Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 Hi Lesa, Im on LDN,cos I,m no different to anybody else with MS.If I can stop it progressing now ...excellent! ( and also my dad died so appreciated being on it during that hard time,cos it was prime relapse time) But I have had a hell of a time with it, firstly lack of sleeping,which has resolved mostly and the stiffness and lack of balance. They are an awful lot worse on the LDN and are not resolving.I have tried 4 different doses and have just gone back to the 4.5 mg (the top dose) cos its best for my sleeping. ( this week 18). my heart went out to you when I heard you were bedridden and I remembered my time like that .It was also prednisolone related.I lost the use of my hands with a 4 month old baby ,which was fun. My father and the neuro persuaded me to go into hospital for a week for prednisolone IV and the full MRI and spinal taps and eye tests , in order to get a definitive diagnosis.( I was hoping for an operable spinal tumour.. Anyway to cut a long story short ,my 4 year old daughter came down with chicken pox while I was in hospital and when I came home ,the new baby had it and my hands got WORSE .They were like jelly. I was bedridden ,for a month,with a severe case of adult chicken pox .Anyway totally disillusioned with conventional medicine ,I went on homeopathic( I had really severe chest problems with the chicken pox) and miracle of miracles MY HANDS GOT 90% ( and my lungs)better within a week I was booked into all these things about coping without the use of your hands which I never went to. It was hard still ,to ,let go of playing music allot but my hands have never recovered the stamina needed to play a full gig. That's why I spent the next 10 years wedded to and investigating homeopathic. My dad was a world renowned drug expert and warned me off ABC drugs from the beginning.My neuro, who I hardly ever see, was his ex student.So he never mentioned them. My mothers neuro used to call her ms benign,,, she is wheelchair bound and has been for the last 15 years. Try LDN,im just a really bad side symptom person,others have had really good experiences on it.Thanks for writing it was hard to write on this forum ,why im so sceptical kind regards Louise OZ Quote Link to comment Share on other sites More sharing options...
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