Guest guest Posted May 26, 2004 Report Share Posted May 26, 2004 I am PPMS and very progressed, I guess you could say. I haven't walked in 5 years, can't stand very well for very long even with assistance (two minutes tops), have NO balance... I am on LDN w/calcium carbonate filler. So far, no problems, but at least I know now to be watching for this problem I started w/cornstarch filler which didn't agree with my system at all! (diahrrea) The CC took care of that I am experimenting with a 6mg dose, and I may seriously try the skipping a couple of day method. I think it's worth a try. My improvements have stayed constant since Nov '03. Marcie (PPMS) In a message dated 5/26/2004 6:48:12 AM Central Standard Time, mboylebradley@... writes: To confuse the issue more .. the 3 people with PPMS I know are on 4.5mg LDN with Calcium Carbonate filler ... All the Best Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2004 Report Share Posted May 26, 2004 To confuse the issue more .. the 3 people with PPMS I know are on 4.5mg LDN with Calcium Carbonate filler ... All the Best --- In low dose naltrexone , " Bren " <TwisterAlley2@w...> wrote: > > > > > > > > > Calcium Carbonate filler can cause LDN to neutralize and be of little benefit. > I had that happen on CC. My symptoms before LDN returned on CC. Try a different filler and also get that Shiatsu Massager for those spastic/cramping muscles. > > In the older days of MS diagnosis when I got mine there was...Benign, Episodic Course, Episodic-Turned Progressive and Chronic Progressive Course. > > One can start out as Episodic Course which I was having as a small child but was never diagnosed. The stages of MS can move to the next stage and the next stage all the way to Chronic Progressive course.. By the time they realized what was happening to me, I was considered Chronic Progressive--never having complete remissions(which I started having in 1989) as it was described in the 1980's. > > There are others here who were at other stages of MS in the beginning and have > graduated to what is now called PPMS. > The most important thing right now Steve is to get your LDN script made with > Lactose(if not allergic), Avicel(if not allergic), Acidophilus, Cornstarch(if > not allergic). Stay away from Calcium Carbonate. Skip at Skip's pharmacy can > explain about the CC and it causing the LDN to become sustained release which is > a no no for LDN. > > Best of Luck on a new filler. Quote Link to comment Share on other sites More sharing options...
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