Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 Deb, I'm certainly not telling you what to do, but if it were me...what that Neuro doesn't know won't hurt her! I would taper down on the steroids like the doc advises, and when he's off of them completely have a script for LDN and begin. My gut feeling says he will see improvement from then on, and at some point, tell the doc what you're doing to cause the improvement! She will either be receptive or close minded, but no one can/should argue with success. She's not God, although some think they are. You and your husband are the experts where he is concerned. Do what you feel led to do! Marcie (PPMS) In a message dated 5/24/2004 9:45:41 AM Central Standard Time, debmoran@... writes: Well, Jimmy and I went to his new neuro today. I can say that she at least confirmed some of our suspiscions about his care at one of the "best" ms neuros in Pgh. She immediately ordered blood tests, started his real weaning off prednisone, mentioned the possibility of solumedrol for his symptoms and stated that he did have some disk problems that were most likely causing his back pain. But she gave us a big "NO" to LDN. We're not sure what to think yet, but that gives me pause. I was really hoping that she would be open to that. We'll give it a couple of months and if things don't improve, off to the next one Any thoughts? Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 Hi Deb .. that is heartbreaking news. It is so God awful and I completely relate as I have been to many neuros with my husband and you have to be tough and you have to know what you think going in or you don't have a hope. It is up to you to educate them on LDN and get a script for LDN. Not always easy but certainly achievable. LDN is the best treatment your husband can take for his MS .. and you have to fight for it. Don't be confused .. we are not all crazy here .. it works. Don't wait a few months .. muster up your strength and go on the attack until you get it .. Don't give up .. it is too serious to mess around with. I remember Goodshape gave me a similar pep talk when I was debating how myself and my husband should proceed ... he made no bones about it .. Don't give up until you get it and don't sit around waiting. All the very Best and Good Luck > Well, Jimmy and I went to his new neuro today. I can say that she > at least confirmed some of our suspiscions about his care at one of > the " best " ms neuros in Pgh. She immediately ordered blood tests, > started his real weaning off prednisone, mentioned the possibility > of solumedrol for his symptoms and stated that he did have some disk > problems that were most likely causing his back pain. > > But she gave us a big " NO " to LDN. We're not sure what to think > yet, but that gives me pause. I was really hoping that she would be > open to that. We'll give it a couple of months and if things don't > improve, off to the next one > > Any thoughts? > > Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 , Thank you so much for your thoughts and encouragement!!! We've actually decided to go to our pcp and try to get the script!! We also have another pcp option that we may use!!! We haven't given up and we still think that LDN is something that Jimmy has to try!! We'll keep you posted and again, thank you!! Deb -----Original Message----- From: mboylebradley [mailto:mboylebradley@...] Sent: Monday, May 24, 2004 5:17 PM low dose naltrexone Subject: [low dose naltrexone] Re: New neuro visit! Hi Deb .. that is heartbreaking news. It is so God awful and I completely relate as I have been to many neuros with my husband and you have to be tough and you have to know what you think going in or you don't have a hope. It is up to you to educate them on LDN and get a script for LDN. Not always easy but certainly achievable. LDN is the best treatment your husband can take for his MS .. and you have to fight for it. Don't be confused .. we are not all crazy here .. it works. Don't wait a few months .. muster up your strength and go on the attack until you get it .. Don't give up .. it is too serious to mess around with. I remember Goodshape gave me a similar pep talk when I was debating how myself and my husband should proceed ... he made no bones about it .. Don't give up until you get it and don't sit around waiting. All the very Best and Good Luck > Well, Jimmy and I went to his new neuro today. I can say that she > at least confirmed some of our suspiscions about his care at one of > the " best " ms neuros in Pgh. She immediately ordered blood tests, > started his real weaning off prednisone, mentioned the possibility > of