Lyme

[Guest guest]

If memory serves me incorrectly, Polly Murray identified Lyme

because doctors were diagnosing JRA in Lyme Connecticut at a rate

that defied statistical probability.

It took a housewife to notice that, and explain it to doctors.

When the JRA cases were re-analyzed, Bb was uncovered.

So here's my question.

If Lyme consistently masqueraded as JRA when it first made

a " cluster " appearance, what would make the difference between the

JRA-like clusters in Old Lyme and the drop dead devastating illness

that happened in Incline which could not possibly be mistaken for

JRA?

Bb subclinical til " unveiled " ?

Myco co-factors?

HHV6a?

Mold?

Whats the deal here?

-Eirikr (Old Norse)

[Guest guest]

I did not have a problem with molds and fungi till after my first

tickbite at 21, which was unknown to me then. THEN I developed

problems with my amalgams, and problems with candida, fungi and mold

that became rather severe.

Borrelia damages some of the toll-like receptors. In addition its

endodtoxins stress the entire system. I think in those who are

susceptible, it triggers mycotoxin sensitivity. Maybe one has a gene

but it isn't activated until too many stresses hit the system (again,

its depending on your genetics). Depending on your genetics, you get

suppression and inability to handle other various chronic infections,

and then, depending on your genetics, you may get a strong

'autoimmune' or inflammatory reaction to those particular bugs. Strep

and molds are two biggies.

> >

> > ,

>

> > And we don't know what the combos look like. Maybe the kids in

> Truckee all got hit with an airborne mycoplasma infection on top of

> already having something else like borrelia. Then you add on toxic

> mold in that building. It is a confusing mess.

> >

> > But I wouldn't want to minimize the risk of tick borne infections.

> > Heck, they used to tell us in South Carolina if your kid got Rocky

> Mt. Spotted Fever and lived to tell about it you were home free. Now

> we know that there is a chronic form of rickettsia. None of this is

> simple as you know.

> > a

>

> a,

> Yes, this is the craziest darn thing and I would never minimize the

> TBD's. It's just that " the mycotoxin connection " gets so little

> attention when it appears to be so huge.

> You may recall that I knew about " Terminal B " at Reno Tahoe airport

> because I could feel " it " there. Well, " Lymies " flying in for

> treatment at the Century clinic would get off the plane and drop in

> their tracks.

> This is so dang consistent that it is unbelievable that nobody but Dr

> Shoemaker is interested.

> I still wonder why nobody takes me up on my challenge to come and

> do " The Incline Village Mold Tour " .

> I think that you of all people know that this is no joke.

> -

>

[Guest guest]

That's a good question, and perhaps lyme was manifesting in other ways

with other folks in town, but they didn't realize it. It was the JRA

that caught the attention of some mothers. Maybe there was M.S., CFS

and other stuff in Old Lyme CT back then, bad knees, migraines, who

knows. Those may never have gotten on the radar.

Secondly, it seems to me that eventually we'll find out, and this may

be years, decades, anyway, that certain bugs together are synegistic

and create certain symptom profiles.

And finally, there are lots of different strains.

>

> If memory serves me incorrectly, Polly Murray identified Lyme

> because doctors were diagnosing JRA in Lyme Connecticut at a rate

> that defied statistical probability.

> It took a housewife to notice that, and explain it to doctors.

> When the JRA cases were re-analyzed, Bb was uncovered.

>

> So here's my question.

> If Lyme consistently masqueraded as JRA when it first made

> a " cluster " appearance, what would make the difference between the

> JRA-like clusters in Old Lyme and the drop dead devastating illness

> that happened in Incline which could not possibly be mistaken for

> JRA?

>

> Bb subclinical til " unveiled " ?

> Myco co-factors?

> HHV6a?

> Mold?

>

> Whats the deal here?

> -Eirikr (Old Norse)

>

[Guest guest]

I too recently tested positive for Lyme through Igenex.? I've had CFIDS for 15

and MCS almost as long.? I actually *was* bitten by a tick this past summer so

it's not clear whether this is a reinfection and I've had Lyme before, or just a

new disease.? Antibiotics have given me some interesting results though.? I

agree that every CFIDS patient should get tested for Lyme and talk to a Lyme

Literate Doctor at some point.? But please remember the tests are notoriously

unreliable, and Lyme is a clinical diagnosis, based on symptoms and signs.?

There are many Lyme docs who believe most CFIDS cases are chronic Lyme, too, so

there can be philosophical differences around this.?

My doctor believes I also have bartonella and babesia.? The tests for

coinfections are even less reliable than the Lyme tests.? For example, there are

9 known varieties of human bartonella in this country and the best labs only

test for 2 of these.?

I have talked to others with both CFIDS and Lyme.? I think the clinical

presentations have subtle differences, and I'd love to discuss this with other

CFIDS patients who have both.?

Peggy

________________________________________________________________________

More new features than ever. Check out the new AOL Mail ! -

http://webmail.aol.com

[Guest guest]

I have always been labled with CFS but I tested positive for lyme on

western blot in 1990 and recently positive for lyme but not

coinfections in 2003 by PCR AT iGENEX so I believe I do have lyme

even though the drs. pass over it. I don't want antibiotics anyway.

joyce

>

> I too recently tested positive for Lyme through Igenex.? I've had

CFIDS for 15 and MCS almost as long.? I actually *was* bitten by a

tick this past summer so it's not clear whether this is a reinfection

and I've had Lyme before, or just a new disease.? Antibiotics have

given me some interesting results though.? I agree that every CFIDS

patient should get tested for Lyme and talk to a Lyme Literate Doctor

at some point.? But please remember the tests are notoriously

unreliable, and Lyme is a clinical diagnosis, based on symptoms and

signs.? There are many Lyme docs who believe most CFIDS cases are

chronic Lyme, too, so there can be philosophical differences around

this.?

>

> My doctor believes I also have bartonella and babesia.? The tests

for coinfections are even less reliable than the Lyme tests.? For

example, there are 9 known varieties of human bartonella in this

country and the best labs only test for 2 of these.?

>

> I have talked to others with both CFIDS and Lyme.? I think the

clinical presentations have subtle differences, and I'd love to

discuss this with other CFIDS patients who have both.?

>

> Peggy

>

>

______________________________________________________________________

__

> More new features than ever. Check out the new AOL Mail ! -

http://webmail.aol.com

>

>

>

[Guest guest]

" jamkaye7 " <jamkaye@...> wrote:

> I have always been labled with CFS but I tested positive for lyme

on

> western blot in 1990 and recently positive for lyme but not

> coinfections in 2003 by PCR AT iGENEX so I believe I do have lyme

> even though the drs. pass over it. I don't want antibiotics anyway.

> joyce

You should read Desperation Medicine by Dr Ritchie Shoemaker.

If you have an active Bb infection, by all means - treat it.

