pain issues

[Guest guest]

Caroline, hi again..

I do understand what you are saying. If I am not mistaken, and I could

be, the NSAIDS will relieve inflammation and pain, but will *not* stop

the possible destruction caused by the disease, where the DMARD's

can. Is this so, do you know? For most of you who have only had this

disease a few months or years, you will probably be able to find a

med that will *stop* the disease, or at least *prevent* destruction.

For some of us who have had it for years and years, and didn't have

the newer meds available, we may have had more destruction that

has happened over the years. Most of you should never have to face

joint replacements for instance.

I do have a TENS unit, it won't work for this particular pain, because

it comes on in too many places at once, too deep in the bones and

it's when I *need* to sleep. There are no acupuncturists in the area.

I have tried just about everything " natural " there is...and now I'm so

sick and tired of the pain..if I become addicted to something, guess

what? I really don't care, as long as I can find relief.

The foot has been okay. I really truly hope and pray that the Humira

does it for you Caroline. You deserve a rest from the dragon. Also

I truly hope you *don't* get that anxiety feeling again from the Humira.

Take care,

~~tricia~~

Wisconsin

*****************************************************************************

***

-- Re: Pain issues

Tricia, I agree totally with you. I seemed to have a hard time getting my

words out. For various reasons we NEED pain meds. Only you and your doctor

can make that call. I do know that a lot of us have unreasonable or

uneducated doctors. We should not let them pass us pain pills INSTEAD OF

trying the RA options available. These drugs are there to help us and we

should be using them if we can and are in pain, supplimenting with pain meds

as needed. No one should have to be in pain and should use whatever it takes

to get though the day. I know a man with RA and he won't try the RA drugs.

He likes using the pain pills instead. He is a friend of mine and I love him

dearly but he frustrates me. He won't even try an NSAID or a DMARD and his

doctor is okay with that. I just don't understand him. I tried about 10

NSAIDS before we found one that worked. I have tried 3 DMARDS and

combinations of NSAIDS and DMARDS. At one point I had two of them (DMARDS)

with pred and NSAIDS and combinations of doses too. We found that for me,

the 20 mg Bextra, 10 mg Prednisone and 20 mg Arava combination worked best

but I still had lots of pain, fever and fatigue so we added the 40 mg of

Humira. It has been a real process. If I end up not being able to take these

drugs for one reason or another, I may end up at a pain clinic too. You and

I have so much in common with meds. There are so many I can't take any more.

Have you ever tried acupuncture? I found that it relieved most pain, but the

bone crunching pain it could do nothing for. Hence, I reached for pain meds

and we adjusted my cocktail again. Sure hope they find a way to help you

soon, no matter what it takes... I want you to be pain free. Have you tried

the Biologics? Sure liked that email from . Wouldn't it be something

if they just did a test and found the perfect drug for you? Hope your foot

behaves for a while, You sure could use a break. Smiles, and like BOB says,

be pain free " . Caroline

..

[Guest guest]

Marta, I still have pain associated with the pani, too. Not the infection or

" canyon " that developed, but pulling and pain from the reconstruction.

Jim

Pain issues

I have pain hanging on longer than I expected after this surgery. I mean,

not really bad pain, but it is there and noticible.

[Guest guest]

In a message dated 11/30/2003 11:16:46 PM Central Standard Time,

snurfles2@... writes:

> Marta, sweetie, it's perfectly normal for you to still be having

> pain at this point. Hell, I STILL have pain at times and I'm more

> than 6 months out! Sheesh! You'd think a doctor would expect these

> things. *tsk* Anyway, the pain in your rib could be from the

> mesh. I had the same pain in my upper right rib (without the

> clicking) and it did finally go away. I'm sure it was the mesh. I

> could run my fingers over it and almost feel it.

>

> Don't worry, Marta! Everything's just as it should be!

>

> Hugs!

>

I keep telling her to take it easy and rest...But you know Marta..... She's

wonder woman!

I'd still be at home whining and she's out doing lunch and Job

interviews.....We'll have to get her the American flag wonder woman costume for

next

Halloween.....Should go good with her new boobs!

in Bama

<A

HREF= " http://hometown.aol.com/mdl1031/myhomepage/profile.html " >

http://hometown.aol.com/mdl1031/myhomepage/profile.html</A>

VBG to RNY revision 1996-Failed

Rny to Ds revision 12/06/02

Down111lbs!!

Thanks to Dr. K!

