Re: celiac disease and its role in ES (previously Buying potassium Iodide in the uk?)

[Guest guest]

Hi, Nil,

Celiac disease is very difficult to get dxed.  It took me 48 years to be dxed

(I had it from infancy).  That said, it is easier now to get dxed than it was

10 years ago.  Some people have silent cd.  About a third of celiacs have no

symptoms, but it is found when they are biopsied for various cancers (people

with undxed cd are at high risk for stomach, pancreatic, and colon cancers, also

mucus membrane--mouth, esophagial cancers, etc).  That was, infact, how I

finally was dxed, tho I had symptoms aplenty.  I also had all the problems you

mention and many more.  Untreated celiac disease is known to cause other

auto-immune diseases, and I had/ have a dozen or more of those.  (Because I

refuse to focus my thoughts on this, I have refused to count how many.  I work

at doing healthy things, and eating healthy things, but I don't

think about or worry about my many illnesses or else I would have gone

bonkers a long time ago.)  However, it behooves you, if you even suspect gluten

intolerance, to make sure you are tracking that down and treating it, because it

does lead to further illness and auto-immune disease.

Untreated celiac disease and gluten intolerances can also facilitate ES by

helping to damage tight junctions in the gut and blood brain barrier.  Emfs do

this, as well, but it is like a double punch when you also have gluten

intolerance or celiac disease working toward the same end.  The mistake I see

many doing is going mainly gluten-free, but fudging on the little stuff. 

Because I also have mast cell proliferation, I have a skin sensitivity to

glutens, as well; so I do know when something has gluten in it by touch.  Many

celiacs who do not fully respond to the gf diet, are eating questionable

products and using glutens in their environments.  Spelt is one of those

questionable products.  But there are many.  Airborne glutens can cause

problems, as well, if you are a particularly sensitized celiac (and ES would

likely qualify you for that category).

Liver disease, and kidney disease (stage 2), diabetes, and chronic bronchial

asthma are just some of my other celiac related dxes.  I am able to largely

control these, btw, if I am strict about my gluten-free/ and other diet.  I was

able to get my blood sugar dialed back to prediabetes levels (105) by an

entirely gf/ sugar-free diet, tho I have problems from time to time now, that I

can clearly associate with high emfs.  Since emfs also open tight junctions,

creating a leaky gut and bbb, and goofing up my autonomic nervous system

functions, my blood sugar sometimes now responds to that, as well.  I can

control this as well, often, with nutrient supplementation aimed at closing my

tjs, but there is no question that an emf-free environment works best for me.

After going completely gluten-free--down to removal of every bit of gluten from

my environment, including rye grass and gf contaminated toiletries, I overcame

fibromyalgia within a year (fibro once in awhile comes back for a day when I

have bad emf exposure or a gluten accident--about 4 X a year or so), and I

overcame chronic fatigue syndrome within three years (and the same with cfs

episodes--this also can happen with emfs and gluten accidents; however, I can

take supplements which help me get over these quickly.)  There was a bit more

to recovering from cfs, including treating bad gut flora and other food

intolerances, learning how to re-train my body to do exercise and taking

supplements that revived my mitochondria, etc.  CFS has alot to do with

alkalization and voltage, imo.  I didn't know exactly what I was doing when I

did it--I self experimented alot.  But there is now a protocol which is almost

exactly what I did on my own--Dr Tennant's

" Healing is Voltage " .  I took hydrogen supplements (of which NADH was one

type), and alkalized my water for a couple years.  Hydrogen supplementation

helps you increase your stamina and energy, but you have to do all of this in a

specific sequence, or you will keep " hitting the wall " .  For me personally,

calcium AEP and pantethine supplementation were also necessary, and (but to a

much less extent) still are.  Today, I am normal in my energy levels.  My

energy only flags when emfs are bad (or I have a gluten-accident or very bad

other exposure to pesticides/ chemicals).  I have learned to " ground " myself,

so to speak, to deal with these times. 

You should try, Nil, to further track down your gluten intolerance, because you

can certainly see a lot more healing by fully treating it, if it is one of your

problems.  The only area, infact, I have not been able to see substantial

healing in, is MCS.  I remain as sensitive (or perhaps even more sensitive) to

particular unnatural environmental exposures as ever.  MCS also had its roots

in my untreated celiac disease.  I am not saying all MCS is celiac disease

related (or all CFS or FM is related, etc).  There are other causes.  However,

if gluten intolerance is YOUR cause, you will not overcome these without

treating gluten intolerance (of which celiac disease is just one type) first. 

Anyone with " our type " of ES likely also has a tight junction permeability

gene.  CD and GIs are genetic.  TJ permeability is also genetic.  (CD genes +

TJ permeability gene + gluten = Celiac disease; GI genes + TJ perm gene + gluten

= Gluten intolerance.)  ES, or at least particular types of ES, are also

probably genetic.  But closing the tight junctions means treating all related

conditions for which you have related genes, successfully; not just addressing

ES tight junction deficits.

Sorry this is so long.  I don't know a way to express this in a more concise

manner. 

I wish you health,

Diane

From: nil <cindiwonderer@...>

Subject: Re: Buying potassium Iodide in the uk?

Date: Sunday, March 20, 2011, 6:55 PM

 

Hi Diane

I was not tested for Celiac but I do not have many of its symptoms. What I have

is long term CFS and leaky gut associated with it.My kidneys and liver is

tired.vega test device and saliva test done 10 years ago(I was also sick at that

time)said I did not have gluten intolerance but I notice gas when I consume some

grains. Not sure if this is wheat intolerance or gluten intolerance but I am

thinking this developed later in life during the progression of my illness and

related to leaky gut. I have other intolerances too(like lactose and cow milk)

and have multiple chemical sensitivity.

best wishes

nil

Re: Buying potassium Iodide in the uk?

Hi, Nil,

It is my understanding that iodine sensitivity occurs in celiac disease. Exactly

why, I don't know. I have celiac disease; do you? (Or gluten intolerance of a

different type?)

Diane