Re: Boycott MS societies ?

May 10, 2004

> Just reading about the MS societies, I wonder if they have the interests

> of MS patients as their foremost priority. Various attempts by MS'ers to

> discuss LDN with them have not made any headway. The only voice they

> support is of the drug companies.

I have not thought much of the society for a long time. Ever since finding

out they cut off the local MS support group because they held a small fund

raiser to help pay to cater a holiday party for themselves. The rules of

the MS society are that ALL money raised must be sent to them ONLY, not

even used by the groups themselves for their own members.

Anyone around here newly diagnosed and asking about support groups gets

told there are none by the society because of this. It is an unspeakable

cruelty to these people, many of which are very scared about what's

happening to them and having just being told they have an incurable

disease. The group continues on, but with no official acknowledgement, so

they are only known about if you get lucky and word-of-mouth info finds

it's way to you. It's been this way for years. Doug

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