Guest guest Posted May 15, 2004 Report Share Posted May 15, 2004 I would appreciate feedback from anyone who's been in physical therapy. I know there's been discussion that only LDN should be the topic, but I am on LDN and I believe this is all related. I began LDN in December and was doing pretty well. I began doing two minutes on a stationery bike in February and by the end of March was up to 20 minutes. My legs felt a lot stronger. Then I began physical therapy to work on my atrophied leg muscles; before doing so I ran it by Dr. Bihari who thought it was a great idea. I have a terrific physical therapist. Her name is Carolyn Mazur and she has a place in the West Village called Fusion (for you Manhattanites). She does electrical stimulation and ultrasound, in addition to stretching my legs. I stopped doing the stationery bike, because the combination of PT--the waking up of muscles--and the bike caused me to have leg spasms, so I haven't been on the bike in a couple of month. As I've written previously, I went to my homeopath, who gave me a very potent remedy which turned out to be a disaster--much too much for my body. I relived all my prior symptoms and was in a lot of pain. Now that's better and last week I was able to resume my PT exercises, but I feel like I've lost over a month because I've had to start over in physical therapy. It's depressing. This morning in bed I did my leg stretches--very simple, lifting my knees to my chest 30 times--and proceeded to have a leg spasm a few minutes after getting out of bed. Actually, I STARTED to have one, but took the stance Carolyn showed me and immediately applied liniment. So the good news is that I stopped it. So after this lengthy message, here are my questions: o Does anyone have an idea why a leg spasm would return at this point? They really upset me, because I feel so out of control. o Has anyone had a positive experience with physical therapy? o Has anyone else found PT to temporarily feel like a setback? I can't help but wonder if I'd be feeling better without it, since I was I was stronger and walking better before starting. o My PT suggested on the phone this morning that sometimes with MS, legs will spasm again at the end of a cycle. Is this familiar at all or is she simply trying to make me feel better? o Also, has anyone had this experience with LDN--reliving leg spasms before the LDN kicked in 110%? o Regarding LDN, the greatest symptom improvement I've had so far is diminished bladder urgency. I can actually go to bed at night and not have to get up five times in 15 minutes... (Though perhaps it's the homeopathic remedy too--I don't know of course.) The other is deeper sleep. o I've been on LDN now for almost five months. How do you KNOW when it's really working without having dramatic experiences? o And finally, I'm curious as to how long it's taken people to accept the reality of having MS. Last Fall, I thought I had sciatica, my internist thought I had sciatica, then I had leg spasms and tremendous hypersensitivity, and boom! MS. Thank you for " listening. " Though I don't respond to everything I read, I am very moved by your stories. Quote Link to comment Share on other sites More sharing options...
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