Guest guest Posted November 6, 2002 Report Share Posted November 6, 2002 How wonderful Mike!!!!!! Yes, tx. can and does work more and more. Going on 3 years clear myself. God Bless!!! llann47457@... wrote: Hi All, I dont post here often...But I do read all the correspondence... Just thought everyone might like to know that tx can work...I am a 50 yr old W/M...I have had this virus for near 30 yrs...I am type 1A...with cirrosis...I started tx just 6 months ago...Just had my 6 month ckeck up and PCR test...And I am negative...no detectable virus in my blood...The side affects have been a pain in the butt... but not unbearable...I got this news on Dec 24th...a perfect christmas present...Heres to a Happy and prosperous New Year to everyone...Let this new year be an excellent one for us all... Mike.......... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2003 Report Share Posted January 2, 2003 To whom it may concern: got test results today, viral load at record low[for me]140,000. I think it's love that makes the difference. now if someone would marry me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2003 Report Share Posted January 3, 2003 excellent!! so encouraging !! the year is off to a great start! D Re: [ ] viral load To whom it may concern: got test results today, viral load at record low[for me]140,000. I think it's love that makes the difference. now if someone would marry me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2003 Report Share Posted January 3, 2003 What brought it down, mine is 7,000,000,000 they say..... Luv, Gwen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2003 Report Share Posted January 3, 2003 What is tx? I have had a liver transplant july 2002 and have hep c 1a. The virus is on the rise already and i am looking towards the peginferon treatments. I take milkthistle and vit. c for now. Any alternative ideas would be appreciated. I also had to have my spline removed,so my immune system is almost non-exsistent..Thanks ,Scarr Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2003 Report Share Posted January 3, 2003 Hello, Yes i am ready to marry you,please send me your pic. >From: pumpboz@... >Reply- > >Subject: Re: [ ] viral load >Date: Thu, 2 Jan 2003 20:08:29 EST > >To whom it may concern: got test results today, viral load at record >low[for >me]140,000. I think it's love that makes the difference. now if someone >would >marry me. _________________________________________________________________ MSN 8: advanced junk mail protection and 2 months FREE*. http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 Fantastic news sissy! If anyone needed a break right now it was you. Sooo...here's to ya! (raising glass of Superblend) Cheers sissy! Big hugs, Melody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2003 Report Share Posted December 23, 2003 --that is great news all around. congrats! blessings, satya [ ] Viral Load Hi Guys, I have been grieving over my friend Ruthy that passed to theother side last Sat,that I overlooked the results of my viral load that Ihad done. I was sitting here looking at the numbers & it shocked me,Iassumed it had went up-not so.It has went from 49410 down to-7760-Big drop & I wanted to share somethinggood with you. Ye haw.I'm so happy I'll do a little moon dance for all. LOLI give the superblend the credit. I'm not pushing it or selling-justsharing. I sure needed some good news for a change,this has been a year oflosses for me & losing those I love. God has sent me something to be happyabout.Now the big news I became a great Grandmother thurs for the 2nd time. Aprecious little girl-almost 9 lbs.BIG PROUD GRINLove & Hugs, & her m m Honeys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Hi Marilyn, Its late so I can't do the digging tonight, but I will weed through my messages and see where I got that tidbit of info. It could be that what I read was that LDN and HY2 (Hypericin) increased the action of Ribavirin (if used) and THAT combo is what brought down the viral load. But it seems to me that if LDN stimulates the bodies own immune response then my natural killer cells would stop attacking me (and my liver) and go to work on the HCV, thereby naturally lowering the number of viral replicants in the blood stream. I'll see if I can't find more. I believe that the Colloidal Silver is also a potent anti-viral and so could probably be substituted for the Ribavirin with out all the nasty side-effect that Ribavirin lists. If you have the chance to speak to Dr. Bihari again would you please ask if I can have a consult with him personally? I hear he does phone consults? I am sure they are quite expensive but I have an out-of-pocket reimbursement plan that would help me pay for the consult. When I have my actual genotype and viral load on paper I would like to speak with him and try to customize a regimen to treat my HCV. Thanks for your post!Lara p.s. To all: If I drop off your radar for the next few days