Re: LIVING ALONE AND DATING WITH MS!- PUTTING SOME QUESTIONS TO GROUP - ADVICE NEEDED!

[Guest guest]

Hi Kellie - Will love to read what others say in reply to your post.

These are my thoughts:

Q1: I don't live alone, I live with my 15.5 year old daughter and

don't want my MS to be her problem, so try to keep stuff to myself

pretty much. It's not easy but worth it. Guess it might even be

easier since having someone to " protect " gives me strength. She

visits her dad every other weekend, and I find myself being weaker

on those days cause I can be. If that makes sense.

Q2: Dating. Well, I gave up on that several years ago when my

boyfriend turned out to be a closet cross dressing, drug addict!!

(Believe me when I say a 6/4, 280lb guy in a dress with a crack pipe

in his hand is NOT a pretty sight! LOL)

I guess you could look at it this way: if after finding out you have

MS they stick around, it shows they have character. MS is just a way

to thin the herd of those who aren't worth your time! Good Luck!!

Q3: I've only been on LDN a month, am sure that you will get

feedback from others with more experience. But I have also had some

upsetting " revisits. " (I loose eyesight, both eyes - very scary) But

I really think it is just something to work through. At least I am

hoping so.

Q4: I could not agree more with what you wrote: " I have complete

faith in LDN- my intuition on this says hang in there- it just needs

time "

I have felt from day one when I first read about LDN that I was

being lead to this treatment. I know it sound corny or uber

religious (which I don't tend to be) but I really think a higher

power has lead me to this treatment. Guess only time will tell if

our faith is justified.

Take care - Cinders

[Guest guest]

Hi Kellie and all,

Q1 I also live alone and manage by myself. I live in an accessible

apartment. My daughter lives in the same city and comes with me for

groceries and some errands.

Q2 I don't know how to approach dating since the onset of MS. I am

also told I am attractive but I am not sure what to do.

Q3 I started LDN a little more than 3 mths ago. In the beginning, I

saw positive effects: I had lots of energy and slept fine.

Eventually, I switched to 4.5 and when it did not work well, I

switched back to 3 mg. I don't know if LDN works for me. I had a foot

drop for several days and it's gone now. Never had that before. I

never took any of the ABCR's before and always refused any of them.

Thanks for the healing light!

Janette in Canada

SPMS

>

> > Q1. Does anyone in group live alone and look after themselves

independently with MS and all its physical problems like myself?

> How do you cope?

>

> Q2. Dating is scary stuff with MS

>

> Q3. A LDN question - For those in group - I need feedback on your

experiences on first month to 2nd month on LDN

[Guest guest]

I'll get back to you on these questions Kell, in the mean time, can

we get some MALES responses? and not just onthe ldn question - you's

arn't getting out of it that easy.

Friday

> hey guys

>

> just asking group for some feedback on life and living with MS.

>

> Q1. Does anyone in group live alone and look after themselves

independently with MS and all its physical problems like myself?

> How do you cope?

>

> Q2. Dating is scary stuff with MS as it is so confronting to other

person when revealed you suffer with MS? I have decided there is no

point not being up front from beginning as some physical things I

cannot hide anyway- so I have told men and they disappear pretty fast

(even after they say it's ok)- I am an attractive woman ,I am told -

It would be interesting to hear back on other singles dating tips on

this and their experiences? (any funny stories certainly would

lighten up this group a little too?) LOL!

>

> Q3. A LDN question - For those in group - I need feedback on your

experiences on first month to 2nd month on LDN and changes you

noticed physically on LDN? I have had bad sight flare-up(amongst

other things) - ( I am physically revisiting last 2 attacks old

wounds pretty full on - what did others notice on this same thing and

the outcome now further down the LDN road?

>

> I have complete faith in LDN- my intuition on this says hang in

there- it just needs time ( I have been taking it for about a month

now 3mg - 4 mg) gone off copaxone for about 2 weeks now. to see how

LDN does on its own.

