Guest guest Posted May 21, 2004 Report Share Posted May 21, 2004 ok gang... here goes... been " lurking " here for about seven months... first month collecting data to make an informed decision... last six months on 3mg LDN... results have been awesome... i have had ppms for over twenty years and have been doing chemotherapy with high dose cytoxin every two years since 1985... supressing the old immune system... putting out a fire that never went out... started out as part of a clinical trial up @ harvard in boston... was ready to do chemo again in october, 2003... neuro wrote the order... oncologist appt was scheduled... decided to try LDN first... no trouble getting rx... doc said " it can't be worse than chemo " ... LOL... felt something right away... balance was better... walking was better... spasticity was better... bladder was " way better " ... had the weird dream thing for the first week or so, but it stopped and so did the getting up a " gizillion " times a night to go to the bathroom... restless leg syndrome gone... yeah God... six months later, you would be hard pressed to tell i have ms... walking without a cane or a wall... i can even almost run like a " drunk " ... LOL... family and friends can't believe it... so thanks to all who have posted here... and a special thanks to a ms'er with alot of positive input, who told me i needed to post and get involved... LDN rocks... my e-mail is icbeverett@.... bill... Quote Link to comment Share on other sites More sharing options...
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