don't be alarmed. I didn't stick my head in the oven or jump off the Aurora Bridge- I have a houseguest coming to town for a weeklong visit. But I'll try to stay on top of your posts! ------------------------------------------------------------------------------------- Original Message: 4 Date: Mon, 17 May 2004 16:19:54 EDT From: uheal@...Hi, I am interested in where you got your info that LDN lowers the viral load with Hepetitis C. I spoke to Dr. Bahari and he said it would not bring down the viral load. Thanks, Marilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2009 Report Share Posted October 21, 2009 Hi Henry I am not a medical professional, but here are my thoughts. [1] - My viral load is twice as high as yours......515,000. Many folks have VL scores in the ten of millions. Yours is low. I just saw my Heptologist, and she said VL goes up and down throughout the day, from day to day, etc. It is useful as a indicator when looked at with all your other lab tests. She said that at this time, 'I', did not need a biopsy or treatment, as my stats were pretty good. I could wait until next year. I figure I have possibly had HCV since the early 1970's when I did IV drugs. [2] - I doubt your doctor would lie to you. There is no reason to do that. [3] - You said you had a liver biopsy. What did it show? What did your doctor say about your biopsy, and your need to do treatment? What were your lab stats? [4] - HCV is a slow progressing virus, so you may have time to wait until next year for the 3D TX with viral inhibitors added. [5] - I know that your afraid. So are we all. Try to calm down and relax, so that you can make judgements clearly. Henry, I am trying to reassure you and give you support. We all will help you in any way that we can. Have you gone through the group links section, and looked at any of the websites listed there? http://health.dir./group/ /links <--- click here love don in ks From: henry_moreno01 <henry_moreno01@...>Subject: [ ] Re: Kaiser Hospital and Hep C Date: Wednesday, October 21, 2009, 1:31 AM Hello,Here is my situation... I have had HCV for almost 10 years since 2002 that is the only time I was a bit wild. I was diagnosed with HCV approximately six months ago. I am a avid runner, workout and love to enjoy life. …obviously this was not a good time in my life. I had a liver biopsy done and the doctor said the viral load was 216,540 is the exact count. I find this hard to believe, I suspect they are giving me a low count to keep me pacified. I too think it is a good time for treatment because the count is so low!! But the doctor is saying it is chronic because it has been almost 10 years. Please what do you think?Also what is your viral load and why did you have to go for a second treatment? I am very curious about that, I hope I am not being to personal just please share your experiences with the group. I am sure it is no walk in the park like you said, but why would you go again then. I think it is a good thing it is the only treatment available I want it too I helped pioneer interferon genetic growth at Genentech many years ago. Little did I know I was going to need it.>> Why would you want treatment if you have an almost non-detectable viral load??> > Treatment is definitely no picnic in the sun and could cause side affects that are a lot worse than having you viral load watched for changes. I know, I'm on my second treatment.> > > > > ________________________________> > > Anyone have Kaiser Insurance that has been diagnosed with HCV and almost nondeductible viral load I recently was and have had an uphill battle trying to get treatment…Any ideas..Please help.> > > > > > __________________________________________________________________> Canada Toolbar: Search from anywhere on the web, and bookmark your favourite sites. Download it now> http://ca.toolbar..>------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2009 Report Share Posted October 21, 2009 I ditto what Don said. The doc won't lie. You have a pretty low viral so that is great news. Better treatments with less side effects and less treatments are close to release for next year. I am sure your doc has your interest first. But as I said, talk to them about your concerns and their reasoning. Docs seem so busy sometimes but it is their job to answer your questions! As Bob Marley says, Don't worry, be happy! Your news seems to be great news especially considering you have probably had it for 10 years. Stay involved by making healthy lifestyle and diet choices and talk to your doc about when they do want to treat! Best wishes, Scarlet > > > > Why would you want treatment if you have an almost non-detectable viral load?? > > > > Treatment is definitely no picnic in the sun and could cause side affects that are a lot worse than having you viral load watched for changes. I know, I'm on my second treatment. > > > > > > > > > > ________________________________ > > > >  > > Anyone have Kaiser Insurance