Re: Digest Number 615

September 4, 1999

I ALWAYS SEND E-MAILS AND YOU ALL ALWAYS TALK TO SAME PEOPLE ... WHY??? AND

CYNTHA YOU NEED TO TAKE CONTROL OF YOUR LIFE ,MAINLY YOUR ATTITUDE ABOUT ALL

THIS BECAUSE THEY WILL ... GET.. YOU DOWN... THE DISEASE ... WILL GET YOU

DOWN... WHETHER IT BE LYME OR CFIDS/.... ??? I WAS OFF A YR AND I FOUGHT TO

GET BK TO WORK AND ALTHO FMLV SAVES ME ... I AM ENTITLED TO 84 DAYS A YR

INTERMITTANTLY AS NEEDED ..IT IS A NATL LAW.! I FLY FOR MAJOR AIRLINE ANS IT

DOES SO MUCH FOR ME TO GET OUT AMONGST THE LIVING ... AND LITTLE MAKE A WISH

CHILDREN WHO ARE SO MUCH WORSE OFF THAN ME... IT HELPS KEEP MY ATTITUDE AND

MY SPIRITS HIGH... I HAVE LIVED WITH THE CHRONIC FATIGUE... BIPOLAR...

CARPAL TUNNEL. DEG. JOINT DISEASE... FIBROMYALGIA ... ETC DIAG FOR 8 YRS...

I HAVE DONE ONE THING ... FIFFERENT THAN MY FRIEND DOWN THE STREET ... WHO

CANNOT GET OUT OF BED TIL NOON... EVERY DAY... I SOUGHT OUT A GOOD ..

KNOWLEDEABLE INTERNIST ... THAT SP. IN CFIDS... <1994> THAT WAS AFTER THE

PSYC... SINCE I THOUGHT I WAS JUST LOSING MY MIND AT FIRST!!! I HAVE STUCK

WITH HER ... I ALWAYS DO MY OWN RESEARCH AND CROSS REFERENCE .. GO IN AND

ASK FOR ANSWRES OR NEW THINFGS AND I AM ALWAYS WILLING TO TRY.I FOCUS ON MY

FAMILY S WELL BEING AND KEEPING AS MUCH <NORMAL> AS POSS IN THEIR ROUTINE

.... GIVE PLENTY OF PATS ON THE BACK... THIS IS AFTERALL NOT THEIR FAULT.>

EVEN WHEN I AM REALLY FEELING TIRED I WILL PACK MY DUST BAGS I CALL THEM

WITH READING MATERIAL.... TK MY 10 YR OLD TO BMX PRACTICE ... I SIT /HANG

OUT IN THE CAR AND WATCH.... RUN MY IV IF THE TIMING IS SUCH... I ALWAYS

THANK HIM FOR BEING SUCH A GOOD LITTLE SON WHO HELPD HIS MYMOM BY RUNNING

LITTLE ERRANDS OR PUTTING LOTION ON MY BACK...FIXING ME A DRINK ... WORKING

HARD IN SCHOOL... ETC .... IT KEEPS HIS ESTEEM AND RELATIVE IMPORTANCE UP

HIGH AND HE STILL FEELS A GREAT DEAL OF VALUE NO MATTER HOW BAD I

FEEL.....HE RODE HIS BIKE 2 MILES JUST TO GET ME A TEGADERM THE OTHER DAY...

BY GIVING THEM LITTLE THINGS TO DO THEY MAINTAIN THER PLACE OF SIGNIFICANCE

AND VALUE WITHIN THE FAMILY ... IT IS SO CRITICAL WHEN THEY ARE THAT AGE ...

IT THE CRUCIAL TIME OF DEVELOPMENT IN THEIR SELF ESTEEM AND PLACEMENT WITHIN

THE SOCIAL SPECTOR AND HOW THEY WILL HANDLE THEMSELVES OUT THERE AND IT IS

NOT ALWAYS NICE .... THERE ARE SOME CRUEL KIDS AROUND .. BUT ONE WITH THE

ROUNDED DEV... WHEN THEY ARE IN THAT 3-9-10 RANGE MAKES ALL THE DIFF... YOU

HANG IN THERE ...

