Guest guest Posted May 17, 2004 Report Share Posted May 17, 2004 Hi, folks! I don't know if I can be of any help, but I happen to work for a group of academics who have extremely close ties to UPMC and CMU in Pittsburgh. I could do some checking to see if they could put me in touch and smooth the way to perhaps start the wheels in motion. Let me know if anyone has any interest and I'll see what I can find out! Thanks Debbie -----Original Message----- From: redtruck99 [mailto:redtruck99@...] Sent: Sunday, May 16, 2004 3:34 low dose naltrexone Subject: [low dose naltrexone] Re: LDN research fund Lara, great pragmatic ideas! And very doable. There are contract research firms avaialbe, there is an LDN trial protocol floating around now, a few doctors sympathetic to the cause, so perhaps these pieces can all come together and we can get rolling! Samanta =============== Lara wrote: Someone asked how to go about privately setting up a research fund? Its quite easy if you have a trustworthy person to put in charge. Set up a webpage outlining your goals- to collect money to fund research for the use of LDN in treating MS and other autoimmune diseases. Have a research physician signed on -or contact Dr. Bihari for info. You might be able to find Med students, Interns or others that would be interested in helping conduct a clinical trial if they can publish the results as part of their graduation requirements.Then attach a link to Paypal on the site and send out emails (not spam) to folks you know would donate. They can do it securely on-line. Put links on other's webpages if they will allow it. As you gather donations, leave the funds in the Paypal account and post a status message periodically that will allow others to see that the money is being held legitimately. You would not want to be accused of internet fraud or theft by deception (my brother is a cop). Once you hit your $$ figure you then turn the funds over to the research facility, collect the results of the clinical trials and then smuggly present these results (hopefully published in a respectable medical journal) to the National MS Society! It might take many months or even a couple of years, but if you can get valid research and plop it in front of the NMSS and make them sit up and take notice it will be worth the wait. ======================= Quote Link to comment Share on other sites More sharing options...
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