Re: Re: Dr Warren (Tom) Possible LDN advocate - HI FRIDAY

[Guest guest]

Hi Friday,

Probably too soon to tell about dosage - am taking 3.0 - but boy do I get tired.

Anyhow, the real push at Dr. Warren's seems to be one of his nurses. I think I know more about LDN than he does. He just gives LDN Rx to his patients when they ask, as he is quite sure it is safe at that dosage, but he is not promoting it, at least not yet. I am going to try to talk to Jeanine, and see how I might proceed to get him more interested. He is quite open minded, so I think if he gets some good info and results from us "guinea pigs" he would not hesitate to recommend it. However, he is a very, very busy guy - sometimes when I see him it almost seems like he has had no sleep - so this may take a while. But I will try my best. He is a very caring fellow.

By the way, I live in Canada, not the US, so I am waiting to see what the Canadian MS Society has to say. When I e-mailed them they got right back to me, and said their Dr.s were looking at it, but as usual have to be very careful what they say because of litigation matters, etc. Too bad lawsuits can scare off better health. TC Friday.

Tom from Edmonton

----- Original Message -----

From: Friday

low dose naltrexone

Sent: Thursday, May 20, 2004 12:26 AM

Subject: [low dose naltrexone] Re: Dr Warren (Tom) Possible LDN advocate?

Dearest Tom, I hope all is going well with your LDN and choice of dosage. One thing that has been a constant with me is the deep quality sound sleeps. Total recharge in the mornings.My Neurologist here in Sydney (and I think this Neuro is the ONLY one considering or supporting LDN) would like to have some contact with your Dr Warren. Is Dr. Warren familiar with any Neurologists here in Australia? Could you tell us, Tom, alittle about your dialog with Dr Warren regarding LDN and his views? Will he or is he bringing it up to the NMSS soon or at the next meeting or conference? I remember you telling me he is highly respected and regarded in the MS fraternity of specialists and I would love to know more about him.Thanks TomKind RegardsFriday> > By the way, there is news of actual trials being carried out at the University of Texas, Southwestern, which apparently has a large MS clinic attached to it. I am going to ask Dr. Warren - maybe Jeanine first - to see if he would like to be involved in some way.

[Guest guest]

Hi Tom,

I have rrms but had what I considered major spasticity in my abdomen. Sitting was a major problem, I found that more did less and then (accidentally) less was more. I talked with a person at Bihari's office that agreed, but I am not sure what other factors play into that. I am pretty thin, mostly muscle and bone, which made my spasticity pretty noticeable.

Hope that helps,

Tom wrote:

Hi ,

Do you mind telling us what kind of ms you have - ppms, rrms, etc. The type of MS a person has and the dosage they

take seem to be related. I have PPMS, and have just started LDN @ 3.0 mg.,

but I am beginning to think less, as they say, may be more for PPMS types.

I am also wondering if body mass has anything to do with dosage? Any ideas?

Thanks. TC

Tom from Edmonton

Tom wrote:

Hi Friday,

Probably too soon to tell about dosage

- am taking 3.0 - but boy do I get tired.

Anyhow, the real push at Dr. Warren's

seems to be one of his nurses. I think I know more about LDN than he does.

He just gives LDN Rx to his patients when they ask, as he is quite sure

it is safe at that dosage, but he is not promoting it, at least not yet.

I am going to try to talk to Jeanine, and see how I might proceed to get

him more interested. He is quite open minded, so I think if he gets some

good info and results from us "guinea pigs" he would not hesitate to recommend

it. However, he is a very, very busy guy - sometimes when I see him it

almost seems like he has had no sleep - so this may take a while. But I

will try my best. He is a very caring fellow.

By the way, I live in Canada, not the

US, so I am waiting to see what the Canadian MS Society has to say. When

I e-mailed them they got right back to me, and said their Dr.s were looking

at it, but as usual have to be very careful what they say because of litigation

matters, etc. Too bad lawsuits can scare off better health. TC Friday.

Tom from Edmonton

-----

Original Message -----

From:

Friday

To:

low dose naltrexone

Sent:

Thursday, May 20, 2004 12:26 AM

Subject:

[low dose naltrexone] Re: Dr Warren (Tom) Possible LDN advocate?