September 4, 1999

I am trying. I am sorry...but this kind of downed me. I have two children

three years old and one who is almost two. It isn't easy. I know you guys

know that.

I was abused as a child. I am learning to love myself. After you hear all

your life you are stupid you are a failure. Turned over knee and yelled at

because you show emotion. Darned if you do , Darned if you don't kind of

thing. I have fought with this for well all my life. And then I went

through almost losing my children to a mother in law who had mental illness

(she didn't know what she was doing honestly I love her to pieces) and they

choose almost to listen to her. A battle of getting a restraining order.

We have since found piece with eachother (when she finally decided to stay

with her pills and they added others). I have lost family in the last two

years. I am dealing with a child who has Dandy Malformation and

Hydrocephalus, constant throwing up. I have almost lost my child twice. I

am trying to get and support my husband through school. I don't have all

the time in the world to just sit down and research let alone rest. I am

still learning to trust people. Gosh I thought I was doing pretty good.

Money doesn't grow on trees....much of the money is going to my daughter's

medical bills that medicaid won't cover one way or the other. Insurances

are stopping me though I fight it with all I got. Doctors won't listen I

have been to seventeen. I live In IDAHO...almost impossible state to get

any doc to listen, but I am still trudging and trying with all I have, if

not I wouldn't be here looking for those who understand it better than I. I

have checked with the westcoast supporters all the doctors they have are

listed in near by states, even though the support group is in Idaho,

strange. I don't have the referral nor the money to venture on our own. We

are already in debt to the electric company. And $30,000 school loans cause

we have had to to get my husband through school. We are just barely holding

on to our trailor house. I feed my daughter through pump every night. She

just won't gain. I have three children who get sick real often *not saying

you guys don't....Please I know there are others who have it worse then I

out there...I am not trying to say poor me.* I say my poor children...I

feel like I have a noose around my neck and my hands tied behind my back.

I love my husband but yet he is so shy and timid...went through his own kind

of abuse, emotional. His mom did everything for him....He is doing better

but does not know how to fight for anyone. Come on if any of you have been

abused tell me that it is that easy to snap out of it.

Now just so you know..>I do feel like I can beat this. I do believe that a

doctor if I find the right one can help. I do believe in miracles and most

of all I believe in God. I do believe that things will get better. I have

forgiven my father *but that doesn't mean the actions don't come back to

haunt me from time to time...like flashbacks of being thrown at the wall* I

have the greatest relationship with him since he found help. I feel lucky

because many people don't ever have this closure. I have three beautiful

children that God could ever give me. I generally believe life can be happy

if we let it...but come on we all have troubles and we all need help from

time to time. I don't understand the material I do try to study. I have

read V. Book *which by the way was put in much simpiliar terms that I

could comprehend and imagine I use to be an EMT* I have a husband who

brings me tremoundous joy as well as sorrows but he is mine to share it

with...and he doesn't hurt or emotionaly cut them down. He is sensitive to

my feelings. He is not afraid to cry-to me that is important. And number

one he agrees with me that God comes first then us and then our children.

That way we are all in harmony. And he prays with me every night. I really

believe this is the way to stay together. Those who pray together stay

together. I will get through this but I need help to understand it...since

about every article posted *with medical jargon and such* I can not

comprehend nor follow. I can't seem to grasp things. Every once and a

while yes I can when I reread and reread some more. It is such a

frustrating feeling. But see this is where this family comes into play for

me. Because so many of you put things in such simpliar terms for me. I

appreciate the suggestions. Please believe me I am trying. After all my

family is very important to me. God bless you all. And please don't be

affended from my letter. I just well feel helpless and full of hope at the

same time if that makes any sense...and it has been a wonderful outlet.

Thanks again.