that has been diagnosed with HCV and almost nondeductible viral load I recently was and have had an uphill battle trying to get treatment…Any ideas..Please help. > > > > > >  > > > > > >     __________________________________________________________________ > > Canada Toolbar: Search from anywhere on the web, and bookmark your favourite sites. Download it now > > http://ca.toolbar.. > > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 I wish to add my two cents to this discussion. About ten years ago when I was approaching my first treatment episode I had had HCV (gen 1a) for 30 years and my viral load was 800,000 something. A biopsy revealed stage 3 (almost 4) and bridging fibrosis. After 8 months on treatment my viral load was 17,000 something and treatment was discontinued as I was suffering severe sides and there was little chance of clearing since I hadn't already done so. Six weeks after stopping treatment I felt wonderful. I was running, swimming and playing happily. My viral load was 12,000,000. I am glad for you that your viral load is low in that if you do treatment there will be less virus to eradicate but I want to caution you that a low vial load isn't necessarily a good thing. I believe that our immune systems come to a balance, a homeostasis, in the struggle against the virus. That means that your system has been able to draw a line or set a limit as to how much virus it allows at a relatively low level. In order to do that your immune system has to continually battle the beast. This shows up as inflammation (often seen as elevated ALT and AST) Damage to the liver called fibrosis is the result of that battle. If your system can not clear the virus completely your liver would be better off if your system failed to see the virus at all. That being said, I would put off treatment until the protease inhibitors are approved. Treatment will not be any less difficult but your odds of success will have doubled. Whether you can wait depends on the condition of your liver and that takes a biopsy or at least fibrosure(sp?) to determine. HCV does not progress linearly, you may have it " in check " for years and then everything will rapidly change. Don't make decisions based upon subjective feelings of well being. I am 60. Last year I swam a mile and a half a day, ran regularly, kitesurfed, etc. and generally felt quite happy and healthy. So good in fact that I had neglected my regular blood work. When I did go in for tests in May I got a call from my doc who explained the results, cirrhosis and impending liver failure. I trust her completely (she is a recognized expert in this field). She said I couldn't wait a year for the new drugs so I ended up on treatment again. The good news is that after four weeks I was undetectable. I have 41 weeks to go. I could tell you a true Kaiser horror story about how they allocate resources but think it would be better to just say, " Do your research. " Go to Kaiser with copies of studies that back up your position and don't stop until you get what you want. Good luck and great health. Jim [ ] Re: viral load I ditto what Don said. The doc won't lie. You have a pretty low viral so that is great news. Better treatments with less side effects and less treatments are close to release for next year. I am sure your doc has your interest first. But as I said, talk to them about your concerns and their reasoning. Docs seem so busy sometimes but it is their job to answer your questions! As Bob Marley says, Don't worry, be happy! Your news seems to be great news especially considering you have probably had it for 10 years. Stay involved by making healthy lifestyle and diet choices and talk to your doc about when they do want to treat! Best wishes, Scarlet > > > > Why would you want treatment if you have an almost non-detectable viral load?? > > > > Treatment is definitely no picnic in the sun and could cause side affects that are a lot worse than having you viral load watched for changes. I know, I'm on my second treatment. > > > > > > > > > > ________________________________ > > > >  > > Anyone have Kaiser Insurance that has been diagnosed with HCV and almost nondeductible viral load I recently was and have had an uphill battle trying to get treatment…Any ideas..Please help. > > > > > >  > > > > > >     > >__________________________________________________________________ > > Canada Toolbar: Search from anywhere on the web, and bookmark > >your favourite sites. Download it now http://ca.toolbar.. > > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 Thank You for all you have said here!!!I too felt absolutely fine and would have had no idea that I had Hep C, if it hadn't been for the Insurance Blood Test. Then, like you, it turned out that my first biopsy showed that I was also at stage 3 with the bridging fibrosis. That first treatment ended in the summer of 2005 as a NR. By January of 2009, the liver biopsy showed that I was in first stage