Re: Re: Any clusterheads here perhaps .... ? -

[Guest guest]

Hannah,

I accidently deleted it when I forwarded it to Don... I want him to answer this as he is more up on this than me. He will be back on I believe Monday. Don has much more knowledge with this than I. I was p-o'd as I wanted to keep the email to do some research.... I was going to check into DMSO as one possibility for you

Suzihannahfroukje <knowitnotall@...> wrote:

Ehm ... any tips are welcome ofcourse, but in the meantime I will go on with our own path. I think with us it is beginning to get clear what the problems are, and how we could solve it best. My post was more adressed to share what helped for us. I hope that with Jos we will be able to prevent the next cycle. But any info would help to help me understand this disease in all it's lights, I'm very interested in that.Yes, his CH is due to an accident, he seems to have a lot of scartissue in his head. This makes it complicated ofcourse. He has had many regular treatments, and meds, but he stopped that quite abruptly about 8 years ago. He did have osteopathy, that was a good thing , but didn't prevent the clusters. He also tried acupuncture, didn't help for his clusters. There is a main problem in the neck area where the

important ganglions are, there are some vertebrae grown together, this can't be helped anymore unfortunately.In our case, I think it is a combination of some kind of problem in the body, not being able to convert the essential amino-acid tryptophane to 5HTP (I'm trying to correct that with homeopathic remedies now), then combined with too much alcohol, smoking (he quit now), too little vitamins and minerals (especially vitamine B and vanadium). Any tips on WHY a body could not convert tryptophane is very welcome, because that's a riddle for me yet. It could be that the lack of vanadium plays a part. He has been on 5HTP for a while, and this did him a lot of good, but I am somewhat reluctant to give that for a long time, the receptors could get used to it in my opinion. I would rather be able to correct the step that MAKES the problem, and this seems to be about tryptophane. So I'm trying to work on that.I had a hair

analysis done, and this showed the bad mineral status. He didn't have ANY trace of vanadium, nothing at all. What that means, I don't exactly know but I do know he reacts on vanadium, both the mineral and the homeopathic variant. He was also high on phosphor (logical, due to his alcohol intake and bad food pattern) and low on calcium/magnesium, and as a whole on other minerals. Also he had too much aluminium, cadmium, plumbum and arsenic (he's been working with that substances). This combined with other stuff I found, I am trying to do something about this all. He's on a diet now with essential fatty acids (including linnseedoil), vegatables, and less meat. Dieting is hard for him though, and I didn't have the idea that he's allergic to some substances (not sure ofcourse but we had him tested). He gets a low dose of melatonine to correct his sleeping pattern, homeopathics to balance out the other problems. He's taking

vitamine B-complex and a mineral supplement which holds vanadium, lithium and other trace elements. I am trying for him to get rid of the toxic substances. And we do a herbal treatment. In a year we will know if this has been enough to help make him strong and balanced enough to prevent the next cycle! I really really REALLY hope so!Suzanne, if it is allright could you send on my mail in which I explaned more in detail what helped for us? I was hoping to hear from you.Hannah> > Hi Hannah,> > Welcome to the group and if it is in nature and natural then it is of > value to this group. I do not condone abuse of anything or anyone. > However, all plants on this planet have a use in treatment of ourselves, > and animals. Some are quite potent but no

less relevant. Cluster > headaches, or migraines are easily dealt with. Those resulting from head > injuries are a little different. Has your DH had any brain scans or head > scans done? MRI's? Cat scans? Has he been to a chiropracter? There are > no pain nerves for the brain so any pain felt there usually comes from > elsewhere and only manifests itself in the head. With head injuries > there can be brain damage as well as arterial damage but one won't feel > pain as a result. This is why brain surgery needs no anesthetic. Either > of these can be handled and quite possibly reversed through proper diet > and lifestyle modification.> > What exactly does your diets consist of and please be as specific and > detailed as possible. What are your lifestyles like? What kind of water > do you drink? What is in it? Do you cook your food? What supplements do

> you use? Also what is the age of your DH?> > This is a start and I will probably have more for clarification > purposes. Awaiting your reply.> > -- > Peace, love and light,> > Don Quai> > "Spirit sleeps in the mineral, breathes in the vegetable, dreams in the animal and wakes in man."

