Re: About all these MS Soc rejections....& contacting the media, etc.

[Guest guest]

Hi Lurker! Welcome aboard.

I tried our two local newspapers - couldn't be less interested. I also tried Montel - seemed kind of obvious. But no reply.

However, I still think you have a good idea - we need to find a more or less public figure who would "champion" the LDN cause, or at least get the idea around a little bit more. There have been articles in a newspaper in Scotland, and one in the US, so at least a few media people seem to be listening. But still few and far between.

Bye for now. TC

Tom from Edmonton

----- Original Message -----

From:

low dose naltrexone

Sent: Wednesday, May 19, 2004 1:57 PM

Subject: [low dose naltrexone] About all these MS Soc rejections....

Hi I'm a "lurker" on this group ~I have family members with MS and other disabilities soooo I find this really interesting and hopeful.Anyway, was thinking and wondering - Has anyone contacted the media about LDN and the stonewalling that the MS Soc. and Doctors are doing regarding scrips/research? I was thinking someone like Bill O'Reilly's no spin zone would be good~ http://www.foxnews.com/oreilly/index.html or someone on CNNLet the media people know that there is potential help avail but nobody wants to risk it, Pay for it, research it, etc. The MS Soc. (which IS supposed to be there to look into these types of things for people w/MS, that's why individuals donate to them!!) isn't doing their job. Why not start emailing heavy hitters in the news to start investigating this? Send them all the form letters being returned to you, send them information re LDN and testimony's. It's worth a try dont you think?I don't recall seeing any posts about contacting the News Media so thought I'd throw in my 2 cents worth.(this is the message that got me all fired up) Alan,ISnt it disappointing? I just got the same response (minus the dearalan part, lol). The part that annoyed me, and i continued to writeback, is that the NMSS are telling us to go out and fend forourselves once again - they're saying - "Your on your own, we are notsupporting LDN". Isnt that lovely? And here I thought they wereestablished for us. They want US to go out to our doctors and do the hard work? So, the MS Society has no spine or influence to makea trial happen? Give me a break!!!Friday