MRI

[Guest guest]

NB..I can't understand why they can't do an MRI because I have the rods/screws in my back and have had at least 3 since my surgery..Did he give you a reason why he wouldn't?..Jill

-- Re: Re: MRI

My doctors have said they can't do an MRI because I have hardware. However, they can do a 3-D CT scan instead.I had a CT with contrast (isn't that where the radioactive stuff injected into you, right, not really a spinal tap?)It didn't hurt that much.But I have had so much pain in my lower back, I suppose I'm more tolerant of the pain. in Oakland, CAAt 05:48 AM 8/31/2005, jrb238 wrote:>Hello, Jane,>>The distortion on my MRI was far too great to be able to read >anything about any part of>my spine. I didn't even have to go through the whole thing. After a >couple of minutes, the>technician knew it wasn't going to work out. I ended up having to do >a CAT scan with>contrast. I really hated that spinal tap. But survived it, of course >>Rods yanked out of your back?!?!!?!? I had no idea about that. We're >just full of surprises,>aren't we, feisties?>>Everyone have a great day!>>- Jean>>>>>>> > Have people gone for MRIs - even though they have the rods? Is there> > anything specific one should ask/watch out for?> >> > I'm a tad nuervous given what I've read on the internet - but its> > probably okay as I can see others have gone through it. The area they> > are looking at is the unfused part at the bottom where there is no> > metal. I'm just wondering about having the rods yanked out of my> > back?!?!?!> >> > let me know your experiences.> >> > Jane>>>>>>>>>Support for scoliosis-surgery veterans with Harrington Rod >Malalignment Syndrome. Not medical advice. Group does not control >ads or endorse any advertised products.>

[Guest guest]

Two different doctors said that the images would have too many

" artifacts " in the scan. I asked a technician what this was, and he

said it was something like reflections. In other words, the scans

wouldn't be that accurate.

NB

At 02:31 PM 8/31/2005, Jill wrote:

>NB..I can't understand why they can't do an MRI because I have the

>rods/screws in my back and have had at least 3 since my surgery..Did

>he give you a reason why he wouldn't?..Jill

>

>-- Re: Re: MRI

>

>My doctors have said they can't do an MRI because I have

>hardware. However, they can do a 3-D CT scan instead.

>

>I had a CT with contrast (isn't that where the radioactive stuff

>injected into you, right, not really a spinal tap?)

>

>It didn't hurt that much.

>

>But I have had so much pain in my lower back, I suppose I'm more

>tolerant of the pain.

>

> in Oakland, CA

>

>At 05:48 AM 8/31/2005, jrb238 wrote:

> >Hello, Jane,

> >

> >The distortion on my MRI was far too great to be able to read

> >anything about any part of

> >my spine. I didn't even have to go through the whole thing. After a

> >couple of minutes, the

> >technician knew it wasn't going to work out. I ended up having to do

> >a CAT scan with

> >contrast. I really hated that spinal tap. But survived it, of course

> >

> >Rods yanked out of your back?!?!!?!? I had no idea about that. We're

> >just full of surprises,

> >aren't we, feisties?

> >

> >Everyone have a great day!

> >

> >- Jean

> >

> >

> >

> >

> >

> >

> > > Have people gone for MRIs - even though they have the rods? Is there

> > > anything specific one should ask/watch out for?

> > >

> > > I'm a tad nuervous given what I've read on the internet - but its

> > > probably okay as I can see others have gone through it. The area they

> > > are looking at is the unfused part at the bottom where there is no

> > > metal. I'm just wondering about having the rods yanked out of my

> > > back?!?!?!

> > >

> > > let me know your experiences.

> > >

> > > Jane

> >

> >

> >

> >

> >

> >

> >

> >

> >Support for scoliosis-surgery veterans with Harrington Rod

> >Malalignment Syndrome. Not medical advice. Group does not control

> >ads or endorse any advertised products.

> >

[Guest guest]

I have had more than one MRI, but due to the artifacts on the films,

it was difficult to read them. It depends on what area of your spine

is being diagnosed, the quality of the equipment, etc. Although it

was far less pleasant, a CT/myelogram provided much more conclusive

information in my case!

However, the artifacts do make for very interesting images!