Cyntha Landon Idaho

>From: " kaair 2flywithme " <kaair@...>

>Reply-lyme-aidonelist

>lyme-aidonelist

>Subject: Re: [Lyme-aid] Digest Number 615

>Date: Sat, 04 Sep 1999 10:45:38 GMT

>

>From: " kaair 2flywithme " <kaair@...>

>

>I ALWAYS SEND E-MAILS AND YOU ALL ALWAYS TALK TO SAME PEOPLE ... WHY??? AND

>CYNTHA YOU NEED TO TAKE CONTROL OF YOUR LIFE ,MAINLY YOUR ATTITUDE ABOUT

>ALL

>THIS BECAUSE THEY WILL ... GET.. YOU DOWN... THE DISEASE ... WILL GET YOU

>DOWN... WHETHER IT BE LYME OR CFIDS/.... ??? I WAS OFF A YR AND I FOUGHT TO

>GET BK TO WORK AND ALTHO FMLV SAVES ME ... I AM ENTITLED TO 84 DAYS A YR

>INTERMITTANTLY AS NEEDED ..IT IS A NATL LAW.! I FLY FOR MAJOR AIRLINE ANS

>IT

>DOES SO MUCH FOR ME TO GET OUT AMONGST THE LIVING ... AND LITTLE MAKE A

>WISH

>CHILDREN WHO ARE SO MUCH WORSE OFF THAN ME... IT HELPS KEEP MY ATTITUDE AND

>MY SPIRITS HIGH... I HAVE LIVED WITH THE CHRONIC FATIGUE... BIPOLAR...

>CARPAL TUNNEL. DEG. JOINT DISEASE... FIBROMYALGIA ... ETC DIAG FOR 8 YRS...

>I HAVE DONE ONE THING ... FIFFERENT THAN MY FRIEND DOWN THE STREET ... WHO

>CANNOT GET OUT OF BED TIL NOON... EVERY DAY... I SOUGHT OUT A GOOD ..

>KNOWLEDEABLE INTERNIST ... THAT SP. IN CFIDS... <1994> THAT WAS AFTER THE

>PSYC... SINCE I THOUGHT I WAS JUST LOSING MY MIND AT FIRST!!! I HAVE STUCK

>WITH HER ... I ALWAYS DO MY OWN RESEARCH AND CROSS REFERENCE .. GO IN AND

>ASK FOR ANSWRES OR NEW THINFGS AND I AM ALWAYS WILLING TO TRY.I FOCUS ON MY

>FAMILY S WELL BEING AND KEEPING AS MUCH <NORMAL> AS POSS IN THEIR ROUTINE

>... GIVE PLENTY OF PATS ON THE BACK... THIS IS AFTERALL NOT THEIR FAULT.>

>EVEN WHEN I AM REALLY FEELING TIRED I WILL PACK MY DUST BAGS I CALL THEM

>WITH READING MATERIAL.... TK MY 10 YR OLD TO BMX PRACTICE ... I SIT /HANG

>OUT IN THE CAR AND WATCH.... RUN MY IV IF THE TIMING IS SUCH... I ALWAYS

>THANK HIM FOR BEING SUCH A GOOD LITTLE SON WHO HELPD HIS MYMOM BY RUNNING

>LITTLE ERRANDS OR PUTTING LOTION ON MY BACK...FIXING ME A DRINK ... WORKING

>HARD IN SCHOOL... ETC .... IT KEEPS HIS ESTEEM AND RELATIVE IMPORTANCE UP

>HIGH AND HE STILL FEELS A GREAT DEAL OF VALUE NO MATTER HOW BAD I

>FEEL.....HE RODE HIS BIKE 2 MILES JUST TO GET ME A TEGADERM THE OTHER

>DAY...

>BY GIVING THEM LITTLE THINGS TO DO THEY MAINTAIN THER PLACE OF SIGNIFICANCE

>AND VALUE WITHIN THE FAMILY ... IT IS SO CRITICAL WHEN THEY ARE THAT AGE

>...

>IT THE CRUCIAL TIME OF DEVELOPMENT IN THEIR SELF ESTEEM AND PLACEMENT

>WITHIN

>THE SOCIAL SPECTOR AND HOW THEY WILL HANDLE THEMSELVES OUT THERE AND IT IS

>NOT ALWAYS NICE .... THERE ARE SOME CRUEL KIDS AROUND .. BUT ONE WITH THE

>ROUNDED DEV... WHEN THEY ARE IN THAT 3-9-10 RANGE MAKES ALL THE DIFF... YOU

>HANG IN THERE ...

