Ok, finally - My 7 day report on LDN

[Guest guest]

Hello everyone - Im so very happy at this moment, and optimistic

about my future due to LDN, and after 15 years of MS, even during the

early stages when I was still able to walk with a cane, NOW I feel

happy and positive that im doing the right thing and this group has

lifted me up so much - like a big family.

Ok, my LDN progress report (im on 3mg, 11pm every night - crushed

50ml tablet in 50ml distilled water - measured out with syringe). I

have simultaneously reduced my Baclofen from 25mg 3 times a day to

half that, 3 times a day, I have maintained my Lipitor (statins) at

the same dose due to reports of statins helping MS - plus I have to

lower my cholesterol levels. I have also simultaneously reduced my

Aropax (paroxetine) anti-depresseants ive been taking for 3 years, to

half a dose in the morning - these are my findings/experiences so far:

In the first 24 hours, no noticeable change in flexibility,

stiffness/spasms, balance or energy levels except overnight instant

benefits after first dose, slept right through, and didn't have

bladder problems, incontinence to wake me up. Normally, before

LDN, woke up 1-2 times for toilet visits, and mostly, already leaked

on my 'protector sheet' just before waking. No problems on this

first night - My husband told me I was very quiet in my sleep and for

the first time in the time he's been sleeping with me, I didnt SNORE!!

On day 2, my head felt alittle 'high in the clouds' and the changes

and benefits began. Energy in the morning and during the day was

markedly improved, transfering into bed, car, shower, and loo,

quicker and more fluent without the need to concentrate on balance

and strength as much.

Day 3, every time I stood up out of my wheelchair, i wasn't bend over

like a L shape, I stood up straight and felt my back muscles working

stronger. In the shower, I have a shower chair i transfer onto with

grab-rails on the sides - and prior to this 3rd day on LDN, even just

shampooing hair or trying to wash my legs, feet, back etc i use to

hold on with one hand to balance and twist and bend to prevent

falling - NO MORE!!! I sat upright, reached the various shampoo/gel

bottles, soaps without holding on to rails, bent down to wash feet

very easily, and NO SPASMing due to the sensations of water

temperature/wash cloth etc stimulating the skin/nerves. No tight

banding feeling in the backs of legs when bending. Energy rating out

of 10? 8 - a very good 8. Normally, I would rate between 2-4.

Day 4 - So easy to dress myself (and please note, I do all my

activities from a seated position, with standing up intermittently

etc) Before LDN, when dressing myself, balance, spasms and tightness

prevented me from moving easily to get dressed and picking my feet up

to put shoes on, trousers etc was exhausting and stressful. NO

MORE. My body is more supple and alot stronger. My balance is

terrific, even with my eyes closed. Husband told me still no snoring

and the added bonus? I normally spasm and twitch and have been told

at a sleep clinic study I have restless leg syndrome. My Husband

told me I sleep completely still, no leg jerking movements anymore.

Day 5 - as well as all of the above improvements continuing, my

complexion has improved, skin is more smooth and soft (normally dry),

I have a radiant glow, and noticed my hair is looking healthier and

my nails stronger with more sheen? is that possible in such a short

time? they almost look like fake nails - normally they were chipping

and dull. Energy rating 8/10 again. No sleepiness or fatigue

whatsoever during the whole day. Very strange for me. I feel like a

teenager again.

Day 6, same - energy rating about a 7 this time. I was at work, and

by about 3pm, wanted a short nap, but not sleepy, more of a power nap

for about 20 min - to recharge. I still cant believe this is me not

lethargic anymore.

Day 7 All good still. A strange hunger pang at 4-4:30am woke me up -

If i didnt find something to eat immediately - I was willing to get

into my car and go to the nearerst 24hr drive-through fast food - I

ate some left over pasta primavera from night before, once i ate, was

craving sleep again. It was funny. Energy rating during the day

9/10 - best so far. Getting back into my car after work in the

afternoon, I worked up a perspiration like i did a short aerobic

session - and it was a good feeling - I can't remember when I last

perspired.

Day 8 (this day of reporting) Last night I awoke at exactly the same

time as previous night with the same intense hunger pang - I tried to

ignore it, and fall asleep again, but it was stronger than me and I

gave in after half an hour of trying to ignore it. I ate, and went

back to sleep immediately.

In looking back on the last week, I am an extremely happy and changed

woman. Im staying on LDN at 3mg for at least another 2 weeks as it

is extremely well tolerated, and then i will consider whether to up

the dose to 4.5mg.

During the last 7 days on LDN, I have still had spasms in the initial

stages of getting our of bed in the morning - and after half an hour

of alittle tightness in muscles in the morning - all subsides. I

will be going to the doctor to get 10mg tablets of Baclofen now, as

the 25mg are not needed.

The only other time i have tightness and stiffness is after sitting

at work (data enter all day), without standing or being active - I

notice my poor legs get stiff as i get back into the car - as they

haven't been moved all day. My fault for not standing and

stretching.

Seeing in the last 6-7 years I have had stiffness and difficulty

reaching, moving, standing etc without spasms - truly, this

little episode in the mornings and afternoons getting back into my

car is NOTHING compared to what im use to.

Ok, next report will be only if there is another significant change

or problem ( I doubt that very much). thanks guys,

Friday

p.s. I sure am glad I found that negative article on MS society and

LDN statement and posted it here, the response has been terrific and

the Little Dark kNights'(LDN) army is building strength. I'm not as

pissed off anymore, due to your responses, im energised and raring to

fight.