Re: About all these MS Soc rejections....

[Guest guest]

Bill OReilly would be a great person to look into things...and get some action.

-------Original Message-------

From: low dose naltrexone

Date: Wednesday, May 19, 2004 15:57:26

low dose naltrexone

Subject: [low dose naltrexone] About all these MS Soc rejections....

Hi I'm a "lurker" on this group ~I have family members with MS and other disabilities soooo I find this really interesting and hopeful.Anyway, was thinking and wondering - Has anyone contacted the media about LDN and the stonewalling that the MS Soc. and Doctors are doing regarding scrips/research? I was thinking someone like Bill O'Reilly's no spin zone would be good~ http://www.foxnews.com/oreilly/index.html or someone on CNNLet the media people know that there is potential help avail but nobody wants to risk it, Pay for it, research it, etc. The MS Soc. (which IS supposed to be there to look into these types of things for people w/MS, that's why individuals donate to them!!) isn't doing their job. Why not start emailing heavy hitters in the news to start investigating this? Send them all the form letters being returned to you, send them information re LDN and testimony's. It's worth a try dont you think?I don't recall seeing any posts about contacting the News Media so thought I'd throw in my 2 cents worth.(this is the message that got me all fired up) Alan,ISnt it disappointing? I just got the same response (minus the dearalan part, lol). The part that annoyed me, and i continued to writeback, is that the NMSS are telling us to go out and fend forourselves once again - they're saying - "Your on your own, we are notsupporting LDN". Isnt that lovely? And here I thought they wereestablished for us. They want US to go out to our doctors and do the hard work? So, the MS Society has no spine or influence to makea trial happen? Give me a break!!!Friday