solumedrol for his symptoms and stated that he did have some disk > problems that were most likely causing his back pain. > > But she gave us a big " NO " to LDN. We're not sure what to think > yet, but that gives me pause. I was really hoping that she would be > open to that. We'll give it a couple of months and if things don't > improve, off to the next one > > Any thoughts? > > Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 Marcie, I think that might be the route that we take. I think Jimmy is going to see our pcp and see if she’ll prescribe LDN. If not, I have another pcp that I’m sure will. One question, someone’s post had mentioned that they or their spouse began LDN when they were tapering off prednisone. Do you think if I called Dr. Bihari’s office and just asked about this, they would be willing to give me some information? Thanks for your thoughts and encouragement!!! We sure need it!! Deb From: marciemjm@... [mailto:marciemjm@...] Sent: Monday, May 24, 2004 3:40 PM low dose naltrexone Subject: Re: [low dose naltrexone] New neuro visit! Deb, I'm certainly not telling you what to do, but if it were me...what that Neuro doesn't know won't hurt her! I would taper down on the steroids like the doc advises, and when he's off of them completely have a script for LDN and begin. My gut feeling says he will see improvement from then on, and at some point, tell the doc what you're doing to cause the improvement! She will either be receptive or close minded, but no one can/should argue with success. She's not God, although some think they are. You and your husband are the experts where he is concerned. Do what you feel led to do! Marcie (PPMS) In a message dated 5/24/2004 9:45:41 AM Central Standard Time, debmoran@... writes: Well, Jimmy and I went to his new neuro today. I can say that she at least confirmed some of our suspiscions about his care at one of the " best " ms neuros in Pgh. She immediately ordered blood tests, started his real weaning off prednisone, mentioned the possibility of solumedrol for his symptoms and stated that he did have some disk problems that were most likely causing his back pain. But she gave us a big " NO " to LDN. We're not sure what to think yet, but that gives me pause. I was really hoping that she would be open to that. We'll give it a couple of months and if things don't improve, off to the next one Any thoughts? Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 Hi Deb ..It is fine to start LDN while tapering off prednisone .. many have done this .. I am delighted that you are not going to sit back ... Just make sure that your script is compounded right .. send it to one 'on the list' posted many times here .. or one you have 100% faith in. All the Best > Marcie, > > I think that might be the route that we take. I think Jimmy is going to see > our pcp and see if she'll prescribe LDN. If not, I have another pcp that > I'm sure will. One question, someone's post had mentioned that they or > their spouse began LDN when they were tapering off prednisone. Do you think > if I called Dr. Bihari's office and just asked about this, they would be > willing to give me some information? > > Thanks for your thoughts and encouragement!!! We sure need it!! > > Deb > > _____ > > From: marciemjm@a... [mailto:marciemjm@a...] > Sent: Monday, May 24, 2004 3:40 PM > low dose naltrexone > Subject: Re: [low dose naltrexone] New neuro visit! > > Deb, > > I'm certainly not telling you what to do, but if it were me...what that > Neuro doesn't know won't hurt her! I would taper down on the steroids like > the doc advises, and when he's off of them completely have a script for LDN > and begin. My gut feeling says he will see improvement from then on, and at > some point, tell the doc what you're doing to cause the improvement! She > will either be receptive or close minded, but no one can/should argue with > success. She's not God, although some think they are. You and your husband > are the experts where he is concerned. Do what you feel led to do! > > Marcie (PPMS) > > > In a message dated 5/24/2004 9:45:41 AM Central Standard Time, > debmoran@s... writes: > > > > > > Well, Jimmy and I went to his new neuro today. I can say that she > at least confirmed some of our suspiscions about his care at one of > the " best " ms neuros in Pgh. She immediately ordered blood tests, > started his real weaning off prednisone, mentioned the possibility > of solumedrol for his symptoms and stated that he did have some disk > problems that were most likely causing his back pain. > > But she gave us a big " NO " to LDN. We're not sure what to think > yet, but that gives