>

>---------------------------

September 4, 1999

Thankyou Joan..I needed to hear that...even if deep down I already know

it...it is great to be reminded...sorry if I came across harsh...I really am

doing much better emotionaly but it stil stings everyonce and a while.....

Cyntha Landon

>From: Namkrats3@... (Joan S.)

>Reply-lyme-aidonelist

>lyme-aidonelist

>Subject: Re: [Lyme-aid] Digest Number 615

>Date: Sat, 4 Sep 1999 23:47:04 -0400 (EDT)

>

>From: Namkrats3@... (Joan S.)

>

>Dear Cyntha,

>

>I would be happy to answer ANY questions you have about Lyme disease or

>anything else (if I can).

>

>Having gone through some abuse myself, I know how it can mess us up.

>Just remember this; you are a wonderful person, and what happened to you

>was NOT YOUR FAULT, and you did nothing to deserve it.

>

>You are a great Mom and wife. You are a fighter and are to be admired.

>Things will get better. You have alot of friends here.

>God Bless you and your family....Joan

>

>---------------------------

September 4, 1999

Dear Cyntha,

I would be happy to answer ANY questions you have about Lyme disease or

anything else (if I can).

Having gone through some abuse myself, I know how it can mess us up.

Just remember this; you are a wonderful person, and what happened to you

was NOT YOUR FAULT, and you did nothing to deserve it.

You are a great Mom and wife. You are a fighter and are to be admired.

Things will get better. You have alot of friends here.

God Bless you and your family....Joan

September 5, 1999

Hi Cyntha,

We are glad you are a part of our group, your story is touching and went

straight to my heart, you are doing as much as you possibly can and I admire

you for your strength thru all this,

Hugs and love,

Connie, MI

September 5, 1999

Thankyou Connie.

Cyntha Landon Idaho

Re: [ ] Digest Number 615

> From: Cslyme@...

>

> Hi Cyntha,

> We are glad you are a part of our group, your story is touching and went

> straight to my heart, you are doing as much as you possibly can and I

admire

> you for your strength thru all this,

> Hugs and love,

> Connie, MI

>

> ---------------------------

September 6, 1999

cyntha(spelled i right huh).....i know what u are going thru....in the middle

of all my fight with ssd and suck my little one developed a perfect bullseye

last summer and was dx'ed with lyme.......i just could not handle

it.......the serenity prayer helps me....

god, grant me trhe serenity to accept the things i can not change,the courage

to change the things i can , and the wisdom to know the differance.

thae last part i have found to be the hardest ....the wisdom to know the

differance......but i am working on it.....i will keep u and urs in my

pryers.....also no one should be offended like i have said thid list is

family we are here for just what u wrote....we have all been there in one

degree or another.....

while it seems like a nite mare it to shall pass.....i use to have all the

middle class....bs....lost most of it......collection agency for my time

share i owned wants 13K or they will ruin my credit rating.....i had a

disabiluity clause in my contract ....but they don't want to honor

it.....they say it was only for temp disability......i told them take the

stupid thing back.....ruin my credit.....thinking of suing them ....for

breach of contract and being non ada compliant.....i have better things to

worry about besides them ....i have all the credit i need......just refinaced

our house at a lower rate.....money and what i have no longer mean much to

me.....there is more to life(i use to think money and " things " were the most

important thing) now its family and good friends .....and believe me when u

get sick and poor u find out who ur " real friends " are....

Reid

January 23, 2000

Hi Gang! Geoff Crenshaw here.

> Date: Fri, 21 Jan 2000 22:00:53 -0500

> From: " Briarwood " <briarwood@...>

> Subject: Re: What does everyone drink?

>

> My mother-in-law from Wales always drank a cup of very warm water as

soon as

> she got up. Her mother had always done it too. It was supposedly

good

> for your digestion. Sometimes she put some lemon in it.