But if the C4a indicates latency - and immune upregulation by

secondary factors, then, just as Dr Cheney observed so many years

ago, ABX might be wasted and could wind up doing more harm than good.

Since this issue is the midst of a raging dispute, it's going to be

almost impossible to get a consistent answer.

Mainstream docs will tell you chronic Lyme doesn't exist.

LLMD's will tell you to go for the the ABX.

" Original CFS " doctors might not believe it to be appropriate, and

may lean toward antivirals, instead.

You'd think that it's high time to lock all of them in a room until

the beat some common sense out of all these completely

opposing " scientific " views.

-

[Guest guest]

Antiviral and antibiotics for chronic lyme were prescribed for me. 4 months of

them. Marked improvement. Exposure to some nasty old house dust and mouse dirt

contributed to EBV reactivation. Valtrex for 2 months. Now I'm up and running,

not 100% but far better than 2 years ago. While that regime wouldn't work for

everyone, I really believe it would work for far more than are given opportunity

to try. I hope more catch on to the potential.

Diane in MI

Re:lyme

" jamkaye7 " <jamkaye@...> wrote:

> I have always been labled with CFS but I tested positive for lyme

on

> western blot in 1990 and recently positive for lyme but not

> coinfections in 2003 by PCR AT iGENEX so I believe I do have lyme

> even though the drs. pass over it. I don't want antibiotics anyway.

> joyce

You should read Desperation Medicine by Dr Ritchie Shoemaker.

If you have an active Bb infection, by all means - treat it.

But if the C4a indicates latency - and immune upregulation by

secondary factors, then, just as Dr Cheney observed so many years

ago, ABX might be wasted and could wind up doing more harm than good.

Since this issue is the midst of a raging dispute, it's going to be

almost impossible to get a consistent answer.

Mainstream docs will tell you chronic Lyme doesn't exist.

LLMD's will tell you to go for the the ABX.

" Original CFS " doctors might not believe it to be appropriate, and

may lean toward antivirals, instead.

You'd think that it's high time to lock all of them in a room until

the beat some common sense out of all these completely

opposing " scientific " views.

-

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10:55 PM

[Guest guest]

I keep EBV and CMV at bay with officinalis tincture, l-Lysine and

vitamin C once or twice a week.

mjh

Posted by: " Diane " _dphf@... _ (mailto:dphf@...?Subject=

Re:%20lyme) _dphf _ (dphf)

Wed Jan 9, 2008 10:47 pm (PST)

Antiviral and antibiotics for chronic lyme were prescribed for me. 4 months

of them. Marked improvement. Exposure to some nasty old house dust and mouse

dirt contributed to EBV reactivation. Valtrex for 2 months. Now I'm up and

running, not 100% but far better than 2 years ago. While that regime wouldn't

work for everyone, I really believe it would work for far more than are given

opportunity to try. I hope more catch on to the potential.

Diane in MI

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

Thanks for the reminder. I missed the lemon balm harvest/ tincture making last

summer. Maybe this year...but you only need to the combination a couple times a

week?

Diane in MI

Re: lyme

I keep EBV and CMV at bay with officinalis tincture, l-Lysine and

vitamin C once or twice a week.

mjh

Posted by: " Diane " _dphf@... _ (mailto:dphf@...?Subject=

Re:%20lyme) _dphf _ (dphf)

Wed Jan 9, 2008 10:47 pm (PST)

Antiviral and antibiotics for chronic lyme were prescribed for me. 4 months

of them. Marked improvement. Exposure to some nasty old house dust and mouse

dirt contributed to EBV reactivation. Valtrex for 2 months. Now I'm up and

running, not 100% but far better than 2 years ago. While that regime wouldn't

work for everyone, I really believe it would work for far more than are given

opportunity to try. I hope more catch on to the potential.

Diane in MI

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

zHi :

Thanks very much for your insights. I will explore these and others and get

back with anything useful that I learn.

Donna

[Guest guest]

I've heard there is a newly identified strain that is quite rampant.

Hopefully they can improve the tests by testing antibodies specific for it.

Bill

On Wed, Jul 2, 2008 at 2:44 PM, McAfee <amcafeerr@...> wrote:

> The main problem is getting a complete and thorough Lyme diagnosis.

> There are different strains and it is my understanding that the Lyme

> test is very unreliable. In speaking with a Lyme expert from a Lyme

> group in Connecticut, I learned that it is transferable without a tick

> bite and the majority of Americans have it as a low lying disease.

> The Zapper is fine for other specific treatments but not for

> Lyme. For Lyme you need a lot more power and a machine that covers

> frequencies that you can control.

> Supposedly there are machines that do electrical analysis like QXCI,

> but I don't trust them.

> I think how you feel is the most accurate thing so far. Challenge tests

> with Colloidal Silver (INVIVE (5000 ppm at http://www.invive.com or

> Argentyn 23 at least ), Rife Frequency treatments, high dosage Samento,

> etc to see if you have a Herx reaction (feeling like sh-t.) will do

> more I think than using the electronic machines to diagnose you. I hope

> to be wrong on this and want someone to prove me wrong. Please, someone

> write back to me and say that they are using a consistently effective

> and comprehensive method of diagnosis for Lyme. I know this challenge

> is a blanket test for anything and not just Lyme. I don't really care

> as long as I am killing of the hundred or so low lying viral conditions

> currently afflicting the majority of Americans. I can tell pretty

> quickly with the Herx reaction, a lymph surge (coughing or white crap

> in my throat being hm-hmed up) or simply feeling better with more

> resistance to EMF.

> Google the Lyme lists and talk to a few of them.

> Here is my source.

>

> Jim Howenstein

> dr.jimhow@... <dr.jimhow%40gmail.com>

>

> His article:

> July 2004 Townsend Letter pg 64-68.titled New Ideas About the Cause,

> Spread and Therapy of Lyme Disease.

>

> Let me know if you find out a good diagnosis.

> thanks,

>

>

> On Jul 2, 2008, at 3:20 PM, DD wrote:

>

> > Hi :

> >

> > Thanks for all those lyme references. Did doing all these things kill

> > your

> > lymes bugs? I read the stuff on the rife machine, is this similar to

> > Hulda

> > 's " zappers " , I have one of those that zaps at 30 mghz but that's

> > probably not the right frequency for lymes. The Rife machine info is

> > far

> > more technical...which I'm not ....just wondering if you can tell us

> > alittle more about your use of the rife machine as I'm thinking that

> > Lymes

> > is a destinct possibility in my case.

> >

> > Thanks,

> >

> > Donna

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

Hi Les_lee Curious have you ever treated with antibiotics recently? Lyme is a

very sneaky and invasive bacteria. You may have lyme and the test still miss

this. If seeing a lyme doctor I would agree if 2 bands show this with symptoms

is highly suspicious. Also if your lyme has lied dormant for some time this

would explain the 2 bands. Treating is much simpler than letting the spirochete

continue. I would advise clinical diagnosis but Dr's. are so hesitating with the

political pressure around lyme. Lyme is confusing dear they know so little about

this beast.