> > > > Have people gone for MRIs - even though they have the rods?

Is there

> > > > anything specific one should ask/watch out for?

> > > >

> > > > I'm a tad nuervous given what I've read on the internet -

but its

> > > > probably okay as I can see others have gone through it. The

area they

> > > > are looking at is the unfused part at the bottom where there

is no

> > > > metal. I'm just wondering about having the rods yanked out

of my

> > > > back?!?!?!

> > > >

> > > > let me know your experiences.

> > > >

> > > > Jane

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >Support for scoliosis-surgery veterans with Harrington Rod

> > >Malalignment Syndrome. Not medical advice. Group does not

control

> > >ads or endorse any advertised products.

> > >

[Guest guest]

I have had several MRIs with hardware and without. I always make sure

that I am good and tired when I got in there and then I take a nap as

they are doing it. It goes much quicker that way. It was tough for

them to see anything around the hardware, but when they were in places

without the hardware they could see what they were looking for.

I had my rods removed and it wasn't to big of a deal. Any surgery is

a big deal, but having them taken out is a lot easier than having them

put in. This last time when they took the hardware out I felt

immediate relief from the time I woke up until the time I left the

hospital.

> Have people gone for MRIs - even though they have the rods? Is

there

> anything specific one should ask/watch out for?

>

> I'm a tad nuervous given what I've read on the internet - but its

> probably okay as I can see others have gone through it. The area

they

> are looking at is the unfused part at the bottom where there is no

> metal. I'm just wondering about having the rods yanked out of my

> back?!?!?!

>

> let me know your experiences.

>

> Jane

[Guest guest]

Hi, --

You have probably explained this before, but could you refresh my

memory -- what happened when you left the hospital?

On another subject, I am so sorry about your daughter's scoliosis. I

am also sorry to hear that you have had so much trouble with the

doctor. Too bad you have to go back to the same guy -- IMNSHO,

either he can't take a hint that his interpersonal skills leave

something to be desired, or he doesn't much care.

Best,

> This last time when they took the hardware out I felt

> immediate relief from the time I woke up until the time I left the

> hospital.

[Guest guest]

Hi ,

All was good for about three months after I left the hospital, then

my lumbar spine started to curve again. Supposedly the fusion is

solid so there is no explination for what is going on. I can't

believe the entire fusion is solid if I am having this much movement

going on. The lumbar curve has moved 14 degrees the last I heard in

July and now the thoracic curve has moved 11 degrees. My cervical

area feels awful too, but that doesn't surprise me because of what

is going on.

We did see that 'wonderful' doctor for my daughter this morning. I

took the 7:30am appointment so that she wouldn't miss any school.

We get there and the x-rays were not on the cd as the previous

clinic had said they were, so he used the doctor's notes that I

had. He lifted the back of shirt up, had her touch her toes, rubbed

a bit and then told me to bring her back in a year. I just looked

at him and asked him if that was all he was going to do? He told me

that she isn't in the range for needing a brace yet so he wanted to

see her back in a year. What a joke. Since we didn't have any

current x-rays my opinion was that he should have had some taken. I

also asked him for some exercises for her and he told me that

exercises wouldn't help. I just shrugged my shoulders and told him

that we would just continue using the same exercises that we had

been using.

>

> > This last time when they took the hardware out I felt

> > immediate relief from the time I woke up until the time I left

the

> > hospital.

[Guest guest]

,

I am so sorry to hear that your daughter's doctor is not doing what

he should be. Not even to order current scoli films for her, and not

to make sure of having her previous x-rays? How can he possibly

assess any progression of the scoliosis?

Assuming your daughter is in or near her prepubertal growth spurt,

and given the possibility that her scoliosis could be worsening, I

can not imagine how anyone could tell you to come back one year from

now.

Should we be starting a new " Feisty " listing of " Doctors to Avoid at

All Costs " ?

Sorrowfully,

> >

> > > This last time when they took the hardware out I felt

> > > immediate relief from the time I woke up until the time I left

> the

> > > hospital.

[Guest guest]

The only problem with avoiding this doctor is that there is no other

doctor to go and see in this area. We are actually 'lucky' to at

least have someone here who can see the kids. And there is no adult

scoliosis doctors here at all. If chose to go elsewhere I would

have to take her Minneapolis with me and with that being a four hour

car ride I don't really like that idea either.