[Guest guest]

Marta,

I am asuming you had some mesh put in with your repair?? My " patch "

has been making a clicking noise for a year now. I sometimes wonder

if it the patch rubbing against bone or cartilage. Maybe it is the

mesh that is causing the click and the discomfort? I know I still

have discomfort a year later. Just my 2 cents.

hugs, cindy lee

who would be thrilled to get even one bag of homemade jerky for

christmas - hee hee!

> I have pain hanging on longer than I expected after this surgery.

I

> mean, not really bad pain, but it is there and noticible.

>

> I also have a clicking, what feels like a broken rib on the left.

> Don't know why, but it is right where I have had a mysterious pain

> for many months. It wouldn't be broken bone, but cartilage as it

is

> in the front, not over to the side where the boney ribs are. I

> haven't fallen or anything that I can remember in the past couple

> years so whatever it is, it must be an old injury.

>

> The pain is relieved well with ibuprofen, but I don't bother with

> taking anything very often, only every few days if it really

bothers

> me.

>

> Marta

> " I must be unique "

[Guest guest]

> Marta,

>

> I am asuming you had some mesh put in with your repair??

My " patch "

> has been making a clicking noise for a year now.

No, he said the other day that he didn't put any mesh in. I was

surprised, I thought I needed mesh, but then, I am not the surgeon,

he is.

Nah, mine is definately a rib, the cartilage end on the left. I can

feel it now that I am thin enough. Creepy. Well, some people

have " floaters " there, ribs that aren't attached, and I must be one

of them. Come to think of it. STill, I wonder why I have pain in

that area. No way of knowing. It is right about at the old drain

site so maybe it has something to do with the scar tissue.

It doesn't hurt to move the rib back and forth and the pain feels

better when I press on it. Also, it is better if I get up and move

around, sitting makes it worse.

Marta

[Guest guest]

Marta, sweetie, it's perfectly normal for you to still be having

pain at this point. Hell, I STILL have pain at times and I'm more

than 6 months out! Sheesh! You'd think a doctor would expect these

things. *tsk* Anyway, the pain in your rib could be from the

mesh. I had the same pain in my upper right rib (without the

clicking) and it did finally go away. I'm sure it was the mesh. I

could run my fingers over it and almost feel it.

Don't worry, Marta! Everything's just as it should be!

Hugs!

Tracey

> I have pain hanging on longer than I expected after this surgery.

I

> mean, not really bad pain, but it is there and noticible.

>

> Marta

> " I must be unique "

[Guest guest]

Marta, sweetie, it's perfectly normal for you to still be having

pain at this point. Hell, I STILL have pain at times and I'm more

than 6 months out! Sheesh! You'd think a doctor would expect these

things. *tsk* Anyway, the pain in your rib could be from the

mesh. I had the same pain in my upper right rib (without the

clicking) and it did finally go away. I'm sure it was the mesh. I

could run my fingers over it and almost feel it.

Don't worry, Marta! Everything's just as it should be!

Hugs!

Tracey

> I have pain hanging on longer than I expected after this surgery.

I

> mean, not really bad pain, but it is there and noticible.

>

> Marta

> " I must be unique "

[Guest guest]

ROTFLMAO!!!!

> I keep telling her to take it easy and rest...But you know

Marta..... She's

> wonder woman!

> I'd still be at home whining and she's out doing lunch and Job

> interviews.....We'll have to get her the American flag wonder

woman costume for next

> Halloween.....Should go good with her new boobs!

> in Bama

>

[Guest guest]

> I have pain hanging on longer than I expected after this surgery.

I

> mean, not really bad pain, but it is there and noticible.

Marta,

I know we had totally different surgeries...my last one was bilateral

oophorectomy, salpingectomy and appendectomy. However, I too am

still having some residual paint that I have never experienced before

so long afterwards. I am OVER 3 months post-op. How long ago was

your surgery and, just out of curiousity, how many abdominal

surgeries have you had? This was my sixth!! But the fourth in that

general area. (Two entries above the umbilicus and four below.) Just

wondering if it's something that happens when a person has had too

many surgeries and maybe it takes longer and longer to heal.

Hugs,

Laurie

WLS Midwest:

WLSMidwest/

[Guest guest]

Hi Lara......Do you take the Hypericin separately ..and what is it

exactly.....and how many pills a day ? thanks Sandy

----- Original Message -----

From: " Lara Schuchat " <Lara1967@...>

<low dose naltrexone >

Sent: Monday, May 10, 2004 5:51 PM

Subject: [low dose naltrexone] pain issues

> Does anyone have any info on LDN and chronic pain treatment?