I know the crying wondering if things will ever get better. IT WILL! Be kind to

yourself this is not your fault and children will grow older and understand. Are

you seeing insects? Do the children seem infected infested too? Be kind to

yourself dear even being a mother consider yourself, the children need you more

than a doll:)

>

>

> I just got the results of my Igenex Lyme test and it is Negative - but the

ILADS Dr. I saw is saying that I have two bands that are positive even though

the test had a negative result...and he feels I need to be treated.

>

> Does anyone understand this? I thought that paying more for an Igenex test

that the results wouldbe more accurate...now I'm just really confused. I don't

understand.

>

> I'm having a really hard time with this today. I took my children shopping

yesterday and my 3 year old found a doll that shewas in love with - you should

have saw her face... Normally I would have went back and bought her the doll

for Christmas, but right now I can't because it was cloth... I cried and cried.

I just hope and pray she will know what a " normal " life is someday. It breaks my

heart.

>

[Guest guest]

Also wanted to add with dolls made in China or for that matter here in the great

USA, and the bed bug epidemic if well I wouldn't buy one:)

> >

> >

> > I just got the results of my Igenex Lyme test and it is Negative - but the

ILADS Dr. I saw is saying that I have two bands that are positive even though

the test had a negative result...and he feels I need to be treated.

> >

> > Does anyone understand this? I thought that paying more for an Igenex test

that the results wouldbe more accurate...now I'm just really confused. I don't

understand.

> >

> > I'm having a really hard time with this today. I took my children shopping

yesterday and my 3 year old found a doll that shewas in love with - you should

have saw her face... Normally I would have went back and bought her the doll

for Christmas, but right now I can't because it was cloth... I cried and cried.

I just hope and pray she will know what a " normal " life is someday. It breaks my

heart.

> >

>

[Guest guest]

Some bands may be fairly specific to Lyme: 12, 22, 23/25, 31, 34, 35, 37, 39,

83, 93. Dr. , who is the leading pediatric Lyme expert in the USA,

with over 6,000 treated child Lyme patients, explained to me if a Western Blot

done by IgeneX -- the best Tick illness lab in the USA -- comes up positive with

only one band, it is a specific positive. It means that " bands " or antibodies

specific to Lyme are present.

http://www.personalconsult.com/articles/summaryoflymediseasearticles.html

> > >

> > >

> > > I just got the results of my Igenex Lyme test and it is Negative - but

the ILADS Dr. I saw is saying that I have two bands that are positive even

though the test had a negative result...and he feels I need to be treated.

> > >

> > > Does anyone understand this? I thought that paying more for an Igenex test

that the results wouldbe more accurate...now I'm just really confused. I don't

understand.

> > >

> > > I'm having a really hard time with this today. I took my children

shopping yesterday and my 3 year old found a doll that shewas in love with - you

should have saw her face... Normally I would have went back and bought her the

doll for Christmas, but right now I can't because it was cloth... I cried and

cried. I just hope and pray she will know what a " normal " life is someday. It

breaks my heart.

> > >

> >

>

[Guest guest]

A saying my Daddy had when I was young, not understood much then, now life

guidance. Christmas is suppose to be about presents with a C not a T. Presence

of spirit, family and one another:)

> > >

> > >

> > > I just got the results of my Igenex Lyme test and it is Negative - but

the ILADS Dr. I saw is saying that I have two bands that are positive even

though the test had a negative result...and he feels I need to be treated.

> > >

> > > Does anyone understand this? I thought that paying more for an Igenex test

that the results wouldbe more accurate...now I'm just really confused. I don't

understand.

> > >

> > > I'm having a really hard time with this today. I took my children

shopping yesterday and my 3 year old found a doll that shewas in love with - you

should have saw her face... Normally I would have went back and bought her the

doll for Christmas, but right now I can't because it was cloth... I cried and

cried. I just hope and pray she will know what a " normal " life is someday. It

breaks my heart.

> > >

> >

>

[Guest guest]

Buying my children gifts is not really the big issue for me. It is more about

me worrying that they will not have a " normal " life again. She is so young. I

hope this thing will not define her childhood...because right now it feels like

it might. I hate this whole thing - but mostly for the children.

We have really good days and then it gets bad again. We haven't found any bugs

for a long time - but even then we never really saw anything (only ever found

three samples). The crawling will get less and less and wwithin a week it will

be back. My eight year old had " hives " again last night. My back was a huge

issue last week,but seems to be getting better. I have a little patch of rash on

both of my legs now...haven't had any rash for a month or better before this.

The doctor said the Igenex test was negative, but that bands 18 and 31 were

positive and that he felt I needed treatment. How can the test be negative and I

still need treatment?

> > > >

> > > >

> > > > I just got the results of my Igenex Lyme test and it is Negative - but

the ILADS Dr. I saw is saying that I have two bands that are positive even

though the test had a negative result...and he feels I need to be treated.

> > > >

> > > > Does anyone understand this? I thought that paying more for an Igenex

test that the results wouldbe more accurate...now I'm just really confused. I

don't understand.

> > > >

> > > > I'm having a really hard time with this today. I took my children

shopping yesterday and my 3 year old found a doll that shewas in love with - you

should have saw her face... Normally I would have went back and bought her the

doll for Christmas, but right now I can't because it was cloth... I cried and

cried. I just hope and pray she will know what a " normal " life is someday. It

breaks my heart.

> > > >

> > >

> >

>

[Guest guest]

The test are unreliable, just your symptoms should be enough for a doctor to

consider treatment. Your life will be different after this it is life altering.

How you proceed will make all the difference.

This is Dr. ' point. It you see an 18 antibody that has a positive, you

have Lyme. You do not need to check any other bands, because the 18 antibody is

highly specific to Lyme—just like a tusk on an elephant.

http://www.personalconsult.com/articles/drjonesapproach.html

And yes 3 is very young the sparkle of Santa in their eyes. This life experience

may alter and make up some of her life, sadly.

I marked the rashes and crawling down on the calender. For some reason the time

seemed to be in 3 or 4 week intervals and always worse on a full moon. I found

studies proving that lyme runs in 4 weeks courses.

> > > > >

> > > > >

> > > > > I just got the results of my Igenex Lyme test and it is Negative -

but the ILADS Dr. I saw is saying that I have two bands that are positive even

though the test had a negative result...and he feels I need to be treated.

> > > > >

> > > > > Does anyone understand this? I thought that paying more for an Igenex

test that the results wouldbe more accurate...now I'm just really confused. I

don't understand.

> > > > >

> > > > > I'm having a really hard time with this today. I took my children

shopping yesterday and my 3 year old found a doll that shewas in love with - you

should have saw her face... Normally I would have went back and bought her the

doll for Christmas, but right now I can't because it was cloth... I cried and

cried. I just hope and pray she will know what a " normal " life is someday. It

breaks my heart.

