Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 Reg-- and all others in Canada.. What supplements are you taking? I'm interested and having trouble finding some of the recommended ones mentioned here in Canada? So far I'm just on Evening Primrose. Nicky ----- Original Message ----- From: Reg Kreil low dose naltrexone Sent: Tuesday, May 25, 2004 8:26 PM Subject: Re: [low dose naltrexone] Re: just started ldn Your quite right Steve I have discovered the same but also I think we must remember that this never has been called a cure. Are you expecting to go back to the way you were before m.s, or are you forgetting what it was like before the ldn? Everything I have I have to work to keep I still have m.s. and even a brush with a sore throat causes a slight return to pre ldn status, Just yesterday I forgot to take my fairly large handfull of suppliments that I have been taking now for many months. Today wasn't that good but tomorrow I will get back on track again. I have done this before and the world didn't come to an end but I wished it would! The next days were good but always seemed to be lacking. I think that is why PPMS patients are not studied, we would blow all studies out of the park. Kinda like trying to make pedophiles into Sunday school teachers.You may get a small level of success but by and large it won't work. I think about the new Copaxone study, did they use any PPMS patients on that one ? I think not! Your probably not progressing but then it will take a long time to verify this. This is how I justify my bad days anyway. Reg. -------Original Message------- From: low dose naltrexone Date: 05/25/04 15:12:33 low dose naltrexone Subject: Re: [low dose naltrexone] Re: just started ldn On Tue, 25 May 2004 16:07:13 -0000, you wrote:>>> >> >HI GROUP I HAVE PPMS AND AM REALLY CURIOUS ABOUT OTHER PPMS PERSONS >> >RESULTS OR PROBLEMS WITH THE LDN. >> >> My experience is that LDN helps PPMS for a few months but it does not>> stop it. After that the PPMS overtakes the LDN and progress continues.>> The stiff legs get worse and so the dose of LDN has to be reduced. The>> problem then is that it may now have any effect at all. A short break>> from LDN helps but the initial effect is never repeated.>> >> Steve>>===========>>>Steve you're wrong. I am PPMS 14 years straight. I have just spent 11 1/2 months exacerbation/progression free on 4.5mg of LDN. Real PPMS does not have exacerbations at all. PPMS with exacerbationsis Relapsing Progressive MS. RPMS is less common than RRMS & PPMS. Iwould expect that the relapsing component of RPMS could well benefitfrom LDN.I was diagnosed in 1995 after about ten years of gradually "slowingdown" but I have never had an exacerbation. I have been on LDN since13th October 2002 and though my MS got a bit better initially itstarted progressing again after a few months. I must conclude that LDNdoes not stop PPMS. Steve ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 I live in quebec and this is what I take: vitamins B2, B6 (100mg/a day) vitamin C (3000mg/3 a day) Vitamine E (400 UI/a day) vitamine D (400 UI/a day) vitamine B12 sublingual (500 mcg/ every 2 days) calcium (500 ng/2 a day) omega 3-6-9 (1200mg/2 a day) when I need extra energy I take 2 teaspoons of bee pollen and/or GS histamine --- In low dose naltrexone , " Nicky Q " <nlealand@t...> wrote: > Reg-- and all others in Canada.. What supplements are you taking? I'm interested and having trouble finding some of the recommended ones mentioned here in Canada? So far I'm just on Evening Primrose. > > Nicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 Last year I found a new liquid multivitamin from The Awareness corp. located in B.C. which has all the vitamins and minerals you could ever need right in one, one ounce easy to take drink. I tried to write down all the ingredients but it would take me an hour or more. I do suppliment this with Vitamin "E" 900mg.and "D" about 1000iu also chromium picolinate for my sugar addiction and benfotiamine for "luck". The awareness corp has a web site and I really like to take my vitamins this way its kinda like drinking staight orange juice. Reg. -------Original Message------- From: low dose naltrexone Date: 05/27/04 09:11:45 low dose naltrexone Subject: [low dose naltrexone] Reg-Supplements Reg-- and all others in Canada.. What supplements are you taking? I'm interested and having trouble finding some of the recommended ones mentioned here in Canada? So far I'm just on Evening Primrose. Nicky ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
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