I'm in a sticky spot, but I plan to keep a close eye on how she is

walking, standing, moving, etc.... and if I think it is a problem he

will be sure to x-ray her sooner or I will just decide that she has

some other problem and have another doctor x-ray her for this

problem that I dreamed up and then ask the x-ray tech to meaure her

curves, 'since we have the x-ray anyway'.

Where this is will there is a way.

> > >

> > > > This last time when they took the hardware out I felt

> > > > immediate relief from the time I woke up until the time I

left

> > the

> > > > hospital.

[Guest guest]

I know that if anyone can find a solution, it is you, . You

are such a can-do person!

Best,

> > > >

> > > > > This last time when they took the hardware out I felt

> > > > > immediate relief from the time I woke up until the time I

> left

> > > the

> > > > > hospital.

[Guest guest]

Hi Eva,

My son who is 13 would get bad headaches with some episodes. The ID MD

thought is sounded like his fever caused some migraines. did get an MRI

and it was normal. He doesn't get them so much anymore. His head will hurt but,

not like a migraine hurt. Hope this helps.

Gretchen and

Auburn, Washington

Jeff <evakirstie@...> wrote:

Hi, my son is scheduled for a MRI soon. He gets

headaches before and during fevers. But lately he has

been getting them without fevers. I'm just wondering

if the headaches are a big problem with ers and

has anyone gotten an MRI for them. And what did they

find. Thanks- Eva

__________________________________________________________

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[Guest guest]

Hi Eva,

My daughter who is almost 10 gets headaches everytime, in fact that is

the first sign that an episode is coming on. She does get them in

between episodes too at times. We have never had an MRI. I am prone

to headaches so I just assumed that she is alot like me with the ones

she gets in between episodes. If they were to get too often I would

probably go that route, but they are not out of control at this point.

Hope this helps.

Paris(Mother to Rebekah 9-)

>

> Jeff <evakirstie@...> wrote:

> Hi, my son is scheduled for a MRI soon. He gets

> headaches before and during fevers. But lately he has

> been getting them without fevers. I'm just wondering

> if the headaches are a big problem with ers and

> has anyone gotten an MRI for them. And what did they

> find. Thanks- Eva

>

> __________________________________________________________

> Sponsored Link

>

> Mortgage rates near 39yr lows.

> $420k for $1,399/mo. Calculate new payment!

> www.LowerMyBills.com/lre

>

>

>

>

>

> ---------------------------------

> Sponsored Link

>

> Mortgage rates near 39yr lows. $420,000 Mortgage for $1,399/mo -

Calculate new house payment

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>

[Guest guest]

We had our son's MRI done at CHOA with sedation. They were very professional and

on schedule. Our child (age 3) was pretty out of it after the MRI for a couple

of hours so I am not sure I would try to combine the dentist. The sedation made

he pretty grumpy and we were pretty whipped after the procedure as well.

Sent from my Verizon Wireless BlackBerry

MRI

My son is 9 yrs old and is going to have to have a full bone density scan and

MRI of the brain. If I had to chose between Egelston and Childrens' at ish

Rite have any of you had good or bad experiences at either? Anything I should

prepare for as this is the first time he will be sedated and I am trying to

schedule everything on the same day (including his dentist).

----------------

Building a website is a piece of cake.

Small Business gives you all the tools to get online.

<http://us.rd./evt=48251/*http://smallbusiness./webhosting/?p=\

PASSPORTPLUS>

[Guest guest]

We have had MRI's at both ish Rite and Egleston. Egleston

seemed more patient and nurturing than ish Rite. ish Rite

was very hurried and rushed once we got in the room - after we of course

sat around for an hour waiting for them. If you can do everything

at the hospital (dental included) while under sedation definitely do it.

We at one time had 4 doctors in the OR with our child - it was like a tag

team - each doing their thing then letting the next one take over.

It was hard from a scheduling point but less traumatic in the end of

having to go back for additional procedures.

Good Luck!

