MRI

[Guest guest]

from what i can understand of the medical profession...there is more than one

train of thought on this question.

some docs will leave it as long as possible. the reason being that you risk

losing the hearing, that surgery is inevitable and that whilst some hearing

is there, leave it be until aboslutely necessary to operate. they dont wait

until the very last minute, but they do wait.

another school of thought is to remove it as soon as possible, whilst it is

as small as possible, as they feel it is an easier job to tackle.

personally...i hold with the second, more than the first, though it kinda

depends on the prognosis.

just wanted to point out that there are skilled c-toma surgeons who will

insist on waiting...they remain skilled, some quite excellent, but is it a

good thing to wait???

regards

julie

[Guest guest]

I don't understand why any doctor would let a year go by without doing

anything! This is unbelievable! Most doctors would have operated as soon

as the cholesteatoma was first diagnosed. You could lose more of your

hearing, but letting the cholesteatoma go untouched could lead to very

serious consequences. If I were you, I would seek another opinion. Please

take care of yourself and find another doctor!

Keep us posted and may God bless you.

Terri

mri

I have already had the mri and he said it did'nt show him any reason

for the dizziness .The cholesteatoma has been in the left ear for

over a year but he don't want to operate until he has to because I

will lose most of my hearing.He is my second opinion .I go to the

neurologist March the 12th. Thank you all It helps to have someone to

talk to that really knows what I'm going through

[Guest guest]

I agree with Terri. My doctor told me that removing the cholesteatoma was top priority. Concern with my hearing was secondary. Is there another doctor that you could go to for a third opinion?

I know we all want to put off surgery as long as possible. It's in our nature But this is one disease you don't want to mess around with. C-toma grows and destroys bone as it goes. The longer you let it go ... the more damage it can do. If left untreated, it can even become life threatening.

Take care,

Terri Potts <tpotts@...> wrote: I don't understand why any doctor would let a year go by without doinganything! This is unbelievable! Most doctors would have operated as soonas the cholesteatoma was first diagnosed. You could lose more of yourhearing, but letting the cholesteatoma go untouched could lead to veryserious consequences. If I were you, I would seek another opinion. Pleasetake care of yourself and find another doctor!Keep us posted and may God bless you.Terri-----Original Message-----From: poorblnde [mailto:poorblnde@...]Sent: Wednesday, February 27, 2002 6:44 AMcholesteatoma Subject: mriI have already had the mri and he said it did'nt show him any reasonfor the dizziness .The cholesteatoma has been in the left ear forover a year but he don't want to operate until he has to because Iwill lose most of my hearing.He is my second opinion .I go to theneurologist March the 12th. Thank you all It helps to have someone totalk to that really knows what I'm going through

[Guest guest]

I second Terry and Diane. My doctor emphasised that my hearing was secondary

to a safe ear. To let this thing grow is not a good idea. I know in adults

it doesn't seem to grow as fast as in children but mine was still

dangerously close to invading my brain. And they cannot tell without surgery

how big a ctoma is or just how much damage it has done.

Keep us informed. We care!

Jane

>From: " poorblnde " <poorblnde@...>

>Reply-cholesteatoma

>cholesteatoma

>Subject: mri

>Date: Wed, 27 Feb 2002 11:44:11 -0000

>

> I have already had the mri and he said it did'nt show him any reason

>for the dizziness .The cholesteatoma has been in the left ear for

>over a year but he don't want to operate until he has to because I

>will lose most of my hearing.He is my second opinion .I go to the

>neurologist March the 12th. Thank you all It helps to have someone to

>talk to that really knows what I'm going through

>

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

Hi,

My son Zach had his post op appointment for his right ear cholesteatoma

yesterday, and I just wanted to reply to this. First off, Zach's

first opinion doctor said much the same thing about waiting. He said

that Zach had a stable cholesteatoma and that we should wait it out

and get him a hearing aid. His scond doctor said this was simply

not an option--he already had a severe hearing loss at six years old, and

that by leaving it in there it could be life threatening causing facial

paralysis and possibly an infection in the brain and the inner ear that

would lead to a permanent hearing loss. He also said what 's

doctor said--the hearing was secondary and we would deal with that after

the cholesteatoma was removed (which we did and thankfully he has regained

most of his hearing with the prothesis in his left ear. They did

wait a year to go in and operate on the right ear because they really wanted

to make sure he had at least one good ear. It turns out the damage

in the right ear was very extensive so we are hoping that the prosthesis

will work in this ear.