> > > > >

> > > >

> > >

> >

>

[Guest guest]

What is a Herxheimer Reaction?

The Jarisch-Herxheimer reaction, often called a " Herx " , occurs as a result of

endotoxins, exotoxins, and neurotoxins released from bacterial die-off during

Lyme treatment. The body responds to the toxins by releasing inflammatory

mediators from the immune system, such as chemokines and cytokines, which cause

a flaring of symptoms in the individual.

Symptoms may be old (but worse) symptoms, or may be totally new symptoms.

Examples of common Herx symptoms are increased joint pain, muscle pain, nausea,

headaches, night sweats, fever, or rashes. Other symptoms may also occur.

These symptoms generally last from one to ten days.

Herxing can occur within days or weeks after the onset of treatment. Many

patients have a Herx only once or twice, while others continue to have cyclic

worsening of symptoms throughout a course of treatment. A common Herx cycle

recurs about once every 4 weeks.

It's helpful to document these worsening symptoms. Some Lyme doctors use these

as a guideline for treatment, as a Herx can be a sign that treatment is working.

Documenting your symptoms may also help to differentiate Herx from progression

of the disease.

> > > > > >

> > > > > >

> > > > > > I just got the results of my Igenex Lyme test and it is Negative -

but the ILADS Dr. I saw is saying that I have two bands that are positive even

though the test had a negative result...and he feels I need to be treated.

> > > > > >

> > > > > > Does anyone understand this? I thought that paying more for an

Igenex test that the results wouldbe more accurate...now I'm just really

confused. I don't understand.

> > > > > >

> > > > > > I'm having a really hard time with this today. I took my children

shopping yesterday and my 3 year old found a doll that shewas in love with - you

should have saw her face... Normally I would have went back and bought her the

doll for Christmas, but right now I can't because it was cloth... I cried and

cried. I just hope and pray she will know what a " normal " life is someday. It

breaks my heart.

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Late Stage Lyme Disease, Patient Information

http://www.angelfire.com/me2/StarShar/Herx1.html

Can't lie to ya. Rough road ahead. In fact, getting well may be about the

hardest and most difficult thing you'll ever do. But it's worth it! Stick with

it! Never give up hope!

The first thing you should know is that it gets worse before it gets better. It

can in fact get a lot worse before it gets better. It depends on how long you've

had it, how much of the bacteria has built up, what strain you have, and many

other factors as well.

The Lyme bacteria gives off a chemcial toxin when it dies. When the antibiotics

start killing them, the toxin levels in your body will soar and the symptoms can

become intense. Physical symptoms include pain, numbness, swelling, tremors, and

a myriad of others if internal organs are significantly affected. The toxin

affects your mind as well. Typical symptoms include insomnia, confusion,

disorientation, depression, anxiety and panic attacks. These will all go away as

you get well!

As if the toxin effects weren't good enough, another fact about the Lyme

bacteria is that it grows and reproduces slowly. At first that may seem a good

thing, except that antibiotics are generally able to kill it only during certain

stages of it's life cycle. The end result being that it takes a long time to get

well. usually months. There have been cases of " miracle " cures in just a couple

weeks, but these are rather rare. Just don't give up hope! Keep at it! Keep

trying! It takes a long time, but being happy and healthy again is worth it!

Of course we'd all probably like to have our mind functioning properly again as

the first step in getting well. Unfortunately, that won't happen. Your mind

returns last, when just about all the bacteria are dead. Physical symptoms like

pain and numbness go first, then the bacteria that didn't cause pain, and then,

finally, your head begins to clear up. This can be very disconcerting when your

body feels good but your head is still reeling. Hang in there!

When you frist start on effective antibiotics, you'll be in for quite an

unpleasant surprise. Within a day or two you'll feel like you've been hit by a

fully loaded military cargo jet flying at full throttle. Your symptoms,

including the ones you didn't even know you had, will flare up intensely. Try

hard to tough it out. But if you find that you absolutely positively can't, and

this is not too unusual, ask your doctor about lowering the dosage for a while,

or pulsing on and off until you get through the worst of it. Sticking on the

medication as prescribed, always taking them right on time, is your best bet for

getting through it as quickly as possible. Don't give those nasty little

bacteria an inch! This can be really tough, because it takes at least a few

weeks (6-8), and sometimes much more to get through the brutally hard part.

If when you start your antibiotics, your symptoms don't flare severely,

including ones you didn't know you had, then you may have a strain that is

resistant to that particular antibiotic. Or, perhaps, your body is fighting the

antibiotic and not letting it do its job properly. This is one reason that two

antibiotics are often used at the same time. It is a judgment call between you

and your doctor as to whether the antibiotics are being effective, and what

might need to be done if they aren't.

Which set of symptoms, the physical or the psychological, will be the most

difficult to handle is entirely up to the individual. Are you more physically

oriented? Or are you a thinker? Some people are so happy-go-lucky and full of

faith that nothing at all bothers them. In fact, many people are. You can be

like them too. Just don't bother to worry about it! You're on the right road.

The road to being happy, healthy and normal again!

Is it contagious? The answer is: no one knows. Spouses and siblings tend to all

travel in the same places, so it is hard to tell if the disease was transmistted

person to person or just infectious bites by different ticks. The long answer

is: that since it's a blood-borne disease, as long as you don't go around biting

people and bleeding on them, then no, it's not. As always though, better safe

than sorry.

A few annoyances you may encounter along the way, and should be made aware of if

you're the worrying sort:

1. Confusion/Disorientation. Your short-term memory will probably be taking a

nice long vacation. You may find yourself confused about where you are and what

you're doing every time the scenery changes. Like when walking from one room to

another, or driving (DON'T!). Sometimes even when just sitting or lying around

doing nothing. It could also be even more intense, with temporary bouts of

amnesia. But it's a fact of life that vacations do end. This one tends to be

about the most disconcerting psychological symptom for most people. Again

though, it's caused by the toxin release from the dying bacteria. It will get

better and eventually go away!

2. Numbness. Various parts of your body, both those you knew were infected and

those you didn't, may go numb for a period of time. Quite often it's just for a

day or so, but can also last for many weeks, until enough of the bacteria in

that location have been killed that the toxin level finally drops. Don't panic!

They all come back! (The numb body parts, that is!) They'll eventually switch

from numb to painful, and then finally to normal.

3. Pain. Same as 2), but may be sporadic pains instead of numbness.

4. It's in more places than you know. While you are on effective antibiotics the

bacteria are NOT spreading. Never had a problem with your back, but now it

hurts? Forearms maybe? Wrists? They hurt now because the bacteria were there all

along, and now that they're dying they're releasing toxins. It's the toxin from

the dying bacteria that causes the numbness and pain. Dead bacteria is a good

thing!

5. Insomnia. And not just at night either. You may find it impossible to nap

during the day at all. You may get to enjoy every last minute of the worst part.