[Guest guest]

Question: Do you and hubby drink wheatgrass? Might be something to consider.

Could possibly help... sure couldn't hurt.

Suzihannahfroukje <knowitnotall@...> wrote:

Ehm ... any tips are welcome ofcourse, but in the meantime I will go on with our own path. I think with us it is beginning to get clear what the problems are, and how we could solve it best. My post was more adressed to share what helped for us. I hope that with Jos we will be able to prevent the next cycle. But any info would help to help me understand this disease in all it's lights, I'm very interested in that.Yes, his CH is due to an accident, he seems to have a lot of scartissue in his head. This makes it complicated ofcourse. He has had many regular treatments, and meds, but he stopped that quite abruptly about 8 years ago. He did have osteopathy, that was a good thing , but didn't prevent the clusters. He also tried acupuncture, didn't help for his clusters. There is a main problem in the neck area where the

important ganglions are, there are some vertebrae grown together, this can't be helped anymore unfortunately.In our case, I think it is a combination of some kind of problem in the body, not being able to convert the essential amino-acid tryptophane to 5HTP (I'm trying to correct that with homeopathic remedies now), then combined with too much alcohol, smoking (he quit now), too little vitamins and minerals (especially vitamine B and vanadium). Any tips on WHY a body could not convert tryptophane is very welcome, because that's a riddle for me yet. It could be that the lack of vanadium plays a part. He has been on 5HTP for a while, and this did him a lot of good, but I am somewhat reluctant to give that for a long time, the receptors could get used to it in my opinion. I would rather be able to correct the step that MAKES the problem, and this seems to be about tryptophane. So I'm trying to work on that.I had a hair

analysis done, and this showed the bad mineral status. He didn't have ANY trace of vanadium, nothing at all. What that means, I don't exactly know but I do know he reacts on vanadium, both the mineral and the homeopathic variant. He was also high on phosphor (logical, due to his alcohol intake and bad food pattern) and low on calcium/magnesium, and as a whole on other minerals. Also he had too much aluminium, cadmium, plumbum and arsenic (he's been working with that substances). This combined with other stuff I found, I am trying to do something about this all. He's on a diet now with essential fatty acids (including linnseedoil), vegatables, and less meat. Dieting is hard for him though, and I didn't have the idea that he's allergic to some substances (not sure ofcourse but we had him tested). He gets a low dose of melatonine to correct his sleeping pattern, homeopathics to balance out the other problems. He's taking

vitamine B-complex and a mineral supplement which holds vanadium, lithium and other trace elements. I am trying for him to get rid of the toxic substances. And we do a herbal treatment. In a year we will know if this has been enough to help make him strong and balanced enough to prevent the next cycle! I really really REALLY hope so!Suzanne, if it is allright could you send on my mail in which I explaned more in detail what helped for us? I was hoping to hear from you.Hannah> > Hi Hannah,> > Welcome to the group and if it is in nature and natural then it is of > value to this group. I do not condone abuse of anything or anyone. > However, all plants on this planet have a use in treatment of ourselves, > and animals. Some are quite potent but no

less relevant. Cluster > headaches, or migraines are easily dealt with. Those resulting from head > injuries are a little different. Has your DH had any brain scans or head > scans done? MRI's? Cat scans? Has he been to a chiropracter? There are > no pain nerves for the brain so any pain felt there usually comes from > elsewhere and only manifests itself in the head. With head injuries > there can be brain damage as well as arterial damage but one won't feel > pain as a result. This is why brain surgery needs no anesthetic. Either > of these can be handled and quite possibly reversed through proper diet > and lifestyle modification.> > What exactly does your diets consist of and please be as specific and > detailed as possible. What are your lifestyles like? What kind of water > do you drink? What is in it? Do you cook your food? What supplements do

> you use? Also what is the age of your DH?> > This is a start and I will probably have more for clarification > purposes. Awaiting your reply.> > -- > Peace, love and light,> > Don Quai> > "Spirit sleeps in the mineral, breathes in the vegetable, dreams in the animal and wakes in man."