cirrhosis.So, truly, there is no great warnings or a pat statement for everyone of which tests to watch. They all mean something somewhere down the line. Just be grateful if your Hep Dr. is not trying to rush you onto a treatment that has too high failure rate and yet can leave some pretty wicked sides.I'll still be the guinea pig here for another 3 months, as I've been involved in a Clinical Trial with the Protease Inhibitor. The only thing that know at this point about a viral level, is as long as they are leaving me on the treatment - my viral load must have gone to 0 either in the first three months (happened before) and stayed there at 6 months. The clinic is not allowed to tell me that particular piece of information.Gloria I wish to add my two cents to this discussion. About ten years ago when I was approaching my first treatment episode I had had HCV (gen 1a) for 30 years and my viral load was 800,000 something. A biopsy revealed stage 3 (almost 4) and bridging fibrosis. After 8 months on treatment my viral load was 17,000 something and treatment was discontinued as I was suffering severe sides and there was little chance of clearing since I hadn't already done so. Six weeks after stopping treatment I felt wonderful. I was running, swimming and playing happily. My viral load was 12,000,000. I am glad for you that your viral load is low in that if you do treatment there will be less virus to eradicate but I want to caution you that a low vial load isn't necessarily a good thing. I believe that our immune systems come to a balance, a homeostasis, in the struggle against the virus. That means that your system has been able to draw a line or set a limit as to how much virus it allows at a relatively low level. In order to do that your immune system has to continually battle the beast. This shows up as inflammation (often seen as elevated ALT and AST) Damage to the liver called fibrosis is the result of that battle. If your system can not clear the virus completely your liver would be better off if your system failed to see the virus at all. That being said, I would put off treatment until the protease inhibitors are approved. Treatment will not be any less difficult but your odds of success will have doubled. Whether you can wait depends on the condition of your liver and that takes a biopsy or at least fibrosure(sp? ) to determine. HCV does not progress linearly, you may have it "in check" for years and then everything will rapidly change. Don't make decisions based upon subjective feelings of well being. I am 60. Last year I swam a mile and a half a day, ran regularly, kitesurfed, etc. and generally felt quite happy and healthy. So good in fact that I had neglected my regular blood work. When I did go in for tests in May I got a call from my doc who explained the results, cirrhosis and impending liver failure. I trust her completely (she is a recognized expert in this field). She said I couldn't wait a year for the new drugs so I ended up on treatment again. The good news is that after four weeks I was undetectable. I have 41 weeks to go. I could tell you a true Kaiser horror story about how they allocate resources but think it would be better to just say, "Do your research." Go to Kaiser with copies of studies that back up your position and don't stop until you get what you want. Good luck and great health. Jim [ ] Re: viral load I ditto what Don said. The doc won't lie. You have a pretty low viral so that is great news. Better treatments with less side effects and less treatments are close to release for next year. I am sure your doc has your interest first. But as I said, talk to them about your concerns and their reasoning. Docs seem so busy sometimes but it is their job to answer your questions! As Bob Marley says, Don't worry, be happy! Your news seems to be great news especially considering you have probably had it for 10 years. Stay involved by making healthy lifestyle and diet choices and talk to your doc about when they do want to treat! Best wishes, Scarlet > > > > Why would you want treatment if you have an almost non-detectable viral load?? > > > > Treatment is definitely no picnic in the sun and could cause side affects that are a lot worse than having you viral load watched for changes. I know, I'm on my second treatment. > > > > > > > > > > ____________ _________ _________ __ > > > >  > > Anyone have Kaiser Insurance that has been diagnosed with HCV and almost nondeductible viral load I recently was and have had an uphill battle trying to get treatment…Any ideas..Please help. > > > > > >  > > > > > >     > >___________ _________ _________ _________ _________ _________ __ > > Canada Toolbar: Search from anywhere on the web, and bookmark > >your favourite sites. Download it now http://ca.toolbar. . > > > > > > > ------------ --------- --------- ------ > > Quote Link to comment Share on other sites More sharing options...
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