As the toxin levels fall though, you'll be able to sleep better and better.

6. Hallucinations and voices. These can occur during times when your mind and

body are exhuasted but the toxins won't let you sleep. You may be trying to

rest, but your brain gets stuck halfway between sleep and awake, dreams and

reality mix. Better sleep at night, along with less activity during the day,

should help these symptoms disappear. Ask your Doctor about sleeping aids you

can use if necessary. However, if you get these symtpoms while you're wide awake

and have gotten reasonable sleep, consult your doctor immediately.

7. Tremors, shakes, and spasms. Can occur in various places to varying degrees.

The length of time they last varies as well. These may be caused by bacteria

dying near, and hence irritating, a nerve which controls motion.

8. Sweats, hot, cold, day and night. Get used to them. You might consider adding

just a bit of extra salt to your diet so that you don't becaome salt/sodium

defficient.

9. Fireworks, popcorn, or pin-cushion pains. These tend to feel like someone has

picked a part of your body and decided to jab it with a pin a few times. Then

they go and pick another spot. These are probably just irritations of pain

nerves, or perhaps bacteria dying inside a nerve itself. You might notice that

they tend to occure in your most affected areas, and that more effective

antibiotics cause more of them.

10. Heart palpitations or irregularities. Notify your doctor immediately so that

they can determine if the irregularities are severe enough to be dangerous. In

some extreme cases, people have been put on a temporary pace maker until the

worst of the symptoms have disappeared.

11. Dizziness and Vertigo. It's everywhere else, why be surprised that it's in

your ears? Symptoms here can range from a feeling of " walking through jello " to

complete loss of orientation.

12. Temporary Amnesia. Really this is just an extension of memory loss symptoms,

except that instead of just losing your short-term memory, mid and sometimes

long-term memory can go for a hike as well. These symtpoms can last anywhere

from just a few minutes, to a few weeks, and will probably only occur during the

first month or so of treatment.

13. Aliens Under My Skin. usually felt in the forearms or shins, but can occure

anywhere, this feels for all the world like little turtle-shaped aliens crawling

around in the affected area. These are actually associated with an attack by

your own immune system against the bacteria, and are probably the result of

localized swelling and toxin releases from the bacteria dying under the attack.

14. Sudden bouts of weakness and symptoms flares. Your body is fighting the

bacteria alongside the antibiotics. But your body isn't always a nice steady

predictable stream. Occasionally, and even frequently during the first cycle or

two, your body will attack. Sometimes with an all-out-vengeance that will

literally leave your knees weak and you panting for breath. In extreme cases,

this can actually cause fainting. This can be very disconcerting if your're not

expecting it. As long as your heart rate and blood pressure are OK, then youre'

probably fine. Go over your drug allergy checklist and consult your doctor if

you think it might be a delayed reaction to antibiotics. Normally, this feeling

will drop in intensity within a few minutes.

15. Headaches. Can range from not at all if you're really lucky, to some really

intense head-splitters. Do whatever you can to survive them.

16. Disconnection. Close your eyes, now where is your arm? OK, look at it now.

Doesn't really feel like it looks where it is, does it? The extreme of this

symptom is a complete out-of-body experience. As toxin levels fall, you should

become more and more re-connected to your body again. And there you were

thinking that you were just getting really good at your Yoga exercises.......

17. Panic Attacks. You don't want to get these, really, you don't. It's a

feeling of " Oh my God, I'm going to be like this forever, I can't take it

please, somebody just kill me and get it over with... " The only possible good

thing about this symptom is that it goes away.

18. Bright Colors. Your pupils may dilate a bit. Indeed, you may find yourself

wearing sunglasses, inside!

19. Hypersensitive Hearing. Your ears may become hypersensitive to sound. In

extreme cases, sound, even very quiet ones, can become painful.

20. Mood Swings, Irritability/Short Temper, Erratic Behavior. Again, all due to

the toxin's effect on your mind. These will all clear up as you get well. These

symptoms can be especially difficult for those around you to deal with.

21. Yo-Yo. You'll be feeling like one. Up one minute, down the next. You might

wake up feeling great one day, only to find that a couple hours later you're

back feeling horrible again. UP, down, up, down, all around. Slowly, month after

month, the downs will stop being quite so low, and eventually go away.

22. Whatever Else. Everyone is different, and the disease is quite well known

these days for just how differently it affects different people. Any other

significant symptoms that you are concerned about should be discussed with your

doctor.

HELPFUL HINTS:

1. You may need help to get through this. You should not be left alone for long

periods of time. Someone needs to be around to help encourage and reassure you

along your rough road back to wellness. Your mind will not be working properly,

and it's easy to become confused, terrified, and discouraged. Make sure you have

someone to talk to when you need them. Just a phone call can help tremendously!

Emotional release, if needed, can be good for you! Rare are the ones who can

make the journey back to wellness without a few breakdowns along the way. Call

around, ask around, find your local lyme disease support groups. Talk to them.

That's why they're there. They want to help!

2. Eat! When you finally get through this, you'd certainly like to enjoy life

again as soon as possible, wouldn't you? Well you can't do that if you're a

shriveled-up little mess. Solid food is best, but may prove difficult for a

while. Liquid foods like " Ensure Plus " and " Instant Breakfast " can help keep

your calorie intake up. Don't forget your basic " Multi-vitamin & Minerals "

either. And eating does much more than just keep your weight up. It provides

energy for: your own immune system so it can fight too, for all the healing that

has to take place, and energy to help your body process the toxins out. Eat, and

you'll be healthy and happy again that much sooner.

3. Move and Stretch. The worst ting you can do is just sit or lie around all

day. Lyme Disease is a deep tissue bug as well as not-so-deep tissue. It likes

to hide and live in places that are hard to reach, both for your body and the

antibiotics. Stretching and moving around does a number of things: such as

providing circulation going and flushing toxins out, you help prevent toxic

bulid-up and subsequent possible permanent damage. So if it hurts, stretch it

(gently), move it around, get some circulation in there! You should be gently

stretching everything from your nose to your toes at least once an hour while

you're awake. Go for a short walk... Even just up and down the driveway, or

around the living room a few times will do a world of good. This is extremely

important during the first few weeks or so when the toxin levels will skyrocket!

4. Sleeping aids. Do not use sleeping aids during the first couple weeks or so.

As long as you have extreme pain or numbness somewhere that needs to be moved

around occasionally you're probably better off rolling around and tosing and

turning all night. Once you feel like you can go the night without accumulating

severe pain somewhere, then sleeping aids are OK. Naturally, use as little as

possible. You do need sleep but you also don't want permanent toxin damage.

5. Take your medication on time, every time, religiously. Some bacteria takes

days to kill. A missed dose may let them recover and restart the clock all over

again. Unless, of course, you like suffering......

