you also are sufferring from other symptoms that suggest RA then the RF test could be the " clincher " so to speak, but in the absense of other symptoms it would not necessarily mean RA. But I agree with Harold that your doctor is the best source of reliable information. Marty > HI MARGIE > IT DEFINATELY MEANS U DO HAVE RA...(UNFORTUNATELY) > GOOD LUCK > JOYCE > XXXXXX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2003 Report Share Posted April 11, 2003 Hello my name is Jan and I am 51 and also a widow as of Oct. 2002. My kids are grown thankfully. I was dxed with RA in 95 and then dxed with MS in October 2002. My knee has been drained twice and I do know what you are talking about. They drain the fluid and then give me a cortisone shot. For me it lasts about a year. I don't over due it though. I finally got on the right meds for me and BAMMMM!!! they tell me I have MS also and have to take an interferon drug through injection which by the way will make my arthritis worse. That's where I am now, In constant pain. -------Original Message------- From: Rheumatoid Arthritis Date: Thursday, April 10, 2003 8:12:53 AM Rheumatoid Arthritis Subject: new here well kind of takes me awhile to post. A year ago I found out I have RA..we do the blood work and specialist. With a list of things I shouldn't be doing. If I don't do them they don't get done. I'm 45 and a widow with 3 kids the youngest 8. I have 7 acres to take care of. I have been and still am active. I am trying not let the pain get to me. My problem is and the doc just says she can try draining it...my knee fill with fluid. It will go down some with the meds but then fills back up to the point it throbs after a days work or outing with the kids. She also tells me my pain tolerance is too high. Any one else had a knee fill with fluid??and what did you do about it?Thanks for listening Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2004 Report Share Posted July 3, 2004 Caroline wrote: > Hi guys... > > I've been lurking for a few days...to kind of get a feel for > things...and this place definitely looks and feels comfortable. > Thanks for the invite. I am delighted that someone thought to send me > an invitation to join. > > I am ver much into herbs, but don't really have the time or patience > to do any major cleansing right now and I have seen you guys promote > it but not insist on it, which is perfect for me! I have attempted > the 3 day juice cleanse...twice...lol...but only manage to make it > through one day..I haven't given up though...and I will get through > it...it will just have to wait until after baseball season because > right now there is too much going on. > > Anyway, thanks for letting me join and I am already enjoying reading > the posts and I hope to be participating in them just a bit more!! > > Caroline -------------------------------------------------------- Hi Caroline, Welcome to the group. Glad that you are here. As to the cleansing, well you can cleanse anyway you choose to. You can do the 5 week complete total body cleanse or you can go a slower route and begin to make changes in the diet which always helps anyway. A total body cleanse, while being very good, is not for everyone as not everyone can tolerate it yet. It is quite brutal. but the result are astounding. I feel that it is much better to go it a little slower and begin to make the necessary changes in your diet and do quite a few juice cleanses and fastings to prepare you for the 5 week bonanza. If you can cleanse for one day that is great. That is a very good start. The first time I did a 3 day juice cleanse/fast I thought I was literally going to die. LOL Now it is very easy for me to do a juice cleanse for a week at a time. I am working up to doing a 21 day juice cleanse. Then I should be ready for the big kahuna. We are glad that you are here and hope to share much between us. -- Peace, love and light, Don Quai " Spirit sleeps in the mineral, breathes in the vegetable, dreams in the animal and wakes in man. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2004 Report Share Posted July 3, 2004 Thank you Don. This really makes me feel better. I have been truly concerned that I just wasn't getting it...because I couldn't even manage to do a 3 day cleanse...sheesh...lol. Glad that I am not just being wimpy. We have made some major changes in our eating habits to start with, and are working on the rest. I won't ever convince my son to go totally raw...although watching him choke down his morning nutritional drink makes me wonder when he will change his mind...lol...since the deal I made with him was he could either force down the yucky green stuff every day or we would go totally raw...lol...he decided to suffer through the green stuff. LOL I really do look forward to doing some sort of cleansing...it is just very difficult with an 11 year old around....and during baseball season when I spend more time at the baseball field than I do at home!! At least during normal times all we have is Tae Kwon Do a few nights a week, so that is not as major. Anyway, thanks again...I really am glad to have been invited to join....and look forward to gleening all of the information off of you guys that I can!! Caroline If you can cleanse for one day that is great. That is a very good start. The first time I did a 3 day juice cleanse/fast I thought I was literally going to die. LOL Now it is very easy for me to do a juice cleanse for a week at a time. I am working up to doing a 21 day juice cleanse. Then I should be ready for the big kahuna. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2004 Report Share Posted July 3, 2004 Caroline wrote: > Thank you Don. This really makes me feel better. I have been truly > concerned that I just wasn't getting it...because I couldn't even > manage to do a 3 day cleanse...sheesh...lol. Glad that I am not just > being wimpy. We have made some major changes in our eating habits to > start with, and are working on the rest. I won't ever convince my son > to go totally raw...although watching him choke down his morning > nutritional drink makes me wonder when he will change his > mind...lol...since the deal I made with him was he could either force > down the yucky green stuff every day or we would go totally > raw...lol...he decided to suffer through the green stuff. LOL > > I really do look forward to doing some sort of cleansing...it is just > very difficult with an 11 year old around....and during baseball > season when I spend more time at the baseball field than I do at > home!! At least during normal times all we have is Tae Kwon Do a few > nights a week, so that is not as major. > > Anyway, thanks again...I really am glad to have been invited to > join....and look forward to gleening all of the information off of you > guys that I can!! > > Caroline ----------------------------------------------- Hi Caroline, Your very welcome. You will cleanse when the time is right for you. What ever changes you are making dietary wise will only help you and your family out in the long run. Major cleansings can come when they come. One step at a time. Again, you are welcome, just don't forget to share with us too. LOL -- Peace, love and light, Don Quai " Spirit sleeps in the mineral, breathes in the vegetable, dreams in the animal and wakes in man. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Hi Inge, I was diagnosed with RA when I was in my 20's ( am 45 in a couple of weeks) I the only symptom I had at time was pain in hands if I wrote a lot or help book for a long time. I know it's scary, but believe me it's not as bad as you imagine. You can still have fun and get on with life, you learn to adapt and live witin your illness. Hopse this helps, if you want to mail me off list if you need someone to talkt o or just listen, please feel free. Lynne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2011 Report Share Posted March 28, 2011 Anybody in Virginia... I live in the Hampton Roads area....Dawn Hi, me too! Beverly Re: New here I am in Fort Worth, Texas Quote Link to comment Share on other sites More sharing options...
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