Guest guest Posted May 17, 2004 Report Share Posted May 17, 2004 Lesa, I have been on LDN for about 3 weeks, and I have had MS/Lyme Disease diagnosed for 17 years. I have had mixed results with antibiotics both oral and IV. I keep trying. At this pint it is chronic. And, of course, I believe that a lot, if not all, MS is chronic LD (Lyme Disease). I am happy and hopeful about finding LDN. I think that encouraging the body to heal itself is the best bet. I keep wondering when I see these posts about using abx (antibiotics) if LD is not involved. Any thoughts on this matter are welcome. Janie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2004 Report Share Posted May 17, 2004 > Lesa, I have been on LDN for about 3 weeks, and I have had MS/Lyme Disease diagnosed for 17 years. I have had mixed results with antibiotics both oral and IV. I keep trying. At this pint it is chronic. And, of course, I believe that a lot, if not all, MS is chronic LD (Lyme Disease). I am happy and hopeful about finding LDN. I think that encouraging the body to heal itself is the best bet. I keep wondering when I see these posts about using abx (antibiotics) if LD is not involved. Any thoughts on this matter are welcome. Janie Hi Janie, The first blood work done when I'd presented with symptoms was a lyme titer, and I've had a few more since then, all negative for what that`s worth. I have, however, seen many posts relaying similar experiences or at least improvement in MS symptoms following a course of antiboitics. I don't medicate very often except for a lot of Advil due to constant cluster headaches. I have an aspersion to doctors, so I don`t go unless I absolutely have to, not even during an exacerbation. I hadn't been on antibiotics for years before June 2002, so it's hard to say whether they would have helped before they did. Any illness has always caused flare ups for me, and it seems plausible that at any given time we could have an underlying infection or ailment. Recognized or not, doesn't have to be lyme to aggravate MS. I wish you well, and hope the LDN helps you immensely. My best, Lesa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2004 Report Share Posted May 17, 2004 > I keep wondering when I see these posts about using abx (antibiotics) if LD is not involved. Any thoughts on this matter are welcome. Janie I was diagnosed in Feb and been on LDN around 50 days. Had 3 Lyme tests and all negative. Tested very high for Mercury and am getting chelated and fillings out. Feel better after chelations. Started taking Colloidal Silver as a precaution for Lyme, Candida and other bacteria, fungus and viruses. Also started Hulda 's Kidney and Parasite cleanse, and plan to do Liver as well. Have you tried Colloidal Silver for Lyme? Based On what I have read it is worth a try. Below is a user Group. colloidalsilver2/? yguid=178072771 Best Alan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2004 Report Share Posted May 17, 2004 I doubt that Lyme Disease is the only infection that can be a long term problem and remain undetected. How about mycoplasma? Or all of the things we don't even know about. I'll bet there are a lot of uninvited guests that find ways to be quiet enough to hide from us, yet still intruders that distress our immune systems and reduce our general health. This is one big long jigsaw puzzle, and I think the dogs ate some of the pieces. ----- Original Message ----- From: " alanms1579 " <alanms@...> <low dose naltrexone > Sent: Sunday, May 16, 2004 8:01 PM Subject: [low dose naltrexone] Re: Skepticism & MS > > I keep wondering when I see these posts about using abx > (antibiotics) if LD is not involved. Any thoughts on this matter > are welcome. Janie > > I was diagnosed in Feb and been on LDN around 50 days. Had 3 Lyme > tests and all negative. Tested very high for Mercury and am getting > chelated and fillings out. Feel better after chelations. > > Started taking Colloidal Silver as a precaution for Lyme, Candida > and other bacteria, fungus and viruses. Also started Hulda 's > Kidney and Parasite cleanse, and plan to do Liver as well. > > Have you tried Colloidal Silver for Lyme? Based On what I have read > it is worth a try. Below is a user Group. > > colloidalsilver2/? > yguid=178072771 > > Best > Alan > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2004 Report Share Posted May 17, 2004 Janie I hear you say most if not all ms is lyme disease( right?) This is a very broad statement as there is a large number of us with ms that live in countrys that don,t have the tick that carrys lyme.Here in central Alberta I think they froze to death. Or is there another way to get lyme? Reg. -------Original Message------- From: low dose naltrexone Date: 05/16/04 20:37:11 low dose naltrexone Subject: [low dose naltrexone] Re: Skepticism & MS > Lesa, I have been on LDN for about 3 weeks, and I have had MS/Lyme Disease diagnosed for 17 years. I have had mixed results with antibiotics both oral and IV. I keep trying. At this pint it is chronic. And, of course, I believe that a lot, if not all, MS is chronic LD (Lyme Disease). I am happy and hopeful about finding LDN. I think that encouraging the body to heal itself is the best bet. I keep wondering when I see these posts about using abx (antibiotics) if LD is not involved. Any thoughts on this matter are welcome. Janie ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2004 Report Share Posted May 17, 2004 Reg There are other ways according to a newsletter my doctor gave me. He suggested I have the lyme test and gave me a newsletter to read. He's really into natural medicine. I'll find it and get back to you. My hands are not working very well today, so I will write in the next day or so. Arlene In low dose naltrexone , " Reg Kreil " <regkreil@h...> wrote: > Janie > I hear you say most if not all ms is lyme disease( right?) > This is a very broad statement as there is a large number of us with ms that > live in countrys that don,t have the tick that carrys lyme.Here in central > Alberta I think they froze to death. > Or is there another way to get lyme? > Reg. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 This is for Alan who had chelation.I was tested for heavy metals and the test came back high for arsenic. I also have one mercury filling in my mouth.I'm contemplating getting the filling removed and then doing chelation.It is very expensive . I was told $3200 for the complete chelation process. Insurance doesn't recognize this treatment... so no help there. In your post you said you felt better after it. Can you be a bit more specific. How did you feel better? Mobility-wise? Energy-wise? I appreciate any info you can offer. Thanks, + -------Original Message------- From: low dose naltrexone Date: Sunday, May 16, 2004 22:01:40 low dose naltrexone Subject: [low dose naltrexone] Re: Skepticism & MS > I keep wondering when I see these posts about using abx (antibiotics) if LD is not involved. Any thoughts on this matter are welcome. Janie I was diagnosed in Feb and been on LDN around 50 days. Had 3 Lyme tests and all negative. Tested very high for Mercury and am getting chelated and fillings out. Feel better after chelations. Started taking Colloidal Silver as a precaution for Lyme, Candida and other bacteria, fungus and viruses. Also started Hulda 's Kidney and Parasite cleanse, and plan to do Liver as well. Have you tried Colloidal Silver for Lyme? Based On what I have read it is worth a try. Below is a user Group. colloidalsilver2/? yguid=178072771 Best Alan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Hi Alan, My doctor is under the impression that the buzzing (tingling) in your head is the neurons refiring. If this is the case you do not want to get rid of it. You might want to decreease your dose of LDN in order to lessen the buzzing to a more reasonable amount. I had this buzzing day and night when I was taking 25.0mg of naltrexone. Now that I am taking 4.5mg it is only occassionally. Hope this helps, FlashyKathy74 As previously noted, in addition to LDN, and taking lots of supplements (most recommended here or other MS sites) I began chelation for Metals. I also tested very high for retained Iron. I have had 2 intravenous treatments after which my head tingled less and had a bit more feeling in my legs. My legs are not too bad to begin with as I walk without any aids and the only one that notices the slight lack of feeling or control is me. I was most impressed by the reduction in head tingling after each treatment. I am going weekly, next is tomorrow night. So far the reductions have remained and I am hoping for continued progress. Quote Link to comment Share on other sites More sharing options...
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