Help!!! Horrible Neuro Visit!!

May 6, 2004

Hi, folks! I'm sorry but I need to vent so this might be a little

long. I wrote a little while ago to get some input on LDN and

provide some background on my husband, Jimmy.

Today we went to the Dr and it was the most terrible Dr visit I've

ever been to! To bring you up to date briefly, Jimmy has had MS for

close to 24 years and knows what he feels like normally,

They put him on Rebif last August - he ended up in the hospital with

1 1/2 mos with a sever systemic infection and another infection in

his knee. During that time he was off Rebif and felt much better.

They put him back on Rebif and ever since he's felt lousy. He has

severe hot flashes, his back pain is more intense than ever, his

walking has gotten worse, etc.

Today the Dr said he thinks it's all in his head. Would not discuss

any other treatments and didn't care that most of these symptoms

began after the Rebif. In fact he stated that he didn't care.

He also told us that he would be glad for Jimmy to go to another

neuro and that we had already taken up 40 minutes and it should have

been a 20 minute appt!!!!

Does anyone else think this is outrageous????? Or is it all in my

head?

Does anyone know of another good neuro in Pittsburgh? I do have a

list of Dr's that prescribe LDN and I'm going to call tomorrow first

thing.

I would appreciate any suggestions or comments!!

Thanks for listening!!

Debbie

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