6. Don't stop once you feel good. Lyme Disease is very slow growing, but the

longer you've had it, the deeper into your system it gets. Deep enough such that

even the " instant kill " family of cephalosporins antibiotics take time to kill

it. Thus it is generally good practice for Lyme patients to continue effect

antibiotics for a number of months after symptoms have (seemingly) disappeared.

Taking medication when you feel good can be an annoyance, but when you consider

what you're going through now, do you really want to do it again?

7. Lyme Disease doesn't just grow in the bloodstream. It tends to enter inside

your cells and grow there too. Not all antiboitics can penetrate cell walls to

effectively kill the bacteria there. Fortunately, there are a number that can:

Suprax, Flagyl, and Biaxin for example. One might consider some time spent on

these to help kill any bacteria which might have crossed inside the cell wall

barrier.

8. Know the signs of a drug reaction for those drugs you haven't had before.

Sometimes it can be difficult to distinguish between a drug reaction and

standard Lyme symptoms. Discuss any concerns or unusual symptoms with your

doctor.

9. Avoid any anti-inflammatory and anti-pain medication. Mostly at the start of

treatment. Inflammation is your body's way of increasing circulation to affected

areas. Circulation is what brings the antibiotics in to where they need to go

and takes the toxins away. Pain is your body's way of saying " Hey stupid! Move

this part around a bit! " You might actually find that anti-inflammatories,

though, during the first month or so of treatment, will tend to make joint pains

worse. Once past the hard part though, a bit of anti-inflammatory and anti-pain

medication is OK.

10. Antibiotic Soap. For shower or bath. Not proven to actually do anything, but

may help to kill the bacteria hiding in the pores of your skin.

11. Contact Lenses. Take them out! Never nap or sleep with your contacts in! It

is just as likely that the bacteria is in your eyes, as well as everywhere else.

A die-off in your eyes can raise the local toxin levels, but with your contacts

in your body, is hindered from flushing it away. The result build-up may cause

damage to your eyes. Better safe than sorry! Dig up that dusty old pair of

glasses!

12. Depression. Nobody likes feeling depressed. Problem is, that a fair number

of people just get that way after fighting the disease for a seeming eternity

and still not feeling a whole lot better. Try to find things you can do to

occupy yourself and keep your mind off it. Do whatever you can, naturally, to

lift your spirits and keep them up. Failing that, it is not out of the question

to ask you doctor for a little help. Make sure to avoid anti-depressants that

can add to your insomnia!

13. B-Complex Vitamins. Thse have been shown to significantly help psychological

symptoms. They also help the brain repair and protect itself from toxin damage.

14. Injuries. Try to avoid them. The Lyme bacteria thrive on injured body parts.

Bruises, sprains, etc., are a feast with an open all-you-can-eat invitation. You

might, to amuse yourself once you know the exact length of your cycle, try

mapping back specific short-lived pains to the event which caused them!

15. Exercise. Gentle stretching and low-level workouts are OK. But remember that

strenous exercise and hard workouts are actually controlled injury...and injury

feeds the bacteria.

16. Yeast Infections - in throat and/or digestive tract. Some antibiotics are

more prone than others to causing yeast infections by killing off all your good

bacteria. Your doctor should question you about sore throats and intestinal

problems each time you visit. These infections can be cured with yet more drugs,

or avoided all together by simply asking your pharmacist for " good tummy

bacteria " , the live ones " . Lactobacillus Acidophilus (they're non-prescription)

Live Culture yogurt does essentially the same thing, as it contains the very

same live bacteria. In either case, make sure to rinse your mouth and throat

with water immediately after you eat or drink anything, then swish a bit of your

live good bacteria around in your mouth and swallow.

17. Antihistamines. No. No. No. No. No. And most especially not when on one of

the cyclene family of antibiotics. Your immune system is one of the biggest

factors in your recovery, one of the big superpowers in the war against disease.

The antibiotics will kill some percentage of the bacteria each cycle while your

immune system kills off the ones that were weakened. Together, the antibiotics

and your body create a team to defeat the bacteria. Antihistimines, like

Benadryl, turn off your immune system! All they do is make sure that you suffer

longer! Further, the cyclene family of antibiotics doesn't actually kill the

bacteria, but rather just stops them from growing and relies on your immune

system to kill them.

18. Natural herbs and such. A stroll through your local herbal and natural foods

shop will provide you with an amazing array of itmes which claim to do all sorts

of good things. Anything that says " boosts your immune system " might be a good

idea. Purely optional, although a number of herbal concoctions have actually

been shown to do as they claim.

19.Caffeine. Surpresses the immune system, which is very bad. Give up that

morning coffee and that afternoon coke.

20. Alcohol. Worse for you than caffeine. Unless you just want to be sick

longer, no alcohol!

21. Smoking. Haven't you been lectured about this enough yet? Now would be a

really good time to quit.

22. Rest. You're going to need a lot of it. Even after you begin to feel better,

remember your body is still fighting off a rather nasty infection. Don't overdo

it. Without sufficient rest, recovery just takes longer.

23.Hot drinks. Let them cool off to luke-warm first. Hot fluids tend to make the

dead layers of cells on your tongue rather thick to protect them from the

scalding heat. This means more stuff for yeast infections to grow in.

Chart it!

Make a chart of your symptoms! Get some graph paper, on the left-hand column

list your symptoms and various affected body parts, and then across the top

number the days. Each day, fill in the appropriate squares with the severity of

your symptoms. Hurts like crazy? Fill that square in. Hurts just a little? Maybe

just put a line across the bottom of the square. Record the worst of each

symptom each day. You'll notice that some move gradually up and down, some might

appear constant, and others can blink in and out in just a day. Now you have a

record. With this record, you can help you and your doctor figure out exactly

what to expect when, and even make a prediction on when you'll feel 100% normal

again! Instead of being at the mercy of the disease, waking up each morning and

wondering " whats the torture of the day going to be? " , or wondering " When is it

ever going to end? " , you could be looking at your chart and knowing exactly what

to expect and when! Of course, you still have to map that first cycle, but from

there on out you're not just blindly muddling along!

Sometimes interpreting your chart can be difficult. For instance, some body

parts may feel fine during the first month or two, only to become painful later

on. Reason being, is that they started out numb, and as the bacteria died away

the feeling came back to that area. Physical symptoms that started out painful

should show themselves fading away with each cycle. Basic energy level should

rise each month, although there may only be a slight increase between the first

two cycles. Neuro symptoms should also improve slightly each month, but they

will be the last ones to finally clear up.

The Lyme bacteria appears to stick very tightly to its cyclical schedule. These

cycles tend to be about 21 days in men, 30 days in women. If your symptoms don't

appear to be going down with each cycle, then consult your doctor about

increasing the antibiotic levels, adding another, switching, or whatever the

attack plan they might suggest.

Because the physical symptoms disappear first and the psychological ones are

sometimes difficult to measure, your doctor may ask you to begin recording your

temperature a few times a day once your symptoms are nearly cleared. When you've

gone through a few full cycles without sign of a fever, you're done!