me pause. I was really hoping that she would be > open to that. We'll give it a couple of months and if things don't > improve, off to the next one > > Any thoughts? > > Deb > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 Thanks, !!! Great information that will help a lot! The other one drug that the neuro is leaving Jimmy on that he has been on for about 24 years is Imuran. Do you know if there is any problem with that drug? Any info will be greatly appreciated!!! All the help means more than you know!! Deb -----Original Message----- From: mboylebradley [mailto:mboylebradley@...] Sent: Monday, May 24, 2004 8:42 PM low dose naltrexone Subject: [low dose naltrexone] Re: New neuro visit! Hi Deb ..It is fine to start LDN while tapering off prednisone .. many have done this .. I am delighted that you are not going to sit back ... Just make sure that your script is compounded right .. send it to one 'on the list' posted many times here .. or one you have 100% faith in. All the Best > Marcie, > > I think that might be the route that we take. I think Jimmy is going to see > our pcp and see if she'll prescribe LDN. If not, I have another pcp that > I'm sure will. One question, someone's post had mentioned that they or > their spouse began LDN when they were tapering off prednisone. Do you think > if I called Dr. Bihari's office and just asked about this, they would be > willing to give me some information? > > Thanks for your thoughts and encouragement!!! We sure need it!! > > Deb > > _____ > > From: marciemjm@a... [mailto:marciemjm@a...] > Sent: Monday, May 24, 2004 3:40 PM > low dose naltrexone > Subject: Re: [low dose naltrexone] New neuro visit! > > Deb, > > I'm certainly not telling you what to do, but if it were me...what that > Neuro doesn't know won't hurt her! I would taper down on the steroids like > the doc advises, and when he's off of them completely have a script for LDN > and begin. My gut feeling says he will see improvement from then on, and at > some point, tell the doc what you're doing to cause the improvement! She > will either be receptive or close minded, but no one can/should argue with > success. She's not God, although some think they are. You and your husband > are the experts where he is concerned. Do what you feel led to do! > > Marcie (PPMS) > > > In a message dated 5/24/2004 9:45:41 AM Central Standard Time, > debmoran@s... writes: > > > > > > Well, Jimmy and I went to his new neuro today. I can say that she > at least confirmed some of our suspiscions about his care at one of > the " best " ms neuros in Pgh. She immediately ordered blood tests, > started his real weaning off prednisone, mentioned the possibility > of solumedrol for his symptoms and stated that he did have some disk > problems that were most likely causing his back pain. > > But she gave us a big " NO " to LDN. We're not sure what to think > yet, but that gives me pause. I was really hoping that she would be > open to that. We'll give it a couple of months and if things don't > improve, off to the next one > > Any thoughts? > > Deb > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 Hi Deb .. Imuran is an immunosuppressive therapy and that concerns me. LDN is an immune booster. They work in opposite ways. I thought that Imuran was mainly used for Rheumatoid Arthritis not MS. I am not a doctor by any means .. just read a lot as I had to .. as the doctors failed us. You are now in more of a position. Read up on Imuran .. to me your choice is the same as what my husband and I had .. he was on Avonex. It was very hard but he stopped Avonex and went with the LDN. It was not easy .. but I would suggest and know that I am a lay person .. If Jimmy was my husband .. I would urge him to stop the Imuran and go LDN alone. NOT EASY!!!! All the very Best and More Luck! To update on Noel to those concerned .. he is holding his own despite extreme circumstance .. so much so that it looks like the prednisone will not be used. That is amazing to me. The DL phen is a good thing .. the phen in chocolate is why it works by the way but I have lost the source of that information. > > Marcie, > > > > I think that might be the route that we take. I think Jimmy is > going to see > > our pcp and see if she'll prescribe LDN. If not, I have another > pcp that > > I'm sure will. One question, someone's post had mentioned that > they or > > their spouse began LDN when they were tapering off prednisone. Do > you think > > if I called Dr. Bihari's office and just asked about this, they > would be > > willing to give me some information? > > > > Thanks for your thoughts and encouragement!!! We sure need