> craves Chocolate too. I think it is something in your diet you

are

> missing. When I go to town he'll more than likely get me to bring

him back

Just an FYI, not to argue or anything... but as adults we more often

crave what we are ALLERGIC to than what we are missing. Obvious

exceptions to this are such things as pregnant females eating dirt. But

remember, that is quite unusual as opposed to someone craving their

morning coffee, chocolate, bread, etc., and those cravings are 'allergic

reaction driven'. It is explained very well under the concept of

physical chemical dependency...

Subject ingests item A

Body produces item B

Item A is processed, but Item B is still in the bloodstream

In order to " balance " Item B, more Item A is needed.

Subject ingests A, then more B is produced, more A, more B and the

dance goes on in a circle. This happens with narcotics as well as food

stuffs.

Regards,

Geoff Crenshaw, ACC -----------------------

Captain Cook's Cruise Center ** Usual Disclaimers **

-----------------------

Religion: Man's attempt to discover God

Christianity: God's offer to save mankind

ICQ 60333388

January 24, 2000

> Date: Fri, 21 Jan 2000 23:27:48 -0500

> From: " Donna and Ray " <mousepotatoes@...>

> Subject: Re: What does everyone drink?

>

> My favorite sipping drink is club soda (no sodium) and a splash of

Donna

Now that's intriguing! <VBG>

Regards,

Geoff Crenshaw, ACC -----------------------

Captain Cook's Cruise Center ** Usual Disclaimers **

-----------------------

Religion: Man's attempt to discover God

Christianity: God's offer to save mankind

ICQ 60333388

January 24, 2000

Geoff,

Interesting theory. He was tested by the Naturopath by a machine which

connected about 150 different prods that were put on the tips of the

fingers. Each one represented a different food or element that you could

be allergic to and he never showed any allergy to chocolate. I wouldn't

know how reliable these tests would be but that is what it showed.

Bev

> Just an FYI, not to argue or anything... but as adults we more often

> crave what we are ALLERGIC to than what we are missing. Obvious

> exceptions to this are such things as pregnant females eating dirt. But

> remember, that is quite unusual as opposed to someone craving their

> morning coffee, chocolate, bread, etc., and those cravings are 'allergic

> reaction driven'. It is explained very well under the concept of

> physical chemical dependency...

>

> Subject ingests item A

> Body produces item B

> Item A is processed, but Item B is still in the bloodstream

> In order to " balance " Item B, more Item A is needed.

>

> Subject ingests A, then more B is produced, more A, more B and the

> dance goes on in a circle. This happens with narcotics as well as food

> stuffs.

>

> Regards,

>

> Geoff Crenshaw, ACC -----------------------

> Captain Cook's Cruise Center ** Usual Disclaimers **

> -----------------------

> Religion: Man's attempt to discover God

> Christianity: God's offer to save mankind

>

> ICQ 60333388

>

> ---------------------------

January 24, 2000

That's probably a VEGA machine which is used here by naturopathic doctors also.

It is at least as reliable as RAST testing which is the allergy testing usually

done in labs. A lot easier to use and quicker too.

However, not being allergic to chocolate doesn't negate the principle that tons

of sugar isn't good for anyone, especially those with disease.

The exception to this is Dr. Chiu who is allowed to eat as much chocolate as

he likes

Chris.

>From: " Briarwood " <briarwood@...>

>

>Geoff,

>Interesting theory. He was tested by the Naturopath by a machine which

>connected about 150 different prods that were put on the tips of the

>fingers. Each one represented a different food or element that you could

>be allergic to and he never showed any allergy to chocolate. I wouldn't

>know how reliable these tests would be but that is what it showed.

>

>Bev

>

>> Just an FYI, not to argue or anything... but as adults we more often

>> crave what we are ALLERGIC to than what we are missing. Obvious

>> exceptions to this are such things as pregnant females eating dirt. But

>> remember, that is quite unusual as opposed to someone craving their

>> morning coffee, chocolate, bread, etc., and those cravings are 'allergic

>> reaction driven'. It is explained very well under the concept of

>> physical chemical dependency...

>>

>> Subject ingests item A

>> Body produces item B

>> Item A is processed, but Item B is still in the bloodstream

>> In order to " balance " Item B, more Item A is needed.