I am still so amazed that the first doctor did not want to operate--he

is well known in the field but had a very different opinion about the prognosis.

Also, they told me that Zach had some anatomical variation in his right

ear so one of his facial nerves was in a slightly different place than

usual--they believed that many doctors may have accidentally severed that

nerve--this also made me so thankful that I found the doctor I did.

Every situation is different but the more opinions you have the better

you will feel.

Good luck,

wrote:

I agree with Terri. My doctor told me that removing the cholesteatoma

was top priority. Concern with my hearing was secondary. Is

there another doctor that you could go to for a third opinion?

I know we all want to put off surgery as long as possible. It's

in our nature But this is one disease you don't want to mess around

with. C-toma grows and destroys bone as it goes. The longer

you let it go ... the more damage it can do. If left untreated, it

can even become life threatening.

Take care,

Terri Potts <tpotts@...> wrote:

I

don't understand why any doctor would let a year go by without doing

anything! This is unbelievable! Most doctors would

have operated as soon

as the cholesteatoma was first diagnosed. You could lose

more of your

hearing, but letting the cholesteatoma go untouched could lead

to very

serious consequences. If I were you, I would seek another

opinion. Please

take care of yourself and find another doctor!

Keep us posted and may God bless you.

Terri

mri

I have already had the mri and he said it did'nt show him any reason

for the dizziness .The cholesteatoma has been in the left ear for

over a year but he don't want to ! operate until he has to because

I

will lose most of my hearing.He is my second opinion .I go to the

neurologist March the 12th. Thank you all It helps to have someone

to

talk to that really knows what I'm going through

[Guest guest]

If it is a cholesteatoma, waiting is asking for more damage to be done since

it is the enzymes the cells excrete that destroy bone, indiscriminately -

hearing bones, bone separating the ear from the brain. I would think

waiting is a very bad idea, they don't know how much damage there is till

they get in and look.

Jane

>From: juliequill@...

>Reply-cholesteatoma

>cholesteatoma

>Subject: Re: mri

>Date: Wed, 27 Feb 2002 13:04:31 EST

>

>from what i can understand of the medical profession...there is more than

>one

>train of thought on this question.

>some docs will leave it as long as possible. the reason being that you

>risk

>losing the hearing, that surgery is inevitable and that whilst some hearing

>is there, leave it be until aboslutely necessary to operate. they dont

>wait

>until the very last minute, but they do wait.

>another school of thought is to remove it as soon as possible, whilst it is

>as small as possible, as they feel it is an easier job to tackle.

>

>personally...i hold with the second, more than the first, though it kinda

>depends on the prognosis.

>

>just wanted to point out that there are skilled c-toma surgeons who will

>insist on waiting...they remain skilled, some quite excellent, but is it a

>good thing to wait???

>

>regards

>

>julie

_________________________________________________________________

Send and receive Hotmail on your mobile device: http://mobile.msn.com

[Guest guest]

I can't believe they made you lay on top of him while they inserted I>V>, and

no I do not think a parent should have to do that. When Micah was in the

hospital any time they had to do anything painful I put him down. I wanted

him to know that he had a safe harbor and a resting place in my arms. It's

bad enough watching!! I hope everything turns out well. Keep us posted.

Loree

[Guest guest]

In a message dated 3/1/02 6:42:40 AM Pacific Standard Time, Loree5@...

writes:

> I can't believe they made you lay on top of him while they inserted I>V>,

> and

> no I do not think a parent should have to do that. When Micah was in the

> hospital any time they had to do anything painful I put him down. I wanted

>

> him to know that he had a safe harbor and a resting place in my arms. It's

>

> bad enough watching!! I hope everything turns out well. Keep us posted.

>

> Loree

>

>

Whenever has a blood draw or IV I sit him on my lap and hold him. OK,

now he is to big but I sit behind him. I leave it to a nurse or lab tech to

hold the arm. I spend the time reassuring him-counting down to when it was

done and all that.

