Re: Re: Info on copaxone and LDN

[Guest guest]

DEAR CATHY - SORRY FOR THE DELAY I'V BEEN OUT OF TOWN. I'VE BEEN ON COPAXONE FOR 8 YEARS, I'VE BEEN TAKING LDN FOR 2 1/2 WEEKS. DR. B IS NOT MY NEUROLOGIST. MY DR. SHOO SHOOS EVERYTHING I'VE EVER WANTED TO TRY. I WON'T TELL HIM TILL I CAN REALLY NOTICE SOME BIG CHANGES. THE ONE BIG THING IS I WAS TAKING DETROL FOR BLADDER CONTROL AND I'VE STOPPED THAT. THE BALANCE WAS GETTING A LITTLE BETTER UNTIL THE HORRIFIC HUMIDITY SET IN. I HATE IT, IT KNOCKS MY SOCKS OFF. COPAXONE DOESN'T REALLY SHOW TOO MUCH OTHER THAN IT HELPS SO THERE ARE NO MORE RELAPSES. ALTHOUGH THE LAST MRI I HAD A COUPLE YEARS AGO WAS GOOD. GOOD LUCK, KEEP IN TOUCH, KIM (P.S. I LIVE IN PENNSYLVANIA)

[Guest guest]

ARLENE - I JUST STOPPED THE DETROL ON MY OWN. I FELT THAT THE BLADDER CONTROL FELT A LITTLE BETTER THEN IT WAS WITH DETROL SO I THOUGHT I'D TRY, I COULD ALWAYS START AGAIN IF NEED BE. SO FAR SO GOOD. I STILL HAVE TO GET TO THE BATHROOM WHEN I FEEL THE URGE. I SEEM TO BE ABLE TO HOLD IT LONGER THEN BEFORE BUT WHEN I FEEL I REALLY HAVE TO GO I HAVE TO GO! I'M TAKING 4.5 LDN AND I'VE BEEN ON IT FOR 3 WEEKS TODAY. GOOD LUCK, KIM R.

[Guest guest]

What I realized after a while is that although I seemed to suddenly have the urge and needed to hurry to the bathroom in truth I had been ignoring a milder urge for some time. I had learned that it meant nothing, and so when the mild urge was real (my bladder was no longer crying "wolf") I was ignoring it for too long. Try listening to your bladder, you may be getting more warning than you realize...

----- Original Message -----

From: REILLYMICHAELA17@...

low dose naltrexone

Sent: Tuesday, May 25, 2004 7:28 PM

Subject: Re: [low dose naltrexone] Re: Info on copaxone and LDN

ARLENE - I JUST STOPPED THE DETROL ON MY OWN. I FELT THAT THE BLADDER CONTROL FELT A LITTLE BETTER THEN IT WAS WITH DETROL SO I THOUGHT I'D TRY, I COULD ALWAYS START AGAIN IF NEED BE. SO FAR SO GOOD. I STILL HAVE TO GET TO THE BATHROOM WHEN I FEEL THE URGE. I SEEM TO BE ABLE TO HOLD IT LONGER THEN BEFORE BUT WHEN I FEEL I REALLY HAVE TO GO I HAVE TO GO! I'M TAKING 4.5 LDN AND I'VE BEEN ON IT FOR 3 WEEKS TODAY. GOOD LUCK, KIM R.

[Guest guest]

Dear Kim, Thanks. Everything is crazy here now. We are sailing to Key West tomorrow (thursday May 27) for two weeks. When I get back I have an appointment with new neuro. Old one said NO to the ldn. ( I'm in Panama City, FL) Talk about heat and humidity!! but this year has not been too bad so far. Please keep us in your prayers--I have never sailed that far before. My husband has. Take care hope to hear from you on the progress with the ldn.

----- Original Message -----

From: REILLYMICHAELA17@...

low dose naltrexone

Sent: Tuesday, May 25, 2004 3:04 PM

Subject: Re: [low dose naltrexone] Re: Info on copaxone and LDN

DEAR CATHY - SORRY FOR THE DELAY I'V BEEN OUT OF TOWN. I'VE BEEN ON COPAXONE FOR 8 YEARS, I'VE BEEN TAKING LDN FOR 2 1/2 WEEKS. DR. B IS NOT MY NEUROLOGIST. MY DR. SHOO SHOOS EVERYTHING I'VE EVER WANTED TO TRY. I WON'T TELL HIM TILL I CAN REALLY NOTICE SOME BIG CHANGES. THE ONE BIG THING IS I WAS TAKING DETROL FOR BLADDER CONTROL AND I'VE STOPPED THAT. THE BALANCE WAS GETTING A LITTLE BETTER UNTIL THE HORRIFIC HUMIDITY SET IN. I HATE IT, IT KNOCKS MY SOCKS OFF. COPAXONE DOESN'T REALLY SHOW TOO MUCH OTHER THAN IT HELPS SO THERE ARE NO MORE RELAPSES. ALTHOUGH THE LAST MRI I HAD A COUPLE YEARS AGO WAS GOOD. GOOD LUCK, KEEP IN TOUCH, KIM (P.S. I LIVE IN PENNSYLVANIA)

[Guest guest]

CATHY - HAVE A WONDERFUL AND SAFE VACATION. STAY COOL! KIM R.