HEP C

[Guest guest]

Thanks for clarifying that . I guess I was thinking about hepatitis A too, which can be spread through food or other means, can't it?

----- Original Message -----

From: naturalbeauty38

Sent: Saturday, October 18, 2003 7:04 PM

Subject: Hep C

Actually there would seem to be NO WAY you could get hep C from just implants alone. The only way would have to be if the Dr used some dirty instruments that had been contaminated, or used implants or something dirty like that. Hep C is a blood born pathogen so it would have to be passed on via blood to blood contact, but anything is possible in that respect, Hep C is incurable, but there are treatments and ways of keeping it at bay.Sorry not to have more info but I do know a good amount about these type of illnesses and do not believe implants themselves could possibly have cuased this. I have to say that often times, it is an ex lover, past iv needle use, and other blood contact with infected individuals that are the culprit.HugsC

[Guest guest]

Hi there,

Saw your post- I don't have a ton of experience yet as I was just dx'd about a month ago with HCV. Fortunately, my spouse

and children came up neg. for the virus! I am waiting to find out my genotype and have a liver biopsy (ugh) sched.'d for July 8th. I do know my viral load is just over 800,000 which puts me in a borderline category for either responding well

to standard treatment or not responding well at all. My liver panels look almost completely normal so the doc thinks I will probably not need to be treated for now..??

Thanks to a very good friend on this board who has MS, I have discovered a sizeable amount of info on LDN for HepC. You combine the LDN (usually around 3 mg per night) with HY2 (a pharmaceutical grade Hypericin which is a component of St. 's Wort, latin name Hypericum. HY2 is manufactured by Pacific Biologic in Clayton, CA; 800-869-8783). The recommended dosage of the HY2 is 2-7 caps per day depending on patient tolerance. I'm still researching that one, it must be due to a side effect, probably nausea? If I get any more info I'll let you know.

Just the fact that this therapy requires no injections, no chemo or chemo-like treatments has me jumping for joy. I am hoping it is my first-line of defense. They will have to drag me kicking and screaming to the treatment room for interferon injections unless my biopsy shows it is the only thing that will save me from a transplant. But I am not expecting that to happen.

My Hepatologist here in Seattle is not too close-minded and has agreed that if my biopsy shows me to be in the "watch and monitor" category as he suspects I will be, then I can do the LDN treatment if I want. His words "it can't hurt, can it? and its your body". I'm pretty sure he thinks I am a bit nuts but I'll take that as a GO AHEAD. My PCP is behind me 100%- she just wants to research a bit- she is very supportive, but she is also in to sending her patients to Naturopaths, so I have struck gold with her. I would love to start the LDN therapy NOW! because of other auto-immune issues and a chronic neurlagia/fibromyalgia/Behcet's Disease or whatever it is. Still cannot get my docs to agree on the etiology. Still have not ruled out MS either as I have some neurologic symptoms-so I see a neuro that specializes in it soon for a full workup.

But I believe it would be best to wait until my biopsy is complete to start the LDN- so I can see a clear picture of my liver health before starting LDN- that way I can compare later on. If I respond well and my viral count drops considerably it might be enough to get my Hepatologist to take the info to his friend at UW, maybe get a clinical trial started? One can only hope.

Anyway here are a few links that were passed to me and feel free to email me directly:

http://home.earthlink.net/~dflomer/LDN/ this is the site of our own beloved Sam (Redtruck99)- this is a

survey she maintains and the statistical info about LDN and MS, while anecdotal, turned my PCP's head.

In Sam's own words "Docs love statistics!" and she is absolutely right.

www.ldninfo.org a link to Dr. Bihari's site- the pioneer of LDN - has a page outlining the response of 60 HCV patients on LDN- all kept their viral loads nearly undetectable and are doing well.

http://www.heptrec.org/ this site is basic- doesn't mention LDN that I can recall- check it out and refresh my thyroid-deficient brain...

Sam found some more on Bihari's Hep C work, do ctrl+f on "Hypericin" on this page, says it is very positive on lowerviral level: http://www.thebody.com/pwa/NFUwin98-99/hepatitis_tx.html (I haven't had a chance to check this one out yet)

This one has a few more details and was most useful to me:http://disc.server.com/discussion.cgi?disc=148285;article=36609;title=Histamine%2C%20LDN%20and%20%20Alternative%20Therapies%20for%20MS

I showed this page to my PCP and it turned her head.

I am in the process of trying to acquire the HY2- will be calling the manufacturer this week. My local pharmacy has offered to order in anything I need if they can get it- and I have a family member who is a pharmacologist as well- he is researching for me, too. Worst case, I will order the LDN from a compounding pharmacy as others on this board have done.

If you'd like, we can put our heads together and see where we get.

I'd also love to see if we can't start up our own group for HCV patients on LDN therapy as an off-shoot of this group.

Interested? I know a few others (Vicki, Sandy!) who have messaged me wanting HepC info for friends so maybe they can pass my email address on to those patients and we can all work together.

Just let me know! Then Aegis will hopefully help me figure out how to get the LDN for HCV site set up? *hint hint* ;-)

Best to you,Lara

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Message: 17 Date: Mon, 31 May 2004 22:45:35 -0000 From: "WhiteFinn" <gllz@...>Subject: LDN for Hep C?Has anyone in this group had any experience with LDN as a treatment for Hep C? If so, please elaborate positive or negative