Karyn

[Guest guest]

One of our art teachers is a man in his 60's now. About 10 years ago

he was sick and in the hospital and they had to tie him down to draw blood.

Most of our kids do better than that. tells them how to do it. He

has never minded as long as they don't make him lie on his back, that's the

hard part for him. Jessie

[Guest guest]

In a message dated 6/25/02 5:55:48 AM Pacific Daylight Time,

p_houser37@... writes:

<< Thanks again for the prayers. Please keep saying some. Pray the nodule I

have is not cancerous.

I will let you know what the results are today.

Pam >>

My prayers and thoughts are with you Pam. Will be watching for your *good

news* post!

(((((hugs))))) X12

Gail :-)

[Guest guest]

In a message dated 6/25/02 8:55:48 AM Eastern Daylight Time,

p_houser37@... writes:

> I am off to get the MRI. I am a bundle of nerves this morning. I didn't

> sleep veryw ell last night.

>

I bet Pam!!!!! How sweet your two little angels made you smile this

morning!!!! They seem to have an amazing skill, our kids!!! {{{{Hugs}}}}

as you go today!! We really are with you!!! Let us know as soon as you

can!!!!

Prayers...tons of prayers!!!

Donna

[Guest guest]

your in my prayers

hope all is good

--- Pam Houser <p_houser37@...> wrote:

>

> Hi everyone,

>

> I am off to get the MRI. I am a bundle of nerves

> this morning. I didn't sleep veryw ell last night.

>

> I tell you, seeing the twins cute little smiling

> faces this morning as they woke up really made me

> smile as well. They are so cute and precious. I love

> them soo very much. I don't know what I would do if

> they weren't in my life.

>

> Thanks again for the prayers. Please keep saying

> some. Pray the nodule I have is not cancerous.

>

> I will let you know what the results are today.

>

> Pam

>

>

>

> ---------------------------------

>

[Guest guest]

Nursing after all is a profession of

> nurturing, healing and caring. Some people obviously don't have the

skills

> it takes to do the job and I would let that be known to the people in

charge

> in the hopes that some changes be made!

> ann

>

Amen!

Betty Ann-61 yo, possibly Bipolar but undx'd, Effexor, Buspar

grandma and guardian to

- 11 yo-- Bipolar/ADHD on Depakote, Adderall, Singular

Evan - 9 yo nonverbal autism on 3 mg Risperdal, 5 mg Abilify stated March

11

- 6 yo- Bipolar/ADHD/PTSD on Tegretol, Adderall, Clonidine .1 mg,

mother to -32 yo, their mom - Bipolar/ADHD on Topamax, Singular

wife to Bob - 71 yo, Effexor and too more many meds to remember

{I've reached the age where the happy hour is a nap.}

[Guest guest]

Hi Lori,

Both of my sons had an MRI. My Oldest (age 3) had one at 12 months old with anesthesia, and (6months old) had one at 10 weeks old. He was sedated and didn't require the anesthesia. It was really easy. had a brain MRI and had a brain, spine and chest MRI. Very easy!!! Don't worry about it, Isabella won't even remember. also had his tonsils out last September and had anesthesia again with no problem, no memory of anything just that he never wants to see the ENT ever again.LOL

Crista

[Guest guest]

Ok, Now is getting cranky... could this be a day? I have sent my best wishes to Randy twice now for his MRI today. Third time is the charm?

It's a Day - me cranky too !!!!!!!!

Randy best of luck Buddy with your MRI results. Whatever the results I hope and pray you have the strength determination and positive attitude to get you threw it.

Let us know the results.

Take Care and God Bless.

Deb

[Guest guest]

You made it through the hard part today just one more step until you find out the results.

Hang in there Buddy.

Deb

[Guest guest]

Hi Dora,

When I moved to the Atlanta area from San Francisco, I had my evaluation records

transferred. However, they didn't transfer my CT scans. Seems my doctor

decided that my insurance wasn't going to pay for another CT scan and besides

the MRI would show more. He gave me the MRI scans for keeps.