it!! > > > > Deb > > > > _____ > > > > From: marciemjm@a... [mailto:marciemjm@a...] > > Sent: Monday, May 24, 2004 3:40 PM > > low dose naltrexone > > Subject: Re: [low dose naltrexone] New neuro visit! > > > > Deb, > > > > I'm certainly not telling you what to do, but if it were me...what > that > > Neuro doesn't know won't hurt her! I would taper down on the > steroids like > > the doc advises, and when he's off of them completely have a script > for LDN > > and begin. My gut feeling says he will see improvement from then > on, and at > > some point, tell the doc what you're doing to cause the > improvement! She > > will either be receptive or close minded, but no one can/should > argue with > > success. She's not God, although some think they are. You and > your husband > > are the experts where he is concerned. Do what you feel led to do! > > > > Marcie (PPMS) > > > > > > In a message dated 5/24/2004 9:45:41 AM Central Standard Time, > > debmoran@s... writes: > > > > > > > > > > > > Well, Jimmy and I went to his new neuro today. I can say that she > > at least confirmed some of our suspiscions about his care at one of > > the " best " ms neuros in Pgh. She immediately ordered blood tests, > > started his real weaning off prednisone, mentioned the possibility > > of solumedrol for his symptoms and stated that he did have some > disk > > problems that were most likely causing his back pain. > > > > But she gave us a big " NO " to LDN. We're not sure what to think > > yet, but that gives me pause. I was really hoping that she would > be > > open to that. We'll give it a couple of months and if things don't > > improve, off to the next one > > > > Any thoughts? > > > > Deb > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 Order it from Mexico... ----- Original Message ----- From: " Debbie Moran " <debmoran@...> <low dose naltrexone > Sent: Monday, May 24, 2004 8:41 AM Subject: [low dose naltrexone] New neuro visit! > Well, Jimmy and I went to his new neuro today. I can say that she > at least confirmed some of our suspiscions about his care at one of > the " best " ms neuros in Pgh. She immediately ordered blood tests, > started his real weaning off prednisone, mentioned the possibility > of solumedrol for his symptoms and stated that he did have some disk > problems that were most likely causing his back pain. > > But she gave us a big " NO " to LDN. We're not sure what to think > yet, but that gives me pause. I was really hoping that she would be > open to that. We'll give it a couple of months and if things don't > improve, off to the next one > > Any thoughts? > > Deb > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 I should have kept that letter from Dr Lawrence but in it he definetly recomended that I drop the imuran as it was detrimental to ldn use! Reg. -------Original Message------- From: low dose naltrexone Date: 05/24/04 19:44:59 low dose naltrexone Subject: [low dose naltrexone] Re: New neuro visit! Hi Deb .. Imuran is an immunosuppressive therapy and that concerns me. LDN is an immune booster. They work in opposite ways. I thought that Imuran was mainly used for Rheumatoid Arthritis not MS. I am not a doctor by any means .. just read a lot as I had to .. as the doctors failed us. You are now in more of a position. Read up on Imuran .. to > > > > ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 Although Imuran is not a narcotic .. Imuran and LDN would cancel eachother out. That is the worst thing for many starting LDN .. having to quit a medicine .. I know that it scared the life out of my husband when he decided to quit the Avonex and go on LDN .. especially because his neuro told him that if he did that he would be confined to a wheelchair within 6 months. It is hard to take that leap. Steve is right .. the CRABS are not for PPMS but our nuero insisted something was better than nothing. So, good luck Deb and Jimmy! All the Best --- In low dose naltrexone , " Reg Kreil " <regkreil@h...