-------------- Original message --------------

From: Caroline <caroline_hull@...>

My son is 9 yrs old and is going to have to have a full bone density

scan and MRI of the brain. If I had to chose between Egelston and

Childrens' at ish Rite have any of you had good or bad experiences

at either? Anything I should prepare for as this is the first time he

will be sedated and I am trying to schedule everything on the same day

(including his dentist).

[Guest guest]

Dear Rae,

Thank you for the info. It is so important - now I have bigger picture of all

the reasons of poor reflex patterns integration.

Tactile and Neuro-Structural Reflex Integration twice-three times a week will

be the most helpful. In two years we will be able to see the changes. And there

will be!!! Regular work is the basis for that. We have children with close

sympthoms - changes are huge!!! Rae, where do you live? In closer to

San-Francisco - then we can guide you to the specialists that attanded our

Family Workshop Conference - they will be great for Tactile and Neuro-Structural

Reflex Integration.

Best wishes of successes,

Svetlana Masgutova, Ph.D.

Rae <raeofhope1@...> wrote:

Hello Everyone,

This email is to ask Svetlana or anyone qualified about our grandson '

MRI. Svetlana had wanted to see his mri during the last private session

that had. Following, is the transcription of the MRI. Someone may

have an insight as to which reflexes might help.

History:

CNS malformation associated with tuberous sclerosis. A follow-up comparison

6/24/05 and 4/25/05.

Findings:

Technique: Sagittal T1, axial T2, axial Flair, coronal flair, axial

diffusion images. Coronal MPGR, coronal SPGR. Axial T!. Post gadolinium

axial and coronal T1.

Patient has a mild enlargement of the third ventricle with normal size of

other ventricles. There are several sub ependymal nodular densities some of

which display enhancement in the frontal and right postero parietal region

of the lateral ventricle. In the right parieto-occipital region of the

lateral ventricle. In the right parieto-occipital region there is extensive

abnormality of cortex and subcortical white matter with thickening and

abnormal signal associated with the cortex and a laminar decrease in signal

on long TR sequences at the gray-white junction. Similar finding is evident

in the right insular lobe superiorly with more extensive loss of signal than

was present previously. Patient has subtle areas of linear subcortical

increased signal near the parietal vertex and in the left temporal lobe.

Abnormality of the white matter adjacent to the atrium of the right lateral

ventricle with mass effect upon the atrium and slight enhancement are again

noted.

Impression:

Extensive changes of tuberous sclerosis with sub ependymal nodules and

regions of cortical tuber formation with laminar calcification more

extensive than previous. Other subtle subcortical white matter signal

abnormalities are evident as is typical of this entity. There is no

evidence of development of dominant mass of the brain. No abnormality of

the orbit or retina is visible.

Rizzo M MD

DD: 07/06/2007

I typed this up to invite comment if anyone has an insight. Since this mri

was done before any masgutova method was used, it will be interesting to see

if there will be improvement in 2 years when another mri would be done.

By the way, I enjoyed being with everyone at the class in San Ramon! It was

a wonderful time getting to know all the incredible people participating in

this learning experience!

Rae

[Guest guest]

Svetlana,

Thank you so much for the info. I live in Walnut Creek, which is only about

3 cities away from Oakland or San Ramon.

Are the neuro structural all the dynamic and postural? What do you mean by

neuro structural?

Rae

On 9/11/07, Svetlana Masgutova <masgutova@...> wrote:

>

> Dear Rae,

> Thank you for the info. It is so important - now I have bigger picture of

> all the reasons of poor reflex patterns integration.

> Tactile and Neuro-Structural Reflex Integration twice-three times a week

> will be the most helpful. In two years we will be able to see the changes.

> And there will be!!! Regular work is the basis for that. We have children

> with close sympthoms - changes are huge!!! Rae, where do you live? In closer

> to San-Francisco - then we can guide you to the specialists that attanded

> our Family Workshop Conference - they will be great for Tactile and

> Neuro-Structural Reflex Integration.

> Best wishes of successes,

> Svetlana Masgutova, Ph.D.

>

>

> Rae <raeofhope1@... <raeofhope1%40gmail.com>> wrote:

> Hello Everyone,

>

> This email is to ask Svetlana or anyone qualified about our grandson

> '

> MRI. Svetlana had wanted to see his mri during the last private session

> that had. Following, is the transcription of the MRI. Someone may

> have an insight as to which reflexes might help.

