Guest guest Posted February 21, 2001 Report Share Posted February 21, 2001 Regi, Great intro! You have a wonderful sense of humor. We have a lot in common. I am in my forties, married 22 years. CMT has also been traced in my family back into the 1800s. I was diagnosed as a young child, although I did not have the many surgeries you had. (My sister had surgeries.) I wore night splints in the form of short leg braces (older style with metal rods inserted into leather shoes). I have 3 daughters, one diagnosed. She is more affected than I was at her age, although she is MUCH MORE physically active. She just loves to dance, jump rope, run and play, even though she does have a lot of pain associated with CMT. I love the term " pop sicles " to describe cold hands and feet. I'll have to use that one myself. I also have a husband who does not mind my freezing cold hands and feet - Thank God! I don't like to touch myself with them when they get cold. I have had to ask him to read menus for me at times - he affectionately calls me an old lady whenever I ask for help. Anyway, Welcome to the group. Ruth Warren > Becky you asked some questions. here are the answers. > I have had CMT since I can remember. We have traced CMT as far back > as as the 1830's. No generation has been skipped yet. I have 2 kids > but neither have CMT. Thank the good lord. I am married and have been > for 2 centurys (LOL). My husband is a good man a takes care of me > very well. He is always concerned about my safty and health. He is > glad that I have the computer and the internet to learn more from. > My surgery's started in grade school with heel chord lenthging and > the triple, heel chord again, toes straightened, ankle fused and I'm > considering having some hammer toes corrected this coming summer. I > am 40 years old and enjoy life even with CMT. I use arm crutches to > help get around. My knees feel as if they willl give out on me at > any time. > My hands are also involved. I have minimal use of my right thumb and > my grip is frightful. But I have learned that if I need help I ask > for it. > My husband took all his employees out to dinner the other evening > with thier spouses and I couldn't cut my beef ribs apart so I could > eat them. So after trying several times I asked him to cut my beef > ribs... Not only did he cut the ribs but he also cut the sausage that > came with it... He is so thoughtful. > The cold does bother me, and so does the heat. The ideal temp for me > is no lower than 40* and no higher than 80* and hopefully not humid. > LOL.... I have my thermastat in the house set at 70* and my fngers > and feet are like popsicles..... I am so thankful for an electric > blanket and a husband that likes it when I put my cold feet on his > warm tummy. LOL > Oh, you asked what type of CMT I have.... I have the type that no one > can make heads or tails out of.... LOL... I have no idea.. > Hope this answered some of your questions... > Regi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 Robin, I have been CRONing since May 1, 2001 (after eating well and exercising similar to yourself) and have lost 30 lbs so far. My wife is also following the CRON diet , and my 5 and 7 year old daughter eat some of the CRON food but not all. The children are not on any CRON program, they just eat the nutritious meals (except maybe the fish). So the point of boring you with my family is to answer your question about the megameal. Yes, I do prepare them with some slight modifications depending if I can get all the ingredients. I follow the meals in the book written by Dr Walford and his daughter as I have found them better and my wife will eat them. I usually cook one a weekend, sometimes 2 if the weather stinks on a weekend. We eat them the day I cook, and freeze the other six servings. My wife and I eat the megameal Monday, Wednesday, Friday since we both work and the in-laws watch the children. We have a mix of recipes in the freezer to avoid boredom and rarely have the same meal twice a week (easy when you do have a supply). The other days my wife prepares something CRON friendly (baked sweet potatoes, pasta, veges, chicken, ham etc...). The meals are not that difficult although they do take time. Recipes I made; Paella, Super Burrito, Lazagna (modified hybrid with his baked ziti recipe), Chili, Manicotti, stuffed peppers. All are enjoyed by myself, all but the peppers by my wife, all but the burito, chili and peppers by the kids. As far as weight, you are now under a 25 BMI. 125 lbs puts you at 20 BMI which is probably OK. The set point is where you migrate to if you neither over nor under eat, usually a mid twenties weight (unless you overate then). Everyone's weight is different. Hope this helps. Joe At 08:45 PM 9/30/01 +0000, you wrote: >Hello, > >I've been lurking around the list for a bit and felt I should introduce >myself. My name is Robin and I've read Dr. Walford's book and am convinced >that calorie restriction is very likely to produce a lengthening in lifespan >as well as a reduction of the diseases of aging. I'm very interested in >CRON -- but I'm not committed to doing it myself yet. > >I eat a pretty nutritionally sound diet composed of primarily whole grains, >veggies and fruits -- but my current calorie intake to too high for >life-extension benefits. I tend to eat a pretty nutritionally balanced diet >that meets all the RDAs, then " supplement " that diet with a couple cookies >or a cup of ice cream. Obviously for me getting rid of the junk is the >biggest step. > >Anyway, I was wondering if anyone uses Dr. Walford's mega meals described in >The Anti-Aging Plan? Do you make several servings once a week and then >freeze them as he suggests? Does that work for you? > >If you don't use that method, what method do you use to design and plan your >diet? > >One final question: I'm 28, female, 5'6 " , and it seems my set-point for >weight is around 140-145 lbs. Does aiming for a weight of 125 reached over >a period of a year or two seem like an appropriate goal? > >Thanks, > >Robin > >_________________________________________________________________ >Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2004 Report Share Posted July 28, 2004 http://www.mercola.com/forms/organic_pastures.htm On 28 Jul 2004 at 5:23, pam wrote: > Where on that sight/Dr. Mercola is the milk? > Anyone have that link? > Pam > ----------------------- > > > > > > > > > $10 a gallon for > > > raw milk sounds a tad over the top to me! > > > > > > I pay $3.25 a gallon, $1.75 a half gallon. If you bring your own > container > > it's $3.00 per gallon. $10.00 a gallon is A LOT! > > > > Gloria > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2004 Report Share Posted July 28, 2004 It's cheaper at the dairy. http://www.organicpastures.com/stores.html On 28 Jul 2004 at 5:23, pam wrote: > Where on that sight/Dr. Mercola is the milk? > Anyone have that link? > Pam > ----------------------- > > > > > > > > > $10 a gallon for > > > raw milk sounds a tad over the top to me! > > > > > > I pay $3.25 a gallon, $1.75 a half gallon. If you bring your own > container > > it's $3.00 per gallon. $10.00 a gallon is A LOT! > > > > Gloria > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2004 Report Share Posted July 28, 2004 > I am not quite so lavish with my praise of his site as I think he has a > vested interest in promoting and selling his own products. $10 a > gallon for > raw milk sounds a tad over the top to me If You will check out the prices on the source of this Certified Organic Milk, you will find that Dr. Mercola is charging no more than Organic Pastures charges. I will agree that $5.00 a 1/2 gallon is quite steep plus you have to add shipping to that. However, he is making this available to many people that are not able to find Raw Dairy sources. This is an important venture and perhaps this will lead to the legalization of Raw Dairy for every one. I don't believe that his motivation is to make money on this product but to help those that want and need Raw Dairy. I pay only $2.66 a gallon for my Raw Milk but it took me a lot of time and effort to find my source in the state of VA where sale of Raw Dairy is illegal. I also believe that Dr. Mercola provides great free information on health issues and is and has helped many people regain their health through his total caring and committment to alternative medicine. Anne http://www.organicpastures.com/stores.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2008 Report Share Posted August 28, 2008 Hi Joe,Just for your information PF Changs has a gluten free menu with lots to choose from. Pamelas gluten free products can be found at Whole Foods Market. Her pancake mix and brownie mix are excellent. You might want to start there. They also carry Bobs Red Mills gluten free mixes which I like as well.I live in South San Francisco and often shop at Rainbow Market in San Francisco...they too carry many gluten free mixes, cereal, etc. my best to you and your daughter...no consolation now but it does get easier. Rosie----- Original Message ----From: Joe ez <joe@...> Sent: Wednesday, August 27, 2008 9:39:36 PMSubject: [ ] Intro Hello everyone, My 16-yo daughter was just diagnosed with Celiac a couple weeks ago, and we are just getting started learning about the gluten-free lifestyle. I've been waiting for close to a week to get approved on the SillyYaks group, and got tired of waiting, and found this one. I'm glad to find a local group as well. We live in San , and so am very interested in hearing about any gluten-free- friendly restaurants in San . I guess that's all for now. -Joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2008 Report Share Posted September 13, 2008 Hello Joe, welcome to the group. I live just south of San and was diagnosed with Celiac disease last January. How is your daughter doing with her diagnosis? If you need any resources/suggestions in the bay area, please don't hesitate to ask. > > Hello everyone, > > My 16-yo daughter was just diagnosed with Celiac a couple weeks ago, > and we are just getting started learning about the gluten-free > lifestyle. I've been waiting for close to a week to get approved on > the SillyYaks group, and got tired of waiting, and found this one. > I'm glad to find a local group as well. > > We live in San , and so am very interested in hearing about any > gluten-free-friendly restaurants in San . I guess that's all for now. > > -Joe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2008 Report Share Posted September 15, 2008 Welcome. This group is a great resource for local Bay Area things, but another one I belong to is here http://www.glutenfreeforum.com/ over 10,000 Celiacs and Family members. Its a great resource. As for restaurants, I believe the Amici's in San has GF pizza. http://www.amicis.com/ Good luck:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2008 Report Share Posted September 16, 2008 Things are going pretty well so far. She has been keeping un-glutenated for the most part. She has had a couple attacks, but not too bad. Kaiser is going to be sending us a packet with local info, which I'm looking forward to getting. They just rebuilt the Nob Hill Foods at Santa & Snell, and they have a good selection of GF foods. They have two whole aisles of " Natural Foods " , including a freezer case that caries s number of GF frozen meals. The also have about a 3-foot wide section of GF baking supplies. I was amazed, and this will save some trips to Whole Foods. We're always on the lookout for GF-friendly restaurants. -Joe wrote: > > > Hello Joe, welcome to the group. I live just south of San and was > diagnosed with Celiac disease last January. How is your daughter doing > with her diagnosis? If you need any resources/suggestions in the bay > area, please don't hesitate to ask. > > Quote Link to comment Share on other sites More sharing options...
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