>>

>> Subject ingests A, then more B is produced, more A, more B and the

>> dance goes on in a circle. This happens with narcotics as well as food

>> stuffs.

>>

>> Regards,

>>

>> Geoff Crenshaw, ACC -----------------------

>> Captain Cook's Cruise Center ** Usual Disclaimers **

>> -----------------------

>> Religion: Man's attempt to discover God

>> Christianity: God's offer to save mankind

>>

>> ICQ 60333388

>>

>> ---------------------------

January 24, 2000

I am glad you told me this because on seeing that machine I was thinking how

on earth could he identify an allergy when he didn't prick the skin to allow

a minute amount of the substance into the bloodstream. You are right

about being quicker. I had it done and it is painless too.

Bev

>

> That's probably a VEGA machine which is used here by naturopathic doctors

also.

> It is at least as reliable as RAST testing which is the allergy testing

usually

> done in labs. A lot easier to use and quicker too.

>

> However, not being allergic to chocolate doesn't negate the principle that

tons

> of sugar isn't good for anyone, especially those with disease.

>

> The exception to this is Dr. Chiu who is allowed to eat as much chocolate

as

> he likes

>

> Chris.

>

> >From: " Briarwood " <briarwood@...>

> >

> >Geoff,

> >Interesting theory. He was tested by the Naturopath by a machine which

> >connected about 150 different prods that were put on the tips of the

> >fingers. Each one represented a different food or element that you

could

>

> >be allergic to and he never showed any allergy to chocolate. I

wouldn't

>

> >know how reliable these tests would be but that is what it showed.

> >

> >Bev

> >

> >> Just an FYI, not to argue or anything... but as adults we more often

> >> crave what we are ALLERGIC to than what we are missing. Obvious

> >> exceptions to this are such things as pregnant females eating dirt. But

> >> remember, that is quite unusual as opposed to someone craving their

> >> morning coffee, chocolate, bread, etc., and those cravings are

'allergic

>

> >> reaction driven'. It is explained very well under the concept of

> >> physical chemical dependency...

> >>

> >> Subject ingests item A

> >> Body produces item B

> >> Item A is processed, but Item B is still in the bloodstream

> >> In order to " balance " Item B, more Item A is needed.

> >>

> >> Subject ingests A, then more B is produced, more A, more B and the

> >> dance goes on in a circle. This happens with narcotics as well as food

> >> stuffs.

> >>

> >> Regards,

> >>

> >> Geoff Crenshaw, ACC -----------------------

> >> Captain Cook's Cruise Center ** Usual Disclaimers **

> >> -----------------------

> >> Religion: Man's attempt to discover God

> >> Christianity: God's offer to save mankind

> >>

> >> ICQ 60333388

> >>

> >> --------------------------- ONElist

Sponsor ----------------------------

>

> >>

> >> Get great offers on top-notch products that match your interests!

> >> Sign up for eLerts at:

> >> <a href= " http://clickme.onelist.com/ad/elerts1 " >Click Here</a>

> >>

>

>> ------------------------------------------------------------------------

>

> >>

> >

> >---------------------------

January 25, 2000

>Message: 2

> Date: Tue, 25 Jan 2000 00:24:48 -0800

> From: & Shepherd <shepherd@...>

>Subject: Mitochondrial Disorders .... LONG!!!

THANKS very much for posting this information on mitochondrial

disorders!!!!! A couple questions......I have severe exercise intolerance

but no pain.....can that combination happen in mito disorders? Also I

would guess that perhaps there are only a dozen or so places to get the

fresh muscle biopsy done in the US. Is that correct? Or is this disease

more frequently tested for than I thought.

Also I heard that the muscle biopsies are extremely painful and that

often surgeons don't use anesthesia for fear of damaging the muscle. Is

this still true? Is mitoonelist the best list to sign up for or are

there also other lists that you feel are good right now. The information

was fascinating for many reasons. I've been hospitalized for drug

reactions that one my doctors says is probably a liver mitochondrial

problem.

Why do they only test muscle? I assume they simply avoid having to do any

organ biopsies that way? If there is a defect in the muscle is that

separate from a mito defect in the liver? Thanks -E

January 25, 2000

Hi E.........,

I will try to answer what I can by inserting responses.