>

> History:

> CNS malformation associated with tuberous sclerosis. A follow-up

> comparison

> 6/24/05 and 4/25/05.

>

> Findings:

> Technique: Sagittal T1, axial T2, axial Flair, coronal flair, axial

> diffusion images. Coronal MPGR, coronal SPGR. Axial T!. Post gadolinium

> axial and coronal T1.

>

> Patient has a mild enlargement of the third ventricle with normal size of

> other ventricles. There are several sub ependymal nodular densities some

> of

> which display enhancement in the frontal and right postero parietal region

> of the lateral ventricle. In the right parieto-occipital region of the

> lateral ventricle. In the right parieto-occipital region there is

> extensive

> abnormality of cortex and subcortical white matter with thickening and

> abnormal signal associated with the cortex and a laminar decrease in

> signal

> on long TR sequences at the gray-white junction. Similar finding is

> evident

> in the right insular lobe superiorly with more extensive loss of signal

> than

> was present previously. Patient has subtle areas of linear subcortical

> increased signal near the parietal vertex and in the left temporal lobe.

> Abnormality of the white matter adjacent to the atrium of the right

> lateral

> ventricle with mass effect upon the atrium and slight enhancement are

> again

> noted.

>

> Impression:

> Extensive changes of tuberous sclerosis with sub ependymal nodules and

> regions of cortical tuber formation with laminar calcification more

> extensive than previous. Other subtle subcortical white matter signal

> abnormalities are evident as is typical of this entity. There is no

> evidence of development of dominant mass of the brain. No abnormality of

> the orbit or retina is visible.

>

> Rizzo M MD

>

> DD: 07/06/2007

>

> I typed this up to invite comment if anyone has an insight. Since this mri

> was done before any masgutova method was used, it will be interesting to

> see

> if there will be improvement in 2 years when another mri would be done.

>

> By the way, I enjoyed being with everyone at the class in San Ramon! It

> was

> a wonderful time getting to know all the incredible people participating

> in

> this learning experience!

>

> Rae

>

>

[Guest guest]

As I said, I don't have a I have a vagus nerve stimulator, it is in

the front of my body and implanted like a pacemaker on the left side

of my body.. that is something different than what you are referring

to. Please read what information I have given you.

[Guest guest]

Thanks Ian, I am not looking forward to that at all.

Last year, I had an MRI. It had to be interrupted several

times, I was burning all over!! In fact, I turned red all over, and

felt strong burning sensation....

It may have increased ES/EMS not sure.

> >

> > > Well, first of all, in order to start the healing process, you should be

> > > in an elektrosmog-poor environment.

> > > And that can only be determined with some sort of detector.

> >

> > Well, I think some of us can determine if we are in a low EMF area

> > simply by looking around, or simply by how well we feel...

> >

> > Marc

> >

>

>

>

>

>

>

>

[Guest guest]

Have you searched the database of message on this

site. This topic was brought up a couple of weeks ago and all of the info

is in there.

m:

cholesteatoma [mailto:cholesteatoma ] On

Behalf Of carrie_lynn_johnston

Sent: Friday, November 20, 2009 7:41 AM

cholesteatoma

Subject: MRI

Can an MRI help diagnose a ctoma or is a CT

scan the only way to tell? My son has had a lot of radiation already (at 3.5

yrs), and his CT showed something, but the doctor is not positive it's a ctoma,

but another CT or a surgery were the two options he gave us to find out. I am

just curious if there is another option.

[Guest guest]

Virg,

I dont recall how long mine was but definitely was too long. LOL

*---* *---* *---* *---* *---*

People who deal with bits should expect to get bitten.

-- Jon Bentley

& Dreamer Doll ke7nwn

E-mail-

rclark0276@...

Home Page-

http://webpages.charter.net/dog_guide/

MRI

> As I recall, mine took over an hour. It seemed to me that a few videos

> might have been welcome <g>. I'm not good at lying still on my back. Not

> claustrophobic - just uncomfortable and it's boring.

