Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 In a message dated 7/8/2002 2:53:29 PM Eastern Daylight Time, kia@... writes: how could I have let it get so bad before demanding to see a specialist?) and anger (at the doctor for treating it so casually). Kia, The fact that you brought this to the attention of your Doctor and he dismissed it casually- shows that you did your best in listening to a paid professional give you direction, which he failed miserably in doing. Only in recent times have we been so on top of our Doctors and the decisions that they make, this is all a new frontier, many generations would never dare go against the advice of their Doctor-- NEVER! (My father would tell me years ago he asked his Doc for his blood pressure results, and he would say, why, are you a Doctor? Now its common practice so that we can be our own health advocates- but I think a lot of that mentality still remains in our Doctors regardless). If it wasn't for the internet, we wouldn't even be talking about this, and learning more about it everyday. Don't feel guilty, you are a great mom and your doing all that you can to work this out for your son- and it will happen. I know that in the early stages, I wished that I could foresee the future and I had soooo many worries, but that is all behind us now, and with time it will be for you too- that's partly why I stick around, to give hope to those that are walking in my old shoes! Take comfort in your husband's calm, you can be the storm (like I was- getting all the info and forging ahead- explaining to my dh all the plays) and he can be the sense of relief you need when you start having doubts- you will compliment each other and get through this together for Cole. You are actively seeking treatment, your going against the advice of old fashioned Doctors, and your making things happen for Cole that might not have if you had listened to your Doctor completely (and many have)- so give yourself a big pat on the back for that nice work Mom! Good luck to you and I wish Cole all the success in the world! Keep us posted! ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 , Thanks for the pep talk. I was just saying today that I wish I could look forward and see him at age 2 or 3 and be reassured that he would look " normal. " Of course, if I'm time travelling I'd rather go back to when he was 2 months old and do it all better! But it is good to hear success stories. That's definitely what I need today. Kia (mom to Cole, 7 1/2 months old - in STARBand 2 1/2 weeks) > In a message dated 7/8/2002 2:53:29 PM Eastern Daylight Time, > kia@v... writes: > > > > how could I have let it get so bad before demanding to see a > > specialist?) and anger (at the doctor for treating it so casually). > > Kia, > The fact that you brought this to the attention of your Doctor and he > dismissed it casually- shows that you did your best in listening to a paid > professional give you direction, which he failed miserably in doing. Only in > recent times have we been so on top of our Doctors and the decisions that > they make, this is all a new frontier, many generations would never dare go > against the advice of their Doctor-- NEVER! (My father would tell me years > ago he asked his Doc for his blood pressure results, and he would say, why, > are you a Doctor? Now its common practice so that we can be our own health > advocates- but I think a lot of that mentality still remains in our Doctors > regardless). If it wasn't for the internet, we wouldn't even be talking > about this, and learning more about it everyday. Don't feel guilty, you are > a great mom and your doing all that you can to work this out for your son- > and it will happen. I know that in the early stages, I wished that I could > foresee the future and I had soooo many worries, but that is all behind us > now, and with time it will be for you too- that's partly why I stick around, > to give hope to those that are walking in my old shoes! Take comfort in your > husband's calm, you can be the storm (like I was- getting all the info and > forging ahead- explaining to my dh all the plays) and he can be the sense of > relief you need when you start having doubts- you will compliment each other > and get through this together for Cole. You are actively seeking treatment, > your going against the advice of old fashioned Doctors, and your making > things happen for Cole that might not have if you had listened to your Doctor > completely (and many have)- so give yourself a big pat on the back for that > nice work Mom! Good luck to you and I wish Cole all the success in the > world! Keep us posted! > > ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 Hi Kia, Try to focus on the good that is being done now and try (easier said then done) to let the past go. Focus on the fact that you are doing all that you can now. If there has already been improvement then try and have faith that he will continue to improve. I experienced the guilt and anger you describe. To tell the truth I still feel a twinge of both of those emotions about it occassionally. However, I have let it go for the most part and I'm glad for what I did and for what I learned (namely not to trust my ped without question!!!!). I know it is much easier for me to say then you to do since I'm looking back on the experience a year after it was all over. Hang in there - it does get easier and the guilt and anger do lessen. Marci (mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
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