Re: Who does the mri's and checks if I get a script from Bihari?

[Guest guest]

---You don't need a doctor you have us!

In low dose naltrexone , " topknotyorkies "

<topknotyorkies@y...> wrote:

> If I go elsewhere for my ldn who then does the follow up visits and

> mri's? I'm afraid my neuro will tell me your on your own if I

treat

> myself. I'm afraid not to have a Dr. behind me with ldn in case

> anything goes wrong.... Thanks Jeanie

[Guest guest]

The doctor who gave me my script knows nothing about LDN. I am going

it " alone " with the help of the good folks on this site and others.

Larry's group (http://pub218.ezboard.com/bldnlow dose naltrexone) and

the Low Dose Naltrexone Forum (http://ldn.proboards3.com/index.cgi)

to name two. I know it's scary to go it alone, but I kind of figure

all the MRI's and snotty neuro's in the world aren't going to do me

any good, or make any difference in my disease progression /

symptoms - while the LDN just might. A roll of the dice, but

sometimes you gotta go for it.

Cinders

[Guest guest]

---That's the way I feel also!

Steve

In low dose naltrexone , " cinders57a "

<allentownusa@h...> wrote:

> The doctor who gave me my script knows nothing about LDN. I am

going

> it " alone " with the help of the good folks on this site and others.

> Larry's group (http://pub218.ezboard.com/bldnlow dose naltrexone) and

> the Low Dose Naltrexone Forum (http://ldn.proboards3.com/index.cgi)

> to name two. I know it's scary to go it alone, but I kind of figure

> all the MRI's and snotty neuro's in the world aren't going to do me

> any good, or make any difference in my disease progression /

> symptoms - while the LDN just might. A roll of the dice, but

> sometimes you gotta go for it.

>

> Cinders

[Guest guest]

Related approach here! -had one MRI 13 years ago, (helps dx.!) none

since, -didn`t visit Dr. for next 10 years: Didn`t want the imput!....The

sky didn`t fall down..........

I am not advocating that anyone should follow this possibly rather extreme

course: I did do quite a bit of investigation & application of holistic

lifestyle approaches, diet, nutritional sups., exercise etc.etc.(I still

do....)

I`m just making the point that one doesn`t have to slavishly restrict

oneself to following an " authority " if it doesn`t seem to have anything

useful to offer! There are many helpful supports out there, we don`t have to

limit ourselves to the narrow tunnel vision of the current pharmaceutical

led orthodoxy! Sure it may have it`s place: (for me, currently it`s place is

manifesting as LDN!) But I don`t think we should get obsessed with finding

an analytical " magic bullet " to solve everything, good health also needs

some synthesis.

Be happy!

Gerald (SPMS)

----- Original Message -----

From: " cinders57a " <allentownusa@...>

<low dose naltrexone >

Sent: Friday, May 07, 2004 7:38 PM

Subject: [low dose naltrexone] Re: Who does the mri's and checks if I get a

script from Bihari?

> The doctor who gave me my script knows nothing about LDN. I am going

> it " alone " with the help of the good folks on this site and others.

> Larry's group (http://pub218.ezboard.com/bldnlow dose naltrexone) and

> the Low Dose Naltrexone Forum (http://ldn.proboards3.com/index.cgi)

> to name two. I know it's scary to go it alone, but I kind of figure

> all the MRI's and snotty neuro's in the world aren't going to do me

> any good, or make any difference in my disease progression /

> symptoms - while the LDN just might. A roll of the dice, but

> sometimes you gotta go for it.

>

> Cinders

>

>

>

>

>

[Guest guest]

Me too! Haven't bothered seeing a neuro for 7 years now, although I am

in the arguably fortunate position (when I read all your horror stories

about CRABs) of having a disease (PLS = primary lateral sclerosis)

which has no known treatment so there is no point in me seeing a neuro,

most of whom seem to be just pompous, self opiniated ar.eholes (Aussie

spelling) anyway.

When I was seeing neuros my disease was progressing fairly rapidly

(within 5 years needed a walking frame and wheelchair, plus lost most

of my speech) but since I used info I found on the internet as the

basis for a method of attack I have basically not progressed in the 6

years since then. To think, the first neuro I saw told me I'd probably

be in a wheelchair within a year or two - ha! I still only use it very

occasionally when walking more than a few hundred metres, uneven ground

or crowds are involved (takes very little to knock me over). Still

work full time, still drive an unadapted car (automatic of course).

As for MRIs - I'm claustrophobic and especially since I lost my ability

to call out I absolutely hate them. If ever I have another one they'll

be pulling a corpse out - result of panic and heart attack....... :-(

tazzertazzer2003 wrote:

---That's the way I feel also!

Steve

In low dose naltrexone , "cinders57a"

<allentownusa@h...> wrote:

> The doctor who gave me my script knows nothing about LDN. I am

going

> it "alone" with the help of the good folks on this site and

others.

> Larry's group (http://pub218.ezboard.com/bldnlow dose naltrexone)

and

> the Low Dose Naltrexone Forum (http://ldn.proboards3.com/index.cgi)

> to name two. I know it's scary to go it alone, but I kind of

figure

> all the MRI's and snotty neuro's in the world aren't going to do

me

> any good, or make any difference in my disease progression /

> symptoms - while the LDN just might. A roll of the dice, but

> sometimes you gotta go for it.

>

> Cinders