from kellie in sydney - ABOUT SHARING OFF TOPIC (LDN only) - SORRY

[Guest guest]

Sorry to those I offended about the living with MS, dating issues, being single and living alone post I sent in. I am a little hurt ( but I'm overly sensitive right now anyway) - I did not know this room had RULES - I didn't realise this group was completely only focused on LDN - (I thought it was about LDN AND MS(and other auto immune diseases- that can be helped too) - and life with MS issues too - obviously not - you live and learn ) - that's all.

I was feeling very alone and thanks to all those who supported me anyway(so much warm response) - I am not having a great time of it right now - walking very difficult - hand gone too(hard to type this ) - balance really gone - I don't know what's happening - but I will not stop LDN - just feeling a bit lost - its hard struggling alone (I have my pet cockatiel , though) and also only 2 years into recovery (12 step) - its tough as. My mum died at only 67 (quite suddenly really- another shock) in October 03' (the little family I have left - (we are not that close) except my sister - all live 6 hours away at least - oldest friends too - all moved out of Sydney) - I feel like I can't go on sometimes but somehow I do - I've only had MS for 2 years now - first came on straight after crime victim head trauma (maliciously wounded) - it began first MS onset 2 months later (severe post trauma stress - MS not genetic- never before in family bloodline at all) and long court case while my leg and foot collapsed (right foot drop) all at the same time (woman convicted finally) - MRI 1 year ago showed 9 lesions 6 large in brain and 3 in spine - horrifying - biggest in motor skills area - no recovery from first MS attack - 2nd came only few months later - eyes went and more dizziness and balance probs - then a third attack in Feb.04(lost left hand use - pretty weak, and double vision all over again, gait worsened- no recovery yet) - I have only been on LDN for 1 month now - went off copaxone 2 weeks ago - not sure if I should have - but I will see this through - LDN my only hope for now (affordable) - on 3 mg - I have read off this site stopping off progression on MRI's after a longer period of LDN! for quite a few - there is hope! (neuro's suprised!)

I shall not ask about other non LDN topics again (although my Q3. on post was about LDN) - I understand that you want to keep the focus on LDN (especially if Neuro's are monitoring site!) - just not let's forget I am only human - I needed some advice but will go elsewhere for that now - thanks again to those who supported me and your many responses - it gave me such joy to know someone out there cares and relates and understands ( very much needed wonderful qualities so missing in this crazy world - they are the best- I believe this is why we are here - to learn compassion and to help humanity) - and as we know - only another fellow MS'er really knows how difficult the daily struggles can be - we live it ! (I've been trying too hard to keep up in this fast paced world that is just whizzing by at it's usual frenzied pace and then I pay dearly for it physically - I'm learning to accept now I just can't be like I was ) .....Where are we all rushing too anyway? ..... so

Stay strong guys - you are all an inspiration to me - we can endure.- keep up the fight for LDN(I am trying too in Australia) - it's early LDN days for me yet - I will ride it out - Miracles can happen - you just have to believe

from Kellie in Sydney.( am I off topic again???)