The Lyme bacteria will typically have a peak intensity sometime during its cycle

each month. Beginning, middle, or end is a matter of chance and at what point

you start your charting. But it can be very frustrating to start your

antibiotics on the low end of a cycle, only to find yourself feeling worse and

worse as the days go by. Which is why you are keeping a chart! It is completely

irrevelant to use day-to day or even week-to-week comparisons for whether you

are improving. The only reliable way to tell is to compare each months chart and

see if the symptoms are improving overall. Again frustraintg, because you really

can't tell if you're improveing for at least one full cycle. Unless of course,

you're one of those miracle Rocephin cures, which is rare. The rest of us suffer

for a month, and then begin comparing each month's date to the previous to see

if there is improvement.

Typical uncomplicated recovery. Before starting your antibiotics you might find

yourself feeling pretty bad, or at the least, not very good. Once you start

though:

Oh my God, I'm gonna Die.

Ugh, I feel horrible.

Feeling bad.

Feeling much better.

Wow! I feel pretty good!

Symptoms gone!

Now Cycle 1 Cycle 2 Cycle 3 Cycle 4

This chart assumes many things, mostly that nothing goes wrong, that the choice

of antibiotic and its level are correct from the start, etc..It is intended to

be an example of how a typical recovery might feel.

The Lyme Disease Cycle. Is not really 30 days precisely. Rather, in women it

tends to match their menstrual cycle in number of days. In men the cycle is

usually around 21 day. But again, these vary from person to person. The only way

to know for sure is to make a chart of your symptoms and then begin looking for

patterns.

There are many different strains of Lyme Disease. Fortunately there is also a

vareity of antibiotics. The trick is to find the antibiotics which your stain is

susceptible to and that your body will tolerate in high doses. This can be

extremely discouraging, to spend weeks or months on a particular antibiotic,

only to figure out that it isn't working. This is one reason that Lyme Disease

is frequently treated with two different antibiotics at the same time. Another

is that doubling up provides a much higher kill rate. If the first set of

antibiotics you try doesn't seem to be doing much, don't be afraid to ask you

doctor for a few short trials of some others. Try each one for three days.

Remember how you felt each third day. Continue with the one/ones which hit you

the hardest.

Cephalosporins - When they work, they work extremely well. This family is

effectively an " instant " kill, meaning that it can kill the bacteria regardless

of the stage of the its life-cycle. Naturally, like everything else, they're

more effective during the reproductive cycle. But, essentially, this class of

antibiotics pokes holes in the bacterial cell wall and causes the little buggers

to bleed to death.

Penicillans - This class blocks cell wall formation during the reproductive

cycle of the bacteria. They are a slow-kill antibiotic, but usually highly

effective.

Cyclenes - Generally gum up the DNA of the bacteria. Without functioning DNA,

the bacteria can't reproduce or grow.

Advanced Macrolides - Block protein synthesis in the bacteria. Without proteins,

the bacteria have a difficult time doing much of anything.

Metrodizanol - Does three things: gums up the bacterial DNA, suffocates the

bacteria that may be in anaroebic mode, and breaks their little legs so they

can't run and hide (almost literally! The bacateria use their flagellum to

escape attacking white blood cells, but without functioning flippers, they

become easy targets). One possible problem with this antibiotic, is that it may

be a tad too useful. By enabling the immune system to see and catch the bacteria

the body is suddenly hit with the realizationthat there is tremendous infection

going on. The immune system response can be intense. Possibly a great choice for

" mop-up " later in treatment.

Antibiotics dosage and duration. Typical bacteria have very short cycle times,

usually measured in hours or minutes. This means, that an antibiotic that is

given at a standard rate to produce an effective 10-20% kill rate can kill a

typical infection in just a matter of a few days. With each cycle the antibiotic

kills some percentage of whatever bacteria are still left. When the numbers get

low enough your body cleans up the stragglers, thus keeping the " percentage of

what's left " from becomming one of those " limits that never reach zero " problems

that you dreaded back in high school algebra. The Lyme bacteria behaves the same

way. With each cycle the standard rate of antibiotics will kill some percentage

of whatever is there. Except that the lyme bacteria has a cycle time measured in

weeks! (3-4) It could take years to kill the infection at standard rates!

Antibiotics are dosed quite high, and often combined, in order to achieve the

highest kill rate possible without killing the patient (you) in the process. But

even forcing a very high kill rate can still take 4-6 months before the levels

are brought down far enough for your body to overwhelm the stragglers. The other

reason that antibiotic levels are kept very high for Lyme Disease treatment is

that the bacteria isn't just in one or two easy-to reach places. It's

everywhere. That includes the central nervous system (CNS) and inside cells,

joints, etc, etc....Many antibiotics have a difficult time reaching these places

in concentrations high enough to effectively kill the disease in these areas.

Don't let your doctor underdose treatment options and effective dosage rates.

Duration, or how long you stay on the high rate of antibiotics is just as

important. A typical infection by a typical bacteria is beaten to death for many

cycles past when it should have all been dead, just to make sure. Why not the

same with Lyme? Currently, you'll be lucky if your doctor agress to one full

cycle symptom-free. Press for one full cycle fever-free. If you manage to stay

on antibiotics for anything after that, consider yourself blessed. But 3-4

fever- free cycles, assuming that you're back living a healthy lifesytle and

doing what you can to keep your immune system pumped up in top condition, well,

that should to it. Time to stop and see if it's really as dead as we all hope it

is.

Back to Lyme Page/Home

> > > > > >

> > > > > >

> > > > > > I just got the results of my Igenex Lyme test and it is Negative -

but the ILADS Dr. I saw is saying that I have two bands that are positive even

though the test had a negative result...and he feels I need to be treated.

> > > > > >

> > > > > > Does anyone understand this? I thought that paying more for an

Igenex test that the results wouldbe more accurate...now I'm just really

confused. I don't understand.

> > > > > >

> > > > > > I'm having a really hard time with this today. I took my children

shopping yesterday and my 3 year old found a doll that shewas in love with - you

should have saw her face... Normally I would have went back and bought her the

doll for Christmas, but right now I can't because it was cloth... I cried and

cried. I just hope and pray she will know what a " normal " life is someday. It

breaks my heart.

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Big change on this writing, advise against antibacterial soap, or any unnatural

soaps, or shampoo.

> > > > > > >

> > > > > > >

> > > > > > > I just got the results of my Igenex Lyme test and it is Negative

- but the ILADS Dr. I saw is saying that I have two bands that are positive even

though the test had a negative result...and he feels I need to be treated.

> > > > > > >

> > > > > > > Does anyone understand this? I thought that paying more for an

Igenex test that the results wouldbe more accurate...now I'm just really

confused. I don't understand.

