28 days on LDN--Not much change

[Guest guest]

I have Chronic Active Epstein-Barr virus of 10 months duration, and

have been taking 3 mg of LDN for the past 28 days. I am getting body

hair, which I didn't have before. I am sleeping better but still

require 12 hours sleep to function at a low level--I have no more

energy than before. I still have an itchy rash but it isn't as bad as

before the LDN. I still have daily fevers, blurry vision, swollen

lymph glands, swollen liver/spleen, gastro-intestinal upsets like a

lot of diarrhea. So how long does it take for this LDN to work????

It is supposed to work on all autoimmune diseases, including EBV,

but I am still not able to function normally. I am literally

homebound most of the time because of feeling unwell and general

great

fatigue.

The LDN has helped my fibromyalgia though. My pain

level has greatly decreased. But my EBV is still very much here

within me. Anyone have any ideas? I have already seen an infectious

disease specialist, and all he wanted me to do was take prednisone

which I cannot do because I am prone to stomach

ulcers.

Help please!!!!-----ette from

CA

[Guest guest]

Thanks, Bren. Yes, the infectious disease doctor said I have the

worst case of EBV he has ever seen. So I will take my LDN and wait at

least 6 months. BTW, I upped my dose to 4.5 mg last night, and I had

a little more energy today--I was ok with that dose, so I'll stick

with it. Thankyou so much for the info. It really helps a lot. God

bless you!--ette from

CA

> > Sorry I am so late in replying to this, but I haven't been very

well.

> > Anyway, when I started LDN, I took 4.5 mg for 5 days, but

couldn't

> > stand the stiffness and mental stupor so I went to 3 mg ever

since,

> > which I've been able to tolerate. I am only taking LDN for 30

days

> > now. I didn't know that it took 4 to 6 months on it to get

results

> > for CFS or fibromyalgia, and it probably will be the same with

EBV.

> > Thanks for telling me. Where did you find this info from please? -

----

> > ------------ette from

> > CA

> =========

>

> Somewhere in Bihari's writings. I have done so much research on

Bihari and Zagon's work with LDN that I have no idea of where I

bumped into that info at but I recall that I paid close attention to

the statements about CFS and Fibromyalgia because my next door

neighbor suffers Fibro. It takes longer for LDN to start kicking in

with these diseases especially if they are severe cases. Mild cases

could see positive results in the first month or 2nd month on LDN

therapy and severe cases can take as long as 4 to 6 months to start

responding. MS patients are to not give up on LDN for at least 6

months or more preferrably 9 months.

>

> Your EBV sounds quite severe. Don't give up LDN therapy. You may

have a good thing going and just don't know it yet.