> I have severe exercise intolerance but no pain.....can that combination happen

in mito disorders?

Absolutely! Climbing stairs is a favourite test and they like to take your

heart rate and respirations at the top of the stairs! :-)

> Also I would guess that perhaps there are only a dozen or so places to get the

> fresh muscle biopsy done in the US. Is that correct? Or is this disease

> more frequently tested for than I thought.

I can tell you that in US ish Rite hospital in Atlanta (I think maybe it

has changed its name recently and I can't remember what the new name is),

Cleveland Clinic, and UCSD do fresh muscle

biopsies routinely. Other centres do the biopsies, but make sure you are

getting the FRESH tissue biopsy since other areas don't do the FRESH! As a

Canadian, I had my fresh biopsy done in

Vancouver, BC. I am reasonably sure that there will be biopsy ability in

Toronto Ontario and Montreal Quebec and likely either Edmonton or Calgary

Alberta (I'd guess Calgary!)

Why FRESH rather than frozen ..... it is kind of like freezing an onion .....

the defrosted specimen doesn't have the stable cell walls so the onion doesn't

act the same! Freezing alters the

results in the Complex I testing of the mitochondria and the lab pulls the

mitochondria out of the cells immediately and does certain tests within a

certain time limit (don't ask me how long as I

have no idea!). When they did the biopsy a courier was waiting with dry ice and

the muscle pieces were put in a container on the ice and the courier was

gone!!!!!

>

> Also I heard that the muscle biopsies are extremely painful and that

> often surgeons don't use anesthesia for fear of damaging the muscle. Is

> this still true?

Both times (frozen and then fresh) the biopsy was performed on my left bicep.

Both times a local anaesthetic was used. I didn't feel anything, which

surprised me because I have a problem with

local anaesthesia " taking " ! I was given a prescription for Tylenol 3 with

codeine and I flew in an airplane home. Honestly, the only real pain that I

felt was in the middle of the night when

nature called and I made the mistake of using my arm to push myself up!!! Poor

decision .... but no damage done. I *do* have a high pain threshhold, though, I

am told!

Does it damage the tissue .... sorry, don't know! But you wouldn't catch me

being that masochistic!! :-) Shivers at the thought of no anaesthesia ... but

I guess I have had dental work done

without!!!!

> Is mitoonelist the best list to sign up for or are there also other lists

that you feel are good right now.

The mito list is the best general list .... doctors lurk and also contribute on

occasion. Much of the talk is about children who are sick with mito, but there

is also adult talk. There is another

list called <mitochondrialonelist> and many Mito people are on both lists,

and so .... my best bet recommendation is Mito List. I co moderate a list

specifically for adult mitos or their

spouses or caregivers. It is by invitation only .... and is for people over 40.

We older folks tend to lurk in the other lists because many of the children are

so very sick that we don't want to

clutter the other lists with our stuff! If you are interested in joining,

contact me privately with my email address as shown and I will get back to you

as soon as possible!

> The information was fascinating for many reasons. I've been hospitalized for

drug

> reactions that one my doctors says is probably a liver mitochondrial

> problem.

He is probably right!!!! Mitochondria are pretty sensitive little

creatures!!!!! :-(

>

> Why do they only test muscle?

I said that Mito affects the systems which are the greatest consumers of energy

..... the muscles, the heart, and the brain. The muscles are readily available

and are the least invasive choice.

The super duper electron microscopes can detect many things and are the most

reliably definitive test for mito, but not the only one to give a strong

indication of mito!

They don't however ONLY test muscle ..... there have been a number of cases

where liver biopsies have been taken during another surgical procedure. They

also do skin biopsies, although that is

usually in cases where there has already been a family member diagnosed and they

know where to go to look for defects.

> I assume they simply avoid having to do any organ biopsies that way?

That is correct.

> If there is a defect in the muscle is that separate from a mito defect in the

liver?

Yes .... and no!!! The answer is complicated and I am not sure that I can do it

justice, being a lay person ..... but .... simply ......

