Re: Getting our message heard

May 23, 2004

That's a great idea! Who do we target first!

What if we picked one focal point each month, and then ALL us

> sent emails/letters to that contact point? Think of the impact it

would > make if a newspaper, doctor, NMSS or other " strategic "

influence points > were to receive so many messages extolling the

value of LDN.

May 23, 2004

This idea should be developed more. Good idea to FOCUS our efforts

(hopefully on LDN), hit them like a swarm of bees..

Does anyone know what is our force size, how many of us would be

willing to write e-mails ?. Maybe we could join forces with other

LDN groups in the US and abroad. This info could be helpful in

estimating the impact we will have on the recipient. In the recent

round of letters to the NMSS, we managed to put some pressure on the

NMSS. Would't it be nice to know if this was achieved with 20 or 50

e-mails. Also, if we knew how many were in the EWC (e-mail writer's

corps, just made this up!), we could double the impact by drafting

more recruits. Maybe we need a corps commander ?. This is war after

all.

Aegis

> I read all the posts here daily and am always impressed with the

number and

> quality of the ideas so many have had regarding getting the LDN

message

> out. The number of LDN success stories and efforts to share them

with the

> medical community is truly uplifting.

>

> But, it has struck me that perhaps one of our weaknesses is that

so many

> are trying in so many directions at the same time that our efforts

are

> being diluted. Perhaps it might make sense to try a unified

> approach. What if we picked one focal point each month, and then

ALL us

> sent emails/letters to that contact point? Think of the impact it

would

> make if a newspaper, doctor, NMSS or other " strategic " influence

points

> were to receive so many messages extolling the value of LDN. I

can't

> imagine that newspapers would miss the impact of such a story.

Think of

> the impact we could have on a doctor that one of our members needs

to

> influence so that they can get a prescription for LDN ! This

would really

> be a way to help a member in need.

>

> If we can jointly cause some of these major influence points to

respond in

> public ways, it will bring enormous pressure on those

organizations that

> are reluctant to recognize LDN. It will also influence some of

our doctors

> who don't know or want to know about LDN.

May 23, 2004

Good ideas Aegis. I might suggest the following to get started, if

the people in this group think it is a good idea.

1. Designate " ambassadors " to other LDN groups.

They would contact the other groups, propose the idea and gain support

and ideas. Create an international coalition .

2. Create a prioritized 'target' list from all the groups

internationally. I would suggest the initial priority be those

groups or individuals who would have a vested interest in our

story. This wouldn't just be medical interests but also those whose

lively hood is dissemination of interest information or

investigation. IE; Readers Digest (have you noted the thread of

medical expose articles in their issues?), newspapers...they are always

looking for interest stories, ask 'friendly' doctors who they would

recommend, magazines, 60 Minutes...any source that would have reach and

frequency....reach the most people the most times. If we can build

a ground swell amongst these information outlets, more reluctant groups

will be forced to respond. Even a public negative response is

good! It creates awareness, and in many cases pubic outcry that

forces them to rethink their positions.

3. Gather all forms of statistical information..ie, the survey one

member here did was excellent. Can we expand the survey, via our

ambassadors, to the other LDN groups? This information should be

sent to our targets, along with each of us providing our own stories of

success with LDN and trials in getting the prescription.

Just some initial thoughts. As I said, the first step is agreement

within this group and then gaining unified agreement amongst the other

LDN groups.

At 09:21 AM 5/23/2004, you wrote:

This idea should be developed

more. Good idea to FOCUS our efforts