>

> Virg

>

>

>

> ------------------------------------

>

>

[Guest guest]

I could not hear anything (duh!) but could feel the machine working. I thought

I would close my eyes and imagine what the machine was doing. Next thing I knew,

I was being rolled out. I guess I never miss an opportunity to take a nap! <G>

Neely, Dallas Texas

>

> Virg,

> I dont recall how long mine was but definitely was too long. LOL

>

> *---* *---* *---* *---* *---*

> People who deal with bits should expect to get bitten.

> -- Jon Bentley

> & Dreamer Doll ke7nwn

> E-mail-

> rclark0276@...

> Home Page-

> http://webpages.charter.net/dog_guide/

>

> MRI

>

> > As I recall, mine took over an hour. It seemed to me that a few videos

> > might have been welcome <g>. I'm not good at lying still on my back. Not

claustrophobic - just uncomfortable and it's boring.

> >

> > Virg

[Guest guest]

An MRI is essential after the diagnosis of at least infantile scoliosis, I'm not

sure with older kids. All 3 orthos that we talked to felt one needed to be

done. The x-ray can give an indication of the cause of the scoliosis, but an

MRI is needed to definitively rule things in or out. I know they thought Cole

had spina bifida occulta based on the x-ray but the MRI ruled it out. The MRI

ruled in however a chiari malformation of the brain which the x-ray did not

indicate.

Our doctor felt that based on the x-rays that it would be safe to cast prior to

an MRI so that we did not loose any more time, Cole was 17 months I am grateful

that he did, because Cole hit a major growth spurt in that first cast that we

would have missed, along with the 24 degrees of correction we got! We got an

MRI in cast (this can be done unless metal staples are used in the cast which is

sometimes done so you need to check with your doctor).

Good luck,

Jenn

Mommy to Cole, 2.5 years, 1st brace from Rochester, 2 degrees out of brace down

from 47 after 10 months in 5 casts.

>

> Do Orthopedic Drs. routinely order MRI's after scoliosis is diagnosed?

> and can the xray make a Dr. believe congenital scoli. might be there?

> also,  do you have to wait to hear back from the MRI results?

> thx everyone,

>

>

[Guest guest]

Yes it is normal protocol to get a MRI after Scoli diagnose. They are looking for any under lining cause and anything a X Ray does not show. And it is normal for them to want to MRI the brain as well. With my daughter they did do the MRI with and without dye. I would recommend going ahead and doing that so you are not having to go back if something was found. Hope this helps.Amy J mom to Allie(4) in 3rd cast down to 13* in cast from 56*Sent from my Verizon Wireless BlackBerryFrom: Dobbs <ohana_is_love@...>Date: Wed, 26 May 2010 06:07:03 -0700 (PDT)<infantile scoliosis treatment >Subject: MRI Do Orthopedic Drs. routinely order MRI's after scoliosis is diagnosed?and can the xray make a Dr. believe congenital scoli. might be there?also, do you have to wait to hear back from the MRI results?thx everyone,

[Guest guest]

Yes it is normal protocol to get a MRI after Scoli diagnose. They are looking for any under lining cause and anything a X Ray does not show. And it is normal for them to want to MRI the brain as well. With my daughter they did do the MRI with and without dye. I would recommend going ahead and doing that so you are not having to go back if something was found. Hope this helps.Amy J mom to Allie(4) in 3rd cast down to 13* in cast from 56*Sent from my Verizon Wireless BlackBerryFrom: Dobbs <ohana_is_love@...>Date: Wed, 26 May 2010 06:07:03 -0700 (PDT)<infantile scoliosis treatment >Subject: MRI Do Orthopedic Drs. routinely order MRI's after scoliosis is diagnosed?and can the xray make a Dr. believe congenital scoli. might be there?also, do you have to wait to hear back from the MRI results?thx everyone,

[Guest guest]

Chiming in...We also found that Bex has a syrinx cyst in his spine- a small, fluid filled cyst that is too small to be removed at this time. However, we are so glad to know about it, the only way to monitor it is with MRIs. It may never grow or cause any problem, but if it grew suddenly, it could cause permanent nerve damage and even cause him to eventually become paralyzed. I say this NOT to scare you, because many kids with scoliosis don't have this- it is something I am glad we can keep an eye on, though.