> > > > > > >

> > > > > > > I'm having a really hard time with this today. I took my children

shopping yesterday and my 3 year old found a doll that shewas in love with - you

should have saw her face... Normally I would have went back and bought her the

doll for Christmas, but right now I can't because it was cloth... I cried and

cried. I just hope and pray she will know what a " normal " life is someday. It

breaks my heart.

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

I guess I thought by paying more for the " best " test - I would either get a

positive or a negative. I'm scared of this Lyme monster...wondering...do most

people recover from it? Or is it more often chronic? Does this mean that I have

Morgellon's or can you just get Lyme from the mites? Ever feel like giving up??

=)

> > > > > >

> > > > > >

> > > > > > I just got the results of my Igenex Lyme test and it is Negative -

but the ILADS Dr. I saw is saying that I have two bands that are positive even

though the test had a negative result...and he feels I need to be treated.

> > > > > >

> > > > > > Does anyone understand this? I thought that paying more for an

Igenex test that the results wouldbe more accurate...now I'm just really

confused. I don't understand.

> > > > > >

> > > > > > I'm having a really hard time with this today. I took my children

shopping yesterday and my 3 year old found a doll that shewas in love with - you

should have saw her face... Normally I would have went back and bought her the

doll for Christmas, but right now I can't because it was cloth... I cried and

cried. I just hope and pray she will know what a " normal " life is someday. It

breaks my heart.

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Les You do have a positive with band 18, just not a CDC positive. The CDC needs

to reevaluate this, and have not for the insurance companies.

I felt like burning my farm down and giving up. I am so glad I did not give up.

Now my life is back, well almost I lost my companion.

Yes lyme can be chronic. I think one always has it. But life can be regained,

perhaps close to the same. Control with lyme perhaps more than cure. You have a

road ahead of recovery and pain, you must fight this beast.

Morgellon is a name from the internet, perhaps just a co-infection of lyme. Do

you have who knows our government and medical society has let us down on this

one.

Focus on what you know and what you can do, stay positive.

My heart feels for you dear, my head tells me you must grow strong and fight

this beast.

> > > > > > >

> > > > > > >

> > > > > > > I just got the results of my Igenex Lyme test and it is Negative

- but the ILADS Dr. I saw is saying that I have two bands that are positive even

though the test had a negative result...and he feels I need to be treated.

> > > > > > >

> > > > > > > Does anyone understand this? I thought that paying more for an

Igenex test that the results wouldbe more accurate...now I'm just really

confused. I don't understand.

> > > > > > >

> > > > > > > I'm having a really hard time with this today. I took my children

shopping yesterday and my 3 year old found a doll that shewas in love with - you

should have saw her face... Normally I would have went back and bought her the

doll for Christmas, but right now I can't because it was cloth... I cried and

cried. I just hope and pray she will know what a " normal " life is someday. It

breaks my heart.

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

This is Dr. ' point. It you see an 18 antibody that has a positive, you

have Lyme. You do not need to check any other bands, because the 18 antibody is

highly specific to Lyme—just like a tusk on an elephant.

http://www.personalconsult.com/articles/drjonesapproach.html

> > > > > > > >

> > > > > > > >

> > > > > > > > I just got the results of my Igenex Lyme test and it is

Negative - but the ILADS Dr. I saw is saying that I have two bands that are

positive even though the test had a negative result...and he feels I need to be

treated.

> > > > > > > >

> > > > > > > > Does anyone understand this? I thought that paying more for an

Igenex test that the results wouldbe more accurate...now I'm just really

confused. I don't understand.

> > > > > > > >

> > > > > > > > I'm having a really hard time with this today. I took my

children shopping yesterday and my 3 year old found a doll that shewas in love

with - you should have saw her face... Normally I would have went back and

bought her the doll for Christmas, but right now I can't because it was cloth...

I cried and cried. I just hope and pray she will know what a " normal " life is

someday. It breaks my heart.

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[Guest guest]

I'm so so sorry les lee. What a shame. I know on my Igenex test my husband's Lyme test showed more bars than mine did, but I definitely do have Lyme Disease. I'm treating with teasel, an herb, and I feel better from a $12 bottle of that than I did for 18 months of antibiotics. Let me know if you want to get some teasel... recommended by lots of alternative Lyme docs.

Lyme

I just got the results of my Igenex Lyme test and it is Negative - but the ILADS Dr. I saw is saying that I have two bands that are positive even though the test had a negative result...and he feels I need to be treated.Does anyone understand this? I thought that paying more for an Igenex test that the results wouldbe more accurate...now I'm just really confused. I don't understand.I'm having a really hard time with this today. I took my children shopping yesterday and my 3 year old found a doll that shewas in love with - you should have saw her face... Normally I would have went back and bought her the doll for Christmas, but right now I can't because it was cloth... I cried and cried. I just hope and pray she will know what a "normal" life is someday. It breaks my heart.

[Guest guest]

Les Lee,

The other thing is if you buy the doll and it is cloth, you can put once a week in the oven at low temperature - about 150 degrees for an hour on baking paper and it will kill this organism. I used to put my husband's denim pants in the oven to kill the stuff in the waistband of his pants. No biting after that. If you did it once a week, I'm sure they would no longer go to the doll... I used to go up to 200 degrees for the pants, but may not go that high for a doll, depending on the hair, etc.

Re: Lyme

Les leePlease buy the clothe doll. Just make sure you do not handle the doll. I keep a huge amount of toys here for my grankids. I give them a light spray of my Oragne mixer that I spray everything with. When I was very infested. I would once a month gentle wash the stuff animals and dry them on medium heat all day long with the original bounce sheet. Than I still give them a light misting everytime I treat the room they are in which is my living room. My bedroom and living room are attached and they are my most infested areas. The dolls sit right by my bedroom door on a plastic 3 drawer storage bin. I have never gotten bit by their toys when cleaning. Nor have I seen them itch after laying all over the stuff animals. I am animate though at not letting them lay on the floor or my bed just as soon as the dolls are left laying I put them back up on the storage bin. So I do watch dog certain types of toys like that. If I see any toy left in an area heavily infested back when I was. I would take it and clean it with my Earth Friendly Orange plus. Hope this helps releave some stress for you. I have not thrown out any furniture or carpet. The closer I am at being well the less infested my inviroment not including my bug possed bed. My bed is less infested, but still the nest egg that this all started from when it comes to the bug part of this whole thing.In Light Lynn>> > I just got the results of my Igenex Lyme test and it is Negative - but the ILADS Dr. I saw is saying that I have two bands that are positive even though the test had a negative result...and he feels I need to be treated.> > Does anyone understand this? I thought that paying more for an Igenex test that the results wouldbe more accurate...now I'm just really confused. I don't understand.> > I'm having a really hard time with this today. I took my children shopping yesterday and my 3 year old found a doll that shewas in love with - you should have saw her face... Normally I would have went back and bought her the doll for Christmas, but right now I can't because it was cloth... I cried and cried. I just hope and pray she will know what a "normal" life is someday. It breaks my heart.>