fibromyalgia & LDN

[Guest guest]

Hi Everyone! I have been following the group now for about 6 weeks,

and I notice that almost everyone here has MS. I had requested some

info a couple times and recieved 0 responses, was very disapointed.

However, I have gotten all the info I needed from my good friend

Zillba. My Doc has agreed to let me try LDN for Fibromyalgia, which I

have had for nearly 20 years. My Doc really didn't need very much

convincing, even tho she was not familiar with the 'off label' use of

this drug. She asked around her clinic network and no one else there

knew much about it either. Never the less she agreed after a short

time to let me give it a shot. As luck would have it there is a

compounding Pharmacy in the small town that I live in. She called in

my Rx yesterday, and I took my 1st 3mg dose last night. I wish that

you all could have such an easy time as I did persuading your doctors

to let you try this. So far I just woke up with a 'mild' headache

which is not unusual in any case, so I don't know if it is LDN

related. I am soooo excited to see if this works for FMS. In all the

years since I was Dx nothing has brought much relief from the many

symptoms. I can't wait to see if this works for me. Is there anyone

out there that has been using LDN for FMS? I would love to compare

notes! Many blessings, Lil