Dearest Tom,

I hope all is going well with your LDN and choice of dosage. One

thing that has been a constant with me is the deep quality sound

sleeps. Total recharge in the mornings.

My Neurologist here in Sydney (and I think this Neuro is the ONLY one

considering or supporting LDN) would like to have some contact with

your Dr Warren. Is Dr. Warren familiar with any Neurologists here in

Australia?

Could you tell us, Tom, alittle about your dialog with Dr Warren

regarding LDN and his views? Will he or is he bringing it up to the

NMSS soon or at the next meeting or conference? I remember you

telling me he is highly respected and regarded in the MS fraternity

of specialists and I would love to know more about him.

Thanks Tom

Kind Regards

Friday

>

> By the way, there is news of actual trials being carried out at the

University of Texas, Southwestern, which apparently has a large MS

clinic attached to it. I am going to ask Dr. Warren - maybe Jeanine

first - to see if he would like to be involved in some way.

[Guest guest]

Thanks .

Tom from Edmonton

----- Original Message -----

From:

low dose naltrexone

Sent: Friday, May 21, 2004 5:22 AM

Subject: Re: [low dose naltrexone] Re: Dr Warren (Tom) Possible LDN advocate - HI FRIDAY

Hi Tom, I have rrms but had what I considered major spasticity in my abdomen. Sitting was a major problem, I found that more did less and then (accidentally) less was more. I talked with a person at Bihari's office that agreed, but I am not sure what other factors play into that. I am pretty thin, mostly muscle and bone, which made my spasticity pretty noticeable. Hope that helps,Tom wrote:

Hi ,

Do you mind telling us what kind of ms you have - ppms, rrms, etc. The type of MS a person has and the dosage they take seem to be related. I have PPMS, and have just started LDN @ 3.0 mg., but I am beginning to think less, as they say, may be more for PPMS types.

I am also wondering if body mass has anything to do with dosage? Any ideas?

Thanks. TC

Tom from EdmontonTom wrote:

Hi Friday,

Probably too soon to tell about dosage - am taking 3.0 - but boy do I get tired.

Anyhow, the real push at Dr. Warren's seems to be one of his nurses. I think I know more about LDN than he does. He just gives LDN Rx to his patients when they ask, as he is quite sure it is safe at that dosage, but he is not promoting it, at least not yet. I am going to try to talk to Jeanine, and see how I might proceed to get him more interested. He is quite open minded, so I think if he gets some good info and results from us "guinea pigs" he would not hesitate to recommend it. However, he is a very, very busy guy - sometimes when I see him it almost seems like he has had no sleep - so this may take a while. But I will try my best. He is a very caring fellow.

By the way, I live in Canada, not the US, so I am waiting to see what the Canadian MS Society has to say. When I e-mailed them they got right back to me, and said their Dr.s were looking at it, but as usual have to be very careful what they say because of litigation matters, etc. Too bad lawsuits can scare off better health. TC Friday.

Tom from Edmonton

----- Original Message -----

From: Friday

low dose naltrexone

Sent: Thursday, May 20, 2004 12:26 AM

Subject: [low dose naltrexone] Re: Dr Warren (Tom) Possible LDN advocate?

Dearest Tom, I hope all is going well with your LDN and choice of dosage. One thing that has been a constant with me is the deep quality sound sleeps. Total recharge in the mornings.My Neurologist here in Sydney (and I think this Neuro is the ONLY one considering or supporting LDN) would like to have some contact with your Dr Warren. Is Dr. Warren familiar with any Neurologists here in Australia? Could you tell us, Tom, alittle about your dialog with Dr Warren regarding LDN and his views? Will he or is he bringing it up to the NMSS soon or at the next meeting or conference? I remember you telling me he is highly respected and regarded in the MS fraternity of specialists and I would love to know more about him.Thanks TomKind RegardsFriday> > By the way, there is news of actual trials being carried out at the University of Texas, Southwestern, which apparently has a large MS clinic attached to it. I am going to ask Dr. Warren - maybe Jeanine first - to see if he would like to be involved in some way.