>

> Appreciate immensely guys your responses on any of these

questions -

>

> Kellie from Sydney

> sending healing light to all

[Guest guest]

Hi. My name is Tom, so as long as Mom guessed right I guess I am a male of the species.

I live alone, but then my ppms is not too too bad. My walking etc. is all OK thank God, but

the fatigue is a killer. Just got my first dose of LDN today, so I am really hoping for the best. I have 3 cats which keep me company.

My partner of 8 years left when I got the MS. Bit of a shock. I have dated a bit, but most of the time I am just too darned tired to do much of anything, which makes one a bit of a party pooper I'm afraid. I guess I am old fashioned, but my world view usually envisions men as the people who take care of the women. (Don't all yell at me at once please).

So my MS has had quite a negative effect on my fragile male ego. Therefore I am really hoping the LDN works its magic.

Wish me luck.

Tom from Edmonton

----- Original Message -----

From: Friday

low dose naltrexone

Sent: Wednesday, May 12, 2004 12:01 PM

Subject: [low dose naltrexone] Re: LIVING ALONE AND DATING WITH MS!- PUTTING SOME QUESTIONS TO GROUP - ADVICE NEEDED!

I'll get back to you on these questions Kell, in the mean time, can we get some MALES responses? and not just onthe ldn question - you's arn't getting out of it that easy.Friday> hey guys > > just asking group for some feedback on life and living with MS. > > Q1. Does anyone in group live alone and look after themselves independently with MS and all its physical problems like myself?> How do you cope?> > Q2. Dating is scary stuff with MS as it is so confronting to other person when revealed you suffer with MS? I have decided there is no point not being up front from beginning as some physical things I cannot hide anyway- so I have told men and they disappear pretty fast (even after they say it's ok)- I am an attractive woman ,I am told - It would be interesting to hear back on other singles dating tips on this and their experiences? (any funny stories certainly would lighten up this group a little too?) LOL!> > Q3. A LDN question - For those in group - I need feedback on your experiences on first month to 2nd month on LDN and changes you noticed physically on LDN? I have had bad sight flare-up(amongst other things) - ( I am physically revisiting last 2 attacks old wounds pretty full on - what did others notice on this same thing and the outcome now further down the LDN road? > > I have complete faith in LDN- my intuition on this says hang in there- it just needs time ( I have been taking it for about a month now 3mg - 4 mg) gone off copaxone for about 2 weeks now. to see how LDN does on its own.> > Appreciate immensely guys your responses on any of these questions -> > Kellie from Sydney> sending healing light to all

[Guest guest]

>I'll get back to you on these questions Kell, in the mean time, can we get

>some MALES responses?

Sure :-) I never make any secret of the fact I have MS. I do make it

clear though, that it may be part of WHAT I am, it is not WHO I am. Too

many hear about something like MS and the person to them becomes the

disease 1st, and a person 2nd, don't let that happen.

>Q2. Dating is scary stuff with MS as it is so confronting to other person

>when revealed you suffer with MS? I have decided there is no point not

>being up front from beginning as some physical things I cannot hide

>anyway- so I have told men and they disappear pretty fast (even after they

>say it's ok)-

>Q2: Dating. Well, I gave up on that several years ago when my boyfriend

>turned out to be a closet cross dressing, drug addict!!

If they disappear, good riddance, but don't give up because of it. I know

society makes it hard with everything moving so fast these days, but it

seems the best relationships are the ones that start out as friends first,

and then grow in to something more.

If you can find someone to be close friends with, and I do mean CLOSE,

going to movies, spending hours up all night talking about anything and

everything, lingering hugs hello and goodbye, etc, and someone who's happy

to be with you just for that sort of things and not push for more. Then

you may have someone worth moving on to becoming intimate with.

Most of all though, it's not worth staying alone because of past bad

encounters, it's just not worth it. Doug (sorry for going on so much

about this, but I know too many people alone and miserable, but too hurt to

keep trying)