> I have been dealing w/chronic pain of " unknown etiology " for the last

> 18 months. We have the Dx narrowed down but not final. The possible

> causes are Peripheral Neuritis tied to pernicious anemia,

> Fibromyalgia, Restless Leg Syndrom, Behcet's Disease or MS (altho a

> brain MRI was clear of lesions I have not had a full body scan yet).

> I will be working with a Neurologist and a Physiatrist to determine

> the root cause and treat it.

> I am hoping to start the LDN therapy for this problem as well as for

> my Hep C. I will be taking the LDN w/Hypericin per Dr. Bihari's

> reccomendation. I also hope to heal the residual effects of an auto-

> immune thyroid disease and thyroid cancer.

> My question is in regard to pain meds. I have been on and off pain

> meds for the past 18 mos. including Celebrex, Vioxx, Naprosyn, and

> opiate based pain meds such as hydrocodone. Most recently I have

> taken Toradal in short cycles but cannot use it for more than 5 days

> at a time because it thins the blood greatly and can damage the

> stomach. I have found over the last year or so that I have to rotate

> out my pain therapy because after a month or two the current

> treatment stops being as effective. Recently I have found it

> necessary to take the stronger analgesics- hydrocodone to be exact-

> because not much else has been working. I will begin B12 injections

> next week since it always seems to help the " neuritis " type pain but

> until then my current PCP has me on a closely monitored regimen of

> opioid-based meds. I am concerned about the effects on my system if I

> switch to LDN abruptly. Do I need to withdraw the opioid pain med now

> so that I won't have any " withdrawal " effects or increase in pain

> level with the naltrexone? And am I a better candidate for starting

> at the lowest dose, say 1.5-1.75mg. For how long? Is there anyone

> with Fibromyalgia who can advise me on how they began their therapy?

>

> And this last question is for all of you. I have noted many that say

> while the LDN helps all their other symptoms, that some of you have

> pain and stiffness, esp. in the a.m., at the higher dose. What do you

> do for that daily pain? Stick it out, massage or hydrotherapy, or can

> you take a regular tylenol or advil?

> Thanks so much for your help with this. I want to make sure I prep

> properly to begin this treatment. My continued health depends on it.

> Best regards to all!

>

>

>

>

>

>

[Guest guest]

Does anyone have any info on LDN and chronic pain treatment?

I have been dealing w/chronic pain of " unknown etiology " for the last

18 months. We have the Dx narrowed down but not final. The possible

causes are Peripheral Neuritis tied to pernicious anemia,

Fibromyalgia, Restless Leg Syndrom, Behcet's Disease or MS (altho a

brain MRI was clear of lesions I have not had a full body scan yet).

I will be working with a Neurologist and a Physiatrist to determine

the root cause and treat it.

I am hoping to start the LDN therapy for this problem as well as for

my Hep C. I will be taking the LDN w/Hypericin per Dr. Bihari's

reccomendation. I also hope to heal the residual effects of an auto-

immune thyroid disease and thyroid cancer.

My question is in regard to pain meds. I have been on and off pain

meds for the past 18 mos. including Celebrex, Vioxx, Naprosyn, and

opiate based pain meds such as hydrocodone. Most recently I have

taken Toradal in short cycles but cannot use it for more than 5 days

at a time because it thins the blood greatly and can damage the

stomach. I have found over the last year or so that I have to rotate

out my pain therapy because after a month or two the current

treatment stops being as effective. Recently I have found it

necessary to take the stronger analgesics- hydrocodone to be exact-

because not much else has been working. I will begin B12 injections

next week since it always seems to help the " neuritis " type pain but

until then my current PCP has me on a closely monitored regimen of

opioid-based meds. I am concerned about the effects on my system if I

switch to LDN abruptly. Do I need to withdraw the opioid pain med now

so that I won't have any " withdrawal " effects or increase in pain

level with the naltrexone? And am I a better candidate for starting

at the lowest dose, say 1.5-1.75mg. For how long? Is there anyone

with Fibromyalgia who can advise me on how they began their therapy?

And this last question is for all of you. I have noted many that say

while the LDN helps all their other symptoms, that some of you have

pain and stiffness, esp. in the a.m., at the higher dose. What do you

do for that daily pain? Stick it out, massage or hydrotherapy, or can

you take a regular tylenol or advil?

Thanks so much for your help with this. I want to make sure I prep

properly to begin this treatment. My continued health depends on it.

Best regards to all!