Regards,

Sam

-------------- Original message --------------

Hi Sam

I am happy to her that you will soon have your CI surgery.I also first had a CT

scan and it couldnot penetrate enough to tell the condition of my cochleas so I

had to also have an MRI..this showed lots of callcification but my surgeon went

ahead with surgery and the results were great.I believ the CT scan cannot

penetrate soft tissue and the growth in my cochleas is more spongy ..I think of

it as swiss cheese.

I will be waiting to hear how surgery goes,.

Dora Weber

Nucleus Volunteer Advocate

dora_weber@...

Bilateral

N22-96

N24C-01

Cochlear Otosclerosis

[Guest guest]

Hi ,

I'm not certain about the Advanced Bionics unit but I know in the Medtronics

user manual it's very clear that you should not have an MRI. It lists many

potential problems to both the patient and the unit.

I think if you are not certain please either ask your rep, or ask the

company directly. I don't remember seeing any info for that on their web

site, but I would think if it's contraindicated for the Medtronics then it

should be the same with the Advanced Bionics. Please ask someone from the

company before you do anything that might injure you!

Also I would appreciate if you can tell us how your unit is working for you

and how was your recuperation from the surgery.

Thanks and Happy Holidays,

Jeff-NY/PA

Moderator

jeffreyscharff@...

AKA

zinsdad@...

" Knowledge speaks,

but wisdom listens. " Jimi Hendrix

>

>

[Guest guest]

--- Hi ,

Jeff is right about the MRI my neurosurgeon is taking to the people of

medtronics to see if i can have one done. To see if they can do one of

my brain for the spinal headaches. There are some other tests that can

be done it's just more painful. I will let you know next week my doc

is suppost to call me.

Sorry this is short I broke part of my left shoulder and typing with

my right hand that shoulder is to be operated on soon.

Merry Christmas Everyone

Holly Moderator

In Stimulator , " Scharff " <jeffreyscharff@m...>

wrote:

> Hi ,

>

> I'm not certain about the Advanced Bionics unit but I know in the

Medtronics

> user manual it's very clear that you should not have an MRI. It

lists many

> potential problems to both the patient and the unit.

>

> I think if you are not certain please either ask your rep, or ask the

> company directly. I don't remember seeing any info for that on their

web

> site, but I would think if it's contraindicated for the Medtronics

then it

> should be the same with the Advanced Bionics. Please ask someone

from the

> company before you do anything that might injure you!

>

> Also I would appreciate if you can tell us how your unit is working

for you

> and how was your recuperation from the surgery.

>

> Thanks and Happy Holidays,

>

> Jeff-NY/PA

> Moderator

>

>

> jeffreyscharff@m...

> AKA

> zinsdad@y...

> " Knowledge speaks,

> but wisdom listens. " Jimi Hendrix

> >

>

>

>

>

> >

>

>

>

>

[Guest guest]

WHEN OUR DAUGHTER HAD HER MRI DONE (6-27-05) TO VERIFY HER INFANTILE SCOLIOSIS

WAS IDIOPATHIC, THEY ALLOWED MY WIFE IN THE MRI ROOM WITH OUR 8 MONTH OLD

DAUGHTER. THE MACHINE WAS VERY LOUD AND THEY HAD TO WEAR EAR PLUGS. OUR

DAUGHTER WAS PUT UNDER FOR THE PROCEDURE. MY WIFE IS A NURSE AND SHE SAID THAT

THEY DO NOT ALLOW PARENTS IN THE COMPUTER VIEWING AREA BECAUSE OF POTIENTIAL

CONVERSATIONS THAT COULD TAKE PLACE WITH THE MRI PROCEDURE, WHICH IN RETURN

WOULD CAUSE THE PARENT TO GET INVOLVED WITH THEIR QUESTIONS, WHEN THE DOCTORS

NEED TO FOCUS ON WHAT THEY ARE DOING. I DO NOT KNOW IF THIS INFO WILL HELP!!

THANKS, SCOTT

[Guest guest]

Hi Jane, I have a Harrington rod. Have recently had MRI of lumbar spine

and cervical spine. No problems--just hate it because I'm a little

claustrophobic. Just kept my eyes closed the whole time-LOL. Good

Luck, Janet in SC

> Have people gone for MRIs - even though they have the rods? Is there

> anything specific one should ask/watch out for?

