Guest guest Posted May 16, 2004 Report Share Posted May 16, 2004 I agree completely. I have given my last penny to the MS Society. All future donations from me will go to the Myelin Project, since I believe they will be the organization that will find a cure for this disease when all is said and done. The national MS Society is in bed with big pharma, whose drugs and shots seem to cause as much, if not more, problems for MSers than they do improvements. My wife has been through two CRAB drugs and we both wish we had that time back. She just last week had an MRI one year out after starting LDN and her neuro was stunned at the results - nothing new . . . no further lesions or deteriorations. He had planned to recommend starting another interferon, but was man enough to just scratch his head and admit that he now had no foundation for doing so. -AlFrom: cowgirls542001 [mailto: dpainter@...]low dose naltrexone Date: Fri, 14 May 2004 16:39:59 -0000Subject: [low dose naltrexone] Re: MS Society's lastest damning comments on LDNIt was bad enough when the MS society would not recommend or look into LDN but now they have really crossed the line by writing this piece of garbage about LDN and trying to scare people off from the one drug that can really help people with MS.I strongly suggest that we all email/mail/call or all of the above, the MS society and let them know that we will no longer support them financially or in any other way until they fund a fair and appropriate double blind, placebo controlled clinical trial on LDN and MS and retract that erroneous article. I already did and told them that I would be encouraging everyone I know who has supported them in the past to do the same thing. If they are ignorant they need to get educated, if its just all about the money then maybe all they will respond to is to threaten their financial base. Either way something needs to change.My roommate has been on LDN for slightly less than two months now and she is already 90% better than she has been for the last three years.Wishing you all the best.Diane> Hi everyone - how dissapointing is this damned statement on LDN from > the National Ms Society? I sure wouldn't want my doctor to read > that - and they reckon they've tested LDN on lab mic? Well, first I > heard of it!!!> > Click on this link if you want to be pissed off:> > http://www.nationalmssociety.org/Clinup-Naltrexone.asp> > Friday Quote Link to comment Share on other sites More sharing options...
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