Re: from kellie in sydney - ABOUT SHARING OFF TOPIC (LDN only) - SORRY

[Guest guest]

Hi kellie,

I am so sorry you have to go through this. Be well my friend. Please

keep me on your friends list. MS and life can be tough sometimes.

Tolerance is the key. Keep in touch.

Janette (SPMS) in Canada

dahlia_ca@...

> Sorry to those I offended about the living with MS, dating issues,

being single and living alone post I sent in. I am a little hurt (

but I'm overly sensitive right now anyway) ???)

[Guest guest]

> Sorry to those I offended about the living with MS, dating issues,

being single and living alone post I sent in. I am a little hurt (

but I'm overly sensitive right now anyway) - I did not know this room

had RULES - I didn't realise this group was completely only focused

on LDN - (I thought it was about LDN AND MS(and other auto immune

diseases- that can be helped too) - and life with MS issues too -

obviously not - you live and learn ) - that's all.

> I was feeling very alone and thanks to all those who supported me

anyway(so much warm response) - I am not having a great time of it

right now - walking very difficult - hand gone too(hard to type

this ) - balance really gone - I don't know what's happening - but I

will not stop LDN - just feeling a bit lost - its hard struggling

alone (I have my pet cockatiel , though) and also only 2 years

into recovery (12 step) - its tough as. My mum died at only 67

(quite suddenly really- another shock) in October 03' (the little

family I have left - (we are not that close) except my sister - all

live 6 hours away at least - oldest friends too - all moved out of

Sydney) - I feel like I can't go on sometimes but somehow I do -

I've only had MS for 2 years now - first came on straight after

crime victim head trauma (maliciously wounded) - it began first MS

onset 2 months later (severe post trauma stress - MS not genetic-

never before in family bloodline at all) and long court case while my

leg and foot collapsed (right foot drop) all at the same time (woman

convicted finally) - MRI 1 year ago showed 9 lesions 6 large in

brain and 3 in spine - horrifying - biggest in motor skills area - no

recovery from first MS attack - 2nd came only few months later - eyes

went and more dizziness and balance probs - then a third attack in

Feb.04(lost left hand use - pretty weak, and double vision all over

again, gait worsened- no recovery yet) - I have only been on LDN for

1 month now - went off copaxone 2 weeks ago - not sure if I should

have - but I will see this through - LDN my only hope for now

(affordable) - on 3 mg - I have read off this site stopping off

progression on MRI's after a longer period of LDN! for quite a few -

there is hope! (neuro's suprised!)

>

> I shall not ask about other non LDN topics again (although my Q3.

on post was about LDN) - I understand that you want to keep the focus

on LDN (especially if Neuro's are monitoring site!) - just not let's

forget I am only human - I needed some advice but will go elsewhere

for that now - thanks again to those who supported me and your many

responses - it gave me such joy to know someone out there cares and

relates and understands ( very much needed wonderful qualities so

missing in this crazy world - they are the best- I believe this is

why we are here - to learn compassion and to help humanity) - and as

we know - only another fellow MS'er really knows how difficult the

daily struggles can be - we live it ! (I've been trying too hard to

keep up in this fast paced world that is just whizzing by at it's

usual frenzied pace and then I pay dearly for it physically - I'm

learning to accept now I just can't be like I was ) .....Where are we

all rushing too anyway? ..... so

>

> Stay strong guys - you are all an inspiration to me - we can

endure.- keep up the fight for LDN(I am trying too in Australia) -

it's early LDN days for me yet - I will ride it out - Miracles can

happen - you just have to believe

> from Kellie in Sydney.( am I off topic again???)

[Guest guest]

Kellie,

You are not off subject, actually right on target. Go to www.copingandprevailing.com Send me your mailing address and I will send you "20 Years and Still Coping and Prevailing" if you cannot afford to pay for it.

Regards,

Tom

----- Original Message -----

From: hellkell1@...

low dose naltrexone

Sent: Friday, May 14, 2004 6:37 AM

Subject: [low dose naltrexone] from kellie in sydney - ABOUT SHARING OFF TOPIC (LDN only) - SORRY

Sorry to those I offended about the living with MS, dating issues, being single and living alone post I sent in. I am a little hurt ( but I'm overly sensitive right now anyway) - I did not know this room had RULES - I didn't realise this group was completely only focused on LDN - (I thought it was about LDN AND MS(and other auto immune diseases- that can be helped too) - and life with MS issues too - obviously not - you live and learn ) - that's all.

I was feeling very alone and thanks to all those who supported me anyway(so much warm response) - I am not having a great time of it right now - walking very difficult - hand gone too(hard to type this ) - balance really gone - I don't know what's happening - but I will not stop LDN - just feeling a bit lost - its hard struggling alone (I have my pet cockatiel , though) and also only 2 years into recovery (12 step) - its tough as. My mum died at only 67 (quite suddenly really- another shock) in October 03' (the little family I have left - (we are not that close) except my sister - all live 6 hours away at least - oldest friends too - all moved out of Sydney) - I feel like I can't go on sometimes but somehow I do - I've only had MS for 2 years now - first came on straight after crime victim head trauma (maliciously wounded) - it began first MS onset 2 months later (severe post trauma stress - MS not genetic- never before in family bloodline at all) and long court case while my leg and foot collapsed (right foot drop) all at the same time (woman convicted finally) - MRI 1 year ago showed 9 lesions 6 large in brain and 3 in spine - horrifying - biggest in motor skills area - no recovery from first MS attack - 2nd came only few months later - eyes went and more dizziness and balance probs - then a third attack in Feb.04(lost left hand use - pretty weak, and double vision all over again, gait worsened- no recovery yet) - I have only been on LDN for 1 month now - went off copaxone 2 weeks ago - not sure if I should have - but I will see this through - LDN my only hope for now (affordable) - on 3 mg - I have read off this site stopping off progression on MRI's after a longer period of LDN! for quite a few - there is hope! (neuro's suprised!)