I said that mitochondria were sensitive critters ... well ... some get affected

within a cell and some don't. Sometimes within a cell, the mitochondria

proliferate (multiply) in order to try and

keep up with the cell's need for energy. Essentially degree of system

involvement is directly proportional to the ratio of affected to unaffected

mitochondria within the cells of the system's

tissues. Also the liver's function as the " cleaner " means that it may have to

cope with greater (I'll use the word " toxic " ) byproducts of cellular

respiration. This will give the liver more

stress on its function, which will mean more energy is required ....... and so

on. Liver cells have mitochondria too.

As I said .... you have to think basic ... then cause and effect! It is basic

but complicated, if you know what I mean.

Jean

December 25, 2000

Hi everyone,

Lenny hope this answers your question ). I don't have parasites moving

around in me, but I have severe headaches, foggy memory, Leaky gut, abdominal

pain, blood and mucus in the stool. Round warms are linked to foggy head.

Tapeworms are linked to Leaky gut, abdominal pain, blood and or mucus in the

stool. Keep in mind that pullutants and toxins can cause a foggy head

wheather it be from parasites, legal or illegal drugs. Homozon has helped my

situation, but I need a good parasite cleanse. Someone mentioned about black

seeds with the para90. What kind of black seeds? Thanx in advance.

Claude

December 25, 2000

Hi Claude,

Sorry you do not have good health, I guess this is why we are searching for

knowledge and truth.

Back when I would use regularly 10 sectioned lemons, I had better results in

eliminating roundworms.

In the New KJV of Psalms 68:4, it shows The Name that is The Name of Life

Energy, Yah, spelled yode=10 and he=5.

These two patterns used to select food ensures the release of electrons from the

chemical reaction to our bodies, resulting in an increase of energy, just like

Hulda s, " Zapper " .

Energy is what we need. With an overall increase of systemic energy, we have an

improvement in every function of health. Since our bodies are controlled by

nervous innervation, that is the

brain controls the whole body, conscious and unconsciously through the nerves,

then the logical conclusion would be that with overall electrical energy

increases, that the brain can send a

stronger impulse of electrical energy along the nerve, say, to our stomach, our

pancreas, our liver, our adrenals, and to our peristalsis, giving our stomach

more electricity power to

produce more enzymes, more mechanical churning, etc.

Energy is what we need. ATP is the energy currency of the body. The major

componant in the blood platelets, thus the expression, " The Life is in the

blood " " The blood is the life of all the

flesh " .

ATP is manufactured by the body, about 10 to 20% by " de novo " synthesis. I

think this word " de novo " means original.

In other words raw sythesis from components.

ATP is recycled, which accounts for about 80% from recycling used ATP, which

after use has transformed to ADP.

This recycling occurs in each cell in the Mitochondria. You can read and learn

about this process on the web, as it is well known knowledge. A nice web page

on ATP is

http://gened.emc.maricopa.edu/bio/bio181/BIOBK/BioBookATP.html

Lenny

escort7980@... wrote:

> Hi everyone,

>

> Lenny hope this answers your question ). I don't have parasites moving

> around in me, but I have severe headaches, foggy memory, Leaky gut, abdominal

> pain, blood and mucus in the stool. Round warms are linked to foggy head.

> Tapeworms are linked to Leaky gut, abdominal pain, blood and or mucus in the

> stool. Keep in mind that pullutants and toxins can cause a foggy head

> wheather it be from parasites, legal or illegal drugs. Homozon has helped my

> situation, but I need a good parasite cleanse. Someone mentioned about black

> seeds with the para90. What kind of black seeds? Thanx in advance.

>

> Claude

>

> Subscription email:

> mailto:bowel cleanse-subscribeegroups

>

December 25, 2000

Hi Claude,

I had painful bleeding and burning, several months ago. During the course of a

month I drank about 6 bottles of American Health Acidophilus, 16 oz. Each

tablespoon has about 10 billion

friendlies.

My health is much better now, as I can now use cayenne pepper, but didn't dare

try before. Cayenne seems to be a good cleanser.

Lenny

ps I remember reading that wormseed is even more powerful than wormwood. But I

have never seen it for sale by itself.