Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 First off- i apologize to those who hate it when ppl leave the email all there- I do it so I won't forget what I was going to comment on. that said... Carol- it's good to hear that the LDN is working so well for you. I'm getting the strong impression that LDN works best on RRMS. I've been on it since august 2003, and have not noticed any benefits (none that I can feel). Maybe it takes longer for SPMS. 26 years of damage might take longer to deal with. Maybe it just helps hold it off the progression longer... like they say the shots are suppose to do but had absolutely no effect - even when I was still RRMS. Wish I had found LDN 10 years ago. A few years ago I met a man who had a spinal injury... which left him with all the symptoms of MS -right down to progressively getting worse (he would never go to a dr to find out if it had indeed triggered into MS). He had right side paralysis- I have left. He didn't want to be serious with me because I had MS - and his was just from an injury.... what's the difference? I guess I just scared him that he might have to face something he didn't want to. what a kick to the head. Like it was " my fault " and his was just misfortune? It adds to my bitterness. I dont' want to be bitter. I appreciate your message. I'm trying to be ok with being alone. Some days I am. Some days I cry. So instead I planted some tomatoes in 5 gallon pots on my balcony to keep me company- and to give me a short term " something to look forward to. " I'm not bad looking.... but I've let go pretending to be a part of the " regular " world. I hardly ever put on make up anymore. what's the point? I am what I am. I am still going to keep taking the LDN. Maybe a miracle can happen. I'd love to see it. alex Hi all.... 1) Since my seperation 2 yrs. ago, I too live alone, but am doing fine. In fact, since my now x left, due to my MS, I'm doing better than ever! I have my days, but have my kids, who live close by, if I need them for anything. But find, keeping a positive outlook in my every day keeps me going....that, and LDN!! 2) As for dating, I am. I refused to close my heart, believing that my MS, and my X leaving because of it, would leave me alone forever. I've felt from the beginning that not everyone can deal with illness, I unfortunatley, don't have that choice, and those who can't don't have to! But, I do have someone in my life now that has made it clear that my having MS doesn't matter! 3) I've been taking LDN (4.5) since Sept. 2002, and I've had wonderful benefits from it. I have RRMS. No more cane! My balance, memory, fatigue, spasms, and energy level are all so much better. Even my MRI's have shown a reverse. My Neurologist said my lesions are healing themselves. Too bad the x didn't stick around for the fun I'm able to have now!! Life is good! And he missed out! Hang in there, and Stay Positive oh and Tom..... its really ok to allow someone to take care of you once in a while too (and im not yelling at you!!) but once the LDN kicks in.... you're energy level will rise and the ladies will have a hard time keep'in up!! Good Luck to you! God Bless You All Carol Quote Link to comment Share on other sites More sharing options...
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