Re: copaxone for LDN users

[Guest guest]

>

> I keep reading that after three months on LDN Dr. Bihari suggests

that you may want to go off copaxone. Does anyone know if there is a

right way and a wrong way to do this? Would it make any difference if

you dropped your daily shots down to six a week or five a week? Would

the LDN work faster at a lower dose?

Sheila: Although my neuro is against skipping Copa shots, I know of

several people who only take 5 shots a week, one was actually advised

to do so by her dr. I usually " skip/miss " a shot once a week

especially if I am doing something away from the house at my shot

time. At my last neuro appt., I told my dr. about this and she said

that she couldn't " promise " the drug would work as it is supposed to

at less than what is prescribed. I asked her if she was going to

" promise " me that if I took it everyday, she could guarantee results.

Of course she realized how stupid her comment was and

backpedaled....My husband and the nurse were hysterical at this

exchange! This is the dr. who refuses to acknowledge any value to

LDN.. Neuro's are not my favorite dr.s!!

I can't imagine that missing a few shots here and there would be that

big a deal! If it makes you feel better about things, I believe you

should do it.

Gail

Woburn, MA

[Guest guest]

Sheila: I feel the same way. Been shooting up since 1994 when

Betaseron was first prescribed. Did that for 2 1/2 yrs and then

Avonex for 6 yrs, Rebif for 1 1/2 months and have been on Copaxone

since Oct. 2002. My skin still has scars from the Betaseron! By far

the Copaxone is the easiest for me with no side effects. I had

constant headaches after every interferon injection. Don't worry

about those missing shots. Gail

> Gail and Yash,

> Thanks for the replies. Recently (2-3 weeks) I have been missing a

shot a week. I usually give my shot at 9 a.m and now I am going to PT

at that time once a week.