I shall not ask about other non LDN topics again (although my Q3. on post was about LDN) - I understand that you want to keep the focus on LDN (especially if Neuro's are monitoring site!) - just not let's forget I am only human - I needed some advice but will go elsewhere for that now - thanks again to those who supported me and your many responses - it gave me such joy to know someone out there cares and relates and understands ( very much needed wonderful qualities so missing in this crazy world - they are the best- I believe this is why we are here - to learn compassion and to help humanity) - and as we know - only another fellow MS'er really knows how difficult the daily struggles can be - we live it ! (I've been trying too hard to keep up in this fast paced world that is just whizzing by at it's usual frenzied pace and then I pay dearly for it physically - I'm learning to accept now I just can't be like I was ) .....Where are we all rushing too anyway? ..... so

Stay strong guys - you are all an inspiration to me - we can endure.- keep up the fight for LDN(I am trying too in Australia) - it's early LDN days for me yet - I will ride it out - Miracles can happen - you just have to believe

from Kellie in Sydney.( am I off topic again???)

[Guest guest]

HEY KELLIE-

SEND E-MAILS TO ME DIRECTLY IF YOU WANT. I'M WITH YOU. I

HAD A BAD WEEK - NOTHING SPECIAL, BUT SOMETIMES MS + LIFE IS

JUST TOO MUCH. I HAVE A SISTER AND PARENTS TO SHARE WITH -

BUT SOMETIMES I DON'T WANT TO UPSET THEM.

TALK TO ME DIRECTLY AT bestaunt@....

HANG IN THERE!!!!!!!!!!!!!!

[Guest guest]

Hi Kellie,

Well said. We all have different needs and wants and it's wonderful to have people to talk to in the same boat, so to speak, that understand. You have had a pretty tough time. My mum died quite unexpectedly as well, she was older than your mum, but still came hard. My sister died of Scleraderma at 47. That was TERRIBLE. Continue to write and tell us your feelings. There is a delete button for those that don't want to read. Did you read 's email about say putting in the subject line Off the ldn topic or something similar. What a great idea.

Keep your chin up Kellie, miracles do happen

in South Australia

-------Original Message-------

From: low dose naltrexone

Date: 05/14/04 10:07:49

low dose naltrexone

Subject: [low dose naltrexone] from kellie in sydney - ABOUT SHARING OFF TOPIC (LDN only) - SORRY

Sorry to those I offended about the living with MS, dating issues, being single and living alone post I sent in. I am a little hurt ( but I'm overly sensitive right now anyway) - I did not know this room had RULES - I didn't realise this group was completely only focused on LDN - (I thought it was about LDN AND MS(and other auto immune diseases- that can be helped too) - and life with MS issues too - obviously not - you live and learn ) - that's all.

I was feeling very alone and thanks to all those who supported me anyway(so much warm response) - I am not having a great time of it right now - walking very difficult - hand gone too(hard to type this ) - balance really gone - I don't know what's happening - but I will not stop LDN - just feeling a bit lost - its hard struggling alone (I have my pet cockatiel , though) and also only 2 years into recovery (12 step) - its tough as. My mum died at only 67 (quite suddenly really- another shock) in October 03' (the little family I have left - (we are not that close) except my sister - all live 6 hours away at least - oldest friends too - all moved out of Sydney) - I feel like I can't go on sometimes but somehow I do - I've only had MS for 2 years now - first came on straight after crime victim head trauma (maliciously wounded) - it began first MS onset 2 months later (severe post trauma stress - MS not genetic- never before in family bloodline at all) and long court case while my leg and foot collapsed (right foot drop) all at the same time (woman convicted finally) - MRI 1 year ago showed 9 lesions 6 large in brain and 3 in spine - horrifying - biggest in motor skills area - no recovery from first MS attack - 2nd came only few months later - eyes went and more dizziness and balance probs - then a third attack in Feb.04(lost left hand use - pretty weak, and double vision all over again, gait worsened- no recovery yet) - I have only been on LDN for 1 month now - went off copaxone 2 weeks ago - not sure if I should have - but I will see this through - LDN my only hope for now (affordable) - on 3 mg - I have read off this site stopping off progression on MRI's after a longer period of LDN! for quite a few - there is hope! (neuro's suprised!)

I shall not ask about other non LDN topics again (although my Q3. on post was about LDN) - I understand that you want to keep the focus on LDN (especially if Neuro's are monitoring site!) - just not let's forget I am only human - I needed some advice but will go elsewhere for that now - thanks again to those who supported me and your many responses - it gave me such joy to know someone out there cares and relates and understands ( very much needed wonderful qualities so missing in this crazy world - they are the best- I believe this is why we are here - to learn compassion and to help humanity) - and as we know - only another fellow MS'er really knows how difficult the daily struggles can be - we live it ! (I've been trying too hard to keep up in this fast paced world that is just whizzing by at it's usual frenzied pace and then I pay dearly for it physically - I'm learning to accept now I just can't be like I was ) .....Where are we all rushing too anyway? ..... so

Stay strong guys - you are all an inspiration to me - we can endure.- keep up the fight for LDN(I am trying too in Australia) - it's early LDN days for me yet - I will ride it out - Miracles can happen - you just have to believe

from Kellie in Sydney.( am I off topi