That said, I wish we could go back and catch our child's growth spurt from age 17-19 months, I feel we lost precious growth time in cast. He got in a cast at 19 months. If you can do the cast first, I would do that if your child needs it. Heidi, Bexon's Mommy, (2 and a half years old, in 7th cast from Salt Lake City Shriners, currently down from 62 degrees to 19.7 in cast)

From: genericallyloud <jennifer.leggett@...>infantile scoliosis treatment Sent: Wed, May 26, 2010 6:31:24 AMSubject: Re: MRI

An MRI is essential after the diagnosis of at least infantile scoliosis, I'm not sure with older kids. All 3 orthos that we talked to felt one needed to be done. The x-ray can give an indication of the cause of the scoliosis, but an MRI is needed to definitively rule things in or out. I know they thought Cole had spina bifida occulta based on the x-ray but the MRI ruled it out. The MRI ruled in however a chiari malformation of the brain which the x-ray did not indicate. Our doctor felt that based on the x-rays that it would be safe to cast prior to an MRI so that we did not loose any more time, Cole was 17 months I am grateful that he did, because Cole hit a major growth spurt in that first cast that we would have missed, along with the 24 degrees of correction we got! We got an MRI in cast (this can be done unless metal staples are used in the cast which is sometimes done so you need to check with your doctor). Good luck, Jenn

Mommy to Cole, 2.5 years, 1st brace from Rochester, 2 degrees out of brace down from 47 after 10 months in 5 casts. >> Do Orthopedic Drs. routinely order MRI's after scoliosis is diagnosed?> and can the xray make a Dr. believe congenital scoli. might be there?> also, do you have to wait to hear back from the MRI results?> thx everyone,> >

[Guest guest]

Well her MRI is on this Friday morning, so we get that out of the way...

and then we go to Chicago for our first visit with Dr. Sturm, and then he'll figure out her cast date. she JUST turned 11 months today, so I'm so happy we found this at a young age

From: NIck Guthe <nickguthe@...>Subject: Re: Re: MRIinfantile scoliosis treatment Date: Wednesday, May 26, 2010, 1:08 PM

Chiming in...We also found that Bex has a syrinx cyst in his spine- a small, fluid filled cyst that is too small to be removed at this time. However, we are so glad to know about it, the only way to monitor it is with MRIs. It may never grow or cause any problem, but if it grew suddenly, it could cause permanent nerve damage and even cause him to eventually become paralyzed. I say this NOT to scare you, because many kids with scoliosis don't have this- it is something I am glad we can keep an eye on, though.

That said, I wish we could go back and catch our child's growth spurt from age 17-19 months, I feel we lost precious growth time in cast. He got in a cast at 19 months. If you can do the cast first, I would do that if your child needs it. Heidi, Bexon's Mommy, (2 and a half years old, in 7th cast from Salt Lake City Shriners, currently down from 62 degrees to 19.7 in cast)

From: genericallyloud <jennifer.leggett@ gmail.com>infantile scoliosis treatment @groups. comSent: Wed, May 26, 2010 6:31:24 AMSubject: [infantile_scoliosi s] Re: MRI

An MRI is essential after the diagnosis of at least infantile scoliosis, I'm not sure with older kids. All 3 orthos that we talked to felt one needed to be done. The x-ray can give an indication of the cause of the scoliosis, but an MRI is needed to definitively rule things in or out. I know they thought Cole had spina bifida occulta based on the x-ray but the MRI ruled it out. The MRI ruled in however a chiari malformation of the brain which the x-ray did not indicate. Our doctor felt that based on the x-rays that it would be safe to cast prior to an MRI so that we did not loose any more time, Cole was 17 months I am grateful that he did, because Cole hit a major growth spurt in that first cast that we would have missed, along with the 24 degrees of correction we got! We got an MRI in cast (this can be done unless metal staples are used in the cast which is sometimes done so you need to check with your doctor). Good luck,

Jenn Mommy to Cole, 2.5 years, 1st brace from Rochester, 2 degrees out of brace down from 47 after 10 months in 5 casts. >> Do Orthopedic Drs. routinely order MRI's after scoliosis is diagnosed?> and can the xray make a Dr. believe congenital scoli. might be there?> also, do you have to wait to hear back from the MRI results?> thx everyone,> >