>

> I'm a tad nuervous given what I've read on the internet - but its

> probably okay as I can see others have gone through it. The area

they

> are looking at is the unfused part at the bottom where there is no

> metal. I'm just wondering about having the rods yanked out of my

> back?!?!?!

>

> let me know your experiences.

>

> Jane

[Guest guest]

Hello, Jane,

The distortion on my MRI was far too great to be able to read anything about any

part of

my spine. I didn't even have to go through the whole thing. After a couple of

minutes, the

technician knew it wasn't going to work out. I ended up having to do a CAT scan

with

contrast. I really hated that spinal tap. But survived it, of course

Rods yanked out of your back?!?!!?!? I had no idea about that. We're just full

of surprises,

aren't we, feisties?

Everyone have a great day!

- Jean

> Have people gone for MRIs - even though they have the rods? Is there

> anything specific one should ask/watch out for?

>

> I'm a tad nuervous given what I've read on the internet - but its

> probably okay as I can see others have gone through it. The area they

> are looking at is the unfused part at the bottom where there is no

> metal. I'm just wondering about having the rods yanked out of my

> back?!?!?!

>

> let me know your experiences.

>

> Jane

[Guest guest]

That's what I do for every MRI -- close my eyes. It helps.

Best,

cu76rn <chaquita53@...> wrote:

Hi Jane, I have a Harrington rod. Have recently had MRI of lumbar spine and cervical spine. No problems--just hate it because I'm a littleclaustrophobic. Just kept my eyes closed the whole time-LOL. Good Luck, Janet in SC> Have people gone for MRIs - even though they have the rods? Is there > anything specific one should ask/watch out for?> > I'm a tad nuervous given what I've read on the internet - but its > probably okay as I can see others have gone through it. The area they > are looking at is the unfused part at the bottom where there is no > metal. I'm just wondering about having the rods yanked out of my > back?!?!?!> > let me know your experiences.>

> Jane

[Guest guest]

My doctors have said they can't do an MRI because I have

hardware. However, they can do a 3-D CT scan instead.

I had a CT with contrast (isn't that where the radioactive stuff

injected into you, right, not really a spinal tap?)

It didn't hurt that much.

But I have had so much pain in my lower back, I suppose I'm more

tolerant of the pain.

in Oakland, CA

At 05:48 AM 8/31/2005, jrb238 wrote:

>Hello, Jane,

>

>The distortion on my MRI was far too great to be able to read

>anything about any part of

>my spine. I didn't even have to go through the whole thing. After a

>couple of minutes, the

>technician knew it wasn't going to work out. I ended up having to do

>a CAT scan with

>contrast. I really hated that spinal tap. But survived it, of course

>

>Rods yanked out of your back?!?!!?!? I had no idea about that. We're

>just full of surprises,

>aren't we, feisties?

>

>Everyone have a great day!

>

>- Jean

>

>

>

>

>

>

> > Have people gone for MRIs - even though they have the rods? Is there

> > anything specific one should ask/watch out for?

> >

> > I'm a tad nuervous given what I've read on the internet - but its

> > probably okay as I can see others have gone through it. The area they

> > are looking at is the unfused part at the bottom where there is no

> > metal. I'm just wondering about having the rods yanked out of my

> > back?!?!?!

> >

> > let me know your experiences.

> >

> > Jane

>

>

>

>

>

>

>

>

>Support for scoliosis-surgery veterans with Harrington Rod

>Malalignment Syndrome. Not medical advice. Group does not control

>ads or endorse any advertised products.

>

[Guest guest]

Jane - I had several MRIs done before revision surgery. I couldn't feel any pull. the x-rays were distorted due to the metal. They just did the lower part of my back. Kathy G.meadsem <janemeadus@...> wrote:

Have people gone for MRIs - even though they have the rods? Is there anything specific one should ask/watch out for?I'm a tad nuervous given what I've read on the internet - but its probably okay as I can see others have gone through it. The area they are looking at is the unfused part at the bottom where there is no metal. I'm just wondering about having the rods yanked out of my back?!?!?!let me know your experiences.Jane__________________________________________________