> wrote: > I should have kept that letter from Dr Lawrence but in it he definetly > recomended that I drop the imuran as it was detrimental to ldn use! > Reg. > > -------Original Message------- > > From: low dose naltrexone > Date: 05/24/04 19:44:59 > low dose naltrexone > Subject: [low dose naltrexone] Re: New neuro visit! > > Hi Deb .. Imuran is an immunosuppressive therapy and that concerns > me. LDN is an immune booster. They work in opposite ways. I thought > that Imuran was mainly used for Rheumatoid Arthritis not MS. I am not > a doctor by any means .. just read a lot as I had to .. as the > doctors failed us. You are now in more of a position. Read up on > Imuran .. to > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2004 Report Share Posted May 26, 2004 You're right!! I'm not sure how Jimmy will feel about the possibility of going off Imuran - especially since it's probably the reason he is where he is today - still in pretty good shape - consideriing!!! This is going to take some long thought on his part, I think!! Thanks for all of your thoughts and concern! They sure help!! Deb > > I should have kept that letter from Dr Lawrence but in it he > definetly > > recomended that I drop the imuran as it was detrimental to ldn use! > > Reg. > > > > -------Original Message------- > > > > From: low dose naltrexone > > Date: 05/24/04 19:44:59 > > low dose naltrexone > > Subject: [low dose naltrexone] Re: New neuro visit! > > > > Hi Deb .. Imuran is an immunosuppressive therapy and that concerns > > me. LDN is an immune booster. They work in opposite ways. I thought > > that Imuran was mainly used for Rheumatoid Arthritis not MS. I am > not > > a doctor by any means .. just read a lot as I had to .. as the > > doctors failed us. You are now in more of a position. Read up on > > Imuran .. to > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 , Thanks so much for your thoughts and concern. We have been thinking and doing more research. First, Jimmy has been on Imuran for 24 years and his MS is not active. His progression has been extremely slow and, actually, I think he's pretty amazing! Imuran is also one drug they put folks on if none of the ABCR's work, so we kind of by- passed that years ago. I've called Dr Bihari's office and I'm waiting for a call back on Imuran and LDN. I'll let you know what they say. I also called Skip's Pharmacy and spoke with Skip. He told me that we should stay with Imuran and that, while Jimmy could take LDN and that it would not be a problem, he thinks that he would not get anymore benefit from it. So, I'm waiting for Dr. Bihari's office to call me back. That will help in our decision. One thing that helped Jimmy years ago when he was feeling worn down was a dose of Solumedrol. His new neuro mentioned this and, perhaps on his next visit after she looks at his newest MRI, she will give him the go ahead for that. It worked wonders last time!! We'll just have to wait a couple more weeks before he goes back to see her to see what she says. In the meantime, he's slowly getting off the other meds (prednisone, and hopefully, flomax and bactrim). I don't know if he'll stay on Baclofen and Provigil, or not. We'll see!! I'll keep everyone posted on what's up!! And, we really appreciate all of the thoughts, ideas and concern! It sure helps!! Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 Deb .. I am really glad you called Dr Bihari's office. My guess is that he will say to take the LDN with Imuran and site examples of patients who started LDN and Avonex or something and then gave up the Avonex and went on LDN alone. There is no danger in taking them both together but they do work in opposite ways. So .. what I would do is push him harder .. ask him what he would do if it were him in your position. Again, you have to decide for yourselves but it is always interesting to hear how a doctor would treat himself or his spouse. All the Best ... I really look forward to hearing his thoughts on this. > , > > Thanks so much for your thoughts and concern. We have been thinking > and doing more research. First, Jimmy has been on Imuran for 24 > years and his MS is not active. His progression has been extremely > slow and, actually, I think he's pretty amazing! Imuran is also one > drug they put folks on if none of the ABCR's work, so we kind of by- > passed that years ago. I've called Dr Bihari's office and I'm > waiting for a call back on Imuran and LDN. I'll let you know what > they say. I also called Skip's Pharmacy and spoke with Skip. He > told me that we should stay with Imuran and that, while Jimmy could > take LDN and that it would not be a problem, he thinks that he would > not get anymore benefit from it. So, I'm waiting for Dr. Bihari's > office to call me back. That will help in our decision. > > One thing that helped Jimmy years ago when he was feeling worn down > was a dose of Solumedrol. His new neuro mentioned this and, perhaps > on his next visit after she looks at his newest MRI, she will give > him the go ahead for that. It worked wonders last time!! We'll > just have to wait a couple more weeks before he goes back to see her > to see what she says. > > In the meantime, he's slowly getting off the other meds (prednisone, > and hopefully, flomax and bactrim). I don't know if he'll stay on > Baclofen and Provigil, or not. We'll see!! I'll keep everyone > posted on what's up!! > > And, we really appreciate all of the thoughts, ideas and concern! > It sure helps!! > > Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 , I just called again to see if they had an answer for me yet. He hadn't spoken to the Dr yet but will do so as soon as possible and will get back to me. I'll be sure to let you know what his thoughts are. I'm anxious myself!!! Talk to you soon! Deb > > , > > > > Thanks so much for your thoughts and concern. We have been > thinking > > and doing more research. First, Jimmy has been on Imuran for 24 > > years and his MS is not active. His progression has been extremely > > slow and, actually, I think he's pretty amazing! Imuran is also > one > > drug they put folks on if none of the ABCR's work, so we kind of by- > > passed that years ago. I've called Dr Bihari's office and I'm > > waiting for a call back on Imuran and LDN. I'll let you know what > > they say. I also called Skip's Pharmacy and spoke with Skip. He > > told me that we should stay with Imuran and that, while Jimmy could > > take LDN and that it would not be a problem, he thinks that he > would > > not get anymore benefit from it. So, I'm waiting for Dr. Bihari's > > office to call me back. That will help in our decision. > > > > One thing that helped Jimmy years ago when he was feeling worn down > > was a dose of Solumedrol. His new neuro mentioned this and, > perhaps > > on his next visit after she looks at his newest MRI, she will give > > him the go ahead for that. It worked wonders last time!! We'll > > just have to wait a couple more weeks before he goes back to see > her > > to see what she says. > > > > In the meantime, he's slowly getting off the other meds > (prednisone, > > and hopefully, flomax and bactrim). I don't know if he'll stay on > > Baclofen and Provigil, or not. We'll see!! I'll keep everyone > > posted on what's up!! > > > > And, we really appreciate all of the thoughts, ideas and concern! > > It sure helps!! > > > > Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 , I'll keep you posted. I'm waiting to hear from Bihari's office and I'll post as soon as I hear! Thanks Deb -----Original Message----- From: mboylebradley [mailto:mboylebradley@...] Sent: Thursday, May 27, 2004 1:04 PM low dose naltrexone Subject: [low dose naltrexone] Re: New neuro visit! Deb .. I am really glad you called Dr Bihari's office. My guess is that he will say to take the LDN with Imuran and site examples of patients who started LDN and Avonex or something and then gave up the Avonex and went on LDN alone. There is no danger in taking them both together but they do work in opposite ways. So .. what I would do is push him harder .. ask him what he would do if it were him in your position. Again, you have to decide for yourselves but it is always interesting to hear how a doctor would treat himself or his spouse. All the Best ... I really look forward to hearing his thoughts on this. > , > > Thanks so much for your thoughts and concern. We have been thinking > and doing more research. First, Jimmy has been on Imuran for 24 > years and his MS is not active. His progression has been extremely > slow and, actually, I think he's pretty amazing! Imuran is also one > drug they put folks on if none of the ABCR's work, so we kind of by- > passed that years ago. I've called Dr Bihari's office and I'm > waiting for a call back on Imuran and LDN. I'll let you know what > they say. I also called Skip's Pharmacy and spoke with Skip. He > told me that we should stay with Imuran and that, while Jimmy could > take LDN and that it would not be a problem, he thinks that he would > not get anymore benefit from it. So, I'm waiting for Dr. Bihari's > office to call me back. That will help in our decision. > > One thing that helped Jimmy years ago when he was feeling worn down > was a dose of Solumedrol. His new neuro mentioned this and, perhaps > on his next visit after she looks at his newest MRI, she will give > him the go ahead for that. It worked wonders last time!! We'll > just have to wait a couple more weeks before he goes back to see her > to see what she says. > > In the meantime, he's slowly getting off the other meds (prednisone, > and hopefully, flomax and bactrim). I don't know if he'll stay on > Baclofen and Provigil, or not. We'll see!! I'll keep everyone > posted on what's up!! > > And, we really appreciate all of the thoughts, ideas and concern! > It sure helps!! > > Deb Quote Link to comment Share on other sites More sharing options...
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